Dam you Doctors!

[SidiousUK]

Rant time,

So, I have had an appoinment schduled with the "nut doctor" for 5 months now. Sitting patiently, waiting, spending my own cash to get a diagnosis.

 

All was well with the world. Then enter the stupid carbon based lifeform!!!!

 

So I recieve a letter reminding me of my appointment. Correct time, correct date, correct place. INCORRECT DOCTOR!!!!!

 

On challenging them I was told that was I sure I had an appointment with Dr X, to which my reply was "yes" as I have it in writing from you.

So I am now told it must be a mistake - Like it's only taken you five months to ruddy notice!!!

 

So off I will go to see Dr Y (My 3rd doctor at this shambles of a clinic) and the last time they made me an appointment to see Dr Y, I got there and they denied all knowledge of the appointment!

 

Yet again I end up going to this ruddy place, annoyed before I even get there, to repeat my story for a 3rd time!!

 

They have been warned that if I get there and all knowledge of my appointment is denied then World War 3 is going to start!!

 

These places are supposed to help you. Well I have had no help at all from the medical profession at all so far.

Think I will open a pack of cornflakes and see if I can find a free medical degree.

 

What;s the problem, Is it that as I am not:

under 18?

A druggie?

An alcholic ?

Of an ethnic minority?

Threatening to kill myself?

 

Someone is going to get a blast of wrath tomorrow!

[darkshine]

Just wanted to say I know how this feels - last time this happened I quit the service for a year (which didn't help as I had not resolved my problems) and then I still had to repeat myself half a dozen times when I re-entered the service as nobody seems to be able to communicate - or they are incapable of reading my patient records!!!!!!!!!!!

 

Hope you don't get messed around more

 

Best

 

Darkshine

[SidiousUK]

They will have a stark wake up call tomorrow.

 

Apparently I am in a queue of people who they deem don't need much help and can quite happily go about our business. As opposed to the queue of people that need constant help and I quote "Teenagers with problems managing stress or bullying"

 

My diagnostic report says otherwise, and among other things states quite clearly that my condition is having a siginificant impact on my day to day life.

So as far as I am concerned they can put me in the high dependancy queue and kick out a teenager whose only concern is what tattoo to have or someone is picking on them 'cos they dyed their hair pink! (and I know of a case like this!)

 

Five months between appointments is a ruddy joke!

 

After 40 years of putting up with the world and constanting having the p*ss taken out of me I am not changing anymore and I should not have to threaten to kill myself or pull a "Kevin" tantrum in order for them to take notice and supply the service for what my significant tax and NI contributions pay for.

 

See. I am annoyed before I even get there and have to mix with Carbon based lifeforms

In the words of my favourite green person - "Hulk SMASH!"

[LancsLad]

Sidious know how this feels.

 

A few years back I had a run of three appointments at which a consultant failed to turn up without leaving even a message. I was so pissed off I simply refused to engage with the service. As a result of not having a consultant I lost my small amount of Disability Living Allowance because I had no one to write the paper work I needed to support my case. Years on I have now found out that because I was not recieving DLA I was not entitiled to Incapacity Benefit, and as a result I am facing having to repay £16,000 and having to go to a tribunal to fight my corner in the next few months. All of this stems from the fact that I got fed up with a system which constantly let me down and did not fully understand the consequences of walking away from it in disgust.

 

Next week I have an initial review with my local mental health service, that appointment has taken 16 months to come through, I am pretty sure they will try to fob me off because I suspect I have been able to get this far in life without them.

 

Might be in the same boat though next week, can feel my own rant coming on.

[SidiousUK]

Good luck LancsLad

 

If I were you, I would ask for written confirmation of everything (perhaps take a tape recorder with you) This seems to stop people promising the earth and make them think what they are saying.

 

Seem to be a case of p*ss you off so you leave of your own accord and don't become a failed statistic mark on a piece of paper next to their name.

If you want to rant, rant away - I will help if I can

 

Think I will write to the chancellor and tell him that I refuse to pay anything to the NHS as and the goverment have broken their contract with me - a contract that I did not sign or have any say in at all.

[robert7111a]

Sidious UK

 

It is common practice in the NHS for an appointment to see a named consultant but end up seeing one of their team instead (i.e. a less senior doctor). Or the named consultant decides for some reason or another that he cannot do that particular clinic so either the clinic is cancelled or a less senior doctor stands in. Depending on which district you live in, it is common for appointments to "get lost in the system" The NHS is in a bit of a mess at the moment with a confused and less joined-up service for which only the Government are to blame for their incessant meddling.

 

I only hope that this was not normal practice for your service and somebody will take you seriously. If you are new to this service, then a named consultant has to see you in the first instance. Have you heard of Consultant X and what his/her speciality is?

[SidiousUK]

Yes Robert I have heard of Consultant X before. Like the time I needed to see someone urgently and they booked an appointment with consultant X only to denie all knowledge of the appointment when I got there.

Funny how I seem to be a lost appointment or cancelled clinic magnet!

 

They are going to take me seriously otherwise there will be serious repercussions for them - Object will have flying lessions probably followed by a carbon based lifeform doing an impression of Superman out of a window.

 

The point I am making is that I have helped myself. Other than perscriptions for the latest magic tablet, the medical profession has done nothing!

 

It seems to be that becasue I can help myself and use my resources (namely money), that I am OK and can be mucked around and shuffled between queues to meet some goverment quota.

LIke a good little drone, I pay my dues, obey the rules and get less to show for it than a common criminal.

 

Everytime I got to this place I am more annoyed when I leave than when I got there. I don't have anger management issue. I just don't suffer fools.

[robert7111a]

Indeed, knowlege is powerful and knowing how the system works is king! It's good you can remain calm(ish) given your circumstances but do stand your ground and stand up for your rights. Half the people working the system don't know what they're doing and they have no empathy towards patients they muck around...they're just a number...

 

Hope you get what you want (and deserve!)

[lucinda ferguson]

i can understand why people get upset and impatient with the NHS i got told three years ago by mental health worker i am highly functioning aspergers thats what was causing my problems at the time according to her ,i had never heard of aspergers before that ,i just couldnt understand why so many people wanted to kick me in in the past and always have known i a am different after really bad time at college falling out with lecturers ,making a bullying and harrasement complaint against a lecturer then falling out with another over the normal problem i have with social groups ,theres always people turn on me in social groups so i have decided that any kind of social group for me doesnt matter what it is it will go wrong theres always someone takes real dislike to me then i go sort of childish and give up, amazingly i am very sociable one to one but any more than that it always doesnt work,i am digressing three years later i still dont know if i am on aspergers spectrum because wait for it the psychiatrist who seen me in 2006 when i told them i wanted a sex change said that he didnt notice it so therefore they dont want to see me ( iam transgendered female by the way)after the really bad time i had at college recently i went back to doctor so hes written to psychiatrist again see if they can see me if they could tell me one way or the other would be very helpfull for me as i have become somewhat obseessed with wether i am or not but personally what i know of it i think im sort of nearly on it ,trying to expplain to myself why i have had such a rough life ,might be helpfull ,I find NHS pain in the neck its pure mystery to me how it works ,lucinda

[SidiousUK]

Study for years to be a doctor? Does that include a degree in bulls**it and stupidity

 

After 5 months of waiting to see them I get:-

"So you have had your diagnosis, was it Aspergers Syndrome?" - Idiot DR

"Yes" - me

"Well I will discharge you from here as you need specialist care and we only really cater for depression and anxiety" - Idiot DR

 

Why the hell do you think I am on anti-depressants. Anti-depressants perscribed by them - What a complete moron

 

5 months waiting for that!

Didn't even bother to read the report, Didn't bother to perscribe me anything else when I told them one set of tablets were not working either.

He just seem more concerned about discharging me from their care and would not answer any questions I asked regarding time scales.

 

So he perscribes the exact tablets (including the ones that are not working) tells me to increase the dose and then discharges me from care!

 

So again I am in ruddy limbo land.

 

Now I have to wait for that IDIOT to write to my GP and get her to secure funding for me to be treated elsewhere.

Another long wait thanks to NHS procedures. And the idiot said it will probably be a hospital in London. Me in a metal tube with loads of people - I don't think so! and I can't even claim back any travelling expenses as I earn too much!(London is a bit ot a trek for me).

Can't they get it through their thick heads - I avoid people at all costs and don't go on telling me people are generally good. Not in my experience they aren't!

 

Anyway

Spoke to a nice guy at a local organisation for people with ASD when I got back and he says they can't treat me like this and he is also going to get social services as I live on my own I may be classed as a vunerable adult. Not sure about vunerable, emotional maturity of a 5 year old may be.

[darkshine]

I wish what you just said came as a shock to me but sadly it doesn't.... I am still performing my own rendition of some flaming ballet dance between mental health issues and AS - and its tiring as I aint no sodding ballerina

 

Limbo is not great...

 

 

Hope this guy at the ASD organisation gets somewhere in helping you

 

Regards

 

Darkshine

[Sa Skimrande]

Oops, reference there made to take a voice recorder, er, I do whenever I have to interface with the professionals and when I get home I download to my computer to keep a record for future reference, even the ASOS assessment was recorded and found to be incorrect, an agency has a copy of that recording now for what they plan to do with it.

 

You see given the amount of carp I have received from so called professionals, I have become very cynical and reactionary, because too many times I have been told it is me that is in the wrong not them, so now it is paperwork up the yinyang as proof to be thrust in faces and recorded conversations to embarrass.

 

Oh and although I do try to be positive about meetings, it does not take long before that diminishes, but I am never rude to anyone, but I do have the ability to ask very pertinent and scathing questions and I do of course engage the glazed stare when needed, it has it's uses.

 

But the NHS, a hidey hole for the well paid ineffective in most cases, but we would be lost without them, as can anyone imagine the American system where the poor get nothing or at best what limited charity provides.

Edited June 20, 2012 by Sa Skimrande

[robert7111a]

Don't tar everyone with the same brush, it is not the NHS's fault - it is the government's fault who want rid of it.

 

I could be really negative about my problems but choose not to as it would get me nowhere. You have to go your own way in this world, listen and observe others.

[robert7111a]

BTW my first paragraph above was a rant - somehow the "rant on/rant off" got edited/went missing from the sentence

[Sa Skimrande]

Don't tar everyone with the same brush, it is not the NHS's fault - it is the government's fault who want rid of it.

 

Neither do I, I still have some hope left and belief in people to actually care, but as to the NHS, it has not always been that the government wanted rid of it, but still questionable people have always worked in it, so it is a safe hidey hole for many who would simply fail in the private business model where others thrive and make their fortune.

 

We have all experienced them, the rude, the condescending, the arrogant and the incompetent, really they do not do their organisation any favours., but unless we are fortunate to be able to pay for our medical care, we are stuck with what there is and how bad it is in some quarters.

 

My recent experience with the NHS, well through a severe lack of communication and I understand a fear of asking for clarification NHS operatives wasted three sets of equipment to get one job done, now I priced that equipment, it was not expensive even at non discounted rates, but still it is money wasted in not one instance, but three instances with one patient, how many other patients also experience wasted materials. All this down to a perception that there was a fear to contact the consultants for clarification, are they that important ?

[trekster]

im still waiting for someone to confirm and treat my CPTSD without that help i have no chance of finding or sustaining work. i hate the MH problems associated with ASD!!!

 

Another problem is my use of my wheelchair is being considered a MH problem. I have HMS and the government DWP guidelines on HMS states that 'severe cases may require the use of walking aids such as a wheelchair'.

 

As ive said to many before, i dont have a problem with my disablities (except the MH ones which i need erradicating as have had most of my life), i have a problem with societies attitudes to my disabilities. i am doing what i can to meet people 1/2 way by going gf/cf/msgf/aspartamef and pineapple free.

Edited July 6, 2012 by trekster