karmadestiny Report post Posted October 10, 2012 (edited) Hi everyone, Kris Just to introduce myself, My name is Yasmin...I am a mum to an 11 year old with Aspergers Syndrome and ADHD...The last few years have been very tough and going through them on my own without any help and support from specialist services has depleted me on all levels...but knowing how importnat these years are for my son to have some sort of foundation to build on spurs me on...I am also a full time carer for my in-laws who have both been through the mill, the last 3 years or so and now also care for my parents aswell who have both taken ill the last year...I spend most of my time either caring for them or running to and fro from hospitals and surgeries...this situation has been a great challenge as it is hard to be there for everyone, including my son on emotional levels... My son has recentley started his Secondry education (senior school) this year which was something that scared the living daylights out of me...I tried to get him into a special school but not having him statemented earlier created alot of red tape and a vicious circle of conflicting information, that lead to him being placed in a mainstream school again, but luckily the school we chose is small compared to other schools and he seems to be settling in pretty well...It is a blessing to know at least that he has made friends from the very first day of induction and hopefully this will carry him through... Since his not academic it will be a tough road to travel...I joined this forum to ask other parents or prefessionals on this site of different ways of teaching a child with Autism...I am looking forwards to interactions with other parents to learn and also look forward to making great friends... Kris, you seem to be an amazing person, for you to take your precious time and energy and use it this way to not only help your friends child but those of us who are struggling with trying to understand how to help our children through the minefield of life the best way possible, I can only say a hearfelt :clap: thank you! Edited October 10, 2012 by karmadestiny Quote Share this post Link to post Share on other sites
Nobody Report post Posted October 10, 2012 Hello KarmaDestiny and welcome to ASD-forums Quote Share this post Link to post Share on other sites
Starlight Report post Posted October 10, 2012 Hi, I am a mum to a 7 year old only diagnosed yesterday with ASD. I also specialise in teaching children with needs that are special. So if there is any particular issue regarding teaching I will try and help you out. Starlight Quote Share this post Link to post Share on other sites
Dijac Report post Posted October 10, 2012 Hi karmadestiny I am also mother to an Aspie (13). We are English, but live in France. He is academic, so lessons at school are easy for him ,but the playground and canteen are a different matter. I can't imagine dealing with him, and parents and in-laws. It sounds like you have your hands full. Welcome , Diane Quote Share this post Link to post Share on other sites
rufusrufus Report post Posted October 10, 2012 Hi and welcome Quote Share this post Link to post Share on other sites
trekster Report post Posted October 11, 2012 (edited) Welcome to the forums, One of my closest friends is ADHD and Aspergers. He's into practical things more than written and quieter subjects. Your son could be very bright but find the environment in which he's expected to learn overloading for him. Below is a link to the Every Disabled Child Matters campaign. http://www.councilfo...ren.org.uk/edcm Phone: 0207 843 1900 Email: cdc@ncb.org.uk Post: Council for Disabled Children, 8 Wakley Street, London, EC1V 7QE Fax: 020 7843 6313 Theres also National Parent Partnership http://www.parentpartnership.org.uk/ An excellent book i can recommend that combines ADHD, Aspergers and other 'neurodiverse' disabilities is called 'Multicoloured Mayhem' by jacqui jackson. There is even a section in there about ADHD meds and possible pros and cons of each type of medication. There are also books about Sensory Processing Disorder (there's a thread on the 'related conditions' section of the forums) which can be associated with ADHD/aspergers. Olga Bogdashina (a parent and author) has written a few books on autism including ; 'Sensory Perceptual Issues in Autism and Asperger Syndrome: Different Sensory Experiences, Different Perceptual Worlds' You might wish to google 'autism sensory toys'. Also see if you can get a sensory assessment from an OT if not already done, they are really difficult to do in adulthood. Some folks find weighted blankets/vests beneficial to them as they reduce or prevent sensory overload. Edited October 11, 2012 by trekster Quote Share this post Link to post Share on other sites
karmadestiny Report post Posted October 11, 2012 Hello KarmaDestiny and welcome to ASD-forums Ahhh, that is a very cute baby pic:)!....Thank you so much for your kind welcome, I look forwards to knowing you all through dialogue and friendship... Quote Share this post Link to post Share on other sites
karmadestiny Report post Posted October 11, 2012 Hi, I am a mum to a 7 year old only diagnosed yesterday with ASD. I also specialise in teaching children with needs that are special. So if there is any particular issue regarding teaching I will try and help you out. Starlight Hi Starlight, firstly I love your name:)...I may take you up on my sons learning issues, at the moment I need all the help I can get, believe me...I'm kinda trying to figure out were his at, I think we may have parent evening next week...Since his started year 7 I'm not sure if his allocated any help...they also have a parents support group set up at his school, I'm joining it tomoro morning, hopefully I may be able to get some help for him...How long did it take for your son to get a diagnosis and how are you feeling about the diagnosis if you don't mind me asking Starlight?... Quote Share this post Link to post Share on other sites
karmadestiny Report post Posted October 11, 2012 Hi and welcome Hi rufusrufus, thank you so much for your welcome, hope to get to know you better soon...Take care Quote Share this post Link to post Share on other sites
karmadestiny Report post Posted October 11, 2012 Welcome to the forums, One of my closest friends is ADHD and Aspergers. He's into practical things more than written and quieter subjects. Your son could be very bright but find the environment in which he's expected to learn overloading for him. Below is a link to the Every Disabled Child Matters campaign. http://www.councilfo...ren.org.uk/edcm Phone: 0207 843 1900 Email: cdc@ncb.org.uk Post: Council for Disabled Children, 8 Wakley Street, London, EC1V 7QE Fax: 020 7843 6313 Theres also National Parent Partnership http://www.parentpartnership.org.uk/ An excellent book i can recommend that combines ADHD, Aspergers and other 'neurodiverse' disabilities is called 'Multicoloured Mayhem' by jacqui jackson. There is even a section in there about ADHD meds and possible pros and cons of each type of medication. There are also books about Sensory Processing Disorder (there's a thread on the 'related conditions' section of the forums) which can be associated with ADHD/aspergers. Olga Bogdashina (a parent and author) has written a few books on autism including ; 'Sensory Perceptual Issues in Autism and Asperger Syndrome: Different Sensory Experiences, Different Perceptual Worlds' You might wish to google 'autism sensory toys'. Also see if you can get a sensory assessment from an OT if not already done, they are really difficult to do in adulthood. Some folks find weighted blankets/vests beneficial to them as they reduce or prevent sensory overload. Hi Trekster, Thank you for the links I will look into them...there is so much information and medical jargon out there sometimes it just over whelms you and its difficult accessing the right information and help...because of my caring duties I don't have much time to surf the internet and sift through stuff...My on was placed on meds a year or so after he was diagnosed when he was 7, it took 3 years for him to be diagnosed, I personally didn't want him on meds and wanted help to understand his condition in order to help him in other ways but reluctantley because of his aggressive behaviour towards other children I agreed to give it a go...but it only resulted in him becoming more withdrawn and in a severe groggy state throughout the day...his meds were tinkered about with for a couple of years but thankfully his year 5, primary school teacher intervened and asked me to have him removed from meds so that she can work with him...she noticed when he would miss his dose there would be no difference in his behaviour...unfortunatley she left within 3 months of working with him...luckily he started to settle down and make friends, well ( God works in mysterious ways) his bullies (who bullied him since he started school) became his best friends and his aggression against other children became almost non existant...His 11 years and 6 months now, his been off meds for the last couple of years and personally for me I think it was the best thing ever...now at least his mind is not clouded and I can work with him much better... I know and can feel he has potential its just seeing it and helping him utilise it..its not easy when the other half is stuck in time and cannot fathom whats going on or how important it is to work with the child and his needs... Quote Share this post Link to post Share on other sites
karmadestiny Report post Posted October 11, 2012 Hi karmadestiny I am also mother to an Aspie (13). We are English, but live in France. He is academic, so lessons at school are easy for him ,but the playground and canteen are a different matter. I can't imagine dealing with him, and parents and in-laws. It sounds like you have your hands full. Welcome , Diane Hi Diane, I have a friend called Catherine whose also English, has a 5 year son who's not diagnosed yet but she feels all the symptoms are there, she lives in France too in a small idyllic village...Shes been finding it hard over there with the French people's attitidue in regards to proper manners etc, how are you and your son finding it? Its nice to meet so many great people all in one place:) Quote Share this post Link to post Share on other sites
raydon Report post Posted October 11, 2012 Hi Karmadestiny I hope you find what you are looking for here, welcome Quote Share this post Link to post Share on other sites
darkshine Report post Posted October 11, 2012 Hello Quote Share this post Link to post Share on other sites
karmadestiny Report post Posted October 12, 2012 Hi Karmadestiny I hope you find what you are looking for here, welcome Hi Raydon, thank you for the welcome, I know if nothing else I will find like minded souls to help me in my journey...Sometimes just a smile and a positive thought can do wonders for the spirit don't you think?... Quote Share this post Link to post Share on other sites
karmadestiny Report post Posted October 12, 2012 Hello Hi, hope to get to know everyone better... Quote Share this post Link to post Share on other sites
Starlight Report post Posted October 12, 2012 Hi Starlight, firstly I love your name:)...I may take you up on my sons learning issues, at the moment I need all the help I can get, believe me...I'm kinda trying to figure out were his at, I think we may have parent evening next week...Since his started year 7 I'm not sure if his allocated any help...they also have a parents support group set up at his school, I'm joining it tomoro morning, hopefully I may be able to get some help for him...How long did it take for your son to get a diagnosis and how are you feeling about the diagnosis if you don't mind me asking Starlight?... Hi, It only took 16 months for J to get diagnosed which is quick I think compared to others I know- but I went through the doctor and straight to paediatrics -Children's Development Dept.( the Educational Psychologist advised this as it would be quicker than through the education board). I'm delighted that he is diagnosed now, some people seem to think it is a negative to give him that label when it is a milder form but I disagree very strongly. I think can be even more difficult or dangerous when it isn't clear to everyone that there are underlying differences. It is much more easy for behaviours to be misinterpreted. Also my son is becoming more aware and seems to be realising that he can't do some of the things his brother can and maybe that he is different. He is too young to really know what is in his head. At least a diagnosis offers a degree of protection and he will now be getting support which will hopefully make his journey through school and life easier- which is all I want. I can only go from my own experiences and I feel my life would have been very different if I had understood myself and why things happened. A lot of self-esteem and confidence issues could have been avoided with a diagnosis and career planning would have benefitted from this knowledge too- of course this wasn't possible as Aspergers didn't exist in the 80's! Starlight Quote Share this post Link to post Share on other sites
