darky Report post Posted October 9, 2005 hi there, i just wondered if there was anyone here who knows about fragile x and how and where a person can get tested for it? can it be done private? how much does it cost? and what about nhs? please, any information would be gratefully recieved. Quote Share this post Link to post Share on other sites
Brook Report post Posted October 9, 2005 (edited) Hi Darky, our paed who my son is under routinely tests for fragile X when a dx of ASD is made. (NHS) Brook Edited October 9, 2005 by Brook Quote Share this post Link to post Share on other sites
helenl53 Report post Posted October 9, 2005 Hi Darky, I know we spoke abouth this today, but type in Fragile X on the search on this site as I remember last year quite a lot of discussion on the subject. We have got to do coffee soon Please win the lottery Love Your pal HelenL Quote Share this post Link to post Share on other sites
Malika Report post Posted October 10, 2005 Hi I have requested a test for fragile X for my son 3 weeks ago he has been refer by my GP to an hospital specialised in genetic testing and DX, now I just have to wait it may take around 3 month to get an appointment. But bear in mind that DNA test can be quite expensive. Found this web site useful but is american, if not you have the Fragile X foundation UK. Malika. http://www.fraxa.org/contactus.aspx Quote Share this post Link to post Share on other sites
Fagsandbooze Report post Posted October 10, 2005 my son was tested for fragile x after he was diagnosed with aspergers. The nhs consultant who did the diagnosis referred him. Quote Share this post Link to post Share on other sites
faye Report post Posted October 10, 2005 When my son was diagnosed with ASD she routinely tests for fragile x (his paed consultant) he had the blood test with much kicking and screaming got results back and he doesn't have it Quote Share this post Link to post Share on other sites
Malika Report post Posted October 10, 2005 Hi, another link about fragile x with so many informations. http://www.fragilex.org/html/home.shtml Quote Share this post Link to post Share on other sites
