How long did your dx take?

[OPooh]

Was just wondered as it's only by completing the ASD survey that I discovered that most people take 3 years.

[neda]

I'm new to the forum and have not came across any set time as yet, only thing EP said was that it could be a long process but I thought he was indicating 6-9 months. I really hope 3 years isn't the norm:crying:, but then again I don't think my EP is the greatest and I'm only at the start of the road which needs to be travelled.

 

Can you tell me where you done the ASD survey.

[Flora]

With my AS son it depends when I count from. If I count from the very first time I voiced concerns about his development and odd ways, then it took us 6 years. However, if I count from when the school asked for him to be seen by an EP it took the EP one hour, and then 2 or 3 appointments with CAMHS 3 months after the EP assessment.

 

It seems that every experience is different. For us once we were in the system it was quick and fairly painless; but I do know for others it's been a very long drawn out process to get a definite dx.

 

Good luck with it all. You'll get some diamond advice on here.

 

Lauren

[nellie]

Someone started this poll in October.

 

 

TIME TO GET DIAGNOSIS

http://www.asd-forum.org.uk/forum/index.php?showtopic=3822

[Lynden]

For us not long really compared to some. We started having concerned about Logan before he was a year, but first had him referred around 14 months. He started having SLT and physio around 20 months, and was informally diagnosed just before he turned two. We got a formal diagnosis last week at 2 and 3 months.

 

Lynne

[LittleRae]

6 months from when teacher referred to EP until assessment. 2 months after that to get definitive diagnosis(went private) - in Ireland

[OPooh]

sorry didn't think to do a search. Will look at the poll. Thank you.

[lindy-lou]

i first went to see my health visitor with my concerns when india was about 14 months old and was referred to a behaviour nurse who came to my house asked some questions and then i never heard from her again,went to h.v again and asked for referral to paedatrician in june this year and saw her in august,started assesments at child development clinic beginning november and had diagnosis last week.so it hasnt taken me a long time really.

[DAS999]

My girlfriend has had problems since she was very young. (didn't talk till 5 according to her dad) but nothing was ever done. mainly due to her parents embarrisment (which they now regret) and constant move of house and school. Her diagnosis cam about after a massive melt down and she just stopped talking for days and I could not cope and she could not cope. We sat down (after she started to talk again) and decided together to go to the GP. GP sent to psychiatrist, Psychiatrist sent to Physcologist, Psychologist diagnosed HFA / Aspergers. Border line between the two as she talks (most of the time) and IQ is only slightly low but has too many traits and behaviours to be just AS (** Please note, these were the doctors words, not mine**)

I could say it too 20 years for a diagnosis but from the time testing started 4 months.

[baileyj]

Spoke to HV in June, referred to CDC immediately, started assessment in Sept, DX in Dec, so not too bad really.

 

Jo

[Suze]

6mnths for us I think due to a very very sharp decline in general, depression etc

[OPooh]

I could say it too 20 years for a diagnosis but from the time testing started 4 months.

OMG I am sorry it took that long.

[Mother in Need]

It took many years for my son to be dx'ed, from general concerns that the school just ignored to asking GP to refer, had to change GP and keep diaries and take video clips, and still then it took self harm before he was finally seen by CAHMS. Then it took 3 months to get his dx, and then still 3 more months before he was put on medication and then still more months till we finally got the psychiatric help that we have now.

[KarenM]

About six months from my first vist to GP and getting reffered to pchycologist. Karen

[LizK]

Concerns around the age of 12mths regarding speech development, saw SLAT at 20mths, no major concerns then but monitored. Sawo Community paediatrician when he was 2yrs 8mths as still had speech delay and issues with socialisation. Referred fro further speech therapy, Early Yrs Team involved and 3-4mths appts with paediatrician. At appointment last week paed gave the diagnosis of ASD. Thought might have a battle as EP didn't want to diagnose yet but luckily paed ignored her opinion and went ahead.

 

So about 16-18 mths from referral to paed to diagnosis. Paed wouldn't give formal diagnosis before then because of his age and the natural variation in child development. Also he was unclear whether DS had a primary speech problem accounting for some of his symptoms and also wanted to see if he matured out of them as he got a little older. However as time has marched on neither has been the case and we are reaching a point where a diagnosis would be more beneficial for the help DS gets so it happened

 

Lx

[rainbow queen]

my nephew was recently dx at age 25

this is a prime example of if you dont push for dx yourself and raise enough concern people will not bother[and 25 years ago as was not as heard of as much]

i really dont know how my sister and husband managed

that is why i will not back down about my son-because im not going let that happen to him