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Autism Exemplar

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I think the words 'fook' and 'all' spring to mind when discussing my authority.

 

 

Carole, it is all pie in the sky - bit like the story the other day about the 50,000 supernannies that are going to go and stay for a week and sort out problem families - where the 'fook' are they going to get 50,000 supernannies!

 

I am sure someone sits in a hallucinogenic fugg and creates Exemplars and guidance etc for the 'Land of Make Believe'

 

Very jaded and pissed off ( not feeling welll - picked up kids bugs!)

 

Back to the studying - just got out of bed for a wee and passed 'puter (not literally! :lol: )

 

HelenL

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Who owns the Framework - is it a Gov thing? And if so, who is supposed to be implimenting it -the Health Authorities or the LAs? Sorry to be so ignorant, but I have never heard of it and would be interested in pursing it here.

 

When my son was diagnosed at a multi disciplinary meeting, the Paed suggested that I be appointed the key worker on the basis that I seemed like the person most likely to get things done! Even though it was my first meeting I was not naive enough to take that on. So it got passed to the Health Visitor, who in turn passed it on, to no one . ..

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Nothing happening here - at least not for this family - and none of my friends seem to have encountered the elusive key worker either!

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Who owns the Framework - is it a Gov thing? And if so, who is supposed to be implimenting it -the Health Authorities or the LAs? Sorry to be so ignorant, but I have never heard of it and would be interested in pursing it here.

 

http://www.dh.gov.uk/PolicyAndGuidance/Hea...formation/fs/en

 

NSFs are from the DOH. Previous NSFs have been health related (coronary heart disease, diabetes for example). The children NSF has a large health component but also has targets for education and social services. AFAIK from 2007 there is supposed to be a merging of health, education and social services for children with them all being part of Children's Trusts. That's what is supposed to be happening locally anyway. Not quite sure how that is going to work especially as there is much animosity between the three services! CAMHS apparently could end up being subject to Ofsted inspections which hs raised a few eyebrows

 

Liz x

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Carol,

 

Our local authority development plan came out in January 2005, key worker role is one of the key priorities. As far as I'm aware this has still to be actioned. I gave the following information on key workers to the Local Authority Autism Spectrum Partnership.

 

New research on key workers for disabled children

http://www.earlysupport.org.uk/NewsEvents/...26/Default.aspx

 

 

The following notes on key workers have been taken from the National Autism Plan for Children (NAPC)

 

Key Worker

 

Person who:

� has specialist knowledge of autistic spectrum disorders

� has dedicated time

� relates to the child and family

� offers liaison

� is able to take an overview

� has the ability to recognise need

� is able to work collaboratively

� is skilled in team working

� recognises that the child is the focus

� is an advocate for the child.

 

The key worker will be part of the team that is involved with the child and family to:

 

� ensure follow up support, especially in relation to post-diagnosis issues and behaviour management

� ensure guidelines are in place to enable all people involved with the child to work consistently

� recognise when short breaks are necessary and , if necessary, negotiate this

� help parents prepare for children's long term needs

� co-ordinate the transition from children's services to adult services

� co-ordinate service provision and ensure that management plans are followed. (This should include all the child?s needs and interventions.)

 

 

Page 12 - Assessment - Stage 2

A named key worker should be appointed at the beginning of the MAA process.

 

Page 13 - Essential components for a complete multi-agency assessment (MAA)

All professionals involved in an MAA (multi-agency assessment) should be experienced and knowledgeable about ASD and it should lead to specific recommendations. A written report should be produced and discussed with parents and the key worker should be appropriately involved in these discussions. This should include a needs based Family Care Plan (FCP). At this stage genetic implications should be considered.

 

Page 13 - Assessment recommendations

A key worker or care manager (as appropriate ) allocated for each family with diagnosed ASD.

 

Page 13 - Interventions

The co-ordinated programme of early intervention should be discussed with the family, with support from a key worker, within 6 weeks of the end of the MAA and at regular review appointments

 

Page 14 - Key Actions

Immediate appointment of a key worker for the family.

 

3.3 Service provision

A key person (a key worker) should co-ordinate management of post diagnostic support, across all agencies including the management of transitions and the sharing of detailed information. The key worker may come from any professional background depending on family preference and the defined needs of the child.

 

Page 33 - Suggested time frame for assessment: minimum time frame standards.

Appointment of key worker within 4 weeks.

 

Page 37 part 7 Family assessment

An assessment of the needs and strengths of all family members ? (parents/carers, siblings and the extended family) and psychosocial factors should be undertaken by the key worker in conjunction with the MAA team. A Social Services assessment using the Framework for the Assessment of Children in Need and their families (2000) is necessary to agree any further appropriate interventions and support. This assessment will draw on much of the information gathered throughout the MAA.

 

Page 40 - Outcome of ASD assessment process

Assessment is an on-going process and it is important to recognise that a clear diagnosis may not necessarily be made at the end of the initial assessment process. This should NOT prevent the development of a needs based intervention plan and provision of appropriate support and interventions. However, as soon as a diagnostic formulation has been made this should be shared with the parents by members of the local MAA team.

Multiaxial frameworks, such as ICD-10 and DSM-IV, provide a means to identify a particular pattern of skills and deficits and consider other relevant child, family and psychosocial factors in each decision (Taylor and Rutter, 2002). The discussion should involve more than one member of the diagnostic team. In may MAA teams this would currently involve a medically qualified practitioner (paediatrician or child psychiatrist) and another professional such as a psychologist, or speech ad language therapist. The key worker should be appropriately involved in all these discussions.

 

Timeframe: The revised report (dated and signed) should be provided within 17 weeks of the start of the stage 2 MAA. With the parents' agreement , the revised report should be given to the referrer, the key worker, the General Practitioner and health visitor, early education or school staff and the LEA, and/or other local professionals working with the child and family.

 

4.2.5.2. Information

Information about internet sites, publications, training opportunities, conferences and academic/research co-ordinated through Regional networks with local/regional/national/international perspectives should also be available to parents/carers and key workers.

 

Information about any further referrals and diagnostic assessments for example to the Tertiary Service (see recommendations 4.5) should be given to parents and key worker if there are diagnostic uncertainties or other complexities influencing the diagnostic process and formulation.

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Hi Carole, :)

 

Well I have tried to get a key worker and been explain by the CDT that 1) H is not severe enough 2) he is over 5 so they have no frame work for children over 5.. then been told it is a shame that you did not get the help you needed when you needed it ...and good luck to me..I love happy ending and easy way out.:angry:

 

 

I think when I'll really go mad and they'll put me to sleep for 3 months or so may be they will put something in place. :devil:

 

For me all this is just political propaganda and nothing else.

 

Take care.

 

Malika.

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Guest flutter

well i think we have one, but kinda by default, DD wnet to cahms and the lady who did her 1:1 and obsv ect is now there for us whenever we want, and has been fantastic:)

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For me all this is just political propaganda and nothing else.

 

I agree with you Malika. It sounds too good to be true, and where are these workers? There's no key worker over here either, except me. I've "coordinated" support for son by myself and he has received very little, definitely NOT enough. As to SS they came to assess my son's needs (after I wrote them a long letter) and I never heard from them again. :angry:

 

Curra

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