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harmony

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Everything posted by harmony

  1. Anything by The osmonds, Especially Crazy Horses. I still have a bit of a Donny Thing goin on. How sad am I, I need to get a llfe. I guess it must be Puppy Love.
  2. We have one, and DD loves it, but so do we all, even the cats Harmony
  3. Yummy Thank You. Passes bagpuss a rather nice slice of apple pie with plenty of cream. (or do you prefer custard) will start diet on Monday, as need to have a look at height/weight chart. of course I will be standing in platform boots to make me taller, so I can be heavier. harmony x
  4. Hi My DD goes to mainstream school, top of class in IT does reasonably well in most subjects A's B's but her handwriting is auful, so now does most of her schoolwork on a laptop. She has trouble in sports, hates team games, can't see the point, also her gait when running is very odd. Other children do see her as a bit strange, this has become more obvious as she has got older, she is much more immature than her peers but thankfully has got together with another couple of odd balls ( but absoloutly sweet as anything) with various issues of their own although am not sure what. DD copes fine at mainstream school, The school is quite tough on her, but she has to learn boundries. RE; fat tummy incident. DD said to a male friend who is sensitive about his age/hair etc. " Why is your hair orange, it used to be blonde" he was so embarased, and made some excuise about it being in the family etc. she then said " you are lying, mummy says you colour it, and have made a right hash of it" I wanted the ground to swallow me up, but she was being absoloutly honest. C'est la vie Harmony
  5. This looks fun, can I join. I don't even know what I am supossed to weigh. my son said my b.. was wibbly wobbly yesterday--charming---- I think I am ok from waist up, but all goes wrong in bottom half I knew I should have been a news reader, people only ever see your top half! have already had a cream egg, and a bagel with homous and salad. a smoothie, a large bowl of porridge, 2 cups of coffee and a bag of grapes. Oh yes and half a kit kat ( and it's only 12.30 ) Harmony x
  6. My AS DD has had a few friendship break ups. Quite a major one a few months ago- v long story - but surprise surprise 6 months later, we are getting phone calls from ex friend, and ex friend trying to sneak back in to my DD's good books. I will be devastated if this girl hurts my daughter again. also we get quite a few phone calls teasing my DD, silly girls being cruel. I have tried 1471 but the numbers are always unavalible. It must be upsetting for her, it is for me. Remember at least your child has you there for support, comfort and love. Keep strong Harmony
  7. harmony

    immature

    To be honest I have a soft spot for winnie the pooh. Oh and tigger harmony
  8. We all have them. Especially when the going gets tough! Bad habbits list Too many yummy glasses of wine! Too much cake Too much time on line Too much housework ignoring Too many hours in hot bath so skin goes wrinkly! (nice) Too much passing the blame. Hubbie, then kids, then if in doubt I blame the cats. Have plenty more but all rather hideous harmony x
  9. Thanks for that. We are going to try to get an appt with incontinence nurse asap. Then we off to get a plastic coated matress (yuck) I just wish she would wear pull ups, but even if I beg plead, or yell. she won't wear them. So I have a wet bed every day. She also smells, as she will not shower/bath in the am, doesn't seem to care at all. life can be hard sometimes. Compared to her nt brothers she is such hard work!! Harmony
  10. harmony

    hobbies

    Yoga Yoga and more yoga OM SHANTI harmony x
  11. harmony

    immature

    Hi My daughter is 12, also in mainstream school. She does ok, A1 in IT, and B and C grades in everything else. She is so immature it can be embarrasing! kissing/hugging/jumping on our adult friends, playing with her younger brothers toys and books, she also loves Enid Blyton and the jacquline wilson stories. I gave her the diary of Ann Frank the other day (one of my childhood favourites) bad move on my part, she read some of it, and spent hours crying, but couldn't comprehend it was a factual book. She really didn't belive something like that could ever happen. Weird because she still thinks Santa is the real deal! My mother thinks it's sweet she is so immature in this day and age, but it worries me as she could so easily be taken advantage of in many ways. Harmony
  12. I so empathise with the clothes thing. My dd is so beautiful, very tall and slim, but OMG her sense of what to wear! stripes with spots, odd socks, clashing colours. She will never let me help her choose what to put on. I now try to buy plain things as much as poss so as not to confuse the matter. She has thick curly shoulder length hair, that many a woman would pay a fortune for, yet she hates washing it or brushing it, I think the poor child has had more than her fair share of nits, but there is always somewhere for them to hide in her mane. All I can think is that she is going to be a fashion leader, quirky, different, and stands out from the crowd. Zandra Rhodes has made a fortune from it, so there is always hope!! Harmony
  13. Take a deep breath, try to get some sleep and hopefully you will feel better able to cope in the morning. My AS daughter tells me in her more rational moments, that families who yell at each other care about each other, if there was no yelling, no meltdowns etc then all the care and all the feelings would be gone. Yes it is really hard today, but tomorow could be different, better? who knows, but at least you should all get another chance. slep well Harmony
  14. Mumble I can absoloutly understand why you are cross with the dx situations in some areas. We are fortunate that due to my husbands (very dull long hours) job he gets private health care as a benefit. It makes it hard when the GP says either use the health insurance or wait for months, oh and by the way you will only see the same guy at the end of it. We really didn't take up NHS time, as this consultant sees his private patients on a Saturday. You are right everyone should be treated the same, but I guess that in seeing this consultant and paying for him, should in theory free up an NHS space during the week for someone without insurance. It is a difficult one I know. I have a friend in the states who thinks we are so lucky to have an NHS however dreadful, as she has had to pay out her own pocket every step of the way with her AS son. I have no idea what the answer here is, of course AS like any disorder is across the whole population, I know of people who have had cancer treatment privatly, and that was no middle class excuse! Probably all the while companies give out health care as a benefit, the NHS will see it as a positive way of saving money in which they can pay for a few more managers/admin staff/etc rather than use it at a clinical level. Don't be cross with me only did it for dd Harmony
  15. Hi So glad you joined this forum. I have a 12 yr old daughter (well 12 in 3 weeks time) with AS, she also has dyspraxia, and although she doesn't have coeliac disease, one of my other children does so I understand the frustrations of diet etc. My lovely daughter is driving me mad too. I have been told by others that puberty makes the symptoms 10 times worse, so hold on to your hat it's a bumpy ride ahead. On the plus side if we can get through this dreadful time in one piece, I have also been told that our lovely girls will come out the other end none the worse and will eventually be back to their cheerful selves again. In the meantime we need a lot of patience, and several large glasses of wine. I have just started a diary of when dd's meltdowns are, how she feels, how I feel, how I reacted etc. I also put down any positive things, however small. Such as dd feeding the fish, and selecting an outfit that doesn't clash, and spending 10 minutes with her brothers without causing a row etc etc. After a few days I read it back, yes It does make for pretty hard reading but what I see is that although things are bad, they could be an auful lot worse! My nephew is autistic and is 15, he is incontinent, and has never been able to speak, he is violent, and screams for hours at a time. I think I have got off lightly in comparison. One thing I noticed over the weekend dd consumed a great deal of sugar, being Easter there were plenty of eggs around. Today she has been really dreadful. I wonder how much of an impact the sugar has had on her system. Am baning it now for a week, to see if I can notice any difference. wishing you all the best, you will always have support from the forum Harmony
  16. I do think it is worth going private if the person/people you are refered to as a private patient are exactly the same people you wait to see for 6 months on the NHS. This is the case where I live, not just for AS but for everything. The GP has one or two sets of consultants you can pay and see them now or wait and see them later. Our private DX has been accepted by School, and senco. So sometimes it is worth the money. Harmony
  17. Hi Kids of any age can be impulsive, and do odd things, but you are doing the right thing by keeping a watch out for AS symptoms. My AS daughter is very impulsive always has been, she also has ADHD. Yesterday friends came over, and she wouldn't leave them alone, wanting to sit on knees, and cuddle (she's 12!) when the attention was off her she ran outside in the sleet with no shoes on, to see how 'snowy' she could get, then when she was soaked ran wet feet around the house. When that had died down she shook cat food everywhere-again for attention. Some kids, oftern the eldest sibling are desperate for attention, and the more the better, even if it is not the kind of attention we would normally see as positive. She too doesn't really understand that she is going about getting attention the wrong way, and has no conception that adults might view her as unusual. She has never been able to understand there will consequences to her actions, and can't work out why people are angry or upset with her. Yet like your son she has always been able to show affection (too much) and say I love you, which at 5 was cute but at 12 is getting to be a bit too much. (some friends are getting embaresesd, as dd is developing) Good luck, and if you think there are issues go to your GP, better to know early what you are dealing with. Have a peaceful Easter Sunday, and enjoy them while they are still little! Harmony x
  18. harmony

    Good Afternoon

    At least your little one has you as a mum who is clued up enough to seek help, well done you. This is a wonderful forum non-judgemental and safe, so glad you have joined. Harmony
  19. Hi In the grand scheme of things this I know isn't major, but am having trouble with it today. My 12 yr old DD is like any 12 yr old with a messy room, but hers is beyond messy it is totally unhygenic!! We have friends over today, and I asked her at 8am to tidy her room a bit, by 12.30pm she wasn't dressed, and her room was dreadful. All she was doing was cutting out bits of paper from books, and making confetti with them. her AS is bad at the moment, but unless I tidy her room every day I find all sorts of weird things. Last week, within 2 days of clearing her room I found 9 empty bags of crisps in her underwear drawer. 20 choclate fingers, of which she had eatern half of each one, and put the other half of each one under her bed. 30 sweet wrapers under her pillow, 3 oranges and 4 empty beakers. 10 books belonging to her brothers, 2 of my lipsticks 4 pairs of my knickers and 2 of my bras. Along with dirty socks in her desk, dirty knickers in her wardrobe and her schoolwork screwed up in a bag under her bed. All this in 2 days! time wise clearing her room every day is hard as I work during the day, and 4 nights of the week as well. Her younger brothers are cleaner (a bit) at least they will brush their teeth and hair, DD just can't unless I stand with her. It is wearing me down. All of you lovely folk with children under 10, be prepared for what puberty throws at you. We have had some pretty major incidents, which in time I will have the courage to share, but for now I have to go and start preparing food etc for our visitors, and hope things are not to messy/smelly in DD' room. Wishing you all a joyful Easter, Harmony
  20. I actually feel sad rather than sorry. Few of our friends are aware of my 12 yr old daughters AS, as only been diagnosed a few weeks. previously they thought of her as a bit odd, but sweet. I have hidden many,many of her behaviours from them, as I kind of hoped she would improve as she got older, but now in puberty she is 100% worse and I know she is always going to be different. Trying to explain her AS to people is going to be hard, and sadly people do judge, we all know that. So I am sad that my beautiful girl is going to have to deal with this forever, I wish it was me, not her. Life is a B.... sometimes! HARMONY
  21. Sorry have just found explanation from someone, should have read to end of list, sorry harmony
  22. Mine says Norfolk Broads too! do they know somthing we don't, perhaps it is a secret code, and we havn't been around long enough to find out what it means! v odd harmony
  23. My AS daughter has an amazing imagination. Her imaginary world is where she spends a great deal of her time, possibly because the real world is too scary/hard for her to deal with. Her imaginary friends are loyal and never tease her, and her dolls/soft toys are her comforts. She can be free in her imagination, whereas in real life she is clumsy, lonely, confused mixed up, never able to keep up with her peers, finds school hard, and can't organise her mind (she is 12) When she was 5 she was cute and quirky, now she is forever in trouble, and all the AS traits are begining to show themselves. Anyone who says AS people can't have a vivid imagination are I am affraid wrong (and that was said by our AS consultant) Harmony
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