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About alexmum2

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  1. This almost sounds like our story Yvonne27, we struggled for years with schools , who like you say are only concerned with self image! I was also bullied by ingnorant parents who know nothing about the condition. I changed my son's school after he was bullied several times and also tripped over by some boys which caused him an injured knee cap; he never told me about it until I saw him struggling walking , he didn't want to make a fuss! That was enough for me he wasn't going back. In the end I went to my doctor and he signed my son off school with desperation and wrote a letter to the school. In-effect this was assault on schools premisses in school time! However at the time I never realised this... we complained but to know avail. They took the side of the boys that injured my son saying it was just boisterous behaviour! He then was provide private tuition at home for a few weeks by our LA then went to a small place which taught kids who were having problems at school like my son however this was only for 6 weeks.also provided for by our LA.(he loved it there). we then had to search for a new school. We did eventually find a school he said he would be able to cope with and they did provide proper support... but the bullying still continued when the support wasn't around.. he made it through though. The only advice I can give is go to your GP and also your LA they have a duty of care to provide safe schooling for your son. Good Luck
  2. This sounds very much like what happened to me, they said our circumstances weren't life threatning so we were not eligable for support ( just like to add I'm suprised you got away with the word Freaking):-)
  3. Madeinthe70,s I have to say I agree with what you are saying . I worry for my son that when i am old he will be on his own and struggling to survive. There isn't enough practical help out there, everyone quotes things form books about aspergers but know seems to be saying this is how to cope with someone who is mean to you or bullying you at work. They just expect you to get on with it, it's the ivisable disablity. i wish i could say more but I cant find the words.
  4. OXgirl omg you could be talking about my son, I feel exactly the way you do I am sooo worried that he will end up on his own for the rest of his life. I have tried so hard to try and get him into something in the hope of making some or even one friend out of school ....to list but a few; Swimming classes, Cubs, Scouts, Action for Children ,our local aspergers support group who arranged different activities... nothing worked. he desparatly wants friends but is sooo worried about being used and rejected as thats whay has happened in the past. He gets on very well with his teachers and other adults but sadly not his peer group; kids at school wont associate with him, as like most kids at school they don't want to be the ones being singled out as the kid that hangs around with the lad with aspergers. My son also finds it difficult to contect with others like himself, as he says the ones that attend the activities arranged by the aspergers support groups are not on his level , I don't mean to sound as if he is better than others with aspergers but as we all know aspergers is a spectrum. He doesn't have anyone his age invite him anywhere... I have invited some of the kids he has mentioned that he sometimes talks to at school, back to the house or to the cinema but he hasn't wanted me to do this and says he only was going along with it to make me happy; needless to say he would never get invited to go anywhere with them. It heart breaking He is in yr 11 now and I cant see a light at the end of the tunnel either. Soraya: My son too spent his birthday with his dad and me, like your son he would have loved to go somewhere with another friend or a few mates but I know it will never be and like he says to me "it aint gonna happen". He has low self esteme to, because of the years of bullying and tormenting he never understood how to deal with it. I am at my wits end... I saw another lad in our street and several years ago when we first moved here he was about the same age as my son... I asked his mum if he would like to come over and play some computor games with my son but it never happend. My son has always gone to main stream school and is doing very well academically but socially his life is ###### as he puts it. Smiley K I am so pleased things have turned out well for you, I wish there were young people in my son's school who could see his pain and not worry about what others think of them asking him to join them, but sadly there doesn't seem to be anyone. I have asked the school to buddy him with some one but so far they haven't got round to it and like I said he is in year 11! now.
  5. Dana, i realy feel for you and i do know what you and yoyr son are going through because wehave gone through the same ... my son has been bullied too all his life and doesn't have any friends at school or else where, and unfortunately he doen't have any cousin the same gae so he too is totally isolated. my son was so depressed at one point he was put on Prozac at the ga eof 11yrs! but things will get better believe me <'> Try contacting Strut or you local county council may have some info on local support groups, it didn't do us much good as my son never wanted to go to any of the organised activities they did during the school holidays but it may work for you... it's worth a try. Does your son go to main stream?
  6. Has anyone any information about LEA's Transitions criteia? I have spent ages looking though the internet contacting my County council to find out what support (if any) my son will receice post 16yrs through the Transition team, what i have gleaned it not good for those of us who have kids who are in main stream and statemented 0well not in my neck of the woods that is) apparently you have to have a social worker or have a CAF team involved with your child it's all very confusing if anyone has any other info i would be most greatful in hearing it cos at the moment the kids who have gone to main stream s are falling though the net as regards to post 16 support.
  7. You sound like a real nice person to me.... i have a son who has some wonderful gifts like you... and I know he would make a great friend for someone but unfortunately he has no friends which breaks my heart.... but like you things were very difficult for him in the begining but he has learned to cope know he is 13yrs. I agree with you about personality ... the personality that people see is not the real one I see thsi all the time in my son .... if only otheres saw what I saw they would see a different person this is why I get son faustrated and sad I feel my son like you is missing out on so much fun. I had no friends at school and still find it difficult now to make and keep freinds but when I did have friends life was so much better...... i think i had undiagnosed aspergers.... life has been a great struggle for me, but i have survived i think thats all we can do.... but of course live in the hope that things will get better some times they do and sometimes they don't. If you ever have the time i would love you to tell my son of what your life has been like... how you have coped... just to give him some hope .... but only if you want tto I realise that you may have concerns about this it's jsut i think he would benefit from someone else who has aspergers look on things.
  8. If anyone can advice me..... I have read the posts on direct payments ad nellie advised bid to go to the jargon buster to get more info on social services criteria for direct payments. As i have had a great deal of difficuly in getting them for my DS I went to the site and the message I found said the site had been moved or renamed? server error? Any advice would be most welcome, on how i can find this site or if anyone knows the criteria that social services uses to agree to direct payments. I have been told such a lot of b...sh.. from my social servcies dept I don't have a clue as to wether it's right or wrong. They have done an assessment but I never received any comunication as to wether we had got direct payments and nothing to say we hadn't? all we have got is 2hrs support a week from a volunteer group called SOVA? When i contacted the manager of the 2 sociial workers who did the assessment to find out what was happening to my claim, she said because i had agreed to the volunteer group giving the respite i forfeited my claim?
  9. hi there liny - lou what the school are saying is that your child needs extra support; But big (But) they need to get exta support? LEA lots of red tape ect ect . IEP. At all cost's the LEA will try not to fund your childs support! Read: SEN Codes of Practice! you will find it hard to decifer. At the end of the day the LEA have DUTY to support your son. GET a STATEMENT OF SPECIAL NEEDS! get it through your GP , SCHOOL, ED Phy get a dg Hope this helps
  10. KezT Yes i agree with what you say; some agencies I have spoken to today have voiced the very same thing as you, it appears to be how badly you need support or how badly you child needs support, I can't get my head around why it can't be both? Thanks for you reply KezT
  11. We have had both done one assement for my needs through the carer's assesment team , and my son's needs through SS; In my assement as a carer it clearly states that I have requested DP and what we would use them for, in my DS case it went into the area of way he needs to be helped by another person ( other than me and my husband) to help in socialise with differnt people in different situations.
  12. Chris I didn't say all these people are getting DP i said MOST. I have also been on other ASD forums and the general feeling is that DP should be offered to every one in need, wether they are carers of children with special needs or adults themselves. It's a way for people to take control over the care they need and how they would like that care to be used, or in other word what they would use DP for (respite, baby sitting support during social outings ect.) and not left in the hands of SS, where the choice is not yours on the care you need when you receive it and how you recieve it.
  13. Hi Chris if you go to inportant topics at the top of general enquiries there first post says Direct Payments respite care, I have read the post in this topic and there are an awful lots os people getting direct payments for exactly what I need them for and what your wanting them for.
  14. Hi chris form what i have read on this suject today it's for both, it's not healthy for my son to be tied to my hip and it's not it's not good for me to have him there. As we don't have any family to speak of he gets no other interaction except with my husband and me, like i have said there are a lot of people on this site who use DP for exactly the same reason we are trying to get them for.
  15. At the end of the day i feel it all boils down to money! At the moment our LA are trying to stop statementing! so what chance to i chace in getting a few quid so i can pay some kind person to take my son out.
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