butterflycake

No to be honest. My family is supportive but not my friends. I have one friend who ive known a long time who seems to have a hangup if i buy some thing, get a new hair do or do something new that she hasnt done. She rarely mentions my kids but never forgets their birthdays/xmas etc. She also said something insenitive and thoughtless to me 2 days ago which i am offended about. I dont know what to do about this friendshipas i used to think she was a good friend. Now im beginning to see how childish and selfish she is. i thought she would have been more supportive but it didnt turn out that way.

Hi i was just wondering has anyone ever put in for a Community Care Grant for their child. I was told my son may be entitled to it but havent a clue what to write. As i dont know what things they help you with. Thanks.

Some mornings i feel like not getting out of bed as from the moment i get up i cant get Autism out of my head and why did my son get it. Im so sick of seeing kids born the same time as him walking and talking and interacting and my son cant. I cant help feeling bitter. Does anyone else feel the same and how many years will it take me to be ok because at the minute, myself and family members both think im never going to be the same again.

Hi this is a really good topic btw. My husband and i had a very hard time after our sons diagnosis, i am only coming to terms with the diagnosis now. I must have cried nearly every day for six months after the diagnosis it just hit me so hard. I have a really good friend and she rarelymentions it, i do feel she could give me more support but she is still a mate. Other friends only talk about it if i mention it first. Most of my relations dont mention it, probably as not to upset me or they dont understand im not really sure why. My mother is a tremendous support as is my husband, i would have had a breakdown if not for them. For some reason peop0le find it really hard to talk about autism.

Thank you for all the welcomes Ive actually been a member since April but havent been posting really as ive been just trying to get on with it if you know what i mean!

Hi thanks for the messages and virtual hugs Its just one of them days where you see kids the same age as your child chattering away and think he would have been in their class if he hadnt had autism. Dont get me wrong i love my son to bits , and tomorrow i`ll be fine again but sometimes its hard not to feel a bit down. Thats excellent news about Adam speaking, adamsmum.

Just wondering, as i know this site is for all levels of autism and my son has low functioning autism and some days i just feel a wee bit down as i feel so helpless. Thats it really i just needed to put these words down.

Thanks for the link brook. I didnt know there was a name for the way my son communicates with me by taking my hand or pushing me to where he wants, its called Motoric!

My wee son whos 3 flaps his arms very excitedly when he sees subtitles and stands up close to the telly an trys to touch them. He has low functioning autism and is nonverbal.

Thanks for the messages everyone. I dont know any kids like my son and i appretiate your experiences of how your children are doing.

Hi Bullet , no you havent upset me dont be silly Ive just read back my post and it sounded a bit short, i apologise. im just wanting to find more out about autism from other peoples experiences because i dont know any other kids personally who have it apart from ds2 whos autistic and we also suspect ds1 has aspergers.

Thanks for the message Lauren. A lot of this is new to me. I met my sons teacher a couple of weeks ago and she briefly explained Pecs and Teacch. So im hoping it helps him, as im feeling a bit useless at the minute because i dont know much. He has in the past said a couple of words and he says daddy at least once every day and the teacher said thats a good sign.

He has no way of communicating at the minute. I know speech isnt the most important thing, i was only wanting to hear others experiences. They will be using pecs and teacch at the special school he starts in September.

Im just wondering, my ds is 3 and nonverbal. He starts special school in a couple of months. And im wonering if and when he will ever be able to talk. Id appretiate any experiences anyone has of a nonverbal child who is older and has or has not learned to talk. Thanks.

Im not alone then. I am used to it as he is 3 now. And i usually grab his favoutite blanket and wrap it around him. Although some times he wants to be on his own, but he soon lets me know!

my son whos nonverbal crys and gets really upset after he wakes from his afternoon nap? but he doent cry when he wakes up in the morning, anyone know why this is? thanks.

Lila i just realised it was you who said on the other thread about the piedro shoes

Hi Lauren, poor Luke i hope his wee feet are much better now.

thanks Lila. To be honest he hasnnt had much help since the diagnosis. Hes just on waiting lists for salt and ot. We havent seen the paed since the diagnosis back in feb. She said there would be an appointment sent out in 4 months unless i had something else i wanted to talk to her about before that. It`ll be 4 months at the end of this month so i i will be saying to her the next time i see her.

Hi Lila thanks for the speedy reply. Hes only been to cdc once and then he got the diagnosis a couple of months after, he has Asd and gdd. I dont know if they would prescribe them for autistic kids though as i was reading it was kids who have cp.

My son walks on his toes, and i saw amessage on the other thread about these shoes. I was wondering does anyone know how or where you can get them? TIA.

My ds1 sounds english and hes never even been to england. I always wondered why he sounds like it.

My mum has told me i need to grow a thicker skin and dont worry what people think as i had been getting upset thinking people were going to be asking me questions. And to tell them nothing if they ask as it is none of their business. It is easier said than done sometimes depending on who the person is. I hate the way i feel as if i should be saying my son has autism. I mean nobody comes up to me and says guess what my son is neurologically typical. My next door neighbour who i never really see said to me one day he doesnt say much and i said i know hes quiet. I thought i dont really know you im not telling you my ###### well business.

Hi stephanie. my 3 year old also walks on his toes. He was seen by a physio at a cdc months ago and they say he doesnt need physio. He even walks like this outside and usually falls a good bit because of the way he walks. Sorry i cant be of any help. I hope its something they grow out of.

My son handflaps . To be honest i dread him doing it outdoors. i dont want him picked on, hes only 3 and nonverbal and sometimes i wish the autism would go away and my wee son would come back. He was functioning the same as any other child till he was 16 months or so. Then he started losing his words and i know im in the wrong as hes a happy healthy boy. Its just so obvious hes autistic now. He walks on his toes, handflaps and makes facial grimaces. Im heartbroken instead of coming to terms with the diagnosis, im taking it worse and feel im heading towards breakdown. I just feel helpless like i want to cure my son of this condition.