Noskcaj86

I hope you don't see those people again Noskca. What a nasty experience. Have the children been upset about it since?

Jack hasnt, but my eldest has been :/

Jack hasnt, but my eldest has been :/

Yes that will be interesting! My grandad, his great grandad died in January and he still doesnt seem to understand that either. He was talking about him today as if he was still alive...!

Children on the spectrum find it hard to understand their emotions.

My son told me "I don't know what a happy feeling is".

Sometimes this can be a processing difficulty ie. not processing what is happening in real time, and therefore not connecting emotions to events.

He should be assessed for emotional literacy and a programme put in place.

hes only 4 and a half though, is this not normal for his age? he tells me when hes sad... if hes upset about not getting his own way hesometimes will say "mummy im angry at you" so he has some understanding of his emotions. He says he "happy" and also "not happy". But angry, sad and happy are the only ones he uses.

How is he doing now? So stressful when they're sick...as if you need anymore stress in your life right now! When i don't know what's wrong with my daughter i panic over the slightest thing!

Still got a high temp. It was 39 and a half again this morning. No school for him today. Calpol and nurofen given and temp down to 37

Get better soon Jack x

Got 10ml calpol down him mixed in the juice but temp still 38 and a half. Ahhh kids like to worry there parents dont they!! lol

At least it's down a bit - well done!

Its 38 now so much better than almost 40

And 11.30 is early for him at home!!

Have you looked into a respite holiday?

We have been offered respite before, but it would have been a foster carer and im not keen on him going to strangers and i dont think it would do him amy good either... We have had a 4 dat break where he was with his nanny (thurs to sunday) But the stress starths up again almost as soon as hes home! x

Glad you've got to the bottom of things :-)

Poor little lad. Hope he feels better soon.

thankyou

Yes im ok Thanx, My Grandad passed away yesterday morning though x

Poor Noskca thinking of u. x

Thanx x

Early Learning Centre do a safe toy one

thanx mannify, ill look in to getting one for him

yeah the metal ones are dangerous - I cut myself on one as a child - must have had a similar fascination!

And thanx for (hugs)

I know you've said before you're not sure when he's ill - is it possible he has an ear infection or something? Has he maybe caught what the little one had? Problem too with not sleeping can also be the overtiredness factor!! Fingers crossed you get to bed soon x

He seemed fine after the screaming but didnt go to sleep till 2 am! He always wants his dad next to him while he falls asleep, dad had been lying next to him in bad for about an hour and a half already and he wouldnt settle, dad had other things to do (non stop with 4 kids) so had to come down, thats when screaming started. So think it was to do with wanting his dad there with him, but he couldnt spend any more time up there last night x

Well, that may work in your favour - hope it goes well for you!

yes, i think it might work in our favour, meant i had less to explain to her!

I remember first Paediatricians appointment with our son. There was the Paediatrician and 2 others and myself, husband and son. We talked about things for a while. My son sat on the floor playing with some toys that were there. He didn't interact with anyone. Didn't come and bring me anything. Didn't seem aware of anyone else in the room. Appeared deaf when the paediatrician called his name. And when she placed her hand on his shoulder to gain his attention he got very dis...

why are you Click?

Jack was clicking... he likes to click his tongue LOTS. It can get a bit annoying at the end of the day after hearing it for a few hours hehe.

ahh i thought it was a reference to typing on the keyboard!

And he went to sleep without any major problems or screaming bad days seems really bad but must always try and remember the good ones too!

That's even better!!

i hope he does! He tells me to leave him alone or go away mummy a lot of the time. I havve to beg for hours for a hug! Just so different to my other boys who live hugs :/

well he just let me cuddle him, and he told me he loves me... so he does, but on his terms only!!! lol

See

I do the same as an adult!

Its the same for bedtime, won't go to bed when told and then struggles to get up for school

Yes thats true with bed time here too! Well, that bath time did not end well... he had an accident in the bath and then needed a shower to get clean!

I know! Hi BruceCM

Hello how are you?

If you mean me, I'm well, thanks. How are you?

Sorry, there's not many people posting here. I guess we've all got 'unanswered questions', too!

Hi Bruce - a lot of people private message on here...

Uh huh?

What's happened - are you ok?

Yea, nothing happened. I just meant hes a danger to himself. He had been walking on the curb, as if it was a tight rope and wouldnt listen to me saying it was dangerous because he was to close to the road and could easilt fall in to the road etc. I kept pulling him away but he went back again. Just worrying he still doesnt recognise danger even when i explain it over and over x

Remember he is only little still and from reading your later posts he IS unaware of danger. I would suggest doing something like holding his hand and walking a ways on the kerb then gently suggesting an alternative "tightrope" if you can find a line on the pavement. Try not to let him know you are feeling tense. That just makes it worse. My son always liked to walk on walls with me holding his hand.

When my son was 3 we had a loft conversion and the builders just could not...

What is not working for you and son? How would you like the school to support your son? Can you have contact with a advocate to support you, when you meet with the school?

I would like the school to take his probably ASD more seriously, and to realise that it will be a life long condition and he will need extra support. I just feel they are not taking it seriously enough!

I mean, they tell me hes delayed by 2 years in comparison to his peers in some areas, but hes not getting any extra support?????

Be patient, it will take longer, but persistance and encouragement, he will be using the toilet.I got despondent, particularly the soiling bit, because he knew I woul clean him up, so I left him 30 mins dirty, then next day 1 hour , then he learn't after 2, then 3 hours how nasty it was.Toilet was the best thing he realised.

Alot of children on the spectrum have toiletting problems.

My own son was out of nappies by age 3. Now he is older he has explained to me that often he does not 'feel' the need for the toilet until the last minute. Also he has no idea if he wants a wee or poo and so can get caught off guard if standing up and then realises he needs to sit down quickly!

So I believe it is tied alot to sensory processing [as all internal sensations are from sensory information being proce...

My Finn is the same he peaked last night at 39.5 and is now sitting in low 39's - horrible them being ill especially at Christmas when this is the first Christmas he's had a clue what's going on.

Yea its not fair! Jack seems ok in himself, bit quieter than normal but ok. Going to keep an eye on him and keep him dosed up on calpol hope they are both feeling better soon!

woo-hoo!!!

WELL DONE !!....congratulations Jack xx

VIP dates?

We are seeing social services disabled childrens team for assessment and also assessment for free nappies for Jack on 4th, then paediatrician is discussing him in her meeting with other doctors on 6th... and following that meeting we have been told he will be put on the asd diagnosis list to be diagnosed FINALLY! Its only taken 3 years to get this far... so it will be a relief when its all over and we can move on

Fingers crossed for you and Jack...

Thanx

Yeah!!!

Woohoo!

How's it going? Must be a relief to get over that hurdle...it was for us :-)

Its going ok, still having accidents but also making it to the toilet other times without needing to be asked but night time wetting still happening every night so that will prob take a while yet. What age did your son manage to stay dry in the day? Jack is already 18 months later than his older brother was, he was dry without accidents at 3 yrs. x