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nippy sweetie

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About nippy sweetie

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  1. Well Paula- you can "go with the flow" but run the risks that can lead to. Its hard being a parent and very easy to just let your children do what they want. However, what are the risks? He may be clinically depressed He may become so accustomed to doing nothing in particular he withdraws from life altogether, turns night into day and fritters his life away achieving nothing at all. He has AS so, by definition, has difficulty with imagination: he only knows what he knows so finds it hard to imagine what he doesn't know. He needs to be given the opportunity to find different ways to occupy his life. He needs to experience alternatives. Clearly he really enjoyed the work experience. It would be much better for his mental and physical health to engage in meaningful activity with all that that involves with a long term aim of helping him to achieve his potential and be a fulfilled, happy and useful member of society. He is still very young. 21 is still very young. Consider how you will be able to help him when he is 30, or 50 or older. Look to the long term and bear that in mind when you are planning. There are many crucial life skills to learn that wont be learned by lying about playing on an Xbox!
  2. I don't want to sound mean Akunin but all over the country are people who`d love a quiet house (not flat) of their own to be provided and paid for by someone else. These are not people with AS. I must stress that I really don't want to sound so harsh. However, reality impinges and I think you could benefit from thinking for a bit about what compromises you could make. Aspergers compromise ? I hear you ask. Yes I know that's hard but try sitting down and writing down a list of desirables, essentials, and non negotiables and cross reference those with a list of what finance is really available, what housing options are available or even a list of what you need to know or find out. Turning abstract wondering into concrete action can be useful. It may even be that the current living conditions turn out to be the best currently available. Good luck anyway
  3. Persevere with waiting. It may not take as long as you think. Phone and ask where you are on the waiting list. Dont be fobbed off. Just because the local service is relatively new doesnt necessarily mean that they are inexperienced diagnosticians. It could be that competent AS professionals who had been working in other parts of the NHS are being rearranged into a new team rather than all being "beginners". NHS is always being redeveloped to meet emerging priorities. Its good that adult AS is now seen as one.
  4. Access to diagnosis depends on where you live. It shouldnt be. It shouldnt cost you anything but I know that some NHS Boards try not to get involved. Your GP should know where/how to refer you. RCGPs have made ASD one of their clinical priorities for 2013-2015. They have access to e modules re adults with ASD. Additionally new NICE guidelines have been published re diagnosis. It should be multi disciplinary and accessable. There`s no excuse for adults not to have access to diagnostic assessment. There`s also good information on how to diagnose for Psychiatrists on their website. Me? Off on one? You bet!
  5. Hi, Aspergers doesnt just go away! If you had an AS diagnosis while at school then thats what you`ve still got. ADHD does ameliorate with age but persists in some cases into adulthood. The combination of AS & ADHD is not uncommon. Not worth trying to be re diagnosed with AS. There is medication that can help ADHD so maybe worth persevering with trying for reassessment. Otherwise check the ADHD sites. Lots of self help ideas and suggestions
  6. Hope all goes well. Its got to be worth a try at least
  7. That sounds like you`ve been taken seriously. Good idea to take notes! Hope it all work out OK
  8. Oh dear. Sorry to hear all this. Fingers crossed for the SW looking at the situation from the childs point of view rather than the school`s or that of the other child. Where is GIRFEC in all this?
  9. Sometimes parents (mums especially) seem to think that if their family member has a problem eg AS its somehow their fault as they must have done something wrong when you were very young. This can lead to them either feeling very guilty or that they must be bad mothers for not noticing the problems when their child was young. Some cope by denial or alternatively by trying to overcompensate too late which can be irritating for adult children. Either way its as important to try to consider whats going on to underpin their behaviour as it it important for them to try to understand you! Not easy I know but can be worth it.
  10. Hi, sounds like there`s quite a lot going on here. Potentially ASD but also possibly ADHD in adult form. Also these drugs he`s experimenting with are potentially a problem. Steroid misuse for body building can lead to paranoia, aggression and certainly increase his agitation levels. Maybe this is behind his recent more worrying comments to your Mum. Sometimes direct communication in writing is useful rather than long emotional conversations where he might be picking things up a bit wrong due to being distracted by all the non verbals conveyed by tone of voice etc. Hence rumination after the event as he thinks or overthinks what he thinks you said (but you probably didnt if you see what I mean) Maybe a written letter listing your concerns. No use of emotional language just straight info re your concerns: his behaviours vs potential risks. More positively you could add actions he could take to reduce these these risks. You could talk to his GP. S/he wont be able to tell you anything about your brother but they should listen to your information regarding him. Have you broached the possibility of AS with your brother?
  11. Oh Dixie- what an awful situation for you. I would suggest immediate contact with Social Work and also ask your GP to arrange an urgent assessment of your son`s capacity to consent. It doesnt sound to me that he currently is capable of making informed decisions.I reckon you might have a difficult time ahead (as well as behind you !!) but, try to identfy your priorities and also the key people who might be helpful. My suggestions would be: 1) try to give a "holding" response re the PIP letter. Say that he`s under assessment or something. Your GP might be able to give you a back up letter. He should be referred for an assessment of capacity. Adult Mental Health should be able to do this. If they refuse then press the GP to find out who will do this. This situation is intolerable for the family. 2) contact your GP on your own account. You are at risk of depression if not actually suffering it now. If GP notes this it might also add to your case for more support 3) contact SW. Outline your difficulties with your son. If he finds out or quibbles say that you are seeking a carers assessment which is what you need too. Can the School be helpful at all eg in contributing to an assessment? 4) If he becomes violent dont forget that the Police can be helpful. Actions have consequences and your son is old enough to learn this. I do know its an appalling prospect for any parent to contemplate though. 5) Re your career. Your job has been a a carer. This is accurate and involves many key aspects required for many jobs. Most of all keep on keeping on. I know its very hard indeed. I hope things settle down a bit but also that things start to get organised for the next part of his- and your- life. My mantra is always "this too shall pass". You wont always be in this exact situation but its so hard to see at the moment. With sincere best wishes.
  12. Glad to hear it! Its obviously school related. I suppose its a difficult time for any boy on top of having his ASD related difficulties. I hope things remain calm and he continues to develop and mature over the next year. Good luck!
  13. I`m not sure if instigating fear is the key! Certainly making it crystal clear that this behaviour wont be tolerated is vital. However, it is also important that DS understands exactly what it is that he`s expected to do. Too much "fuzzy" language used towards him at a time when he has become or is becoming stressed or confused can make it much worse. I`ve seen people say to youngsters things like "behave!" or "thats not nice": neither clear or specific enough. Direct straighforward language used with a quiet voice and an impassive facial expression helps to reduce the extra stimulation and enable people to get the message in a rapid and non threatenening way. I dont agree with Fluffy`s suggestions. Starting to play games and play one person off against another is a route to potentially much more confusion and distress all round. There are lots of other ways to address this situation. I would hope that the school staff/Ed Psychs etc are on the case?
  14. As you`re based in Scotland can you ask the school if they are aware of and using the "Autism Toolbox"? Its development was funded by Scottish Govt and the Scottish ASD Strategy has led to the development of a host of other useful/practical developments. Some schools seem to be more "switched on" to ASD than others. It seems to be a typical post code lottery. Check the Autism Network Scotland for independent local advice. Dont be afraid to focus specifically on your grandchild. Good luck
  15. Sometimes its not so much a trigger effect as a "last straw". It may be that he`s coped with a series of smallish things not being right and a gradual build up of tension. For some, it can only take a relatively minor event or something not being as he expects, for it to result in an explosive reaction. Of course its hard to maintain a smooth path through the series of activities and events in a day, week or month but be careful of thinking the "trigger" event is what its all about and only addressing that.
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