Nic m

Glad its not just me, brooke look on this as extra exercise for the diet thread! Lya thanks I'm just going down for the day. nic

Lya, that was exactly my experience too. we went prior to diagnosis, but i did notice the other children using the priorit passes well Hayley noticed and asked why they got to go in front! The lack of polite queues really annoyed me but this was more the buses back to the hotel. Flora, my local support worker gave me a letter stating Hayley had A/S so that she could use it in America, and she said she has given it to many people to get the priority pass, so you maybe should look into that if you ever want to go again. nic

Just had a bit of a mad morning, i am flying to birmingham tomorrow, and needed my passport. I usually keep all my documents in a certain box but i have needed it a lot lately for banking and things like that. Anyway it has been sitting on the chest of drawers in my room since christmas. I went to get it today to do my on-line booking, and could not see it, cue panic and two hours of looking and messing my house up in the search. I thought leave it a wee while and look again, and guess what, it was on my chest of drawers! So either i have an invisible helper or i did not look properly the first time. I now need to go and clean up the mess i have made while looking. Does anyone else do silly things like this? nic

Oh viper, i really feel for you just now, there have been a few similar threads lately, so you are not alone in this so please take care and remember this is not your fault. My daughter was really hard to handle at this age too, but it has got easier now (she is 11) I really wasn't very good at the idea of punishing her for this kind of behaviour, but now i dont see it as punishment, more of teaching her right fom wrong. My daughter used to say to me that i was a pushover and she did not care what i would do and the rampages would last days.I always felt she could not help it and would always find a reason for it. Now though i really dont tolerate any aggression or violence, i have removed toys kept her from things refused computer, the list goes on but what really changed was my attitude, i had to get tough and let her know this was not something i would accept. It took a long time and occassionally we have a slip up but now it is managed pretty quickly. I now look back at the difficult times and wonder if they were really as bad as i thought, but the minute i see her behaving in a familiar way it soon reminds me of how horrible it was. My daughter now finds it easier to tell me how she is feeling, but she really struggles to cry so sometimes i think this is the reason for when her behaviour is difficult now. I think what annie has said is the way to go stay strong and be consistant. When they are losing control they need us to keep the boundaries in place. take care nicola

What a lovely thing to say and do, i would be proud too. nic

Baggy, when i was at paris, the pass also got kids priority to meet the characters, it may have changed but it did seem to work. took me a while to work it out. nic

Thats a real shame, i think that manager did well though and it may mean someone will get some training and hopefully some understanding too. nic

bagpuss, it has been a few years since i last went there, but i loved it. We stayed in the onsite hotels and i found them reasonable considering that covers the cost of the entry to both parks. we stayed 2 nights and had 3 day entry we had great breakfasts in the park ate things like burgers in the afternoon and went for dinner at night. (breakfasts were also included in the price) The park is well laid out the maps you get are great, at 5 years old my daughter found it easy to find things. you can get fast passes to plan your activities better, and you can organise priority passes for disability, they are very considerate. It is very busy, very tiring, and you still wont manage to do it all in a couple of days so think about the favourite things you want to see. At 5 years old it was the castle and princess things hayley wanted to see. now she would want more of the action things. there are characters walking about which can frighten some people but they back off quickly if the child does not like it. i would love to go back. enjoy yourself nic

I am being very naughty tonight i will be having bread and butter pudding (made with pannetone bread) and cream. may even have a glass of vino. nic

happy birthday, clare nic

yes, hev he is his brother. enjoy ps i love you, i am going to try and get to see that soon. nic

fantastic that he wants to do it, nic

krystaltips, i claimed dla, for my daughter before her diagnosis came through, and as her bowels were so bad at the time got high rate care. One of the reasons for doing this was partly because i knew how difficult it is to claim and i knew she was entitled but it was really 'cos i knew the school were denying any issues and i wanted to prove them wrong by saying look do you think she would be entitled to this if there is nothing going on. Be prepared for a whole host of emotions.I used to help people fill in these forms as a job and even when people had ben caring for relatives for years, it is still a shock to say it out loud or write it down. I have always been aware of hayley's difficulties but it still upset me when i had a large document stating how many things she struggled with. I cried reading the dla form over again and really saw how difficult getting through the day was for my daughter. Take your time over the form, and get some advice with the wording.The disability rights handbook is very helpful. For all of you struggling with getting the mobility component (which is very difficult) get an advice worker to look up previous claims under Autism and Arrested development of the brain. It helps to give as much information as possible, send in info on everything you can, giving as much detail as possible and look for the key phrases when writing your answers. Carers groups should be able to photocopy any parts of the book you need. One of the biggest mistakes that are made when filling in these forms is when you are asked about night time care. They will ask how often you do things after the household has shut down for the night. Think very carefully on this. I used to go to bed at 10pm but would be up and down most of the night getting hayley to the toilet changing bedding etc and i ended up not getting to bed sometimes till much much later as i would think whats the point. But you have to think about the time you would like to go to bed when answering this question, as it is pertinent to the high rate care. good luck and if you need any help i will do what i can but may be a bit rusty. i need to fill in the renewal form this week so it is all i will be thinking about for the next week or two. take care nic

Happy Birthday,Lya have a good one. nic

Nope but i quite fancied joaquin phoenix in it. nic

I love it, sounds fantastic. nic

Two brothers, one a policeman (donnie wahlberg) and the other a nightclub manager (joaquin phoenix) its in the eighties about drug wars. I dont know how much to tell you in case you want to go see it but it is fantastic. All the hype about American gangster and i just thought it was ok, but this film is much better and kind of what i expected of american gangster. It's really about family loyalty. nic

Ha ha ha, i get this feeling if i am sitting for too long on my brothers sofa, except i also make the oof! sound. nic

Hi Everyone, I went to see 'We own the night' with my sister earlier, and it was one of the best films i have ever seen. Just in case anyone fancies a night out it is well worth a look. nic

Eva, there is 2.2lbs to every kilo nic

Hope your job has been good and hope the wine went down well forbsay nic

Fantastic news nic

I'm off to the flicks tonight going to see 'we own the night' with my sister. I quite fancy your weekend, suze nic argh my sis just called she has left already. better go

Great stuff louby, 7lbs is fantastic nic

Fantastic nic