Clare63

Bambi, well done, you certainly didn't take any cr*p from them and told them fully and honestly how badly you and T have been treated and let down. You must be absolutely exhausted, from your post I truly felt your anger and passion and if those two SW's don't go home tonight and have a sleepless night, then they have no hearts or morals what so ever. Lets hope they get their fingers out now and get on with it. Clare x <'>

Yes I know, my son and I are really lucky the SENCO and her team are so supportive, it was touch and go to begin with and having the dx helped, not to mention me breaking down at school and the 100's of days off my boy has had !!!!! Clare x

Rainbow Queen, I would not get too hung up on what the school say, camhs did not even do an observation at school the psyc said she could dx without seeing his behavour in school, she didn't think it would be much help as she was well aware how AS child often "mask" their behavour/anxieties etc in school. Clare x

Caroline is spot on here and yes I too highly recommend you keep a diary, you could also start making notes of behavours, development etc from birth. My husband and I also had to talk through pregnancy and the actual birth with the specialists, so its alway worth having some notes to jog your memory. Clare x Whoops edited cause I put stop instead of spot !!!!!

Thanks for that David, very useful. I must be getting very lazy in my old age as I have just realised it gives a description in the Jargon Buster at the top of the forum. Mrs Fussy, I am in regular contact with the senco at my son's school and I have her direct phone line number. He started at this school in September and I was introduced to her when I visited the school prior to him starting to discuss my concerns (this was before his dx and he was and still is very anxious and nervous). Though he's not statemented she does ensure we get support, so far we have got on very well and I have always expressed my appreciate of her and her team's help. She even rung me the other day to say she was going to contact "outreach" to see if she could get her staff additional or more training in ASD's ..... I was most impressed. I would suggest you give yours a ring and ask for a meeting to introduce your self and to discuss any concerns you have, hopefully yours will be as nice and as good as mine. Good luck Clare x

Sorry you asked how old he was when dx - 11years old

Lou, Its very important not to take StJohns Wort or simular with Prozac, so please be sure to tell your pysc. Prozac is not supposed to be addictive, but certainly takes a good two weeks of unpleasantness to kick in and then again to come off. Like you I am wary about considering my child on meds, but can't really see an alternative, my child has Aspergers and gets very depressed and negative. When I spoke to our pysc about him being negative and does not want to seem to try anything to make his life a little easier or less stressful and anxious, she told me that people with ASD's are often very negative people they can't help it but it makes CBT , counselling etc more difficult and has to be adjusted dependant on how the individual sees the world.At the moment we have not gone down the medications road, though of late serious consideration is being given to this thought as like your son ours too has suicidal thoughts, particuarly at time of high stress and anxiety which of late has been most of the time. Good luck with your meeting with the pysc. Clare x

Supposed to be a sign of intelligence you know a double crown ! bet you got eye lashes to die for as well My positive for today - Connor went to school today (been off school 9/10 days in past 2 weeks) no tears and very little fuss Clare x

Hi Mrs Fussy - I have tried to pm you as I wanted to clarify something, even if I click on your user name from your profile it won't ley me do it ???? Sorry to be thick but wanted to know what you meant by SA+ ??? Clare x

I truly hope something changes for you soon, these people need to get their butts in gear and dam quick ! Thinking of you Hev, I don't think I could take all what you have been through of late, I feel very humble and wish I had some words of wisdom. Take care and keep fighting the fight. <'> <'> <'> <'> <'> Clare x

Rainbow Queen, It took a year and he was dx in January this year. You are more than welcome to ask me as many questions as you want, if you think it would help. Clare x

Cheers BD, I could not see for looking ! Clare x

Cheers for that Di. If there is anything I can do help you please don't hesitate to ask. Clare x <'>

Rainbow Queen, This is exactly what my son's primary school said, but like you camhs told us it was a fascade he managed to build to cope at school, he has no learning difficults in fact was seen as the perfect pupil, however as you well know the meltdowns happen at home and the behaviour is so different than that at school. This did not effect his DX. He is now at secondary school and again they say he fine and coping when I know full well he's not. My son is dx with Aspergers. Clare x <'>

Sorry not sure what its called, but the little note that prints at the end of my posts needs up dating my boy is going to be 12 on Thursday and I can't work out how to do the amendment since the forum has changed. Sorry if I am being a bit thick, but I have had a nosy round to see if I can find out and I can't. Many thanks clarex

Hi Di and welcome to the forum, I am fairly new here too. I have received my DLA form to fill out and have been sitting on it for a while as it looks daunting. From what you say about your son sounds exactly like mine, he's 12 and in first year of secondary, has aspergers and struggles with every day life etc. Be interested to see how you get on with your appeal so please keep posting as I may need to ask for some help as I imagine I am going to be in the same situation very soon, hope you don't mind me being so cheeky. Good luck with your appeal and I hope your MP emails back very soon Clare x <'>

Yet again appaulling, why oh why do these schools/nurseries think they know best. Good luck with the hopsital <'> <'> <'> Clare x

Oh Hev, You certainly are having a rough time <'> <'> <'> glad you have thought again about the respite like BD says so what if he swears, the respite is for you and my God do you need it right now. Perhaps your local Bobby or Community Liasion Officer could get involved and perhaps channel Steve's interest to the right side of the law, you may find a bit of involvement would satisfy his obession with the Police, but then again I guess it could make it worse. Oh dear I wish I had more to offer you. Clare x <'> <'> <'>

Happy 18th Birthday L Kathryn, a special day for you too - congratulations. Thank you for sharing its inspirational and give us hope. Clare x <'> <'> <'>

Mastermind

Oh Karen, I am so sorry to hear you have had to put up with all this and poor Ben. I don't understand why the HT is being so defensive, sounds like she is trying to fob you off and cover things up. I know its hard but you have to keep fighting, since being a member of this forum I didn't realise how so many children and parents have to fight so hard everyday, its not as if we are asking too much, basically for some compassion and humanity. I wish I could offer you some constructive advice. Clare x <'> <'> <'>

Night Night Jonathan ... sleep well, catch up with ya tomorrow Clare x

You are who you are Jonathan.... and sod the people who don't accept that... Learn to accept yourself and ###### the rest of them.... You are valued here.... you really and trully are. Flozza <'> Here Here ! (Whoops tried to quote a bit of Flozza post - just trying to say I agree)

Intriging (oh not sure if this is spelt right ? ? ? can't find spell check!)

Jonathan, take your time let it pass when it passes and please don't stop telling us how you feel, you won't believe how important it is to express your feeling and we do understand as parents with kids with ASD more than most so this is the best place to say it. Clare x