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pingu

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Everything posted by pingu

  1. Hello Jsmum welcome to the forum, I hope you find it as helpful as i have. this is the only place i can really talk And socolise Welcome once again. You son sounds like a lovely boy by the way, if its any consolation, the temper tantrums ar part and parcel of frustration, we know how you feel . Take care shaz
  2. pingu

    Dreams (anyone?)

    Thanks for all that its nice to know im not alone This is interesting as i didnt want to be the one to mention this in case i was barking up the wrong tree, but i have often wondered this. Now you hve mentioned it i feel safe to ask if you know any more about it. Shaz
  3. pingu

    Dreams (anyone?)

    Hi there, I wondered if anyone wanted to share dreams, Not the millionaire / ferrari kind, But the sort you have when you are blessed with sleep. The reason i ask is quite selfish, I have been having a re-curring dream for years and its driving me insane, i have spent years trying to work it out, and i have been told its something to do with emotion, (as its to do with water) but i feel there is so much more to it, and am desperate for someone to tell me what it all means.... Ill try and explain what its all about.. When i was 17 (im 32 now) I had a dream about an old schoolroom, it was like a barn in the middle of a field, it had an upstairs a few desks were occupied there, in the corner was some sort of old fashioned cooker/ boiler, and it was hissing, i reached out to touch it, and heard someone shout "dont touch it" and with that i was outside the building and looking at this place going up in a huge fireball.... I woke from this and even now its still clear, I still get palpitations when i think about it, and in my opinion, this dream was a chain reaction and now im been haunted by the damn things. After that dream i constantly dreamt of water. I spent years trying desperatly to go a little bit further into the dream, and after 15 years here is my conclusion. (the bit i need help with) It starts with a market place, the stalls are dirty and very old, the ground underneatth is cobbled, and im looking for a train station, I come out of the market and am hit by a wall of water, at which point i usually wake up. But along side these dreams, i have others which are like episodes of the same thing, i will be at the train station, but the train is late, or im on the bridge looking at the market, or actually walking along the street (a curved cobbled one) I come to a gate and water is trickling underneath and the flood is coming from a river, the more i stand looking the deeper it gets, i wake up from these dreams soaking wet and knackered, i feel like ive fought all night and the last thing i want to do is get up in the mornings, When they first started i tried to ignore them, then i faced them, i emailed lots of people and all i ever got told was it was to do with emotion. But there is some feeling attached to the dreams, its like de'ja'vou only stronger, and i was just wondering if anyone knew what the heck was going on, Ive had 5 on the bounce, and im ratty and tempremental, I lost it with a psychologist yesterday as im so pariniod, but im sure i wouldnt be if i knew my dreams wernt trying to tell me something.. I sometimes get flashblacks to the dreams throughout the day if i see a crack or gap in the pavenment i suddenly recall a large chunk of memory ( i think its the dream) and from there another piece goes in. Trouble is, i dont know anymore whats reality and whats not, i would love to forget all about them truthfully and dream nice things, but it feels like im missing some clue, and i dont know where to look next. I hope this makes sense, i really dont explain myself very well. Anyway, if anyone has any knowledge about the above, or if you have an odd dream that feels like de'ja'vou, then please tell me then at least i wont feel alone in my nightmarish universe. Take care all And Sweet dreams Shaz
  4. Hi everyone. I Lost the plot yesterday with the psychologist, I couldnt face telling you yesterday as i had a massive headache when she left, and had to cancell all the things i was supposed to be doing because i had to lay down before my head popped, (both with pain and frustration) A little history The problem is I have known the psychologist since my eldest was 4 (he's now 13), Eldest has sensory issues and undiagnosed ADHD and traits of AS. Middle is showing signs of OCD and has traits of AS, with dyslexia and dyspraxia, she also went from been a chatterbox at 3 to becoming silent for a year and regaining speech but loosing her bubbly outgoing personality at 4. She is now 8, Then there is the youngest (7) Diagnosed AS, ADHD still undiagnosed only god knows why Anyway, yesterday psychologist came to talk about middle un, who has been displaying some worrying behaviour for a time now, namely her routines are becomming a problem, she is shutting her door 5 times on the bounce, she dries the taps carefully after use, and has lots of other quirky stuff going on, namely hugely claustrobic, wont use public transport her fears are growing and she is scared of her own shadow. So anyway before we even got started i explained that i had made a list of her recent behaviour ( i find it helpful to write it all down), and her reply was....... "ah yes actually i was going to start there"... I ask "where" she says "with the lists, i have noticed you do that a lot, would it bother you if i was to refuse to go through the list" i say "too right, i have things wrote down i wish to discuss" She adds "I meant is it something you have to do?" I see where its going and pull the conversation back to middle un... She starts talking about cognitive behaviour therapy, and asks if ive heard of it, I havent really so say so, she goes on to ask if there is anything i feel i have to do throughout the day... I search the back of my brain and ....... To cut a long story short i thought that she was impliying (because of all my quirky ways) that Middle un had learnt it all off me.. Which is my worst nightmare, as i know she hasnt because my things are worries about going out into public places and having a few odd routines of my own. Anyway it all got a bit messy and i stormed off and hubby was left to pick up the pieces, she said she hadnt meant to make it sound like she was saying it was all my fault, but i have been given so much blame in the past (Paronoid, neorotic,) only to be proved right, and now it seems they want to blame me again. and apparently the only way i can help my daughter is if i help myself in breaking my routines and i dont agree, my routines have been the same for years, and i enjoy my own company, i dont see why i should force myself out on the basis of (proving the demon wrong) when im happy at home. Anyway this has sort of come out all wrong, it doesnt make any sense, but what im strying to say is i had a real horrible time and felt almost naked in the defence department. All i wanted was a strategy for my girl not a complete change of lifestyle. Thanks for letting me ramble. Shaz x
  5. Hi and welcome. I hope you will feel at home here at the forum. Everyone is great and the advice is always spot on ! Take care. Shaz
  6. Tylers mum, I hope you post soon and let us know you are ok. Believe me hun, i know you hear it so many times, but you really are not alone in your feelings. I know that is of no help right now, but i know (as everyone here does) how alone you can feel sometimes. My dad wrote me this some time ago, and whilst reading all the posts, and thinking how much despair you must be in right now, i thought i would share it with you, as it made me realise how much others thought about me. We are all thinking of you right now TM, Please dont forget that. If you need help then i shall give it if my help is of no use then i will seek it if no help can be found i will sit with you for at no time will you sit alone. Take care. <'> Shaz x
  7. Congratulations Tylers mum. I have (as you might have guessed) been left to my own devices for half an hour, so am trying to climb my own mountanious ranking, by getting to post in peace. Im also having a bad day, not because of anything the kids have got up to, (in fact apart from the usual arguments between the eldest and us, its not been a bad day) BUT I feel as though there is a black cloud hanging over my head, i dearnt open my mouth because every thing is coming out wrong !! Oh well.. it must be a dreaded dementor attack . Take care and happy mountain climbing shaz
  8. Hi there. I definatly think you should tell the doctor about this. I have posted a link to a site where you could read more about it. I was going to copy and paste but there is so many different links you would'nt get any benifit. I hope all goes well http://en.wikipedia.org/wiki/Prosopagnosia shaz
  9. Its very strange isnt it? shaz x
  10. Hi elainem Now this is uncanny For a while now kieran has been talking about switzerland. his teacher told me that once he told the full class he had been there in a wheelie bin (on a school trip), He then told the eagerly awaiting class that i was taking him to paris in a sumbarine and invited them all to come along with him What a pickle picking him up that night, surrounded by 15 kids asking if they could come with us Ahhhhhhhhhhhhh Kids Shaz x
  11. pingu

    Happy Birthday

    WOW Thank you so much. I never saw this, Why didnt i see this???????? i know i am late but THankyou You are Great All of you Shaz xx
  12. Hi Im afraid to say NONE There is no way i could see K doing anything other than school out of our sight. He wont even go to his nana's anymore for his sleepover. Sorry i cant suggest anything <'> shaz x
  13. Hi everyone. I was on the way home from school with my daughter today and she was talking about the phychologist comming to school to see her again. he went in last week to test for dyslexia, whilst there last week he had asked her to write a short story about her ideal house. so she did, She put that she would have a fridge in the room and the sofa in the kitchen, with 2 toilets, one upstairs and one downstairs. The guy couldnt read her writing so she read it to him. He asked why she would choose these things, and her reply was......... Well I want a fridge in the room 'cos mum and dad wont have to tell me off for sneaking the chocolate because they sit in the kitchen so they wouldnt see, and i want the sofa in the kitchen then mum & dad would be able to sit comfy in the kitchen, and i want the toilets because everytime i go, someone always needs it at the same time . Pressed on why mum and dad sat in the kitchen, she explained that kieran has taken over the room with his bathplug. He didnt ask her anymore .........Until today.... Today he asked her to write a story. She titled it "the Mysterious seaside trip" , and wrote "I went on holiday and took my house and my fridge, ......... (she cant remember what else she wrote)" When she had finished he asked why she would take the house and fridge. Her reply....... "Well if im going on a holiday but i dont know where im going, i would have to take my house to sleep in and the fridge in case i got hungry !! CLASSIC anyway ill be interested to hear what the pychologist made of it Hee hee, Im still giggling. Take care Shaz x
  14. Hi witsend. You made me chuckle, you are not on your own i swear !! things always seem to come in bulk dont they? We had a run of that certain luck a while back, It all started when My hubby nearly electricuted me ! He had left the tap running in the kitchen (forgotton) and proceeded to go the toilet. by the time he had come back down there was a huge puddle on the floor as the overflow on the sink didnt work. So he mopped it up and went out to the doctors (incidently). I came in from taking the kids to school, and started to do the washing, but the second my finger hit the switch BANG. when i had stuck my hair back on and recovered from the shock, it sunk in that i couldve been killed, but how did it happen??? Well for a start the worktop was knackered (was awaiting repair at the time) and the water had leaked onto the top of the washing machine, and managed to get into the electrics. Anyway............ After that we needed a new one, but we couldnt afford one, so hubby's sister donated her spare one, but kieran ended up breaking it by repeatedly forcing the drum to spin, (when it was off) so we saved up and bought one BUT it arrived looking like it had dropped from an aeroplane. The door was hanging off it's hinges the buttons had fallen out, the pump hung limply from underneath, and there was a huge bulge in the side !! We had it replaced and (touch wood) its been ok, we no longer allow kieran to spin it round, but he still insists on watching it when its on. There followed this a spate of unfortunate mis-haps. involving everything from a can of beans and a foot, to a snail we had to have a proper burial for (long story involving a snail and my over sensitive dyspraxic daughter, she really did try to miss it, but she cant walk in a straight line) Anyway. Hope you have a better spate of luck from now on. Take care Shaz x
  15. <'> Take a deep breath hun, Laugh off the ignorance of others, sometimes the things they say are just down right stupid, <'> Shaz
  16. That made me cry. It is beautiful. I can say no more <'> shaz x
  17. pingu

    MMR

    Hi Everyone, Thanks again to everyone for your experiences and opinions. <'> I Had a call back from the health visitor earlier, It wasn't my usual one, But she put me at ease straight away, I explained the situation, and told her i wanted to do what was best for kieran, Etc. She asked if i remembered what he was like after the last lot of jabs, I said I remember him having an ear infection but i couldnt remember anything else as there was a lot going on at that time. He hadnt been diagnosed with AS, but his 'traits' were there. But according to his notes, I went to the docs a week after the vacination (which was when he had the ear infection) And then i went again a week later and i quote.. 'due to kieran becoming unresponsive' How could i have forgotton? Once she had jogged my memory it made sense because that was where it all began, (the road to diagnosis) i just didnt realise it. Looking back i suppose we just saw the change of class at school as the trigger for him becomming withdrawn, because at that time the MMR hadnt been an issue because I had so little knowledge of Autism, Im not saying the MMR caused it, because He already had the traits, Nursery school thought he was unique, and i had to stay with him for 18 months as he hid in a corner if i left.. Moving to the reception class was where he started to stand out His teacher noticed straightaway. So anyway back to the topic. The health visitor said that he would still have immunity (from the other 1's) so i wasnt to worry about him catching anything as he is still immunised. She advised me to see the doctor alone to discuss it in more detail, but from what she said i got the impression that i wouldnt be hung drawn and quartered if i turned the jab down (on his behalf).. Im sorry this has turned into a bit of a novel, but i just wanted to thank you for your kindness, and for making me feel better, You are my only link to the outside world (well apart from my daily trot to school) and i appriciate all the help and advice, its also nice knowing we are not alone and that others have had the same dilema's. Thanks again Shaz x Now where did i leave my alcohol. ?????????
  18. Hi <'> i hope it goes ok. I absolutly dread meetings, (im not good with face to face things) But even more so if there is something you are not looking forward to, When you get back, Have a cuppa and chill for a while. Many <'> <'> <'> <'> Shaz x
  19. pingu

    MMR

    <'> Thankyou for your advice. All of which is sensible and much appriciated. i am trying to contact the health visitor at the moment to discuss things with him, im hoping he will be a little more understanding than the doctors receptionist was yesterday.. i had only gone in to pick up kierans prescription and i got a lecture on Vaccinations. the receptionist said, "oh theres a note here to 'remind' you that kieran has missed 2 vaccinations, would you like me to book him in with the nurse for later this evening??" I explained to her i was unsure if to go ahead because of the risks, and also he has a hatered for the place at the best of times, on top of that i wouldnt be able to pick him up from school and take him straight to the docs even if i was ok with it, because it would upset his routine. She looked at me and said "why?" To which i replied "because he has Aspergers Syndrome, and i cant just throw things on him at the last minute". To which she replied "well i would 'tell' him that he needs them and just bring him, imagine if he was unvacinnated and then caught one of the illnesses" I walked out without another word !! Anyway. thanks again. You are my sanity Shaz x
  20. pingu

    MMR

    Hi everyone. Me and the hubby are discussing K's impending MMR booster. He feels that the theory on 'the link' is a risk and is unsure if to let him have it done, i on the other hand feel the link if there is one is small and the way k is is the way he is meant to be, and the risk of him having complication from measles far outweith the jab. The G.P is on my back, as he should have had both his pre-school booster and his MMR by now. The pre school booster i thought he had already had at 5 but apparently not !!. So now we are having kittens on how best to approach the subject, and if we decide to go ahead how to make it less traumatic for kieran, who already has a great dislike of the doctors surgery (and thats on a good day) Any advice gratefully recieved as always. shaz x
  21. thats what i thought search engines can be so annoying
  22. Good morning everyone. My brother gave me the link to a site which i have to share with you. If you are anything like me, I love to research things especially to do with health. Anyway you may already know of it it is http://www.wikipedia.org/ Its an online encyclopedia and when i say it has everything.. i mean it has everything. You just pop what your looking for into the search bar, and out pops all the information you ever wanted to know. I thought i would test it the other night and put in 'Neck ties' I mean what can this site possibly tell me about neckties?? well i arn't joking i came away fascinated, and rushed to tell steve the origin/maker/where it all began of the simple Tie!! ive now looked through and found lots of interesting information on a lot of the terminology used with austic related disorders. and i know some of you will appriciate the chance to have a look for yourselves. Some of the topics we have talked about can be clarified etc. Im on with Polyhyrominos now (too much fluid around the baby) in relation to another topic on the board. Apparently the condition is a side effect of IUGR, ( intrauterine growth retardation) but i havent finished reading it yet. Anyway i hope you find it usefull. Take care shaz
  23. Hi That's interesting, do you know of a website to look over this, or is is just your personal experience?? shaz x
  24. Hi I would also love to hear this theory. My History is as follows. With my first i suffered from Pre-eclampsia, and was in hospital for 5 weeks before he was born. He was classed as a 'small for dates baby' His growth stopped altogether at 32 weeks. and i had a condition called (excuse the spelling) polihydrominus, which meant that there was too much fluid around the baby, and they thought he might have a problem swallowing the excees fluid so it was building up. Apparently diabetes can cause this but i tested negative. He lost weight whilst inside me, and eventually they decided against a normal birth as he was by then too weak. he was born by C section weighing 51b 13 oz. Feeding problems continued and even now at 13 years old he is only 4 stone. (Ongoing probs Tested for AS, but not conclusive, undiagnosed ADHD and many sensory problems, He has a problem with the hyperthermolous gland in the brain, which controls temperature, apetite, sleeping, behaviour and growth) My next was also a boy, again i had pre-eclamspia, polihydrominous, and at 24 weeks he became less active. He hung on untill 28 weeks, but he was too weak. He was stillborn at 29 weeks. We named him shaun. They found no cause of death, but i was told i could have a problem carrying boys, as i had suffered two miscarriages before having Liam (1st) After this came 'dreamgirl' Named in memory of her brother Shauna gave me a problem free pregnancy, no blood pressure problems, nothing !! She was too born by C Section (5 14oz) (i desperatly wanted a normal birth, but i had health probs which they would'nt risk) Incedently shauna is Claustrophobic, selective mute at age 3 (at 4 she spoke again) and at present she is undergoing tests for OCD. Great imagination but lots of AS Traits. (literal thinking, lining things up etc) she also has dyslexia and dyspraxia Kieran was next. Probs with blood pressure once again, the horrifying pains, and polihydrominous returned. Again a c section he was born weighing 6ib 5oz But he had the cord around his neck and took 2 hours to go pink, He was horribly blue But luckily he was ok. He is the only one who displayed signs clear enough to be taken seriously by others, and at 5 he was diagnosed with AS and Dyspraxia. When i try and explain the kids histories to docs etc they say its coincedence. But im not convinced it is. I am always blaming myself, as i can see a lot of me in them, and am convinced that i have managed to make them into clones Anyway. I would be interested in the theory of the asd causing birth problems. Take care Shaz x
  25. Intrestingly enough, this has just solved one of our long standing mysteries. 3 years ago, liam came down with impitigo, he apparently was the only one at school with it, even though i had heard on the playground from other mums that it was going around, within a couple of days he was in a terrible state, very high temp, couldnt eat anything, there was blisters and sore areas from his mouth down to his chin, and at one point he was asleep solid for 18 hours. A few days afterwards he was complaining of an itchy rash between his legs, and when i looked i was horrified, his entire 'region' was bright red, exactly like sunburn. I rushed him to the docs (again) but he said it was because he had slept for a long time in the same position and combined with the high temp he'd had, the rash was caused by that. The next day the rash was under his chin, under his arms covered his belly, back, legs and arms. It was incredibly itchy and looked terrible, so again i took him to the GP who said.... It was ezcema and it had been brought on by the impitigo, and he also said he was depressed which was apparently why he was so larthargic (he was 10 at the time). Anyway about a week after, Kieran (then 4, and not diagnosed with AS) had a blister under his bottom lip, It seemed one second he was running around eating ice cream, the next he was knocked off his feet with excactly the same thing as liam had suffered, Blistering rash all over with full blown impitigo. Very poorly for a while, and it took 2 lots of strong antibiotics to clear him up which took almost 2 weeks. I thought it must have been part of the impitigo virus, but thanks to this discussion i am now confident it was scarlet fever all along. Does anyone agree? Take care everyone Shaz
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