pragmatic

Dear All, Here is the website for my NT 10 years old- following the steps of his older brother, I guess this is one of the benefits of having an Asperger older brother- you get to know more about 'specific' things and hobbies web.me.com/coolmule Some of the stuff is really cute Best Pragmatic

Dear Andy, Many thanks for taking the time to look at it. Yes I am afraid he really didn't like the tower, he wasn't happy that there was no cafe on the top floor and we couldn't sit, I think also the whether was not good that day- but you know how it goes if he have strong views it is very difficult to change them. Haven caravan holiday was another looong complaining stay well at least he knows how to express his feeling. Pragmatic

Dear all, I am so proud that my 13 years ASD boy have set up his own website- everything there he did on his own; please give him a visit www.coolmuleweb.co.uk He registered with google ads so when anybody clicks on the google ads he will get few ps and you wont pay anything He will also appreciate your valuable feedback Thanks in advance Pragmatic

Oh that is so sweet- hope you didn't hurt yourself so bad we had a similar situation; the other day we were talking about 'fire drill' what will we do if a fire breaks and where to go if the flames are downstairs and we are locked upstairs ( I know very scary stuff but they need to be prepared). My aspie boy was so great he suggested very valuable solutions (including trampolining on top of our car in the drive way )- but he was very attentive then he made sure that his younger brothers (particularly the 5 years old) knows exactly what to do... bless him Pragmatic

Yes of course claim it- and yes imagine the worst case scenario and write about it. I n our case after receiving it we applied for a disability card from the council- this gives us a lot of discounts for him and usually a carer goes free in most swimming pools and attractions which meant that we can take him out more. It also helped in play schemes where he gets almost half price which agian meant he can have more activities during the summer. Good luck and don't be put off by the length of the form; my advice would be to downloaded it and fill it over more than one session then get you hubby or best friend to read it then amend and send then finger crossed Good luck Pragmatic

Hi Darky, Exactly, cases like this are so important even if not to argue for the highest rate but it marks a recognition of the needs and demands faced by parents of autistic children even if they are not obvious or fit in the 'box'. Pragmatic

Dear All, A (DLA) high mobility rate can be granted to those on the autistic spectrume a high court decided: see article from social care law. WELFARE BENEFITS DISABILITY LIVING ALLOWANCE Social Security Commissioner holds that DLA claims by persons with autism must not be rejected on the basis that autism has a non-physical cause Claims by persons with autism for the higher rate of the mobility component of Disability Living Allowance (currently, �45 per week) are sometimes rejected on the basis that autism does not have a physical cause. This should cease in the light of this Social Security Commissioner decision which holds that, in all cases, it should be decided that, for benefit purposes, claimants with autism suffer from a state of arrested development or incomplete physical development of the brain. The issue One of the entitlement routes for higher rate mobility is designed for claimants who are severely mentally impaired and, as a result, display severe behavioural problems. In order for a claimant to be severely mentally impaired for this purpose, s/he must suffer from ?a state of arrested development or incomplete physical development of the brain?(a). A Social Security Commissioner has now held that social security decision makers and appeal tribunals, where they accept that a claimant suffers from autism, must also conclude that s/he has either a state of arrested development or incomplete physical development of the brain. Accordingly, higher rate mobility claims made by such claimants should not be rejected on the basis that the autistic claimant does not have arrested development or incomplete physical development of the brain. Comment It should be noted that this decision does not automatically entitle persons with autism to the higher rate of the mobility component of DLA under the ?severe behavioural problems? route to benefit: (i) the claimant?s developmental disorder must result in ?severe impairment of intelligence and social functioning?(. Only then will s/he have the necessary ?severe mental impairment? required under this DLA entitlement route; and (ii) the claimant must also have ?severe behavioural problems?�; and (iii) the claimant must also be entitled to the highest rate of the care component of DLA. (a) Regulation 12(5) of the Social Security (Disability Living Allowance) Regulations 1991. ( The case law tells us that, so far as severe impairment of intelligence is concerned, IQ scores are important. In M (a Child) v Chief Adjudication Officer (1999) (R(DLA) 1/00) the Court of Appeal said that an IQ score of 55 or less is the essential starting point for a consideration that severe impairment may exist. However, it also observed that IQ scores can in some cases give a misleading impression of the claimant?s useful intelligence where their poor social functioning shades into an impairment of intelligence. � Reg. 12(6) of the Disability Living Allowance Regulations 1991 provides that: ?A person [has severe behavioural problems] if he exhibits disruptive behaviour which? (a) is extreme, ( regularly requires another person to intervene and physically restrain him in order to prevent him causing physical injury to himself or another, or damage to property, and � is so unpredictable that he requires another person to be present and watching over him whenever he is awake.? Social Security Commissioner Jacobs gave his decision in case on 13 November 2007: CDLA 2288 2007. Hope this may help someone. Best Pragmatic

Hi JJ'sMum, I our case we had a broad diagnosis in our case with my at the age of 5 or 6 of being on the 'autistic spectrum' we refused this at the time as we felt that he may have asperger or high functioning autism at the time however the consultant reject this we insisted on no formal diagnosis at the time and listed his difficulties in his statement. When he was 9 1/2 he had another assessment and the consultant (another one) was positive he has Asperger Syndrome and although it is still on the spectrum it was more specific and reflected his needs more. We accepted this diagnosis then and made his school aware of it and that really helped very well especially on transition to secondary. In relation to the blood test I really don't see any point for it at all. Yes there might be inheritance among his children but it is not a life threatening condition and I believe it is completely wrong to stop having children if you are asperger; you just need to be aware of the possibility and I am sure he will be aware of them by then and will be also able to deal with any situation then given his life experience. Pragmatic

We have quite a few game consoles in our home- the Wii is the best but it does need a lot of space and we had to move it from one of the kids bedrooms to the living room for the space. PS2 and Gamecube are older but they are great fun and the main difference relates to the type of games avaialble on each. the gamecube is nintendo (wii makers) and they tend to have many games that appeals to younger players (mario/luigi and all that stuff)-- most other characters such as sonic the hedgehog are available on both. And yes because PS2 and gamecube are older now; you can find lot of good deals on games. If he is not into Mario then go for PS2 but if he likes it stick to gamecube as it is nintendo exclusive; it is also very cheap now- you can get a preowned with game pads for something like 30 quids. Hope this is helpful. Pragmatic

:thumbs: :thumbs: <'> >< Fantastic.. there is usually a good reward to those who insist on getting their rights... Well done oxgirl.. Love Pragmatic

Finally put together star charts for my NT children to be nice to each other and try to ignore my older son difficult behavior- finger crossed this will help especially with the holidays !! Pragmatic

I quite agree; it is very difficult to give an 'average' reaction of ASD people and the variation in reaction can be huge.. Pragmatic

Inspiring

I found the last part in particular very scary and revealing. I repeated the clip nearly ten times and read the text accompanying it ... it is such an overload I tried to think what my ss would do and I believe he would be standing in the middle of the street screaming and crying.. sort of a similar concept of reaction I presume, but he may react in a similar way... I am not sure.

Hi Loobylou, It seems to be typical for all parents not to see any problems with our kids and to simply suggest it is due to parenting This is very unhelpful and will only make you more stressed you are just int he stage of understanding what is going on with your daughter. It has been already said that you father is not qualified and your parents are not with you all the time also the relationship between grandparents and grandchildren usually have different dimensions than that between parents and their children. The only thing I can say is to ignore such comments and focus on your daughter try to communicate more with her and with the professionals who are advising you. Good luck Pragmatic