TuX

shona, what if take a photo of the clothes with a mobile phone that has camera,or use a digital camera?

http://uktv.co.uk/g2/item/aid/593618 probably the worst name for a tv channel ever.............. it's not a new channel exactly as it's just one of the ukgold channels renamed. mum will like this as she's got freeview and ukgold show prison break [or prison escape as she calls it] repeats. think this channel is replacing ABC or FTN [looks like both have now gone].

thanks for all replies,and links. re.about staff not coming up during meltdown. that is actually normal for some of the staff here,with the same staff-the worst time it happened, had slipped down between the wall padding and the bed,was lying like that-face down,covered in own wee [no idea had did it],mouth was full of concrete and was too out of it to lift head-am not good with time,but can say it happened in afternoon when afternoon staff were on-until the sky was completely dark,and quiz shows and repeats were on tv-with the strength in hand,started banging on the wall to try and get the staff to come up......it took a lot of banging,when she finally came up,she then started shouting at am to drag self out,no help with moving the bed or anything. started signing for pain killers,as inside head,it felt like it was going to burst,it was very bad,she said am not allowed any painkillers because the sleep instaff is asleep and they can't be woken up [the medication is in the office where they are] was not going to take that for an answer,was punching and kicking the walls because of this feeling in the head,she messed am about for a long time until the noise from the kicking and punching got her shouting saying it will wake everyone up and it's not fair on them-she went and woke her up and the sleep in staff [she was one of the staff who should have come up to help early on] gave the painkillers. was left in the soaked combats,until next morning when one of the staff [she is one of the nice ones] saw everything and said should have been helped to change [am don't automatically think of doing this,unless it's part of routine],she complained to the staff as well and said it should not have happened. there is a lady who lives here who is mainly here for behavior,rather than a specific condition,although she is supposed to have aspergers-she is severely attention seeking and will try and take everyones' staff away for herself,as well as having her own for attention-this is where most of the staff who are working with am end up with-talking to her,making sure she is well,and watching tv with her,when am having meltdowns,usually because of sensory or change reasons. am sometimes go all day without seeing staff because they are busy with her,when she has already got staff,it doess not make sense but then it does because that is how bad this place is. after reading this thread,am showed the staff and they said they would tell the manager,one of the staff [she's very nice] came to see am when she came intoday and saw the thread and said why has no one ever thought of it earlier,she said she would make sure the manager heard about it. there are a lot of specialists who are part of here,but not sure about OTs as have never heard it used here before. to mumble and anna,lynden,jb and krystaltps-are on [or do children take] medications for meltdowns? mumble...fireworks-what do to cope with them? it's like living in a war zone,but without the getting killed bit-they should give sedatives or something to people on the spectrum/with sensory problems like they do with flu injections to people,biscuit [cat in avatar] needs sedating to,she is very behaviorally autistic,especially with sensory problems,we'll both be MDing on the floor on bonfire night. can't wait till they ban the [censored] things. ----- off topic... does anyone know the email address of sharon [from paains] and would be able to give it am? haven't been able to get back onto paains in months and the problems with 'validating'/not getting the emails are still there,it's ever since the site was updated. also,any paains users on here?

flipper, other brands are doing them now. am was going to get the acer travelmate with finger recognition,but in the end didn't as wouldn't make much use of it,went for another travelmate instead [still with crystaleye camera though]. mumble, if not have one already,go into poundland and to the computer section,they are selling laptop locks,which lock via the kensington lock socket on the laptop/notebook,more about it: http://en.wikipedia.org/wiki/Kensington_lock they are really good to have even if just at home,or at coffee shops or somewhere else out,general thieves wouldn't get through the cable[which is locked around something solid] ,as they would have to have the right tools with them.

am wondering if anyone knows where to buy padded helmets for people with special needs,head banging etc. am already get restrained by all staff inhouse if go into meltdown,and am on enough meds already to help with it,but it does not help with having meltdowns when there is no one near enough to stop them intime,and have ended up with many suspected fractures over the years [am refuse to go hospital],last one was on friday,when some idiot lit fireworks outside house,and it sent am into meltdown [am already wear earplugs and eardefenders over top but they only help a little],wasn't aware of it,but head demolished a lot more of the concrete wall,and left skull in a state,am do not feel outside pain,luckily,but inside could tell something was bad. staff hadn't bothered to come to get am out of the room and furtherest away from the fireworks as possible when they all know this is a major setoff,found out later they were watching tv,which is right just below where the wall that was being knocked down with head was-how could they not have heard it? because of this and not being able to depend on all staff,am wondering about getting one of those padded helmets, but they are hard to find for sale on internet at least,what shops would sell them whether on internet or not? non internet shop would be better though. also,does anyone else here 'self harm' in meltdowns or have children that 'self harm' in meltdowns? what do to help it? meds? padding protection? restraining? phone for police? am have special padding all around bed [a special padding matress up on it's side,and cusions and pillows are used] as it's where staff bring am to properly restrain and pin down during meltdown. am used to have them daily and they used to be against other people as well but tegretol almost completely stopped them against others years ago [unless it's people setting the MDs off],and am still on that and beta blockers now.

why couldn't they use some of their service users or members who would be interested in being moderators? some say they won't allow outsiders to do moderating because it's not as safe,but sky gave am an unofficial admin job a while back [had complete control over site,and got paid for it with non money things to]. NAS is one of the places that really should have a message board,they could get an invisionfree forum so they don't have to bother with looking after their own server and stuff,there are many ways to get it to happen.

mumble, it's tactile defensiveness,it's how the body is interpreting sensory [touch] input,sensory integration therapy [?] might help,was offered this once,but have such accute sensory problems that felt any level of it would be exposing self to torture. think temple grandin might possibly have mentioned medication working for it also,haven't got the book at this house to check if it is,and what meds if any though.

about the noisy pupil....ear muffs will not hide the noise enough,especially for someone with noise hypersensitivity,pitches will go straight through them,would it be too late for either of them to change class? am have to live with a lady like that [who is like that from morning till night] the res.home illegally avoided doing a risk assessment,which would have immediately shown us both to be completely incompatible,but they can't move someone who is very strictly routine in a hurry,guess this could apply to M as well,or would he be able to move class? another idea..does the other child have own support in class,if not,what if they had a volunteer/class helper of some sort with them to distract them from screaming?

no,they just lessen the chances and lessen severity [not too sure on how effective the last is,as dad gets flu still,and he acts like he's dying],dad gets one every year as a pensioner,and am offered them due to living in a res.home. the injections are good to have for those in places where live with lot of people,because once someone gets a flu,it will spread to everyone,especially if there are people who sneeze and cough all over everything,and don't clean hands etc.

some adults with aspergers call themselves "mildly autistic" or that they have "mildly autistic traits",people usually blame doctors for calling it mild whereas it is what some people on the spectrum refer to to,they then exclusively call aspergers mild,usually they haven't had any experience with aspergans who are on the severe end or auties. this is the problem with those who are higher functioning regardless of label,people always think its 'mild'. if someone has enough autistic traits,and does not fit kanners or aspergers criteria,it is possible they have PDDNOS [not otherwise specified],and sometimes,PDDNOSers can have more severe traits than aspergans,but just don't have enough of them to be diagnosed under one of the other asd labels. it might be worth seeing if PDDNOS applies to son or not.

there is a phpbb forum am use that has this problem,the spam bots join up and can post,and leave loads of links in them,they register so many accounts,the admin of the forum left a long time ago so no one can do anything about it apart from trying to get him back. saw it happen on a few other phpbb forums to.

as an adult kanners autist,am have always liked the way every group is together on this forum whether adult ASD,child ASD,NT,somewhere undiagnoseable on the spectrum,adhd,it matches the autism spectrum in a way because everyone is united and connected in some way or other. there are not a lot of auties and aspies on here [am do remember more autie adults who used to be on,one who had colourful signature for instance],so would think it would not get used much.

it might become official,as there has been talk of it and other name changing by experts,eg,changing aspergers to hfa. have never really seen 'autistic spectrum disorder' before.

do they have permission to use 'physical intevention'? am know with adults,it has to be allowed for each person by a behavioral specialist/pysch first. re.the elbow technique,is this the one having one person on each side,hooking their arms around the persons elbow and pinning each arm to their sides? am get that one a lot to be brought in after a meltdown,or when refusing to come in,as am have little to no awareness a lot of the time,it will not hurt if done properly,but as Ryan has found out,it is very bad feeling,to be brought into 'reality' by means of restraint,it's like what people say about waking sleep walkers up in the middle of their deep sleep. to use restraint without trying all other means of getting him to back to reality mode,without focussing on speaking to him first,they have overreacted,they need educating on this definitely. they cannot use restraining to take an autie or aspie out of their reality,restraining should be the last technique used.

they did this all the time at the instution am used to live in,if one person had severe OCD with autism,that meant to them,we all had severe ocd.

millymoo, is there no chance of going on regular visits to the new place first so he can build it into his routine first,which is better than a more sudden move? this is what am have to do for a long while before moving to a new residential home.

they can differ,am have had the same social worker for a long time now,she is also the overall manager of the learning disability team whether that makes any difference-the one had sort of had before her never got in contact with am,other adults am know have had a few different social workers. Annea,is daughter child or adult age? the way they fund now, in many places means even more people being left out if they are only taking on those with moderate or above difficulties, and they tend to be very biased towards aspergers regardless of skills and difficulties,unless they know asd well. some people will not be accepted under the learning disabilities team due to not having significant enough difficulties,and mental health won't accept them if they don't have significant enough mental health problems,so some aspergan adults might not be able to get support from them at all. not sure how different it is to child ss though.

the off and tv guide buttons are son rise programs for bad morning tv, the buttons don't cure this morning,all them house programmes,loan adverts etc,but they make them a lot....less visual,but for promotional [preying on peoples weaknesses] purposes,call them cured. am believe in the son rise program as being worthwhile,but,it is not a cure,it's a therapy that can lessen traits,bit of a difference.

have got into other topics about Raun before on NT majority forums,of which a lot of members think those who are classed as autistic,aspergan or adhd should have a good smack to get it out of them,and forget autistic and adhd adults cause all don't exist apparently. this is why this morning should have researched it more and realised what they say can influence people. am cannot overcome autism,but am can overcome this morning,and turn it over,very recommended to all.

sister got hers from john lewis [in the trafford centre],they have nice patterns,although she said the rolls were expensive. she only did one wall in her lounge with it.

if there is ever going to be a manchester meet up,would probably be able to go,but can't do weekends.

one of the people am live with is like that,but has no asd,is just LD and mild MR. he is not severly ld or mr,but will eat out of bins,sinks etc,and will steal off the rest of us,most recently am had a box of flakes go missing [those chocolate stick type things] which sent am into a meltdown as had been expecting it to be in own cupboard when got back. he is obese,and staff have to watch him when he goes into kitchen incase he steals someones food.

am going to a NAS day centre [anglo house],providing can get the funding in the council funding meeting next week. was told it costs over hundred pound per day per person-social worker said that is a lot of money,and the people who do the funding might not want to give it as am in twenty four hour care,but another lady who lives in the home goes to a non autie day centre,and she gets funding off the ss for that,so it should go okay. she applied for am for two days a week,and she says am have a strong case for being allowed due to circumstances at the home,and being turned away from college. am know of another support place in manchester-aspirations in stretford,which is also the base for greater manchesters' autism association,but it's only for high functioning kanners types and aspergans,and also up to the age of twenty five,don't think need funding for a place there though,unless it's changed as people have to be very high functioning and have no support needs. am also know of another club in sale west,in sale wests' youth club,found out about it through a friend/support lady who took am to and from college,as she works there also but it's only for children. they won't do an adult club as there isn't enough funding,they already run the phab group there [which has adults with mostly learning disabilities in,auties and aspergans with sensory problems wouldn't be able to cope with it].

barry scott has a lot to answer for, his voice is also extremely loud in that advert.

don't understand the poll part of this,but am female and autistic,everyone else in family with kanners or aspergers are male though.