Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team


  • Content count

  • Joined

  • Last visited


About TuX

  • Rank
    Ben Nevis
  • Birthday 02/24/1984

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Gender
  • Location
  • Interests
  1. Facebook

    Not TuX either...not a member of face book,although jaffa cake appreciater yes,they do not put enough of them in a box.
  2. Has anyone else come across one of these yet? What do think of them [whether have or have not had the experience of their.....torture]? Am stay at parents' every weekened and this weekend was very different,had just got out of taxi on saturday morning with dad and headed towards usual spot to go into home,but,there was an extremely high pitched and brain crippling noise and feeling,fell to the floor instantly meltdowning,dad had dragged am in. After a while,it was worked out that--dad had no idea what had happened because his hearing is not able to hear it,so he couldn't warn of it,am thought it might have been one of those anti cat boxes that people put in their gardens as dad had got one a while ago to keep the cats away from one part of the garden but removed it completely when it kept affecting am,this one did not seem as bad in terms of effect [the cat one made am sick] -they also only go off when something walks infront of it,but think it's got to be a mosquito- the noise will go on for a bit,then it goes off,then it goes on again,then it goes off----it goes like that all the time,no breaks,both mum and dad can't hear it. There is a shop nearby that has a lot of gang problems with police out often,so it could be them [there's also a load of other shops along with it],there's also a building site at the end of parents garden and am wonder whether they would be using one,dad said no because they are well fenced in and they've got people for security,he is going to speak to the shop owners about it tomorrow to see if any of them have it. This device started this week/last week [not sure what day it is at moment],and am not going to be forced into wearing earplugs and ear defenders in family home/old home for the rest of life and never be able to go in garden with the cats because of this. Am think Mosquitos and other similar devices are bad,because they are used with automatically assuming the people who are affected by them are doing bad, they are only against teenagers [but of NTs,they can be heard into thirties and over] and Auties and Aspies can be instantly overloaded by them,the only organisations campaigning against them are childrens groups,there needs to be the NAS getting in there and stating it's affecting innocent Autistics to [there was a recent thread about this on WP to]. Innocent teens,hypersensitive NT adults and Auties and Aspies should not be attacked in this way. If anyone wants to hear it,am will find the video,it's on a sky news report video.
  3. Cant think of a title

    Hello Anna, thanks for replying and sorry not replyinh yret,not even sure what original post is like as wrote it with a messy head,rlreally need to stay away from forums and blogs when head is messy. The manager wont sort out a helmet,even though it would save head a lot as the room padding only helps if it happens in bedroom. Are able to move about a lot with the full EEG test or like the shorter test,do have to stay sat on the chair not even able to pick nose or walk around? am wasn't allowed to do that in the short test, it would be better if they could do it at home,as there is a lady here who could set off meltdown in am,she has tv up full,bangs on the door and never shuts up shouting apart from when she's fillign her mouth with food,am don't want to end up hurting people in meltdown in hospital if people there get in way. Do hospitals allow bringing own laptops? The padding hasn't come yet.......and the man from ford is coming this week so will get to choose car then,staff are trying to make get a fiesta,there's one around here and don;t like the shape and lines of it at all,got to be focus,or cmax which is similar shape and lines but dont know what its really like apart from that. It would be great if room can be completely sound proofed,dad said it might make room smaller? if it works it can be very small dont care.
  4. My bank account has been emptied!!!

    They are bad people,if they cant afford something they should save for it,not take it from other people. At least are able to get it back though,but it is not fair that the bad ones get away with it. It also happened to one of the night staff who works here,recently,it was traced back to being used at tesco,she got the money back.
  5. Have not posted on here in a while...have a few things to over-write about. Sister was in London last week doing training with other people from her work [as councilors] and the person doing the training happened to be specialised in Autism although she doesn't even work with autism and it was nothing to do with the training. Sister told him all about am in the break and he said what am had was called explosive Autism. Has anyone here ever heard of the term before and know what it means? Not even the Autism specialists am used to see ever used that term. Have been threatened with another move since january,after moving in only in december,as they say they cannot cope with am [it's a residential home for people with mixed disabilities] and although have medications-have been having severe meltdowns everyday,sometimes more than once and many of them include seizures. The staff say setoffs are change,unpredictibility and sensory related,and this area is probably one of the worst for sensory input,but because they had ambulances out twice last week [and am fought back when they tried to drag,as have a hospital and ambulance phobia] and have had a lot of head injuries,they got am emergency appointment in hope hospital last week and the neuro said am have to stay in there for two nights [in a private room] whilst they do that horrible feeling wires stuck allover head test. He said if am do not have a meltdown in that time,they are going to bring am to the setoffs,it's like they're allowing torture. The managers,social worker,LD community nurse and behavioral nurse have said no more, with moving am about and they are trying to look at ways of keeping am here-the manager mentioned all this tonight,as well as saying she is going to look into getting bedroom completely sound proofed. Does anyone know if it really works or not? the manager doesn't know anything about it. The new custom made padding for bedroom has finally been made and was brought here for a trial last week by the OT and designer,had chose the colour/pattern of it last december,it needs a change and is going to be installed later this week,the previous padding is bright red and is not protectable enough. The managers have also referred am to Autism Initiatives and they are coming on thursday to do an assessment. Has anyone ever heard of them or used their services before? am already funded for national autistic society services,this other group are supposed to be like them but just don't seem to be as well known,the community nurse said she thinks they might offer respite amongst other things. And have also found out am getting a motability car,they have mentioned getting one for ages but said the high rate mob. component covered all the taxis needed [it never did]. Am hoping to get a ford focus. Oh,and Samianther is now upgraded to two units of insulin,and she runs around the room chasing after dad when he's got the syringe out,waiting for it. what kind of cat likes having injections.
  6. my computers broke!!!!!!

    Bit Torrent might have it,am have had a look on one main site but can only find HP printer drivers,although don't recommend BT unless know how to use it/what to look for etc. Wonder if HP host the drivers etc themselves? If PC is not booting,and it's not BIOS or hardware related,try downloading Ubuntu,use an ISO compatible burning programme [not sure which ones there are,as have only ever got ubuntu by getting them to send free copies but that takes a long time for delivery] to copy it to disc,put it in the dvd rom drive of the bad computer,and either set up as a live disc [which does not install anything to hard drive so cannot mess up] or install it,it's just an alternative operating system to Windows but it's completely free,and will load up needed drivers etc it might take a lot of effort to get some modems and wireless things working in ubuntu but is great when it works,have never had any of them problems as had basic no wireless set up and used cable broadband at the time. Have had own share of dead computers to-bought an acer travelmate laptop last august,it got damaged beyond repair in a meltdown+seizure,weeks later [last week] managed to afford another one,but PC world had sold out of all the ones could afford,and only had one horrible cheap nasty advent laptop left,took it as wanted to get back online,it turned out to have a battery that did not work at all,a very obvious dead pixel and a space bar that sticks and makes a lot of noise when used,took it back today and they had the laptop am had originally gone to get in stock [one left ,after saying there were none] -a toshiba equium,have got extra insurance on it now.
  7. Did anyone see Delia on TV tonight?

    Sisters' boyfriend watches her programmes as he is a friend of hers via Norwich FC [he repeats this often,though it is true] ,he doesn't even like cooking but he came yesterday [to parents home] with some strange looking thing in a dish he'd made from reading one of her books,it looked like cat sick.
  8. Additional Housing Costs

    llisa32, am adult but not AS and have a social worker under the learning disability team. They help am in many ways,including going to all meetings am have,making sure all own specialists know what has been happening,making sure am do not have problems here,arranging specialists visits,goes to all the meetings am have including res. home meetings.. the way social services is,if the only need a person has for them is to do with benefits,they won't get a social worker because the criteria for getting one is stricter,the person has to have a high need to qualify in most places,because of funding. There is also long waiting lists for social workers,unless have very high needs,or are going to be homeless etc. Try the CAB or NAS for getting help with getting benefits instead. But what do mean by support? what type? social workers definitely do help when it comes to getting support if meaning support in the community,cannot get it without unless pay for support privately-they do a assessment at the start to see if are suitable for the services,a lot of organisations won't take clients without social services referal.
  9. petition

    Think it should be an 'opt out' thing of being disabled,rather than 'opt in',why should those who benefit from the labels,have to fight even harder to get the aides,services or support they need? maybe there should be another label for those who are unimpaired by their ASD so they don't have to be associated with disability,would they not be on the BAP side of ASD?,do unimpaired aspies/hfers who need no support or accomodations need official labelling? Being classed as disabled wouldn't automatically get someone a blue badge,the person has to have higher rate mobility component of DLA otherwise it's near impossible to get, and most disabled people won't get high rate mobility.
  10. It,s gettin on me wick!

    If do not like adverts,get a sky+ box/sky sub.,record whatever programmes want,and skip through adverts,it's great. Not sure if Virgins box does the same as it's got a built in hard drive.
  11. Am do not have children apart from several cats at family home am think are very autie like [especially one in avatar,Biscuit],but am have classical autism [diagnosed with other ASDs and LDs previously] and sister,who thinks she's on the spectrum,but doesn't need any help and doesn't want diagnosis,she's also got snyeth....the thing seeing things in colour. Dad is suspected of being aspie,some of his relatives have diagnosis others don't.
  12. He is going to have the pre judging forever,it comes as part of being different in some way,these ignorants do not see past the behaviors and the visuals. What can do is either choose to educate them on his autism,they might carry on being ignorants,or they might listen and be better educated for it. Or can choose that the ignorants are being a waste of effort and move on,they don't always deserve it. Learn to numb against words-accept words are only words,and keep telling self they cant hurt unless let them.
  13. **Sad news**

    Phasmid-very nice member,one of the most recogniseable,big part of Krism/asd-forum.
  14. Help!

    They're probably using a copy of Norton Ghost,it's basic stuff to do,shouldn't really charge for it,but they all do in techy shops as standard anyway. Are going to be buying a new laptop?
  15. Autistic Pride Day

    It's on 18th June 2008. Am currently looking into possibility of getting a Manchester APD together,as it seems no one has organised one yet,and am also have access to a few different services who might be willing to help out [mencap,they've got a hall with a big garden and great swings out the back],the NAS day centres,the older one being better as it's got more space and less sensory overload inside,but no idea whether they would be willing to donate the building for a bit. Or it could be outside,like heaton park,as there's a lot of animals there to,only problem with outdoors is weather being unpredictible. Would anyone here be interested in coming to this? Am would like it to be for auties,aspies [of all ages] and families of those on the spectrum [previous ones have tried keeping it just for adults],perhaps have food,drink.. available,a quiet sensory area..have autism/aspergers leaflets and books available for people to look at.. Just some ideas have thought of,haven't said anything about it elsewhere yet. What does everyone think of it? it could also be a krism/ASDF meetup as well.