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Found 8 results

  1. I was falsely diagnosed with adhd at 6 but i new something was building up before i was diagnosed with aspergers syndrome at 18 when i was 13 now a long long long long long long time ago i had a staqtus epilepticus and the aspergers wish had been deteriatin since i was 18 sudenly became late onset regresive autism and acording to the dr at the hospital it is combined wiv peter pan syndrome so i have the worsed and best part of asd worsed cause i never goin to be out of pads now because of ibs and epilepsy combination best because i a have a childhood back that i never had in first place but i cant grow up anymor now ever were progress happens in the peter pan syndrome the autism conteracts and vis versa mentaly i 7 I now in care home for rest of my life
  2. Not long had my account activated, but would love to share my Documentary. Currently a web series, the first 6 episodes tell of my life story which I hope to combine into a Short Film. After this, I will make another 6-12 episodes and combine into "I Have Asperger's: So What Now?", so for now, please feel free to critique, discuss, and let me know what you think. https://www.youtube.com/playlist?list=PLr9KnlUKCQjM_fi7RWZvNjrCFvJqQY31z I'm also hoping to look for people willing to be interviewed and share their life experiences and life stories with living with Autism and Asperger's Syndrome. If you're interested, please get in touch. Thanks.
  3. Hello there! Took me a while to have my account validated, but I'm here! Decided to join this forum to use, as well as share my life story documentary, entitled 'I Have Asperger's: So What?'. More details in General Discussion. In the mean time, I hope you like me as I plod around each forum. Thanks
  4. Heya, first time poster here. I'm a 25 year old American chick who's married to a 28 year old British guy with Aspergers. Ours is a really interesting story; we met online in a chat room when I was 12 and he was 15. We hit it off straight away and were best friends for a couple of years before he came to visit me for the first time. Since then, we've hardly ever been apart - together for over 10 years and married for 5. It's meant me relocating to England, which has been a challenge in itself, and everything was pretty good until he started struggling even more with his AS in recent years... Funnily enough, I didn't even know he had AS until we were engaged, but it's become really, really clear over the years of living together that it's there. Lately, he's struggling in particular with over-sensitivity to noise. Three years ago, we moved out of his parents' house (we'd been living there while I worked on getting my residency visa) because they made too much noise and he felt it was crowded and trapped. We moved into a flat in the city centre of Birmingham, and he was so happy to be independent - until the noises started here too. It started with people playing music, which he complained about and got stopped, but now even people walking around upstairs and the occasional slamming of the communal doors has him acting like a caged animal at times. We argue a lot. When he is unhappy, he makes it very difficult for people around him to be happy, and ironically, I can't even ask him if he's okay because it REALLY bothers him to be asked all the time. I feel like I'm walking on eggshells a lot of the time, and have told him as much, but rather than try to work on the problem with me, he just internalizes all of the blame and closes himself away from me even more because he's a "horrible person" and I "deserve better." Needless to say, his stress is rubbing off on me. I've even started shaking a bit or dropping things a lot, and on top of the social isolation after leaving everything behind in America, I'm finding it more and more difficult to cope as time goes on. It's not ALL bad, and I do love him loads. We're both big kids and have all of the same interests for the most part, and when he's not stressed, he's so much fun to be around. Anyway, I'll leave it there for now. I'm hoping posting here will help me cope with some of my own stress, and maybe get me some much needed advice for the husband. In the meantime, it's nice to meet you all.
  5. Hiya, real brief - my husband is 28 years old and has Aspergers. He's currently not on any kind of medication, although he used to take anti-depressants until we became a couple. He's now very against taking them, especially as he has body/weight issues (if I weren't here to feed him, I very much wonder if he would stop eating altogether) and is extremely frightened of gaining weight. Anyway... We moved three years ago, and he's only ever used our local GP twice. The second time was just this week, and it was not helpful at all. He's been extremely stressed and anxious due to various issues, and was perhaps seeking some medical advice for anxiety medicine, etc. Rather than helping him, the doctor decided it would be best to tell my husband (diagnosed for the better part of 15 years, by the way) that autism "is not a disabling condition" and pretty much belittling/downplaying anything having to do with his AS. Obviously, I'm getting red flags from this GP already, and I'm desperate to find someone who actually believes autism/Aspergers is a real condition. Does anybody have experience with doctors in the Birmingham area? Am I too optimistic in hoping to find someone useful/understanding on the NHS? Is private any better? Or in the end, is it just trial and error until you find a good doctor?
  6. Hi, I have recently started working as a support worker for a 48 year old gentleman with Asperger's. I have a degree in Psychology, and know the characteristics of PDD's, but obviously this does not compare to interacting with people with a PDD and learning about their way of life. I'm finding it difficult to communicate with my Client, he works as a cleaner in a hospital, and I spend shifts with him, trying to help him reach the standards required by the hospital's cleaning company. Standards have increased in the NHS and there is a risk of him losing his job if he does not maintain the correct standard. I was wondering if anyone was willing to give me advice? I apologise if anything I have said is offensive. I do not mean to be, and only want to support my Client in the best way possible. Just so it is known, I speak to him about everything, any issues that arise I discuss with him and we work it out as best we can. But I'm just looking for any advice anyone might have to help us communicate better. It would be much appreciated, as I am always aware of the sensitivity of this kind of relationship. I want my Client to know I am there to support him, not to spy on him or to boss him around, and though I've said this to him I feel like he thinks I'm "telling on him" to his supervisors etc. Which obviously is not the case. I'm determined to be a friend to him and help him as best as I can, and I hope to form trust between us.
  7. My SPD and OCD affect my life in so many different ways, half the time I can’t work out the difference between them. They coincide with each other all the time. I sometimes wonder that if OCD is tackled then the chances are my SPD would only recreate new OCD traits in a different form. Food is one of the hardest subjects for my SPD. I am vegetarian because of my SPD, it took time but eventually in McDonalds, I kept trying the burgers, and slowly over time I got more and more uncomfortable with the feeling of the texture, focusing on the texture made me think of cows, and well you can guess the rest, >.<. My SPD can make me very picky with foods, it annoys mum something terrible, and me, but I can’t help it. Most fruit I cannot stand, for example I find bananas, plums, grapes and oranges too fleshy, pears to be too grainy, raspberries too hairy, pomegranates, most melons, kiwi and strawberries to be too bitter. With vegetables if I see a brown mark on them then I cannot eat them. Mushrooms look a lot like fleshy overgrowths and some can really smell bad. I hate it, it makes choices of what to eat extremely few, I have a very small choice of foods, >.<. When it comes to food, it has to look right, smell right, feel right on my tongue, and taste right, if it doesn’t pass all of that, I am unable to eat it. I have tried apples, they are reasonable, the only problem is that it is difficult to get used to the fact that it changes colour so quickly. I have also tried watermelon, that is a little better, I have gotten used swallowing the seeds along with it, and the fleshiness of it is not too bad, the look of it does kind of remind me of steak though, which is disconcerting since I am vegetarian. I have tried smoothies but I have to gulp it down as I don’t like the feeling of the fruit bits on my tongue. Tomatoes by themselves are very bitter. Food is an extremely difficult subject due to my SPD, argh, it’s annoying, >.<. It is hard for everyone around me, including myself to deal with, but it is part of my SPD. That I can’t run away from. I want to try recipes to try other foods other than, tomato soup, soft rolls, breakfast muffins, pasta and pizza, but the problem is our kitchen is so very small and chaotic, making it claustrophobic, that it can be draining cooking in there, >.<. I feel I need to add a lot of spices to most dishes to increase the flavour of the foods, which also includes breakfast muffins. There have been several occasions in my past when I was much younger there was a dinner put in front of me to eat in amongst other children, the same happened once during primary school. I just stared at it and tears started to well as I knew I couldn’t eat it, but I didn’t want to make the situation awkward, as that is often the case if you can’t eat the food. It was horrible when I was asked to eat the food prepared for me but I couldn’t eat it, I didn’t want to be ungrateful at all, but I had no control over it. I also remember when I was younger and used to eat meals that my Oma (grandma in German) prepared; I had to eat them on separate plates. That was a clear sign of SPD, but mum and I didn’t know it at the time. What gets me the most is that I want to eat healthily but my SPD is preventing me. All I can do is take vitamins for vegetarians. That is not all. Being sensitive to touch is another major difficulty to my SPD, I get a tingly uncomfortable feeling whenever someone touches my arms and I cannot shake people’s hands. The smell of metal in my hands from coins, door handles, and such creates a real irony smell in my hands which is irritating, thankfully I have found a strategy to tackle this and light touch. If someone was to accidently touch me or I had that irony smell what I do is wash my hands, it gets rid of the feeling and the smell in one fell swoop. If I need to open a door, I tend to use my t-shirt to cover the door handle. If I travel I take a hand gel so that I can use that instead of washing my hands, it is also much quicker. That is why I am never sure if it is my OCD affecting me here or SPD. For everyday tasks I find cotton gloves have helped me. To me, it cuts off the direct contact to surfaces and makes it easier to do various tasks like making a cup of coffee. I can’t hold most knives, forks or spoons unless I wrap them in tissue. I even have my own selection of knives, forks, and spoons to combat the problem to some degree. At night I feel I must bring a torch out with me to check the floor as I hate to step on slugs, snails, and everything slimy or gooey. If I did I can hear the noise it makes, the feeling it creates and my mind will not settle until my shoes are cleaned. It is awful. I don’t know how else to tackle this other than with a torch. Sight is more focused on my OCD, I think, but to be honest, I have no idea. I am not worried over sleeping because of my eyes at all; it is not like that at all. What I have the problem with which is why this is perplexing me is that if I see the slightest stain or hair on any surface, be it mug, plate, bowl, sink, bath, anything that I could have direct contact with, I need to wash it to get rid of it. I cannot use it otherwise. That has got to be my OCD surely. I keep seeing crossovers between my SPD and OCD that I cannot easily tell the difference. Smells do affect me as well. I like the smell of fresh bread, coffee, candles, and even washing powder. When I go to the supermarket the aisles containing those items can get quite overpowering. I have a lot of air fresheners around so that I can combat the bad smells around the house. I can hear much better than my mum. I can hear a phone ring upstairs from downstairs in the living room at times; it is not a major issue to my SPD though. What is a major issue with my hearing side of SPD has got to be loud noises. My family sometimes have an unfortunate habit of raising their voices when tensions become high. I find this horrible, and it makes me feel worse, the best thing I think that was invented for this is earphones. I just plug them in turn my music up and it cuts it off. That has been my strategy for tackling this problem. Something has also perplexed me about my SPD. I am not sure if this is because of my SPD or AS but I have noticed that I can sense my family’s moods. Personally, whenever I sense someone is feeling bad I can tell, it is either that I sense the awkwardness of the situation, can sense their tone of voice, see their reaction, like sinking into a chair and covering their face. I immediately feel extremely uncomfortable; conflict is something that makes me feel really awkward about. I tend to feel bad if they feel bad, I guess it is like a mirror image. I have noticed something very strange that only happened once a while back. I got up one morning walked to the window then I suddenly got this picture in my head of a cat with an exaggerated scared expression. A few seconds later I heard a dog bark from far away and then a couple of seconds later I noticed a cat cry. I found that weird, I have never experienced that before. It shocked me and I didn’t know what to think. I am not sure what it is. Is it my SPD, AS or what? So the questions I ask are: Where does my SPD affect me and where does OCD? Also, has anyone found any strategies to tackle some of these SPD or OCD traits? And what happened when I got that pre-emotional reaction from the cat before it occurred?
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