CAN this be right and true facts or wrong help me!?

[smiley1590]

i had speech and languuage delay when younger i been told by others that peeps wid AS can't have that ever is this true fact of this condtion or is it unlikely to have that too? i also have dyspraxia so could it be that? i used get words confused mixed up like was and saw? my B's and D's worng way round? i also when assessed at 14 years old for AS my I.Q level came back extremely low range is this normal part of having AS? is it part of it? as alot peeps think AS's are genuis of some kind? could the official diagnosis be wrong somehow? please give me your thoughts and ideas on this many thanks KLxXx

[tjw]

hi smiley

thankyou for posting this question, i will be realy interested in your replys because you have just described my 6 yr old son who is at present being dx, they are looking into asd, dyspraxia, dyslexia, and adhd, but they have also mentioned traits of as,

thanks again and i hope you can get some good replys

takecare

theresa xx

[bid]

I couldn't possibly comment about your individual dx, Smiley, only describe the dx criteria for HFA and AS as I understand it.

 

For a dx of HFA, there is a language delay.

 

For a dx of AS, there is no language delay. Generally, IQ is average or above average. However, I have worked with a couple of young people who had a dx of AS, and also had MLD.

 

Bid

Edited March 24, 2009 by bid

[Daisydot]

My ten year old son has a DX of Autistic Spectrum Disorder, dyspraxia and has a severe receptive and expressive language deficit. He was originally diagnosed with Aspergers, which was changed to ASD. His IQ is in the range of average to just below average. This son attends a school for children with speech & language difficulties. Many of these children also have autistic or dyspraxic difficulties as well.

 

My other son has a diagnosis of high functioning autism but has no major diagnosed language difficulties. He attends main stream school. His IQ is quite high.

 

Hope that helps Smiley

 

 

 

 

 

[smiley1590]

so my AS doesnt fit 'normal' signs so could be AS of dx be wrong? or is it HFA? or AS with MLD too? im confused about everything atm! X

[chris54]

My sons diagnosis is for High Functioning Autism, Presenting as Aspergers Syndrome, the dx could not be for AS as he had a speech delay.

[smiley1590]

i attended mainstream education though was very stressful and anxious times! felt like wasn't understood! but how comes i had speech and language delay if i have been of dx with AS at 14 years old? nothing makes sense?

[smiley1590]

my I.Q extremely low range when tested at 14 years old it was 70 the score was can it rise anymore is that it forever!? and this doesn't explain why with everything else?!

[Flibs]

i had speech and languuage delay when younger i been told by others that peeps wid AS can't have that ever is this true fact of this condtion or is it unlikely to have that too? i also have dyspraxia so could it be that? i used get words confused mixed up like was and saw? my B's and D's worng way round? i also when assessed at 14 years old for AS my I.Q level came back extremely low range is this normal part of having AS? is it part of it? as alot peeps think AS's are genuis of some kind? could the official diagnosis be wrong somehow? please give me your thoughts and ideas on this many thanks KLxXx

 

The reason may people think those with AS are a genius is due to the media presprentation to those with savant autism which states one or more areas of expertise, ability or brilliance that are in contrast with the individual's overall limitations, when I mention the media I mean the boy who could memorise and draw buildings and rainman .To be honest Joe public's perception is not worth worrying about.

[ian stuart-hamilton]

To be honest Joe public's perception is not worth worrying about.

 

With respect, I think it is worth bothering about when people expect that someone with ASD will inevitably behave in a certain way. E.g. a very mild example - at various times I've got rather fed up with acquaintances who think that I must love cataloguing things. The 'proof' of this is that I collect stamps. I reckon this takes up about 0.1% of my leisure time (I really am a very casual collector). The fact that I have two rather more time-consuming hobbies (watching arthouse movies on DVD and playing golf) gets totally ignored, because of course this doesn't fit the image of what someone with ASD 'must' be like.

[Flibs]

With respect, I think it is worth bothering about when people expect that someone with ASD will inevitably behave in a certain way. E.g. a very mild example - at various times I've got rather fed up with acquaintances who think that I must love cataloguing things. The 'proof' of this is that I collect stamps. I reckon this takes up about 0.1% of my leisure time (I really am a very casual collector). The fact that I have two rather more time-consuming hobbies (watching arthouse movies on DVD and playing golf) gets totally ignored, because of course this doesn't fit the image of what someone with ASD 'must' be like.

 

 

My point was not to disagree nor cause any upset but to make a point that "joe public " has many views on many different things as folk often have limited knowledge on many different subjects and if it is not familiar or close to them then the media perception is often taken on board .In my opinion people are not going to bother much about different views/diagnosis unless it affects them personally

[cmuir]

Hi

 

My son was diagnosed at the age of 4.5 as having AS with language delay. His consultant initially delayed giving a formal diagnosis of AS and specified ASD until R had been seen over a period of time by a SALT purely because she felt by giving an AS diagnosis that may have hindered him receiving SALT assistance. The diagnosis of AS was formally given soon after that. Since then, there's no doubt that AS was the right diagnosis (he's 7 now).

 

I understand that it is normally the case, but not always, that people with AS normally do not have SALT difficulties.

 

Best wishes

 

Caroline

[JsMum]

The research I have read for AS is that there is NO SIGNIFICANT SPEECH AND LANGUAGE DELAY.

 

So it depends what they interprit as Significant, My son has Speech and Language Delay and Language Disorders so I knew he didnt meet the criteria for Aspergers Syndrome and so for Jay his is Higher functioning Autism but our Local Authority do not diagnose HFA. So hence we went throw private Assessments.xxxx

 

 

JsMumxxx

 

[smiley1590]

so do'nt get why i got an official diagnosis of AS then? can anyone explain why i would have SALT difficulties with AS? does anyone have the answers?XXX

[JsMum]

 

 

When you was dx at 14 was your speech and language good, and was there any signs of a language disorder, such as Semantic Language Disorder? and did you actually recieve speech and language therapy as a younger child, maybe if the speech delay wasnt reguarded as severe enough and so you where given AS.

 

JsMumxx

 

[chris54]

To be honest the only way you question can be answered is to go back to the person who made the diagnosis in the first place and ask for an explanation. I imagine it is to late for that.

 

If you have access to professional help now, maybe you could ask these questions of them, there must be records somewhere.

 

But I think what you really need to do is accept where you are now and move forward.

 

 

[chris54]

How long ago was your diagnosis.

 

If you read historical research papers you will see that the boundary between ASD and AS has moved back and forth.

 

At one time it was thought by some that they were not related in any way.

At other times some used the two term as meaning virtually the same thing, interchangeable.

 

We now, in this country at lest, have an understanding of what we (collectively) mean by the terms Aspergers and Autism.

 

 

[Ian Jordan]

I wish that I could be confident about ANY diagnosis, whether it is ASD, dyslexia, dyspraxia or any similar condition. Diagnostic criteria and interpretation mean that the same child could be diagnosed with a variety of conditions, depending on where they were assessed, and who assesses them. In one respect it isn't important - providing the optimum interventions are put in place, but this is very rare. Professionals will inevitably disagree, making it difficult for parents and children to be able to access the range of interventions available.

 

To cut a long story short, the simplified way to approach difficulties is

1 Get the physical problems sorted out - biochemistry, vision, hearing, vestibular, proprioceptive,

2 Address sensory PROCESSING problems - visual / auditory / sensory integration

3 Manage cognitive difficulties eg facial expression recognition / agnosias, speech and language

4 Look at what causes educational / communication problems and address.

5 Be aware of emotional responses and address

6 Get a statement if appropriate

 

These apply to all special needs - not just autism. It's just a pity that they are so rarely addressed well

[smiley1590]

i was officially diagnosed at 14 years old! at CAMHS which wouldn't even bpther asking for an explanation thats why ask on here! as thought maybe know! i think i do have SPD -sematic pragmatic disorder! yes my mum informs me i did have speech and language therapy! yes i do want to move forward! just wanted to clear up this matter in my own head so i knew! as getting confused as someone people saying it coukld be possible others saying not!

[smiley1590]

i was officially diagnosed at 14 years old! at CAMHS which wouldn't even bpther asking for an explanation thats why ask on here! as thought maybe know! i think i do have SPD -sematic pragmatic disorder! yes my mum informs me i did have speech and language therapy! yes i do want to move forward! just wanted to clear up this matter in my own head so i knew! as getting confused as someone people saying it coukld be possible others saying not!

[Tally]

Normally, a language delay would mean you would be diagnosed with HFA rather than AS, but it all depends on the opinions of the person making the diagnosis. It may be that they thought your language delay was caused by a different condition.

 

If your diagnosis enables you to get the support you need, then you might be best off accepting that it may not be fully accurate, but that it it not important.

[Daisydot]

The research I have read for AS is that there is NO SIGNIFICANT SPEECH AND LANGUAGE DELAY.

 

So it depends what they interprit as Significant, My son has Speech and Language Delay and Language Disorders so I knew he didnt meet the criteria for Aspergers Syndrome and so for Jay his is Higher functioning Autism but our Local Authority do not diagnose HFA. So hence we went throw private Assessments.xxxx

 

 

 

My son was originally diagnosed with AS then DX was changed to ASD. He has a severe language deficit but the SALT at his school (he goes to a specialist speech & language school) have said that the language deficit is actually a separate difficulty to the ASD and not caused by it - if that makes sense. Now dont ask me to explain the ins and outs of that statement, its what the professionals at his school have said. I have heard also that you cannot have a DX of AS and a language delay, but I suppose if its two separate diagnoses, then you could.