mali Report post Posted November 15, 2005 hello to you all, I have just joined and have already learnt quiet a lot !!!!!!!! My son is only 4 1/2 and shows lots of AS signs, his school (which he only started in September and its full time) already have him on an IEP, he has seen a specialist who thinks he may have AS but will not diagnois yet? He will be seen again in 6 months and I hoped he would be diagnoised then, but having read a few of the messages I am not sure that this will happen now. Will he have to see another specialist ? Can you help this is all so new to me ???? Thanks mali Quote Share this post Link to post Share on other sites
smiley Report post Posted November 15, 2005 Hello Mali and Welcome.. <'> It's really difficult to say when/how the diagnosis will work for you, everyones experience is different. But you've come to the right place for advice and a natter Quote Share this post Link to post Share on other sites
supersec Report post Posted November 15, 2005 hi Mali and welcome to the forum! keep smiling . Best place in the world here. I only know that it took nine months for Julian to be diagnosed but I think it depends on where you live. Sorry if that is not much help. Supersec Quote Share this post Link to post Share on other sites
mum22boys Report post Posted November 15, 2005 Hi and welcome. I have a son who is five and we are going through the diagnostic process at the moment. We have been in the process since June and are waiting having been referred to our local communication disorder assessment clinic by CAMHS. You will find lots of help and advice here. <'> <'> <'> Quote Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted November 15, 2005 Hi mali and welcome Love the avatar by the way!! This place is great, loads of genuine, sensitive people - you're sure to find plenty of advice and shoulders here! Daisy Quote Share this post Link to post Share on other sites
MumTee Report post Posted November 15, 2005 Hi Mali! Welcome <'> My son is also on a working diagnosis over six months. To begin with I was lost, so I read everything I could lay my hands on until I could settle my own thoughts. I found one minute I was 'what if it is?', the next minute 'what if it isnt?' and it took a while for me to trust my own instinct. Now I have a bit more certainty in myself about what my sons needs are, the diagnosis feels less important than it did to begin with. You're in a good place here and there's always someone about! Quote Share this post Link to post Share on other sites
nellie Report post Posted November 15, 2005 Hi mali welcome to the forum Great support and advice from a great bunch of people. Nellie xx Quote Share this post Link to post Share on other sites
kirstie Report post Posted November 15, 2005 Hi Mali, Yes it seems to be true that assessments and diagnosing seems to differ wherever you are in the country (and in some cases here abroad too) . I have to say thet our diagnosis wasn't really a long drawn out affair, although it felt like it at the time i now know from reading posts here that we were pretty lucky. we attended a Communications clinic where we saw a consultant and a speech therapist who both spoke with us and Lewis in turn then they had a chat together for a few minuets and returned with their diagnosis of Aspergers, he was 4 1/2 at the time. I did phone the clinic though, and left my number incase anyone cancelled, luckily they did phone about a week later and i had to go in the next day. Making yourself heard does seem to work a lot of the time. But you are definatley in good compant here come what may theres always someone to have a chat with and you'll always get sound advice <'> Take care, Kirstie. Quote Share this post Link to post Share on other sites
DAS999 Report post Posted November 15, 2005 Hello. Welcome. Keep your chin up, it can be a long hard road but its worth it in the end and we are all hear to support you. Quote Share this post Link to post Share on other sites
lisann Report post Posted November 15, 2005 (edited) Hi and welcome it's a long hard fight and there will be up's and down's but it's worth it in the end!! Lisa x Edited November 15, 2005 by lisann Quote Share this post Link to post Share on other sites
tinminer Report post Posted November 15, 2005 (edited) Getting a diagnosis is always a tricky.... I have two experiences on this one....getting a diagnosis for my son (about 7 years ago) and getting a diagnosis for myself (Only just been diagnosed). Firstly, my son's primary school reported back to me that he was behaving 'oddly'. They called in a Educational Psychologist, who refered him to...no-one! There was no-one in our geographical area (west Cornwall) who could diagnose, as the previous consultant had retired, and the NHS Trust could not find a replacement). In stepped my employer, who paid for him to be seen privately in Plymouth (about 70 miles away). He got a diagnosis straight away. Since then have spoken to other parents in our area who are still waiting. The NHS postcode lottery is a very real problem... Move on to 2005. After I had another bout of severe anxiety and depression, I happened to be on a self-help forum for depression,and there was a link to Simon Baron-Cohen's website with a self questionnaire for autism/AS in adults - I score 44 out of 50, and told my GP, who tried to refer me to a consultant in Exeter (about 110 miles away). the reply came back, that the consultant does not see out-of-county patients! So, in steps the Occ Health Dept of my employer (different employer), who pays the consultant privately. Et volia! Now have been diagnosed with AS at the age of 41... So, to sum up, you have to perservere, and see what your employer can do (some schemes cover children too). Otherwise you may have to dig deep yourself - my consultant charged my company's insurer �300. The National Autistic Society charge double that. BTW, what is CAMHS? Seen this on several threads, and not come across it before? Edited November 15, 2005 by tinminer Quote Share this post Link to post Share on other sites
Kathryn Report post Posted November 15, 2005 Hi Mali, welcome to the forum and tinminer too. Tinminer, CAMHS = Child and Adolescent Mental Health Service - often the first port of call (after referral from GP) for children experiencing emotional problems. Quote Share this post Link to post Share on other sites
tinminer Report post Posted November 15, 2005 Ah! That's why I've not heard of it. No such thing exists in this area. If your IQ is less than 70, you go under the Learning Disabilities Directorate, if over 70 then (if child/adolescent) the Child & Family support unit (part of Sociall Services). If not child/adolescent, you are shown the door! (I just have been - I was seeing a psychiatrist for my depression(Adult Mental Health Trust), now I have a diagnosis of AS, I have been 'switched out' of their services, as they don't cater for autistic adults) This was one of the things which caused us not to get help for our son. He was diagnosed with an IQ of 70, and was passed from one NHS Trust to the other! Quote Share this post Link to post Share on other sites
Malika Report post Posted November 17, 2005 Nearly miss your thread... WELCOME MALI <'> <'> <'> Mali..ka. Quote Share this post Link to post Share on other sites
