purplehaze

Thought it was very good-well done special talent

Hi, my 15 yr old son is the same and often tells me he doesn't want his teeth. I've tried different flavoured toothpastes, electric tooth brushes etc but he says it hurts when he brushes them and hates the taste of the pastes. I have tried so many different brushes but last week I bought another and he said it feels better in his mouth and has been cleaning them more (not everyday but better). He has been like this all of his life but luckly I managed to get him in the dentist chair a few weeks ago and he doesn't need any treatment! I haven't the right answer but just wanted to say your not alone-good luck X

Hi, my son (15) has always been a fussy eater and I see a dietian for him-she is great and said never to worry about what i'm getting him to eat because he is eating!-it would be a worry if he wasn't eating anything!! She also suggested things that have been suggested in the above posts (smoothies, blend veg and add it to things etc). One thing she has said and which has amazed me after thinking how on earth is this going to help. She suggested to have meal times as a buffet style (it can be more work-but I try to save things for another time). My son ate a dipped hash brown into curry-I couldn't believe it (it was only a small amount but it was fantastic) he has also tried small amounts of red cabbage & apple, and other bits. I think it takes the peasure off of him and he can choose what goes on his plate and where it goes! he eats hundreds of lollies/icepops so I also freeze smothies into lollies which he will eat sometimes.

Hi my son was tested by the Sunderland Autism research team-after contacting them by e-mail and explaining my sons problems they offered me the test for free. However my Doctor didn't understand or think the results mattered and didn't recommend any changes in his diet. Have you got a dietian involved although my sons didn't recommend a gluten free diet she was willing to support us if I decided to change. After talking to everyone I decided not to as my son is so fussy he hardly eats anything any way. I do kind of wish at times when his stomach is really bad that I had done it. I would be very interested in hearing how it goes-good luck X

My Doctors has been doing this for a while now-but I found out recently that you can phone up in the afternoon to book during the next week! So it's worth checking the rules!

Hello, my 15 yr old son with ASD does this-sometimes I can relate the music he is playing over and over to maybe something that has happened or maybe an emotion he may be feeling. For example he fell out with a friend and kept playing a song that said 'I don't want you back' for weeks. Lately it's been Jackson songs-I think it's about thinking of death which he has struggled with understanding-when our rabbit died he was so anxious about it being in the garden and coming back to life I had to bury it in our local woods and when my mum died he was just angry about the plans changing. Sometimes he plays 'i'm a Barbie girl'-not sure what that's about So could it be to help with emotions/feelings?????

Hi, I haven't really any advice but just wanted to say I totally know what this is like-my 15 year old was due to have his TB jab at school and refused. No body was really understanding and I was just told that he will be offered it again during the catch up process and there was no other option. May be you should tal kto your GP X

Apparently our local nurse has told my friend (who asked about it) that Doctors use to suggest squeezing the spots to get the white puss out as they would heal quicker but it isn't reccomended now!!!!! But i'm not sure as it was a Dermatologist consultant at the hospital who told us my son should squeeze them and get the white squirmy stuff out. The E45 cream seems to be helping and he hasn't picked them since using the cream-so thats good.

Hi my 15 yr old ASD son has bowel problems and always says he feels sick & has a stomach ache in the morning and I have also tried most things like Lynne. He is also under the dietian who is great and really supportive. Some days I struggle to get him to eat at all or even drink he just doesn't seem that interested in food, although he does have better days where he seems to be more hungary. What Billyx suggested can work and I use it with my son. I often just have to cook or make food and give it to him to eat and sometimes he eats a little, a lot or none etc. The problem I have (which Billyx may be able to help with) is because my son is 15 people think i'm pambering him but believe me I have tried not bringing him food and he didnt eat or drink for the whole day!!!! The dietian is always telling me not to worry what people think as he has ASD but what happens when he is older-I really worry. X

Thanks I think i'm going to try E45 cream, he has picked the ones around his eyes a lot last night as well and they have bled. I wish the Doctor hadn't told him to pick & sqeeze the spots, I don't think it is helping-it looks much worse now. X

Thanks scienceGeek I think I will check it out with the Doctor

Thanks. his face has got very itchy and dry around his eye-the Doctor said to put moisturiser cream on it but i'm wary of it being so close to his eye-any suggestions.

Thanks Tally So my next question is how or why do Doctors decide it is a bowel disorder/IBS or coeliac??????

Mum of 3-I will try tea tree oil it may keep it clean-thanks joybed-I will def keep you informed if I go to the Docs

Hello Sciencegeek I have just asked if anyone knows about coeliac-could you give me some advice about symptoms please if possible. My son has had IBS symptoms for as long as I can remember (loose stools, constipation, very windy, pain, feeling sick but not actually being sick, dark under the eyes etc) any advice appreciated-thanks

Thanks for the info guys The Doc did tell us about freezing if it gets worse but said it can be painful so didn't want to go down that route. My son doesn't show much affection (if any spontaneouly) so now I know what it is I'm not worried that much about getting it and I have to lay towels out for him to bath or wash and have too tell him to wash his hands etc so that should also be easy to keep under control. What I would be really interested in knowing is if my son's immune system is low. He has IBS symptoms and has as long as I can remember. The autism research unit tested him and told me there was a high chance that he had problems with gluten. Does anyone know if this could have something to do with the immune system. When they tested him they asked lots of different questions and one was about if he had impetigo and things like that-which he has had lots of times. I have mentioed this to my Doctor but he said it wasn't proven. Does anyone know much about colieac (not sure how to spell it) and why don't Doctors test people with IBS symptoms? I'm proberly just jumping to conclusions but hey ho!

Hi thanks for info guys it helps to know others have had it and it goes away. Sadie-My son also gets impetigo and has had a few cases of it (more than average) It makes me wonder about the immune system XXXXXXXX

Hi, you certainly need thing to be made clear and put on paper by the right professionals. Going to your Doctor is the right next step-IMHO Did the EP put anything on paper or was it just word of mouth? I believe you shouldn't have to spend any money to see the right professionals your son needs to see for support (this can be hard or take longer than you would want). Parents can struggle but believe me it is worth battling on. XXX

Thanks-that has made me feel better-although I knida feel like 6months is a long time to have a virus thingy. Thanks xxxx

Hi again DX just means a diagnoses etc If I were you I would firstly go to my GP and ask for a referal to CAMHS-take a list of things your son needs support with/behaviours etc They should then assess your son to see if they think he needs further support/assesssments from other professionals etc. When you sort out a school explain to them that your son has difficulties with X Y & Z etc and what support he will get etc etc. You could also contact someone from your local parent partnership groups for support to make sure you get the right support in school etc. The school will go through a system school action-school offer support/targets etc school action plus-other professionals will come in to school and support/offer advice etc RSA-request for statutory assessment-which can lead to a statement of educational support Not all children need to go through the stages some access support from the school and achieve well some need more support from other professionals, some need even more support and funding etc. It can be a slow process-take all the reports/info you have when you visit your GP. Example-communication difficulties, social/emotional difficulties, behaviour difficulties, physical difficulties etc etc-describe everything to your GP. How old is your son? My son has just left a terrible secondary school (IMHO) who couldn't meet his needs with 22hrs statement support and he now is attending a SEN school and outreach prgramme and has done much better in 2 weeks than he ever did in years at the other school. Big schools can find it hard to meet individual needs as they have so many children to look after. Take care xxx

Hello Sorry to hear you have had a rocky few years <'> Your story really hit a nerve with me. My son went through the 'naughty child' processes for many years at school-even with a diagnoses and statment some schools just don't understand. Firstly I think the school may have seen CAMHS has being able to offer you more support from a wider range of professionals (may be for assessment and a DX). The school should have requested for the EP to be involved as well to support and help with school stuff/behaviour etc. What is going to happen now-have you any parent supporters involved to help support you with school? How does your son feel about leaving school-what kind of behaviour was your son displaying and why did the school exclude him? Good luck with everything-keep us informed of how you are getting on with it all.

Thanks guys-I have never heard of it before and I work with children!!!!! My son has had it about 6months, it is like a beard and all around his eyes-one eye has very dry skin as well. I find it weird that he is 15 and mostly children or ill people get it (cancer, Aids etc) as adults. I've been trying to stop him from picking them as he makes them bleed(he even picks at freckles) but the Doctor said he should pick them to get the puss out-so now i'm worried about hygiene-he isn't the cleanest child Apparently most people are naturally resistant to it but it is contagious to those who may have lower imunity. Does anyone know any adults or teenagers that have had it.

Hello, I have just returned from a hospital appointment for my son (15) and he has Molluscum contagiosum. I was just wondering if anyone has heard of it or had it? Apparently young children get it, it's viral and you can catch it. People are more likely to be affected by molluscum contagiosum if their immune system is damaged. My son has had it for months now on his face. Any info/advice would be interesting and welcomed-thanks xxxx

Hello and welcome to the forum. Firstly I would like to say how much I understand your frustration. I have had many school meetings for my son and until recently got no where. I agree with cat you need to get some professional support such as parent partnership involved. You can ask for a meeting to discuss some comments you feel were not included in the letter. You need to think about what you want for your son, what changes, what support will help him cope better. For example does he use visual support, does he have support in lessons, break time, do the school need more training (ASD advisory team can help with training) etc. Good luck and let us know how you get on. XXX

Hi not sure about a freedom pass or if it's the same as a disability buas pass which my 15 year old son has. I had to get a form signed by our Doctor but it sounds like you need the same criteria as what you are describing. My borough have been really helpful and sent out a replacement card withing 2 days when we lost it. I think it depends who signs the form for you. One of our Doctors who we don't really see didn't think my son qualified but another Doctor who we see all the time signed straight away. Could you get help from any professionals involved. Good luck