rainbow queen

GOT IT FROM ARGOS IVE HAD ENOUGH_IM RECORDING HIM THEN TAKING IT INTO HOSPITAL DR AS HES NOT DOING MUCH OF THIS BEHAVIOUR IN CLASS_I WANT THEM TO LISTEN TO THE HELL I GO THROUGH EVERYDAY AND TELL ME THAT ITS NOT AUTISTIC!!!!!!!!!

well the question is in the title? i have asked my gp to refer my son there last year and she said she could not as my son was under local authority[who i may add seem to have no idea about as] and also the drs wouldnt fund it so im expected to carry on with this uselesswaiting game that never gets anywhere some how

i have also read this my sons head was always measured at clinic appointments-but nothing was said i think he has a large head as i have struggled getting clothes that will fit over his head and hats he also has sizes to big his head is rock hard too like a cannon ball my other son had [cant remember the name] but his head was flat on one side he had to have brain scan it is the way his skull has formed-noticed when he was a month old,he also couldnt move his neck to other side and i was given excersise to twist it round he hated it but had to learn him to lie on other side of his head its still odd shape [3] and will be for life.

<'> <'> <'> FEEL FOR YOU i get this all the time even from close folk who i have aready explained things to this makes us feel even more alone in our situation i spend half my time battling with my son,the other half battling with the health professionals then any spare time in between explaining about how he is to people who are quite simply ignorant i cant belive how many close minded folk there is in this world -iam only 30 but even from i young age i learned never to judge a book by its cover i sometimes wonder if god picked me to have such a challenging child with probs because i am a compassinate understanding person who will fight for the underdog ect.............................. because belive me if those narrow minded people did have our children for just one week-they would not have half the understanding and compassion as we folk on here would just keep that in mind when dealing with these people

my nephew -started on incapacity the other year -he has been dx as /tourettes and odc he is 25 he has been sacked previous from every job he ever had because of his problems he is uncapable of following through instructions ect,,,,,sure u know this the disability person at the job centre knew all about him and tryed to get him suitable work which employers did want to deal with or know about -even simple stuff like stacking shelfs resulting from all this it has made his self estem bad and has been told off support worker he should not be looking for work at all my sister and husband look after his day to day needs as he would be unable to live on his own he started a little cookary course at college to help him learn how to cook and to get out of the house i think the way they are dealing with the incapacity things wrong as people who have problems are being targated too it has took 20 years to fight for a dx then he only got incapacity last year and now they are going to try to take him off the one bit of income he has. i personally thing its disgusting and you should write letters to your jobcentre informing them why your son can not work if a dr has said your unfit for work-WHAT RIGHTS HAS UNTRAINED IN ANY MEDICAL knowledge job centre staff got over deceideing whos able or not on the grounds of a 30 min interveiw in there office. when we all know as folk come across completly normal on the surface

ive read up on this a bit and alot seems to match my son whos 4 he is so diefient at home and out of school he wont comply with anything i ask of him to do in fact when told correct facts he states there not true ect...... my area seems quite bad for knowledge on all these matters even as-so i havnt even brought this up yet still on about as and dyspraxia

cant quite belive it at all i go to appointment and my son refuses point blank to co operate lady listens to me then says if its an autistic thing -she cant do any thing to help so i said well who can and she said good question thats theres no autistic team only speach therapist woman in my area and the nearset ones in norwich this appointment was made by school nurse who has brought up his difficulties so i tell her all the lot and she said its not appling to her cause my son sounds like its autistic prob-i mentioned dypraxia and she goes they dont dx that on its own but it useually comes together with an autistic spectrum thing or downs syndrome i really feel im in a waking nightmare u know guys i just cant seem to get anywhere anyway from what she saw and heard she did think it was autism[but i get told this one week then next some at else] so in all she will make another report[this is all i ever hear about!!!!!!!!!!!!!!!] to pass on to dr.xxxx (name removed by moderator) -hospital dr and school a copy and she come see him in scholl soonish. is this just me or what-how come i keep going round in circles

sorry about the bad news do u think you can make peace with him?

my son swears folk hes seen in town or in the park say.....are so and so that he may vagelly know and i will point out that no its not them but looks a bit like them-at which i get a full scale argument and get called a liar then theres people who he dose know who say hello and he then blanks them and wont answer!!!! he also keeps asking me what people r called when they r complete strangers and wont except that i do not know them. he calls most men dads and old folk his granny or grandad-and will say it to them like hello dad to a stranger in a shop at which the person dont know what to respond and gives me a funny look

hi suze i ment it was on friday so i got wrong day lol,so its tomorrow at 10 they didnt say if it was assessmant for dyspraxia so presuming they just going to ask questions about what he has probs with do u think i should say will he be dx with dyspraxia??

yes i received letter today from them saying about the rebate-great stuff

i dont think my son knows hes doing it -as i can explain it till im blue in the face and he will still carry on doing it. ive had conversations with him before about him making these noises and it dont register really-he will agree but 10 mins later he will be at it again. so i just except it now,cause the more i try to control it -he then has a major tantrum,so u get noise what ever u do

my son makes high pitched squeling when hes stressed or excited-i know most kids may do this but it is a constant thing and does stand out . he also says phrases that have no meaning really,and he wines an awfull lot in a droaning voice which really gets to u after a bit. he acts daft all the time as well-in a silly way-and will keep it up non stop.

this has been arranged by the school nurse-although he has seen general one in past but was altogether with other people,so i wondering what will come of it and will they help? he has lots of probs with his body movements/cutting food up/climbing/riding bike/drinking from cup/writing with pencil/dressing/undressing/toilet/wiping bottom/walking /he has shakey movements/stairs/clumsey/no coordination/ he has lot of trouble with all these and more although ive not wrote a new list for this ot appointment do u think i should? or do i take my other lists what ive done with all the lot of probs down as well-like speech ect.... thank you in advance for your replys

i used to cut both my sons hair with clippers but when it became apparent my 4 year old hated it so much i couldnt carry it on any more-like u said about police knocking door down lol i think my neighbours think im really wicked mum from the amount of screaming that goes on so its weird my son has actually allowed hair dresser to do it after many months of getting used to them[in fact it was so bad my chat worker who used to take him out for 2 hours a week she helped get it going by taking him there herself] now he thinks its an outing -its a mens barbers and they r so good with them both -they get lollipops afterwards but i do laugh to myself as u should see the hairdressers faces as they see us come in -one sons 3 other 4 and both can talk the hind leg of a donkey they put them through there paces while i sit on sofa with the other customers going red in the face as all the place can hear every word they say

know what u feeling im dreading it too as when my 4 year old goes back my 3 year old will start nursery there aswell[another load of stress]. i to am the only mum who isnt in the so called mummys groups of chit chat-personally i dont care for bitching or gossip so they can stick it since ive been allowed to pick my son up through front main doors and collect his coat before they go to pegs ect............. i noticed the other mums looking at me like why? should she do that one even kept commenting and when i told her she replied well my son has special needs to -and has had words with teacher who have not let her do same [come through front way] so now she dont like me i even think the school dont like it really as it encourages others wanting to do it but i had to-my son is alot better now coming out that way instead of going into crowd of parents so if anyone wants to moan again they will have this to deal with LOL

you could be right about this when i was pregnant with my first boy who has the probs-i was living with his dad who was abusive mentally and psychically to me throughout our relationship and my pregnancy. when i was pregnant with 2 nd son i got a court order to keep him away from about 3 months on till i had 2nd son i was on my own but my stress levels were better and i always think my 2nd son is very more chilled person because of this. i even refused to have dad at 2 nd birth as well. also like to add my labour was awfully long and hard going and my first son was born with cord around his neck and was blue and needed oxgen[so weird as this was the case with my nephew too -he was first son -had really bad birth -didnt get enough oxgen-and he dx with aspergers /tourettes and ocd.--her 2nd son is fine and her daughter!!!!!!!!!!!!!] time and time again i have brought this up with my sons peadtriction -he dismiss it and his answer was well its done now -you cant change that.-i personally think they were scared id sue----and my son had first mmr -then found out these probs so i said no way hes having the rest and i refused my 2nd son having any.

i enjoyed it alot as my nephew has tourettes and aspergers plus ocd he is in his twentys my son also is being investagated for all these and more . agree with u about that girl seemed unfair that she was made to leave as the other seemed to have instigated it more.

i think this is awfull its like just one excuse after another trying to get a firm dx im still waiting it all seems to airy fairy talk and no action- as if we didnt have enough to deal with its so hypocritical.

<'> HEY PAULA if u ever want to chat i also have rapid cycling mood disorder[basically bi polar like yourself] am on meds for it and under phychatrist. so totally know how u feel, regards marie x

MY SON IS EXACTlY THE SAME BROOK he wont let me put music on and dance about to it or clap my hands. he shouts stop laughing and you stop dancing mum u naughty girl lol and hurls me a load of abuse about it all in fact he stops me having conversations with folk-and will scream over the top of me till i stop hence i feel like a hermit as i cant get no adult conversation what so ever

<'> HELLO <'>

HI i asked my mp to help me with the council and my housing situation ,as i was getting no where and it involved the welfare of my son. he did help alot in fact id say it was him who pushed the council the most i have just moved house and dont think it would of happened without his help i wrote letters to him explaining everything and he kept me in touch of everything going on so i would say its worth a try i myself will consider writing to him again over any future problems i often think i will if i dont get a good enough result from the health professionals dealing with my son as he hasnt got a clear dx yet and they seem to drag there feet. im holding out for now as hes got various appointments coming up and im waiting to see how they go-but in all ive not been happy with the way they have dealt with my son. so i say yes do it -if you can

hope and pray everythings alright my parents are in there 70s too and i worry all the time xxx