madme

Good luck. It is so important to go with your own gut feeling. Enjoy the relief and you child.

If you PM me your number I'll call to discuss

Yes Smiley. It was us. We used your tickets as ours were in the middle of the stalls( and she does so like to kick the backs of seats not intentionally, of course) and Dd (7 AS) as you may have seen doesnt sit still for long. We gave our tickets to friends. I also have a DS ( who is As 13). Sorry I kept wanting to say hello but I wasnt sure. We really enjoyed it particularly the duet with Jools Holland. Thanks again.

Just got back. It was good fun. DD enjoyed it.

I agree. My DD( 7 AS) recently broke her elbow. It happened away from home and an onlooker called an ambulance. After the first few minutes she was calm but clearly not "right". Even the ambulance crew said that it was unlikley that she had broken it. I took her to A&E and she had. The radiographer( several hours later) said to me that she must have a really high pain threshold. I felt so guilty as I really should have appeciated better given her elder brother also AS also has a very high pain threshold. When I gave birth the midwife also commented that I had a high pain threshold. Pain is so personal. You can only compare it to what you have personally felt. I have no real help to add. If it means that you feel it is necessary to seek help then you must need that help.

Fantastic. Well done to your fab daughter :thumbs:

As you may be aware you can apply yourself. I fail to see why two IEps should be required in such extreme circumstances. They should be calling in the experts now. Call IPSEA asap. THere is a book by ACE which is great and I found invaluable. Hope that you get somewhere. Good luck

Its a great idea and others should encourage their local cinemas to try it. It started in our area and has spread. We even have managed autism friendly theatre.

Are the school and whoever is doing the injection aware of her previous reactions? Could it not be done by her Gp in a calmer less stressful way than having to line up and wait to be seen which I imagine will increas her anxiety? Good luck.

Well the tickets turned up and so thanks to Smiley we now have too many tickets. If anyone wants to attend please PM me (first come first served)and we can arrange to meet briefly for me to pass them on. If no one responds by Friday midday I will call ARC and tell them that they will be left in the box office so that at least someone can benefit.

I find this so hard as my DD(7) often expresses the wish for the socially conformist toy( ie what is on the ads, at the same time as actaully watching CBeebies but her favourite passtimes are maths, science on occasion dinosaurs ( more so in the past). She has lots of dolls who have been ignored- they have all the accessories etc- but refuses to get rid of them but doesnt actually play with them. I have no idea what to get her this year. I have asked her 13 year old also asd brother to get some clues. At the moment her favourite toy is her brothers science kit! I'm sure that she would be ashamed to admit to her school"friends" that at 7 she still loves Cbeebies.

<'> >< I agree as a parent who faced this with her son and now years later I know that I was right despite that particular Head giving evidence for the LEA at Tribunal - we won though and he now gets the right education although we still have to fight every year. Having a second child who although not having the same difficulties as my son is still DX ASD and SID , I still feel frustrated at the way Heads and Sencos dismiss external assessments and dxs. If it comes from them its ok but otherwise it seems to be interferring in their SEN set up. As I was told by my son's primary SENCO. " We prefer to get our own advice as they know the way we work!"

I don't know about hearing impaired but my son was suggested to also have APD(auditory processing Disorder) when he was 6 - he is now 13 and we have never managed to get him referred appropriately. I tried to get a referral to GOS years ago( after a locum SALT said he also has APD probably) but the GP didnt undrstand and it was rejected and at the time ADHD and asd seemed the way forward. I do know that my son often doesnt hear me or his teachers even when he appears to be concentrating and he apparently has good hearing. He cannot hold a conversation properly if the radio is on. He finds it hard tom"tune in and out" all the noises around him.

Thanks for the offer Smiley. I was so annoyed I emailed a complaint pointing out that I wouldnt have told my child if it wasnt certain and this is what I got "'I'm sorry you thought my email was 'off hand'. I didn't intend to cause any offence at all. It was a simple miscalculation on my part - how many free tickets I had against how many requests we had. As I said, we worked through the requests in a strict date order and I did have to disappoint a few people. Apologies again for this." ARC employees should understand autism and this is inadequate as a response.

Ahh, got an email tonight saying won't be getting tickets as over subscribed! Fantastic after I had told my ASD child who as we speak is having a temper tantrum! Great management!

Yeah got the email today. Can't wait.

Anyone had any tickets. My email appears to have been ignored.

WE had some concerns about our daughter but I ignored them. It was the paediatrician who had seen my son picked up on the clues and eventually we sought out an assessment. Its not too long to wait. In the meantime in some areas it is possible to self refer for SALT. In our area there is a drop in SALT clinic these days which would have been fantastic when we had concerns. Keep a note of all concerns. I hope that you soon get answers.

Well Done :thumbs: :thumbs:

As a parent of two with ASD and one with dx bladder problems I can empathise- Yet again awoken at 2 am with a wet bed. Drinking sufficient throughout the day is necessary first of all. Can I just say that there are some clinics better able than others

I agree that it can be expensive. You can save costs by instructing a barrister direct for some advice on the case and then to represent you at the hearing. Some soplicitors act on a fixed fee basis. Ipsea and the NAS do sometimes provide free advice and representation. SOS SEN likewise. There is a good book by ACE about statements and tribunals. There is a time limit for lodgiing the appeal so you do need to act quickly. Good luck.

Please be careful. Tell your Solicitor and find a new school asap.

I think I have heard of this but no experience. All I can say is 1:1 has been really helpful for my son. Grab eveerything that is offered.

Boys are quite different. I have one of each both dx Aspergers. My DD is 7. She is apparently fine no problems in lessons but her after school club find her more hyper and so do we. I think it is more subtle but that doesnt mean that it doesnt have an impact. My daughter can be quite aware in school and stops herself but at home we have the tantrums etc. If told off in school she will became very quiet and quite like your daughter - storing it all up until she gets home and then moans about how unfair this and that is and that. She is the class policewoman. Because of our son I was more aware but still put my head in the sand but a kind paediatrician made me realise that some of her behaviours were not normal. Go with your gut instincts. Lots of schools also deny problems where there are no serious behaviour issues in school. There is a good book called Martian in the Playground and also another Pretending to be Normal. I found these helpful. Also Tony Attwood's most recent book has a section about Girls. I think that my DD will become more obvious as she hits puberty. I find the shops the worst place to go with her as she has SID and has very little patience. Can't see long mother daughter shopping trips in the future! On the plus side she is extremely intelligent, has a quirky sense of humour, can be very loving in her own way. I wouldn't take away the Aspergers if it was possible as it does make her what she is.

<'> >< <'> Take time for yourself as well. I have to say I recommend counselling. I found it helped me at the time.