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jewels

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About jewels

  • Rank
    Scafell Pike
  • Birthday 06/08/1974

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    jewelmrr74@hotmail.com
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  • Location
    Edinburgh Scotland
  • Interests
    My 9 yr old son has just been diagnosed with Asperger Syndrome on 30.09.05 <br>Finding things tough as i don't understand a lot of things (sensory sensitivity ect..)<br>He also changed schools on 21.09.05 as his other school couldn't understand him and he was bullied a lot.<br>I have 5 other children 18, 16, 14 12 & 7 (eldest 3 r my step-kids but all live 2gether) so it's a v. busy household.<br> Julie x
  1. Love that song Carole Takes me back to my youth when i didnt have any kids and was quite alone really. Even though my life is hectic, i wouldnt want to go back to my silent days. A big thank you and a big <'> Wishing you all a wonderful christmas and a better new year to all. Take care Luv julie
  2. Totally loving the party, can i plz have a southern comfort & lemonade? thank you woooohoooo By the way why is there a dog at the party??? and who are the 2 at the back having a snog?? Have a good 1 and dont forget to watch out for the misteltoe Oh and behave yourselves or else we may get a visit from the
  3. jewels

    OMG

    ooer and im a sergeant .... how did that happen was i that before??? i never noticed lol congrats to you as well mothereve
  4. jewels

    OMG

    Yours says sargeant major as well Kere LOL
  5. jewels

    Red Ears

    My son too gets bright red ears and they get very hot as well. I also thought it was to do with getting too hot (he often sweats a lot) and as well thinking it was because he was getting worked up/stressed out/angry/ect ect. I would like to be able to do this GF/CF diet but i just know that he would rather starve (and steal food) other that eat "new" stuff.
  6. Sorry to hear that Keeping my fingers crossed for you that you hear some positive feedback soon Its soo frustrating and ive only been going thu it since october (my 9 yr old son was dx on 30th sept. 05) It took me about 4 weeks to fill out the form, and it was eventually sent off about 4 wks ago. I got a reply from DLA this week saying they're going to be contacting the school and GP. The last time i took Liam to see GP about his problems the GP told him "stop acting silly and maybe other kids will be more friendly with you and stop bullying you" And about his character voices (he likes to impersonate anyboday on TV especialy like copying shrek & donkey and also any films with jim carey) the GP said " you just have to stop talking like that and grow up and act your age" Soooo as you can probably understand im a bit worried what the GP will say to the DLA take care luv julie xxx
  7. jewels

    DLA

    Got a reply from DLA saying they're going to be contacting the school and GP. The last time i took Liam to see GP about his problems the GP told him "stop acting silly and maybe other kids will be more friendly with you and stop bullying you" And about his character voices (he likes to impersonate anyboday on TV especialy like copying shrek & donkey and also any films with jim carey) the GP said " you just have to stop talking like that and grow up and act your age" Soooo im a bit worried what the GP will say to the DLA take care luv julie xxx
  8. Yup, can totally relate to this. My son Liam (9 yr old AS) is the same and will scream, shout and fight his way to the front/be 1st all the time. With having 5 other kids and especially a younger child (7) it can be hell. When he doesnt get his way it will be a nightmare ans he will end up in a really bad mood for the rest of the day and make life hell for whoever was 1st For an easy life i also ask the others to let him 1st/sit in front ect but this can also cause problems for the rest of them as they dont see they should have to "lose" all the time to him If any of you have other kids do you find that they can often taunt and annoy the ASD/AS/ADHD ect kids? How on earth do you stop it Im forever on their case to stop annoying Liam but they find it funny when he "goes off on one" and chases them round the house but then get angry when he starts fighting with them and gets the better of them even though he is 3-5 yrs younger than them as he is very strong especially when angry. Ive explained about his AS but makes no difference He is very obsessive about his room and regards this as a very private place and allows no-one in except with his permission, his sisters (7,12 & 14) will constantly go in and turn off his TV and generally annoy him and then he goes completly bonkers and attacks them and then they come to me in tears saying he should get punished or hitting them. Its driving me mental!!! Hope your all well. Take care Luv Julie xxx
  9. jewels

    DLA

    best of luck daisy
  10. I was reading my 9 yr old AS son a book i had bought called "can i tell you about asperger's" and whn we came across idioms and was explaining it to him. I could see he was puzzled so i asked him what it ment if i asked him to pull his socks up"? He automatically pulled his socks up and looked pleased with himself, i told him what the other menaing was and he looked at me and said "thats just stupid!" Someone said to him "are you catching flies?" when he has his mouth open (which he does often) he replied by saying "no, there arn't any in here" take care luv julie xxx
  11. My son (9 yr old with AS, dx 30.09.05) doesnt get any help just now but i think they are still revewing him just now. They have spoke about Visiting teacher thing and ed psycs but nothing has been set up yet, also waiting for a visual timetable for him at school but told this could take months He has has the OT in his class twice now (he had her on tuesday and i was told he did some writing/reading and some other types of tests including something with looking at different shapes and things and trying to see if he remembered them but he got a bit of a handful at the end and lost all consentration) she also gave him a rubber knobble wedge type thing for him to sit on to try and make him sit still and to stop sliding and swinging on his chair) she also wants to get him some sort of wedge thing for his desk to make him write better but dunno how this is going to work as he shares a desk with 4 others He is constantly in trouble as the teacher keeps changing things and he goes off on one. He started arguing and causing trouble with another boy and had to be taken out the class today and i found out it was because the teacher had moved them into different groups and changed desks etc.. Liam ended up sitting beside this boy who he doesnt get on with and that started him off. What is this statement??? I havnt been given any kind of statement I barely know whats going on with him. Hope your all well. Take care luv julie xxx
  12. Thanx again for your replys and words of comfort. a big <'> is just what i need at this moment. Hopefully things will get better (like they always do) and i'll be back bouncing about again in no time. I just need to try and chill out. Thanx again, its so much better than therapy and so much cheeper too LOL Hope your all well and doing ok. Take care luv julie xxx <'> <'>
  13. Hi carole, Thanx for your reply and i will pm him as soon as ive got some spare time when the kids are in bed. Thanx again take care luv julie xxx
  14. Hi there, OMG i think im going nuts! Ive been having such a bad week/ 2 weeks (not sure now LOL) I had a saturday job (as well as my week job) to get some xtra xmas cash but after about 8 /9 weeks i gave it up (last week) as i was coming home and everyone would be stressed out (specially hubby) as he didnt really know how to handle Liam (or the rest of them to be honest LOL) and it would just be be like a warzone and i thought at the end of the day its just not worth it. Anyway ive only been in my other job about 10 weeks (got the job a week before Liams diagnosis) and i have been regularly told off for being 5 mins late and ended up in tears yesterday as the last week has been a nightmare as Liam is getting excited about xmas (i think this is what it is) and has been driving me up the wall. He refuses to get up for school, refuses to get dressed and even when he does he will come thru in his day to day clother (even filthy ones) and wont take them off to get his school stuff on, then trying to get him out the door is a complete nighmare again as if he has something on TV he will want to see the end ...OR he will hide. Ive found him in cupboards, under his bed, in his brother/sisters room, bathroom ect.. im lucky if i have been leaving before 9. Im at the verge of quiting my job as i feel my boss just doesnt understand or just doesnt care and i cant go on like this. Im starting to feel ill and im on the brink of a breakdown i think .. yesterday was the 1st time ive cried since way before Liam's AS diagnosis and even then it wasnt a really good cry as it was in the work's loo's. Anyway (again) my 7 1/2 yr old daughter is showing very distinctive sings of the same behaviour as Liam but cant work out if she's just copying or (as the GP said "wants more attention.") She used to sleep with the light on, be reasonably good at school ect.. Now she says shes afraid of the dark, talks like a baby, her school work has fallen drastically (says her words back to front eg. bad/dad, no/on, ect.. b, p, q & d's are almost impossable for her to do now, she steals food (especially chocolate and crisps) and im not getting thu to any1 as they say they want to deal with Laim 1st. Monday was a half day at work, was going home to have a few hrs (i feel completely exhausted) but got a call from the high school saying my 12 yr old hurt her thumb playing basketball in PE, took her to hospital and she had broke her thumb, so now she has a cast on and i have to help dress her and do her hair as well as everything else in the mornings. Today went to see 7 yr old at her nativity play, then had to take my 7 yr old to the podiatrist as she has flat feel (like Liam) and suffers terrible cramps in her legs and shin splints and with be screaming in pain at all hrs in the morning 2,3,4am so they have put in special insoles and if that dont help (todays appointment) are going to see about special plastic type things in her shoes to make an arch. Also was thinking if any of you use the gluten and dairy free diet and if you see a difference? Cant see Liam going for this tho as he is so fussy with food as it is and will very rarely try anything new or anything he doesnt like the look of. Still not been xmas shopping, or put tree or decorations up and time is getting on so fast but all i want to do is hibernate until .... well im not sure when, maybe a few months Anyway this is my therapy for the moment LOL, who needs to go see a specialist Ive been on antidepressants for over 3 yrs but to be honest i cant remember the last time i took them as i just cant remember to take them and seem to be consentrating on other more important things. Will need to remember to fone Dr. tomorrow as i know i cant go on like this and the kids will all be off from the 23rd - 9th jan and will definately need therapy after then LOL Oh the OT saw Liam at school yesterday to do yet another assesment, i spoke to his teacher today and he said he was ok apart from the last 20 mins or so when he had used up all his consentration and began to be a bit of a terror. She gave him a cushion with knobbly bits on it and a slope to make him sit properly and more comfortably and to try stop him swinging on his chair and try and sit for longer periods, he also told me they were going to give him a sloped board to put on his desk to make him write better and more easily so that should come after the year. Also ... he has been complaining his eyes are sore and watering/stinging and he keeps staring at the strip light then says his teacher looks purple and has streaks coming out his face so his teacher said i should take him to the optitian again (already did but they just said his eyesight was fine and he didnt need glasses Anyway thats my rant over for the moment, now going to get the dinner organised and try to get Liam and his sister's homework done Hope your all well and everyone is doing ok. Take care Luv Julie xxx
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