lindy2017

Hi, I know how you feel......my son has not been to mainstream school since april 2010......we are going through statutory assessment at the moment.....we have a hoem tutor although now they wont allow iit at home has to be somewhere like library or nurture unit which he doesnt like and cant understand why hes deprived of education because having it out of the home is stressful ......when my son went to school he didnt like dressing up or school trips or anything differnt......my son is 12 nearly 13 .........i spoke to our education welfare officer 2 days ago as his absense was bad i explained what was happening his anxietiies about school etc and told her we ahve a school meeting on the 12th march to talk more ........i did say that we soemtiems think it would be better to home school as he s not getting much education .....she did say we have to talk together as a family and decide what is best fror my son .......at the moment hes offered 5 hours tution a week........and most times its less if hes refusing where tution is taking place so were going round in circles....................i have ms and have an older son at home it is hard some days my husband trrys to help iand since my sons been dx with aspergers it has made it easier tot alk abut things .........dont know if ive been any help but pm me if you want to talk more...... ..

Hi my son dx aspergers last year has had home tutor since oct 2010 only in the last few months they have said it has to be out of the home and its down now from 5 hours a week to 2 due to his anxieties attending a nurture unit for tution he didnt like going there ......so at the moment hes not had hardly any education he will be 13 in may ....were goign through staturtory assessment at the moment ......dont realy know how its going to turn out in the end......

hi, Im sure my eldest son would agree with you hes still learning after 10 plus years .......

sounds good im glad for you ive still got my son 2 hours tution a week in nurture unit he doesnt like going got a meeting inmarch to discuss.........

reading this it is what is happening with my son hes 12 ....has the school phobia cant handle mainstream has tutor they go to nurture unit for 2 hours at the momenet but he doesnt want to be there....peopel dont realise how ahrd it really is except the ones who are going through it i i have ms and cant allow myself to get too stressed .....my older 3 children have traits and my eldest son has an IT company and a 2 year old boy and beautiful partner...my daughter has 2 children and my other son is doing apprenticeship ......i take every day as it comes and know th ngs willl change ........

hello good place to be......

Hi, I have been worrying over this recently my youngest is dx aspergers .....i try and not dwell on it but hope life works out well in the end......

Hi i have 12 year old son dx aspergers last september and 3 grown up so ns and daughter all on the spectrum homework has always been an issue and its a stressful thing for aspies .....my eldest son used to find it really hard to do ....but on the brighter side hes 33 now has own IT company due to his obsession with computers .......my youngest has meltdowns i know how you feel.....

Hi, My sons nearly 13 and is the same he loves his pc doesnt go to mainstream only 2 hours a week at nurture unit and he doesnt like that has tutor with him its nearly 2 years since hes been in mainstream full time.....i know how you feel .......

hi welcome to forum bst place to be.........

Hi,I have a son dx last year aspergers .......hes 12 years old .....

Hi Tom, Welcome to the forum good place to be....im from scotland as well........

Glad your ok now thats why i have to help my 12 year old son bathing washing hair is hard for him your knowledge is excellent.....

My son has anxieties about school we had hoem tutor since oct 2010 but a nurture unit has been provided fro him to attend since last september and hes not happy about going there now after meeting at school thye agreed it would be 2 hours a week and start slowly again ...at the meeting i asked for elearning asaway for him to get education as he is missing out his pc is his fasination and i thought this would be the logical step for him we are in process of staturtory assessment i am goign to ask for it as plan b if nurture unit doesnt work they all keep going on about how hes not mixing with his peers......but thats the thing that stresses him the most.....i know how you feel you can never relax and think ok thats it sorted because things change every day ....

Most of the time it is connected to school at the moment he visits a nurture unit for 2 hours a week with his tutor ......he has big anxieties but is ok at home on his pc comfort zone .......i notice he starts to speak about what is bothering him but sometimes its too late by then and whatever i say to reassure him doesnt work ......i have bought a book about aspies and anxieites should arrive today .....

Hi, I can understand how you feel as my 4 children aged from 33 to 12 yrs have traits of autusm youngest son dx with aspergers sept 2012 my youngest has meltdowns but my older childre n have had the same .....we are learning now how to deal with anxious feelings before they get to meltdown stage..........

Hi,I can understand everything your saying my son changes his mind then said after nurture unit visit i dont really want to go but i have to.....doing it for me.......i have been trying to explain to anyone who listens its ups and downs.......i feel now icant allow myself to get overly happy if good things happen and live in hope things will get better...............its an ongoing battle every day they dont like changes .....i was the same as i grew up i cried alot when i ahd to change school college etc....so wehn something ends its stress because they ahve to move on to something new......does that make sense ..........i worry that he wont want to go nurture unit on tuesday wont know until the day comes..........

Hi Welcome back as you know this site is good for support and info .......i think my friends son has what you have ....life is a challenge...

Our son finds it hard to get to sleep said it better id he waited till he was really sleepy.......he worries before things happen and it can lead to meltdowns which stops him doing anything......

As you know we're not at this stage yet although its been mentioned i know how you feel......there must be some more natural drug out there to help with anxieties you know like the ones we can buy in health shops.........i hate drugs the side effects might be worse..........our dr at CAMHSsaid i was to ask my son what he specifically wanted to happen........looks like a long talk to find out........do these people really know how hard it is........

My son agreed to go to nurture unit yesterday took most of the morning till half hour before we left at lunch time ......he put his s chool trousers on and shirt was saying ive got to go dont want to go......stayed in bed longer to avoid it....didnt eat got there and his tutor and i went in i updated her on what has been going on.....we talked to him reassured him etc....i left when i came back he had a smile on his face ...said it ok as there was hardly anyone about apart form a few teachers walking by ....he said he would go again on tuesday so ahve to wait and see........i got phone call from man from snap charity so hes going to help me ......

Our EP was at meeting and requested social services woman to come but the down side to ehr is she got it wrong again said that my son used towalk the dog every day and now he doesnt.....................we dont have a dog wehave 3 cats and a rabbit.......................another time she got the family history wrong so dont have much faith in her...from the start.....she has only met my son once in 2010......i dont know if nurture unit uses their own EP will have to ask today myself as i found it is better than relying on others.....if my son wont go to unit today i will meet his tutor and we can both go in and tell them about how it is now ............thanks for your help will let you know.....

social services disability woman came yesterday she was really nice so that helped she went through family history and everyhting that has happened with my son up to now she suggested getting an OT involved as she said the one connected to our CAMHS unit can specialise on children who find it hard going to school so shes getting back to me on that ........she told me about other boys in area who are similar to my son which made me feel better not alone and only one......next week im going to a meeting connected to NAS local woman set it up for mums like me the local press will be there to put another stry in the paper as they did before to highlight the problems we have on gwent if oyur child is on the autistic spectrum......spoke to welsh assembly members office for our area and the girl said she got word back that they are looking into it weasked for help from them as i felt so vurnerable .......she conctacted the chief of education ......will see today if he will go to nurture unit fingers crossed maybe i should go in and try and see if i can explain things first hand to a member of staff .........

Hi, Thanks for help again.......this site gives more than the professionals.............dr cp did mention medication as last resort when we were at meeting in the school seewhat she says on friday.......let you know what the SS woman says ..........

I was adviced from IPSEA to apply for statutory assessment..............i have done that ..........i was told letter is on its way to do with it...................someone from social services disability team is coming today to assess..........................the EP instructed this .............................he is stressed at the thought of going back to nurture unit on thursday for an hour with home tutor................tome the nurture unit is the best place for him under 10 pupils small no noise.....side entrance dont have to go through mainstream part of school...............but it seams anything to do with school is a big anxieity to him.........on friday i have meeting with child psychatrist who dx him this is the first proper meeting since he was dx in september ..................hes suppose to come to this meeting but was saying he didnt want to go last night was anxious about everything.........thanks again for your knowledge .......