LizC

senco stands for special educational needs co-ordinator.

Hi well done! he deserves it and is entitled! don't worry about it. we applied a few months ago and still waiting, they keep sending letters saying they haven't made a decision yet! It would really help as Matthew ruined and broken alot of things in our house (sofa/wallpaper/walls etc)which would help and also want to buy a trampoline foe him, would also help pay for his pull ups at night time and also pay to take the kids out, don't forget it effects the whole family/siblings! Matthew loves museums/history etc.

Hi thatnks for your replys. yes we do have a service. I went to this support group with the main project and apparently they can come into school to offer teachers free support but the school have to request it, so I have told the senco so she is informed now. we also went to a workshop last week run by the main project and the speakers were great, one was Luke Beardon (don't know if anyone has seen him but he was great!) and the other was someone who has aspergers herself, she is now 25 but only recently got diagnosed! was a good day and was free for parents!! I have heard of the early bird courses, will look out for them!

Hi <'> I hear you!!! My son matthew is 6 and never sleeps either and it is usually 10/11/12 every night before he sleeps, it is so draining isn' t it!? hard on our marriage too. No one will give Matthew melatonin either!! the pychiatrist doesn't like medication!! and how dare she tell you how to school your child! none of her business. my friend has just taken her daughter out of school to home school because she doesn't like the way kids are tested all the time. just wanted to say there are othes that are going through what you are! <'>

Hi I haven't been on here in ages just been very busy and tired and of course stressed! for those that don't remember me Matthew my middle child was dianosed last september with aspergers syndrome (and also some learning/concentration difficulties) he is now 6 and will be going into year 2 in september. we are still working on his statement, it has started and we will meet the school psychologist in september. been hard though with no help or support at school. he finds it very difficult when things aren't routine or when supply teachers come in and these last few weeks have been very upsetting/unsettling for him, there have been alot of supply teachers and he seems to be getting more violent when he can't cope. he has been like this for a while at home throwing stuff/chairs heavy objects etc (as well as wrecking the house in general) well he wasn't like this at school until just these last few weeks and has thrown a chair accross the class room alot and hides under the table or runs out the classroom/school. the big problem appart from the obvious of he may really hurt someone one of these days, is that some of the teachers including the head teacher think he is playing us and really this isn't anything to do with his AS! Iam mad at this and told her straight yes well actually it is! even if his 'playing' us doesn't this m,ean a cry for help, I totally blame the school for not understanding /or even trying to understand his aspergers and not getting his any support to help him when there are big changes! the times I have been into that school! I am sure you all understand how frustrating it can be!! I now go to 2 support groups, one is called the daniel project and is once a fortnight and that is for kids on the autistic spectrum which is great meeting with parents and great for Matthew too! He was in the newspaper last week! then the other one is called the main project run along side a school for autistic children, this is for parents and i have been once (last one before the summer) but that was great too, great for info!) anyway I better go but thanks for listening!

Hi I am Liz haven't been on here in ages but saw this and had to respond. My son had aspergers and was diagnosed last september when he was 5. he could not cope at all last sports day, this was during the time he was getting assessed but we were pretty much certain that he was as. he could not cope with the non structure /non routine of it all. the day seemed all misjointed and loads of kids shouting/loads of parents etc etc but he just wanted to run/escape and get away from it all I couldn't relax and watch it all, watch my older and look after my toddler all at once, no teacher was on hand to help him and if I didn't run after him he would have been out of school and away! It was very upsetting for all and decided against taking him this year to avoid it all and pre anxiousness before hand too, the nurse had said not take him too it won't harm to not take him. (he is now 6) so today was sports day and we arranged for my hubby to be off work to look after him while I went to watch my older daughter. this was so much better. although some teachers didn't seem understanding and saying that is a shame, like I am making him miss out on something he wanted to do lol, but no he wouldn't not have coped so I am glad I didn't take him!

Hi I am not catholic either but am like debbie a born again christian (we go to a baptist church), mind you my father in law came from a catholic back ground lol Liz

Hi I know it is hard but don't blame yourself, that is the sort of thing that would happen to me and i would also be feeling extreemly guilty too but hey what can you do! it was a done in an instant thing, you can't help it and was doing to right thing by shuting him out to ignore his behaviour. Matthew's behaviour is also quite bad at the moment and is so violent and throws stuff like chairs at his sister I am so worried that one day we will also end up in A and E! 9He did end up in A and E when he was 3 for electocuting himself anyway hopefully he may learn his lesson! lol Liz

oh and he is still pooing his pants severel times a day. Liz

Hi sorry again I haven't been on much, I go through phases! well a little update on Matthew. well last week his pyschologist came to see us, wanted to see M too. anyway M started to get anxious right before she came, then whilst sge was here he got very angry, went in the hal;l through shoes and coats everywhere and pulled a picture down, went upstairs trhough over toy boxes, in hayleys room he through over her ironign pile, then he came downstairs and trashed the living room too throwing toys everywhere, pulling books and paper off the shelf and pouring juice everywhere, obviously I am trying to keep calm, tryed sitting him on my knee but he was kicking and growling at me, the P was trying to talk to him quietly too but it seemed to make things worse, she was very undertanding and said that it was good that she saw what he like, anyway she has gone away to see what they can offer us, she is going to see me everyweek and also get the ball rolling to apply for DLA, she said me are more thanm eligible for it and she would be happy to help us with that (I understand not everyone gets it and not everyone gets it first time but try again) but she said we are in a very good position for receiving it and said that because of M I may never be able to work (or at least full time) anyway that is it for now.

Hi well my consultants pronounce it with a j as I do and have heard it that way for years although I have come accross and few that pronounce it with a G. that is probably the proper way to say but it doesn't sound to me after saying with with a J for a very long time lol (my mums friends son has it too and he was diagnosed about 13yrs ago) Liz

Hi I hear you!! My son who is 5 1/2 is still soiling his underpants,. I have had enough! he always stinks and it is as if he can't be bothered to go to the loo, that or he can't tell when he needs to go until too late and just has no full control! he wasn't potty trained till almost 3 but the poo side of things is ongoing! and he is no where ready to be dry on a night and often in the morning has poo in his Pyjama pants too not fun is it?! Liz

Hi My AS son never really had antibiotics as a baby, did have inhalors for his asthma but really nothign to do with that, he showed some of his first problems earlier then this. my older child was always on antibis for infections and she is fine! also his AS problems started well before the mmr injection. my grandad had AS and he never had the mmr injection! Liz

Hi I get this all the time too! everyone says oh he is fine! or I will get we as parents aren't doing our job well enough and we should be tougher etc, or it is a boy thing, my boys just the same! grreee, it is when you put everything together and see them every day then you can 'see' it! with Aspergers they can appear 'normal' at times, just wish they saw M the rest of the time! Liz

<'> <'> <'> <'> Hi I could have written this myself.. these last few weeks have been hell, i really can't take much more and I keep saying the same things as you! I want to leave, put M in care etc etc. So I can totally relate. M seems to have disrupted our family. He can't stand his sister, he wakes his little brother up and he is hyper all the time and just won't do as he is told, nothing seems to work. he thinks he owns this house ggrrrr. remember we are all here for each other!!

Hi yeah it is a PG. Matthew was fine with it and he is 5 1/2. the frozen bit is actually funny and isn't scarey. the scarey parts are the aliens and the robot. every child is different so be guided by your own child whether to take them or not! yes it is make the makers of Jumanji.

Hi we always knew Matthew was different right birth, he was always a difficult child, hard work but was always fobbed off by HVs and other parents by saying he is just a boy, or the terrible 2s and he will outgrow it! even the school nursery didn't think there wasa problem, even though it was a huge battle getting him in there every day for a year (huge tantrums etc which was hard espeically with another little one) by 4 1/2 I took him to the GP who reffered us (we were thinking ADHD at the time, but knowing my grandad had AS we were begining to think this), by april someone came out from the mental health team and did an initial assessment on him and agreed that it was more likely Aspergers. by may we were seen by a pyschologist and said that he would be assessesed over 13wks. so that is what happened and by september (he had seen playtheropists/pyschologist/pyschiatrist and a nurse had visited the school and monitored him over a day) so by sept we got his diagnosis of AS at 5yrs and 2mths.

sorry that was supposed to say he sniffed the chair first lol

Hi all, well because matthew has done quiet well this week with going to school (well the best he can do when his routine is thrown all over the place) so I took him to see Zathura today. he loved it and sat and watched it all but one thing he did was he had to sniff the car first

Hi My son does this when he is getting extreemly hyper and running about and goes yeah and laughs like a real 'evil' laugh and just goes complety mad in his own little world!

Hi Matthew doesn't like having his haircut either! Thankfully been a boy I can do his hair at home with the trimmer/clippers. he hates it though and gets upset that he doesn't look like Matthew anymore! he asks when will it get back to normal (he is like this when he hurts himself too)

Hi yes my son is like the above. he defiently can play and does with his sister/brother or anyone he knows but can get very frustrated and end up fighting more or less right away. he is much better on his own but then he is locked into his own world and no one can get through to him lol. he tends to play things that include super heros or has death in it (as this is somethign that has had a big impact on his life since his grandad died a yr ago) he tends to get very wild when play and very noisey but can imagine stuff! He is diagnosed with Aspergers. also my grandad had AS and he could make up stories as he would tell my mum when she was a young girl, it would always be thigns like the Fat man and the thin man!

Hi everyone, thank you so much. It is 'nice' to know I aren't the only one going through this! I just feel sometimes that I just can't do this anymore! as much as I love him. tonight he was really mad and upset cause i was taking him to bed and he wanted dad. this is really hard cause the nurse said that we as parents need to take him up to bed on different nights but also not to make it one night mum one night dad as he will get used to this, however he knew i had taken him to bed last night and tonight he just wanted dad! really hard going! especially as my daughter has come down with a virus and he doesn't care, pulling her blanket off grrrr well better go!

Hi again thanks. It was just things like HfA but now that I have read what it means it makes sense lol, As and ASD are the easy ones lol Liz

Hi Matthew seems to be getting more and more aggressive and I don't know what to do about it, yes he has always had big 'tantrums' but these are getting out of hand we only have to say the big bad NO word and that is it he is off in his own world kicking screaming and runs round the room like a tornado throwing toys accross the room and pushes chairs over, he hurt his dad's foot this morning, hurts his sister and it is only a matter of time when he seriously hurts his little brother! shouting at him obviously doesn't work as it just makes him worse, but he can't hear me when I speak calmly as he is making that much noise. any ideas?? also he seems to be getting more and more hyper after school again and I can't seem to calm him down as he is just in his own little world and yes I know that is a classic austic symtom but what can I do, Nathan who is 2yrs4mths is copying all this bad behaviour! and hayley my eldest gets the brunt of it all!