Tilly

Hi Pim Its horrible seeing the negatives wrote down in black and white isn't it? But I was told by a SENCO that it was in dd's best interest to write down the things that she can't do so that the funding will be given. There is no way they would assist if they say what your ds can do, so now I try to think along those lines but it can still be upsetting. As I have mentioned before your dd sounds so much like my dd. She attended mainstream for 2 years and could never cope with assembly. She was never given the option to stay for lunch and eventually only attended part time when the day became more structured and was way over her head. I also had another child attending the school the same time as dd and I also had to consider her welfare. She is 2 years older than dd and would get upset, angry, embarassed if dd created. I think your school/home diary book is a good idea and maybe they don't think it was a big issue about his tantrum in the assembly and that they dealt with it and it was over and done with, as they realise that this is part of his difficulties and that he wasn't being naughty. Try not to feel so low - easier said than done I know. Tilly

Aw Zemanski <'> <'> I know how you feel. When dd was at mainstream I was always dreading the phone ringing, hated picking her up or trying to get her in school . Aww such is life. Do you ever wonder what you thought about before ASD came hurtling into your life! Tilly

PREGNANT

I would love any advice on changing dd diet. It breaks our hearts when we look at her plate/packed lunch box etc. Even when she was weaning on to solids dd would spit food out like a missile or vomit if we "coaxed" any food she did not like in her mouth What puzzles us is she won't eat anything as bland as potatoe or as scrummy as a Twirl {but she will eat buttons and mini eggs- and they are all made by cadbury} but she will take 2 teaspoons of Eye Q oil everyday and doesn't bat an eyelid And I've tasted it its vile!! I think most parents on this forum are bothered to help our children or else we wouldn't be taking parts in these discussions. As I am one of the parents who are bothered to help change her diet I will take any advice on board as I am at my wits end Tilly

GOLDEN SYRUP - here too {my favourite} KETCHUP - yak {NT dd favourite} CHOCOLATE BUTTONS {NT ds favourite} Tilly

If you can't get to see it tonight its repeated on Thursday Channel 5 at 11.00 p.m. Tilly

Hi Loulou I was like florrie and on seroxat. When I thought I was well I came off them myself but it hit me again like a sledge hammer. I was told by GP coming off them myself too quick can lead to the boomerang affect. Eventually I weaned myself off by taking smaller doses over a long period. I felt much calmer on seroxat although I did sweat a lot but my dh said it was like living with a zombie. Hope you are feeling better today take care Tilly

Star

I know exactly how you fee with their constant wants and demands. my mother always says about my dd "if she doesn't marry a lord she'll be disappointed as she wants someone to wait on her hand and foot" Forgive me, i love my children i really do......... Blooming teacher training days (right after the holidays) Im just craving some peace. Now CAN I ask teachers not to have training days straight after holidays. I much preferred the occasional days when other children were at school and we could have the town, parks etc. to our selves. Tilly

Thanks Brook - You techno queen!! I've done that - I think- and I've also but the info beside my location just in case my posts are long as I have been known to rant. Tilly

It strikes me very odd. She maybe part time but surely a meeting could be arranged when everyone was able to attend. So who exactly was there. Tilly

Does anyone else think it would be a good idea to put our childs age and dx or their own beside our profile information? Being new to the site I keep referring back to posts so I know the age of the child that the person is talking about etc. and whether advice is appropriate for the age or dx of the person. I know Daisy and Madmooch have their information put on the bottom of each of their posts but that is too technical for me. Just a thought Tilly

I think rules are a good thing lets face it, is a way of life. I attended a parent nurturing course at my dd school for 10 weeks and we were taught to make everything appropriate for the child that being the rules, the rewards and the penalties and choices. Dd also likes a star chart so she can see how well she has behaved. At christmas we painted a christmas tree and covered it in the stars or we might have a starry night time sky etc. We were also told that if we have rewarded the child we must never take that reward from them -they earned it . If anyone gets the chance to go on a nurturing course i would recommend it i had a good "me" time and learned some good strategies. Mind you I sometimes find it hard to implement them all the time - but hey we are only human. Tilly

Hello Justamom, I too like your husband won't say the "A" word and I don't tell many people about dd problems. As mentioned, people cope with things in different ways and some people cope better letting people know about their childs dx for people to become more aware of ASD. In my case I want people to see dd and not the label first . When she was first dx I read up on numerous books, spoke to the nas, joined parent groups etc but I became so overwhelmed that I ended up having a serious breakdown. [not the nicest place to be] My dh sounds a lot like yours and thinks I'm making mountains out of molehills where dd is concerned He says ignore the label and concentrate on dd and that every child is different. I sometimes think I'm getting too obsessed some days regarding the dx and I often wonder what I used to think about before ASD came into my life !! I don't think there is a right or wrong way in how people handle things, what is right for one person won't necessarily be right for the other and we should llearn to respect that - even though I think dh ideas are sometimes wrong lol Tilly

]Daydream

Wig

Sorry ment to say BOAT As in The loveboat

Annie beat me to it there LOVE

Fruit {I must get out more on a Saturday night}

Tooth

This is the bit that gets me. Its like saying any one with a sight problem is in the "visually impaired spectrum" whether it be they are blind or they need reading glasses. So if I invite you to come and meet my dad and tell you he's visually impaired you wouldn't know whether he had a guide dog by his side or was colour blind. Does that make any sense I'm a bit crappy at explaining myself I just think its too wide a spectrum for one diagnosis. In my dd school 75% of the children have ASD and all have different quirks and fears - I suppose like their NT peers. The thing that concerns me when people know she has ASD they believe she won't want to be touched, have her hair brushed, share a joke learn to read etc. Things she will do now. Tilly

Can anyone in plain speak tell me the difference between AS and autism. I've been reading some of the posts and some parents have said that their child is atypical autistic; severely autistic; mildly autistic; High functioning autistic; aspergers syndrome e.g. I have read numerous books and website pages but I seem to get more bamboozled - not hard to do I know lol. I think it would be interesting to hear from other parents at least they are walking in the same shoes as myself! My dd has been diagnosed autistic and attends a SEN school. I know that autism is a very individual and complex disability in a very wide spectrum so I think that Autism is a very general word for such a wide and various disability. Tilly

Bunion

Bunny

Hi Pim Your ds sounds so familiar to my dd at that age. She also attended mainstream on mornings and I collected her and done social things with her on an afternoon.I knew that she could recall all letters and numbers but couldn't seem to understand about word blending etc. I was also told that she would only learn to read by rote and never read by word construction With the reading, things began to click eventually and she is now an avid reader and can word blend new words appropriately and she gets a lot of pleasure from reading too. Her pencil skills are another matter and she will only use a pencil on something she wants to write usually a sign to tell her sister to keep out or that she is a pig etc. Dd also liked to do rhyming sounds with pics e.g. -ug and I would change the first letter such as bug, jug, rug, mug. Good luck Tilly