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      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team


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About Nikki

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    Salisbury Hill

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  1. Psychosis??!!

    Della I have pm'd you tonight Have been all though all this load of *!!!****** they are giving you I will try my best to help you make sense of the archaic system - in a nutshell they still beleive autism is child psychosis - many do not understand or recognise it as a seperate issue all comes under the "mentally disabled" heading for them & best not talked about type thing. policy is to medicate not educate - offered to put my son in "care" where he can be "looked after" every day. as they tried to tell me - ha well I had none of that there is great help here - just have to hunt a bit
  2. Really bad nights..........

    Hi Lyns My other son who is not on the spectrum had a similar ear infection problems. It actually took 3 lots of antibiotics to get it cleared up - he took them for the 10 days or whatever & then it was fine for a couple of days. As soon as he came off them it started again after just 2 hours of sleep he would wake up shaking his head and crying in pain. Then you would sit with him, get him back to sleep & 2 hours later it was the same. My doctor said it was the ear infection resistant to the antibiotics. He also said when my son laid down the build up of stuff in the ear gets very bad and after about 2 hours it starts putting presuure on the nerves it the ear which causes the pain. When they sit up - pressure is released - its better & then you start the cycle all over again. I would go back & ask for another check up or a referal We switched to anti fungal treatement as an alternative & that seemed to work. I cant remeber the name of it - I did post it here somewhere else ages ago as I did not want to go onto amoxicillin clavulate as I am not happy with the contents of it. They combine this with homeopathic remedies here in France a lot. They said to put a bowl of hot water near the bed with tea tree & eucalyptus drops in too & we kept him sleeping almost upright if possible. We also got a nasal spray to help reduce the build up in the tubes that aggravates too I am so sorry you are having a bad time - keep focused it will get easier - try diferent sleeping positions & it will go I am sure Doctors know so much about autism huh! Nikki
  3. Non-verbal to verbal

    Hi my son was 4 1/2 before he said the first word & that was because we started using pecs it seemed to be the trigger for him. Thats not to say it works for everyone - each child is unique & different But really for us its all about communicating & as long as we have communicatio between us & him that is what helps us all have a better life - less frustration - stress etc Keep giving incentives to communicate - never give up! Nikki
  4. back on ritalin

    I would be interested this too as my sons school have just suggested we look at starting him on ritalin to help improve his concentration & stop him leaping around in general. I have not read up too much on Ritalin - does anyone know where I can find out some more info? They see this as challenging behaviour but I think the thing would be for them to address the issues of what may be causing / triggering this beahviour at school in the first place by observing him to see where & when this happens etc Although we get some behaviour like this at home its not an issue for us & I am kind of reluctant to start anything until I think we have exhausted other avenues. Any comments really welcome Thanks! Nikki
  5. Hi Malika & Melg We live in France - Brittany - we speak english at home & my son who has autism & is 6 attends a special needs school where only French is spoken. He is only just verbal - started about 15 months ago & now can speak but his communication skills / language skills are at different levels. He took to the school 2 yrs ago like a duck to water & we feel the bi lingual apprach is great for him. He uses pecs so he is hearing the word that accompanies the pictures in both languages but seems very happy - I think his strong routine has helped and that clearly if he was not happy at school / did not understand his needs then we would see an unhappy boy - but this is not the case as he leaps into school every day with great joy!! I think you have to do what you feel is best. I am pleased that someone else here has positive thoughts about this too - I know it has been diffucult for our son but as we are going to be here permanently it is important for him to know both languages cheers Nikki

    The new one I have been given is one called Bactrim. However as I live in France the english equivalent may have a different name. It has Sulfamethoxazole in it as well as Trimethoprime. Its made by roche and is white but reminds me a bit of tuti fruti flavour. it apparently helps to control bacterial infections it is a difficult call and you are so right Carol when you read the contra indications on the paperwork it can make you feel quite green. however I feel happier about giving this one. it is to help middleear infections plus other things and I am sure that there must be an equivalent in the uk. my gp said it may not be as good but he has told me if it does not work by wed then he will get me a hospital appt that day to get it checked by the specialist. Ear infections are a plague in babies - once he gets on the move I am sure it will get better - it did with my older son Iif only i could get him to move - he's like a weeble wobbles & sits up but only wants to a bit of bottom shuffling - typical lazy bloke!!! Incidentally I do use lots of aromatherapy alternatives as well too - I think they always definately help. I have a great book about aromatherapy for kids if anyone is interested its by Valerie Worwood and is called Aromatherapy for your child - pink book cheers Nikki

    I rang my gp back this evening and explained my thoughts he was very understanding about my views & immediately gave me another prescription for something else. Phew I was delighted - it makes a change not to be thought of as some cranky mother Actually felt good that someone listened to my point of view without trying to dismiss me at the first hurdle Nikki

    I am bringing this back to the top of the list again as my gp has today just prescribed this for my son's ear infection. He is now 10 months old & has had an infection for over three weeks and the first two sets of antibiotics did not shift it. I am unsure whether to give it after reading this - does anyone have any new news on this please? Thanks Nikki
  9. caffiene withdrawals

    I tried to give up tea once - I went on one of those detox diets & at the end of the first day I had a headache so bad I had to go to bed. The next morning it was worse and I felt giddy - so I had a cuppa and bingo - I felt fine!!The detox drink went in the bin. I am at home all day & I do drink too much tea so now for every cup of tea I drink a glass of water or if its cold weather a mug of hot water or fruit tea. Its a really hard addiction - but hey everyone has to have something to keep them going!!!! I tried to give up chocolate once too but life's too short!!! Nikki
  10. Toilet Training

    My son was nearly 5 when we got him toilet trained. We thought we would start trying around 2 yrs old & then we just gave up after about 8 months ! WE were told to just keep reminding him now and again & he finally decided it was time to put the poo in the toilet when his sister who was 2 1/2 was doing the same. I thinks is so different for every child & sometimes the more you try the more stressed you end up getting. We tried all the things suggested but funny enough we started pecs at around the same time and we used the pictures to show the toilet etc- maybe that helped - who knows??!!! Fortunately my nursery took him as they understood the problem but we did get into a routine of watching him like a hawk. Now he goes into the toilet, lock the door and about 1 minute later he shouts poo at the top of his voice We wnt from 2 sets of nappied to none within a short time frame & now since then we have never had an accident - he never even wears pull ups to bed - one extreme to the other dont give up hope - just chill & try not to worry bye nikki
  11. Diagnosis

    Hi Everyone I want to say a big thanks for all of you who have taken the time to give some feedback on this. Its amazing how many people feel quite strongly on this when you get started ( just like everything really!) the side of it all that seems to suck is the resources - always comes down to the cash at the end of the day. I am so pleased to say all the others on my course have the same feelings : that early is good :so help can then come along. not one of them has mentioned this forum yet so if any of them need a big boost or morale then i know where to send them!! onwards.. towards the glass of red & the ironing thanks a million again nikki
  12. My GP's 'cure' for ASD!!!!

    I would have suggested tipping the pot over his head rather than down his throat. Perhaps the GP would like some info on ASD's which next time you go shove up his nose! aghghgghghhh. what a ........( cant say it but you all know what we think) Nikki
  13. Diagnosis

    Hi everyone as part of my course on asd's we have been looking at early diagnosis of asd's & if you think this is a good thing. I wonder if anyone has time to spare me a quick thought or 2 on this? I know you are all busy & I would never ask for any in depth or personal info but its good to get feedback from the people whom it affects most. I also know first hand how long it can take to get a diagnosis - it took us almost 2 years for our son. from my view I think that its a good thing( we got it when S was 4) & that it can hopefully( !! ) lead on to getting more help when its really needed. for anyone that had a diagnosis later on in life - do you think an earlier one would have helped you more / made a difference? Thanks so much everyone
  14. Theory of mind..

    Hi Brook I am just starting to study this as part of my course & its making really good reading. I have some other titles of books which seem good on this topic too - if you are interested let me know & I can send you the names of the books It really makes you think & the more you read the more you want to read to find out.... Cheers Nikki
  15. has any one elses children got issues with doors?

    Hi Liz Oh my god!!!!! - I cant beleive that someone else has the door thing like us - I thought we were the only ones it too started when he learnt to walk - a beeline for doors cupboard doors etc just opening & closing all day.that is what made us first recognise the problem and its still the same now eapecially with the supermarket doors when he leaps around going in and out as many times as he can also when we ued to go out for walks when he was a toddler he opened /closed every garden gate on the journey & tried to opne every door he saw it got to the point where I would not go out for a walk unless it was down a lnae or on the beach as it drove me absolutely mad its got better now but at nearly 6 we always get "kick back" to this a lot under times of illness stress or change I wonder what started it all off & why doors - is ith the fact its something they can control - understand? Nikki ps my new house is open plan now - I have minimal doors - phew!!!