lynyona

hi reuby.I have to agree with what nellie says as my son wasnt dx with autism until he was nearly 18 and in my case it was a relief for people to listen to me and eventually get the dx at least you can move on now you know and do the best for your child and ive recieved most help and advice from the board from other parents experiences etc than from anywhere else.Before i got kierans dx i did a lot of reading about autism on the internet etc special sites and there is a wealth of information out there.But as with everything else not all children are the same our children are still indviduals but they havent changed. lynn

Carole kieran is 19 and he still gets dla and jsa and sickness benefit.A lady from the dss came around to see kieran and what we had to do was every so often get a sicknote from the doctor explaining why he couldnt work they d write and tell me when they were wanting a new one every six months i think it was and eventually they wrote and told me that i wouldnt have to send anymore certificates in to them, and he just gets his money put into my bank account each week as i am his appointee with the dss regarding kierans benefits etc ashe is unable to deal with his own affairs. lynn

I think all the suggestions sums Autism up.But also like....my problem whats yours? that would apply to so many people lol go for it. lynn

Im the same i have a quick browse and mean to come back later.So to all the new members that i have missed Welcome!!!!!. lynn

I must have been a deprived child i cant rember ever having on I gave myself Mum the merciless as my computer nickname and are married to dad the useless lol. lynn

Thats Great! lynn

Kieran lines things up all the time dvd s videos his magazines games you name it and he lines it up .lynn

Did any of you see vincent last night?I was wondering if anyone knew what was wrong with mal it didnt actually tell you what his problem was i was thinking asd or something on those lines.As parts of hi i could relate to with kieran. lynn

I voted special school most satisfied even though kieran doesnt go to school anymore as he is 19now. I decide to get kieran in a special school because there is no way that he would have cope in mainstream secondary education.He came on leaps and bounds educationally and i think he would have also done so developement wise if we d known when he was at school that he was asd.He did sit a gsce at school and only got an f but to him it was the world. At one point when he wasnt happy at school for no particularreason didnt go for three weeks and i htought that he d never go back i did consider home educating but he just went back and he did like school if he could have stayed on at school he would still be there now as he really misses school not many kids can say that but he really does ,i dont know if it was the routine of going or the pupils and staff, because kieran school and kieran home where like talking about two different people like someone said they know whats expected of them at school but at home there are no set routines or guidlines as such. lynn

loulou your son sounds just like mine.But he hasnt got a shed in the garden for his trains now that would be a good idea.He is 19 and what he doesnt know about trains isnt worth knowing.Ive lost count of the money he has spent on engines over the years Train dvd s books etc.When his grandad died who also was a NT male train fanatic nanna gave him all his train videos.No word of a lie he can sit in the room with the sound turned off and can recite an whole video. But sometimes when we go out to the shoping centre he turns into a train doing the whooshing noises and the noise the wheels make etc and i have to say to him stop it you are a person not a steam train lol. He is still really into thomas the tank engine but while he bores us rigid with train things he s in his element so i know where you are coming from. And as with mossgroves suggestion he has got microsoft train simulator and all the expansion packs which take up loads of space on my hard drive it is good though and woorth the money ive had a go even but i crashed the train lol. Wehave also cam corder footage of trains ect for his birthday he had a trip on the flying scotsman he was over the moon.Id love to get him one of those train driving experiences but tehy are a bit out of my league. lynn

Aw carole sorry things are so tough at the minute i have been were you are now from kieran being about 7 he wouldnt sleep alone in his own bedroom even though he shared with younger ds.We used to try to make him go back to his own bed and he wouldsit on the landing crying and whinging you can only take so much so we d end up with him in our bed.Then we progressed to a made up bed on our floor then at least we all got a good nights sleep at least, and it was only when we moved here 6 years ago that he started sleeping in his own bedroom with ds. But even now he will not go to bed but while he s quite not to bad but i wtill listen out for him and now he is older we have ben able to put him in a bedroom of his own which he now prefers his own space(he s 19) he doesnt need sleep he says sleeps a waste of his time lol,but he has ben known to have asleep in the afternoon if he doesnt know what to do but that makes itlater for him getting into bed befor 1.30 am if im lucky. lynn

I do hate football too there are three males in my front room watching it at the minute all day from 12 on sky one dh one ds and ds friend.I am here also but as im full of cold and cant drg myself away from the sofa i can always have a nap lol.Im really pleased that out of my 4 sons there is inlly one who likes it lol.

Im an NT female with one son AS and Three NT sons .

Aw hev i feel the same.Kieran doesnt have friends he has a friend who was his best friend at school who used to come around every weekend but he hasnt been for a while, i think its because kieran always forces his obsessions on him which games they play etc.Kieran as great problems with going out so he just sits in his groundhog day 24/7 but he doesnt seem to mind it.His friend is a lot like him but when im at work he often comes into the shop with a couple of others which makes me sad that kieran wont even attempt to go anywhere but id only worry about him anyway because his lack of road sense and confrontational issues etc .But it is sad for them and i dont knowhow we can combat this for our siblings.Kiearn is 19 and his younger brother is 16 but they dont see eye to eye only when it suits him and thats only because of kierans autistic traits. lynn

appointments are always a big problem for kieran and dentists especially as in a previous post.He had an appointment at the opticians today and he got up and wouldnt get washed to go he sat there pretending to be asleep in the endi had to go the the opticians to explain why it was that he wasnt coming to his appointment they where quite understanding,im sure kierans thing is more agrophobic than any fear of the placeshe is going to as he rarely ventures out only on his terms and as he wears glasses he knows what they are going to be doing when he gets there soi cannot understand his problem.The receptionist asked if i wanted to make another one for tomorrow howmany can i book and him not turn up so my cunning plan is to book it and get him out there and just happen to be passing you watch it backfire lol. lynn

Think we ve got a noise war on our hands lol.Now we have to teenagers live next door and the mother goes out to work at six and doesnt return till late.I think they are giving us payback for kierans noise but it goes in fits and starts every morning this week we ve been awoken the full blast dance music boom booming through the wall at 7.30am oh joy now if they think they are doing it to disturb us they arent because dh is already up and out and ds is up ready for work and im usually awake,if they are doing it to nnoy kieran he is blissfully asleep lol.My ds says thata if it carries on he ll go around there and put their lights out but then they know that its getting to us no i dont think so and as we have had disputes with them before i dont want another we still have to live next to them.It quiet at the minute but 10 minutes ago all the walls were shaking in my house lol but the only comforting factor is imagine how loud it must be in their house i wonder if they d do it if we were a terrace block and not semi s probably because the people the other side are a bit older and they dont say anything or darent. lynn

Hi im just having a rant but advice appreciated.My son kieran 19 who i have posted many post about bless him.He is driving me to distraction.It is this multi tasking that he does very loudly!He has the tv on either playing games or a dvd and he has his music on with headphones from the stereo and walks around talking to himself(im sure ive told you all about this before)now i am downstairs and all i can hear emulating from the bedroom who yes dinnerladies he s got the headphones that loud to hear over the tv i can make out everysong he s listening to keane agh yes.And i know he s walking around and around because i can hear the floorboards creaking and if he s not singing loudly and flatly he is tshouting to himself, now i can usually switch off but i cant seem to at the minute plus he is attached to my next door neighbours what must they think as they are often banging on the wall but that doesnt phase me they make enough racket but i need to try and stop him or calm it down abit aghhh. sorry for the rant lynn

Hi im sure there have been recent post about the personal hygiene but kieran who is 19 is driving me mad.He will not get washed or change his clothes and if i put it cruelly im sorry he smells.Ive tried telling him as have the rest of the family but he just says "so i cant smell me"aghhh, the only time he gets washed is if he is going out and that is usually only once a fortnight so you can imagine.He will not change his joggers because of the sensory feel issue but if he wont change them for me to wash them how can i get them clean and also he as the same clothes on 24/7 as he does not get undress yet he will go and change his underwear once a year (joke to make light of the subject) but he believes that you only get washed and changed if you are going out .Idea s greatly recieved thanks. l also have to wash him and shave him due to poor co ordination. When he was little i could corner him but he is now 6ft 2 a bit more difficult. lynn

Hi i havent been down the medication road with kieran and as it wasnt even suggested i havent really wanted to but recently i really think he would benefit from it he seems to get more and more agitated over the slightest little thing and flies into major meltdown and advice or experiences kieran is 19 an asd.thanks lynn

Im with everyone else on this my son can lie all be it tiny white lies, especially if he s going to get into trouble for something. lynn

I cringe as i say this kieran is still like this at 19 and i could die with embarassment especialy if the person who bought him the present is there at the time big hole open up and swallow me whole lol.Might have a look at the social stories idea though.lynn

yes it is i got it from game for 29.99 but im sure they had it aon amzon for 24.99 so worth having a look. lynn

i bought my youngest nintendogs yesterday and i must say im impressed with it and it was on a gaming programme this morning which rated it 4out of 5 i got him the labrador version kids will love it even though mine isnt such a kid at 16 but hey so what. lynn

I cant offer any advice on this but my son 19 does this lso he lines his magazines and books up and they have to be in the same place and the same order move them at my peril we never hear the last of it. lynn

lorraine i know how you feel on this one.Since kieran left school he was eventually diagnosed as being on the spectrum two weeks before his 18th birthday.He was referred to social services and they came out to assess him in may 2004 and up untill this day i havent heard a word from them the last time i spoke to them in october 2004 they said they hadnt forgotten still gathering information.So i thought i ll just get on with it the only idea s they had was to get kieran in to college which was a complete disaster and so distressing for him i gave that up as a bad idea and some days out on a sunner programme ,he went to one because they were going on a train, apart from that nothing no contact from clinical pshycologist to see how we are doing.The best way ive found is to take aboard advice from parents on this forum and others like it otherwise your on your own. lynn