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Everything posted by Clare63
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That's interesting as I asked for liquid, but I was told I could not have it in liquid form as you can not get melatonin in such a composition, as Connor really struggles with pills, I have been told to crush this pill and for him to take it with a spoon of yoghurt, think thats another reason he's be put off. Bio melatonin is apparently fast release don't know if that makes a difference. Thanks for your reply JsMum. Clare x x x
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Yesterday DS was prescribed Bio Melatonin, dosage 3mg, to help regulate a sleep pattern. Does anyone have any experience of this medication and how they found it worked. DS refused to take it for the first time last night, he is very anti drugs and is terrified it will kill him. Would it hurt if either my DH or myself took one to prove its OK ? Thanks Clare x x x
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Hi Nic, I am so sorry to hear you are having a tough time at the moment. I know how hard you work as a parent and in your shop and that your daughter has done so well coping with her AS with the wonderful suport and love of you her Mum. Sadly it does seem quite common that once in secondary education things seem to fall apart I think our child all of a sudden notice their differences and the gaps between them and their peers widen, that together with teenage hormones it can be a dreadfully confusing time. Yes the transision into secondary school is huge for a lot of children, but for a child with AS this can be ten fold, so many changes to cope with, not only academically, sensory changes (ie lot more children, different teachers, size and nosie of classes etc) and socially. Sadly unless you live As 24/7 it can be very difficult for other people to understand, family or not. Whilst you have not had the support and understanding you perhaps looking for with your daughter's Father and your sister, your own instinct and expereince will tell you what to do, and maybe in time you will get the opportunity to express your disappointment with their attitude and how it made you feel. Your a great Mum, don't let all this get to you and focus on continuing to help your daughter and setting uo the new market stall. <'> <'> <'> Clare x x x
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Hope you have a fabby day ! Clare x x x
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Hi Joanne, I am more than happy to answer any questions. No neither school or anyone else notice anything, originally we were refered as it was thought that our son had OCD and that it was taking over as he had so many rituals which were impacting on his life and mental health. After about a year of CBT for OCD they decided it was not OCD at all and refered us on again where an almost immediate diagnosis of aspergers was given. Our son has always been what we thought was very shy which caused him anxiety, but he coped well at primary and being very bright was their little star and described as a perfect pupil. The transision to secondary school was the main turning point and the differences between him and the other kids became more apparent, he really struggled and got little if any help. You may well have read on another thread, my post, so sorry to repeat, but basically he had a breakdown and came out of school at the start of year 8. We finally, after a long battle got him a place at a special school and we are so pleased with the progress he has made since he started part time in November 2008. At first my son didn't take his dx too well either, infact he saw it as "our" and "other people's" problem because of all the visits to CAMHS etc., he is who he is and thats that, which I guess is right really, just need a little more help, support and more than anything understanding of aspergers than some people. The early days, weeks and months of dx, statements, DLA claims etc., are very exhausting for us as parents as the system is not very straight forward and their are lots of hurdles to get over, I am more than happy to share my expereinces with you and giev you any support and encouragment you need. Every child, whether AS or Nt or what ever is very different so the process for each one is going to be slightly different with different outcomes to suit the individuals needs etc., I am so pleased you have found this forum, I truly believe you will find this forum will open your eyes to all sorts of things you never knew or considered, well I did and I have found it to be a God send. Good luck with your journey. Clare x x x
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Hi Joanne, Welcome, don't worry takes most of us a while to get the hang of the forum, I been on here almost 2 years and still can't do quotes etc the jargon buster is really useful for forum jargon. I have a 13 yr old son too, he was dx'd with aspergers in 2007. Lovely to meet you and I hope you find your way around very soon. Clare
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Good luck Chris, your doing a great job Clare x x x
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Sorry to hear things are getting worse Hopefully our chat tonight will give you a few ideas to move things forward. Take care (and don't drink too much !) Clare x x x
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Hope you are having a better day ~ <'> <'> <'> Clare x x x
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Great News ! Certainly makes a difference doesn't Clare x x x
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Hiya kelly, Wow you have been busy, sometimes all we need is a little encouragement and motivation to get going and you have done fantasically well already. When you put in your application the authority will decided whether they think your case if worth looking at and send your the formal application. So it is quite important to provide them with as much information as possible (I typed all my applications and kept copies, so it was easier at a later date to cut and paste info I had given before so save keep writing it over and over again, plus you can always add stuff to what you said before or elaborate further). Advice I was given was to include what steps the school and any outside agencies have taken to provide inclusion and things they have done to try and resolve problems/issues/ difficulties etc., They want to see that the school have made efforts to resolve things, othwerwise they may just send you back saying you need to approach the school in the first instance to resolve and give them a chance to do so, before they agree to looking at statement. Its almost like you have to back up your claims for support by providing evidence. The whole process is all very exhausting, particulary emotionally, I am pleased to hear you are very aware of your enegery levels as you will need to keep these in tact along the way, so ensure you take lots of breaks and try to give yourself a little bit of "me time" As I said before I am more than happy to give you my support and share my expereinces. Clare x x x PS you 'll have to pm me your son's web game so I can show my Connor, he is mad on such stuff, though knowing him he is probably one of the 300 hits
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<'> <'> <'> <'> some more hugs for you Donna, so sorry to hear things are tough and that you are poorly and stressed. Sometimes it just feels there is no escape doesn't and when you don't get enough sleep everything else seems doubly bad Thinking of you.... Clare x x x
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Stella ~ <'> <'> <'> <'> <'> <'> How awful and what an awful strain for you all. Thinking of you... Clare x x x
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I think the pinned topics have been extremly useful and I too used them a lot when going through the statement process. No much help I know....but I can not really say what to weed out or what is out of date I am afraid. I will say though that some of the thread's posts were very useful as they give explanations of how others went through the process and the pitfalls etc Wish I had more time to check through them to help, good luck and many thanks to admin and the mods for doing this for us. Clare x x x
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Hello Flower, I am sorry to hear how your son is having reaccurent meltdowns (I prefer meltdown to the term tantrum, as to me the word tantrum describes a small child throwing a wobbly because they cannnot get their own way where as in "my Opinion" a meltdown is the result of overload and the inability to cope) It is imperative that all avenues are explored as what and when the meltdowns are triggered (although of course this could be impossible as it could be numerous factors) and insist that you "work with" the school to find solutions or make changes to make things more managable for your son. I have always found it better not to place blame but try to work together with schools, otherwise they become all defensive and end up on focusing on your parenting skills rathert than looking at the whole picture......no one likes to be blamed, if you know what I mean ? My son academically has always been more than able and his behaviour perfect, like you the school could not really see there was any problem, apart of him being terribly shy and lacking in confidence. The problems came at home with meltdowns and the realisation that he really was not coping. Without worrying you or sounding dramatic, my son ended up with a nervous breakdown and being signed off by our GP from school. During the time he was out of school we requested a statement of educational needs, a daunting task when the needs are sensory and social and communicational. To cut a long story short we were successful and he now has a statement and is at school (alebit a different one and one that specialises in AS). My advise would be :- 1. Request an urgent meeting with the school to discuss your concerns 2. Make a list of all your concerns and ask for them to be addressed, ensuringt that minutes are taken and you are sent a copy. 3. Ask for a school/home book so you can both enter how the day and/or evening went, also good for the school to note down any potential changes so you can prepare your child 4. Ask for the school to put in for an assessment for a statement (if they won't you can do one yourself, and tell them so) 5. Continue to explore times, situations etc when meltdowns occur and keep a diary, start that today or do a blog. A written record is such good evidence and help you to remember when it comes to completing forms etc., 6. Keep to a good routine in the mornings before school with use of a visual timetable Finally be kind to yourself and ensure you get a little me time, this can be an exhausting time and can get all consuming. so you need time when you don't think, eat, sleep AS !!!! Hope that helps Clare x x x
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Happy Burn's Day ~ SD Clare
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Cheers for that Chris, you certainly do eat very well Given me some inspiration ! Clare x x x
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hello there and welcome ! Had to go back and check the Dr. bit ....I read your user name as drone Clare
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Yum Yum Chris, that steak pie dinner sounds lovely, can you let us know what the meal plan is for the next 2 weeks, might give me some idea on what to feed the family Clare x x x
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Ah bless you.... As I said before if you need a hand, please do not hesitate to ask, to be honest I could not have done all what we have done without the help and support form this forum so now hopefuly I can now share that with you. Clare x x x
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Awwww dear poor Katie I had chicken pox as a grown up at 35 yrs old not nice, not nice at all. Clare x x x
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Kelly, Firstly a very warm welcome to the forum, this is a wonderful place to find support, advice and understanding. I am so sorry to hear of the terrible time your son is expereincing at school and of how he is suffering and self harming as a result. I think it is imperative that you put in a request for a statement straight away, if the SENCO won't do it, then you have everyright as a parent to make the request yourself (we did). I also think you should asked for an urgent meeting at school to discuss what is going on and to ask what action the school are taking to prevent it, your son has a right to an education in a safe environment. Just to give you a bit of background to our situation, my son was dx'd with Aspergers in Jan 07, really struggled with mainstream secondary education and by year 8 was signed off sick by our GP with what could be called a nervous breakdown. He was out of school for a year and 3 months, during that time we were able to get him a statement and had support from COOS (Children out of school Support Team) who provided a home tutor and a mentor. Throughtout that time we fought for a place at a special school for aspergers (part of the Priory Group) and he finaly started in Nov 08. Just this very morning my husband and I have been to school for a progress review and are pleased to report that our child is now flourishing. Its been far from easy and we have had to fight very hard and ask for lots of help, but it is achievable, this forum has provided me with so much help, advice, support and encouragement to get where we are today. My advice is to use all the information provided on this forum, for example under education heading have a look at the pinned topic's and relevant links. Do not be afraid to ask loads of question and to share your emotions, thought and feeling with people who really do understanding. If you think I can help in anyway please do not hesitate to ask either via posting or by sending me a pm. Please don't allow your child to continue to suffer, he's a bright boy with so much to offer. Good luck Clare x x x
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HAPPY BIRTHDAY EVERYONE WHOSE SPECIAL DAY IS TODAY.....hope you have had a good one Clare x x x
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Well done Hev, you did the right thing. Hope things are better by now and that he has apologised to you. <'> <'> <'> Clare x x x