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Amanda32

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Everything posted by Amanda32

  1. Hi Lynne As Helenl53 as said no kids are alike, they can have a diagnosis of ASD even though they have eye contact, be sociable and many other things. I wouldn't write off a diagnosis of ASD as he's still very young (not sure how young a child as been diagnosed).... My son likes cuddles alot off me, kisses me, some kids dont. My son can make eye contact sometimes, be sociable and talk too much about same things but some children may be the opposite and not speak if you know what I mean. Let us know how things go and there's plenty of threads and member's to get help from. Take care <'> Amanda
  2. Hi LLaverty I think quite alot of the member's here can relate to the headbanging with their kids at one time or another amongst other things. My son was the same headbanging in his cot, walls, the floor in which he ended up with carpet prints on his forehead... checking him all the time making sure he wasn't in any danger. He used to punch himself in the head, bite his arms jump off things alot (well he stills likes to jump from high places). I did take him to the GP to tell them he was doing all this as I was concerned (think he was about 2-3..... ) and also to cover myself as these days you MAY get accused of harming, especially with our kids. Nobody ever told me then that he was Autistic and he used to flap alot too but I just thought that was him. You could get some information from any of the other members with their experiences or check this thread out: Stimming/Rituals, Hand-licking, teeth grinding etc http://www.asd-forum.org.uk/forum/index.ph...wtopic=668&st=0 Hope this helps Take care Amanda <'>
  3. Hi Squishychick Yes like Nellie said its sometimes very difficult to get your child statemented without a fight but you cant give in. Some cases expert advice is helpful from any professionals that see's your child they may back up any concerns. Teachers, unless they are the ones that are not helping that much. My son was statemented in nursery school, think he was about 3-4 and they automatically did it so it wasn't difficult but ive heard lots of members saying they have had to fight for support so dont give up keep pestering them and we are all here if you need anymore advice as Nellie as already given you some information to look through. Hope it turns out ok, you are not offending anyone. Take care Amanda
  4. Hi Something _different My hubby uses Yahoo, and we both use msn to chat with family and friends and even my daughter does aswell with her school friends. Any reason why, if you dont mind me asking? Take care Amanda
  5. Hi Squishychick Try this link http://www.dwp.gov.uk/lifeevent/benefits/c...nce.asp#caniget Yes if you are claiming DLA then you can claim carers allowance but have to be having a certain income, check the link out it may explain more about the benefit. About the statement that shouldn't make a difference it's whether you get the DLA and you do. Take care Amanda
  6. Hi Becky Try this link http://www.dwp.gov.uk/lifeevent/benefits/c...nce.asp#caniget Hope this helps unless you have already got the information. Take care Amanda <'>
  7. Amanda32

    Vertigo

    Hi elaine1 Yes I have had blood tests done a few times for thyroid, iron and a few other things as im always very tired. All comes out normal though, I can fall asleep in the daytime doing a crossword, reading or just watching tv even in the night I fall asleep very early. I can get up very easy in the morning before everyone else but always feel like I haven't slept. In the past I used to get alot of sleeping problems really affected my sleep. Sleep paralysis (I think) I couldn't breath and the more I got worried about going to sleep the more panicky I got with trying to catch my breath. I have frightened my hubby before with this but as calmed down for now but whether all my symptoms are all down to stress/anxiety I will never know. All I can say is the doctors probably think it's all in my head but it's not so I have got to the stage in not bothering with help any longer. I dont feel sick when I get dizzy but bright lights affect me, whether my triedness as something to do with it not sure. Take care Amanda
  8. Sorry Tylers-mum...Julie/Tylersmum....Nicki I did get confused like many others I should imagine Take care Amanda
  9. Hi Karin Goodluck in giving up on the fags as I know it must be hard for some people like my hubby got to have the will power, like me with chocolate....... Dieting etc it is hard for lots of people to give up many things. My hubby said he needs less stress that would be nice....easy said than done... Take care Amanda
  10. Hi Matti Just tried the link but its saying cannot find server.... Amanda
  11. Hi everyone Having a bad day..... We got to see the Clinical Geneticist earlier for 1 hr 30mins. My son really played up got really bored by the looks of things. It really felt like they was observing me not just my son looking at me but it mad e me umcomfortable a little. He wasn't in there for more than 10mins and started to wander off.. Pulling funny faces, saying fluff, poo, just plain silly but you could see that the 2 women that were trying not to laugh themselves to be honest. They talked about my problems and everyone elses etc, then asked to examine him. She measured his head, his birthmark, looked at his hands, feet mouth. then asked me if she could take photos of him and his hands, feet etc but had to sign to consent to this. She said nothing may come out of it but she's going to try see what she can find out. He really kept poking his tongue out and running off when he should of been examined and it made me feel like I was useless in not controlling him... To be honest I think she said he may of had problems before he was even born with his bowels so just wait and see what she comes up with. As anybody else been through this process at all in the past? Like to know what anyone else as gone through if they have been through the same thing. Take care Amanda
  12. Amanda32

    fragile x

    Hi LKU My son as had the tests done fragile X and chromosome testing but all was normal as brook said it's possible just routine. Take care Amanda
  13. Hi Matti..... Welcome to the forum and I think you have been very open about the drinking not many people are, good for you.... and you sound like you are doing really well with it too...Well done... I can understand some people very well in having to drink to be sociable as it must be very hard talking to someone without calming your nerves when your out and about. My dad was an Alcoholic but since died last year (hope you dont mind me saying)... He was more than less the same, loner and drank I think to be sociable and certain things have come up that make me think he could of had some of the traits... I have not long tried to access his medical files myself but nothing have come up that links ASD but never mind. I have been going through the process of having Genetics testing done to find out about the family history. I have just been today to see a Clinical Geneticist it was uncomfortable being observed myself, well it looked like that anyway. Have you ever told anybody about your concerns with ASD/AS such as your GP etc, friends or relatives?....Have you been open about it at your groups? You should be pleased with yourself in talking about your problems as that's a start.. I myself think I have problems deep down like anxiety, social problems, low self esteem some of the problems I have are similar but not getting any answers as im an adult and dont seem to be getting any support for any therapy unless I pay private... My son as a ASD he's 9 and only found out about it after my dad died, I'm really sorry to go on but lately I have been thinking about him and wish I could of said more to him, helped more as never told him that I loved him but cant go back in time. If you ever wanted to chat or a moan ask away. We are all here to give each other support and I can assure you they are all lovely in this forum and they have put up with my moaning.... By the way I have been going on a forum that is for Alcoholics so that I can try and help others if I can as I let my father down and tell them what it can do to them. Take care Amanda <'>
  14. Hi Brook Yes it is normal when a child does climb things but all depends what they are trying to climb..... My son tries to climb the walls leaning up against the wall and trying to pushing himself up there thinking hes' spiderman... ALWAYS climbing on the furniture...... likes to see himself ALOT in the mirror in full view. My son is 9 im letting him carry on to a certain extent as long as he's not in any harm, but I tell him that furniture is out of the question...Im letting my son enjoy his childhood even though I get remarks off my in-laws and I dont want the kids growing up too quick. All they keep saying is all he should be doing is having books and doing reading, writing and learning things but our kids cant work all the time they want to play aswell as cant cope with too much learning things alot of the time. Dont worry about it he's having fun and not hurting anyone and im sure you are doing really well with him too. Take care Amanda <'>
  15. Good thread Nicki (Tylers-mum) My son tells lots of jokes but none of them make sense at all..... but you got to laugh as they are so silly... He's been going to playscheme and his well behaved there they told me and telling them jokes, something like this: Why did the lady go across the road?....because she didn't want to open the door.... it may not be exactly right but similar....... Take care Amanda
  16. Hi Sallya Lots of <'> <'> <'> <'> I think you deserve them you seem to be holding alot in as I know the feeling... What you could do is get some leaflets perhaps explaining about the problems Autistic/ADHD children have and give it to your mam/dad to read up on. It MAY help them come to terms with having grandchildren with problems, just give it time. It must be very difficult holding everything back without having arguments why your children are different and they wont have it. I have a mother/father-in-law and they always know best.... ya right. Dont think they really understand either telling me to take my son's action toys away now he's too old (he' 9 ASD). Telling me he would be a different child if they had him.... Im the parent what I say goes if I do things wrong then I will correct it, none of us are perfect. Im really trying not to let off steam but think im going on the edge and its just going to come out as never answered them back. You could try this link Telling relatives http://www.asd-forum.org.uk/forum/index.ph...st=0entry7867 Take care and let me know how things are as we are all here if you need to have a moan, just like me... Amanda
  17. Hi Smileymab My son blinks alot and so do I as bright lights dont help us, affects us both. He puts his hands over his face to hide his expressions as he always laughs when he should be serious all the time. Try these links Tics, increase when calm http://www.asd-forum.org.uk/forum/index.ph...t=0entry13304 Stimming/rituals, hand licking, teeth grinding http://www.asd-forum.org.uk/forum/index.ph...t=60entry7085 Hope this helps Take care Amanda <'>
  18. Hi Nicki This is for you........ <'> <'> as when out in public it's so annoying you get so stressed out.... My son doesn't really scream just funny noises like repeating what you say but in a baby sound, gets really silly saying things like poo I could go on. He does do funny noises in the house and out in public and he sounds baby like and does different actions with his body and people look.... the more I tell him its silly the more he does it aswell. Im telling him hes banned for the day of the Xbox if he carried on and he did. I suppose our kids do silly things etc but thats the way some of them are but it is embarrassing when your out and they want to be centre of attention. It is not attention as he gets lots of it. Having a bad time with him at the moment as hes pooing his pants alot and not saying hes done it............. He's going through a faze switching the tv remote over all the time changing channels cant keep it to 1 channel even if your watching something. Sorry Nicki ive gone on too much, all I can say is ban him from certain things for a set time if the shouting carries on as this works for me sometimes, it may be blackmail sort of but it saves you the stress. Take care Amanda
  19. Amanda32

    Vertigo

    Thnx Nellie.... I never thought about Ian jordan to be honest, why I asked about it is my symptoms are similar but the doctors I see put it all down to anxiety or just palming me off... too be honest ive never mentioned about Vertigo to the Dr. I dont want anyone telling me it's all in my head as only thought about it the last few days as I was approached about it. Will PM Ian now to get some information. I am not getting over the flu etc as heard it can be affected with ear infections if that's right... I did have hearing problems when I was younger in the one ear and remember having some op for it but thats as far as I know...No answers of my mother... Thanks again Nellie.... <'> Amanda
  20. Jonathon If you want a moan about anything carry on we are all here to listen if you know what I mean. Or if it's just a general chat about your day someone will ALWAYS reply. Take care Amanda <'> <'>
  21. Jonathon, Sorry I shouldn't I expect it wasn't funny at the time.. I bet alot of you have got funny memories of toilet training your kids or experience with yourself as a child. Still no go here he did stand up but it went all over his hands and started a tantrum and run up the stairs to his room....He will get there in the end but no pressure. Take care Amanda <'>
  22. Amanda32

    Vertigo

    Sorry but this has nothing to do with ASD so I hope none of you mind that much. Obviously I get very anxious ALOT especially socially, I always feel light headed when im out even sometimes indoors. I feel like im swaying, my eyes go funny like black out for a second, bright lights dont help me. I have had low blood pressure in the past but that was when I was having my son 9 years ago. What I wanted to know is as anyone on here suffered or suffering from Vertigo?..Why im asking is that for a while now ive been like this and the doctors take no notice. Few people now have said that it could be this as they have it or the symptoms are the same as someone they know. Please can anyone advise what I should do as YES I do feel like im walking on air, drunk sometimes even though I only keep to soft drinks, get very flushed too. Sorry again as this as nothing to do with this forum but I know all of you are good as gold and if I can speak for everyone we all keep each other sane...... Take care Amanda
  23. Hi Cutie Your not the only one with a child that cant do their shoe laces up. My son is 9 and cant do them, to be honest most of his shoes or trainers he chooses is velcro straps etc so not had much chance of learning. Im trying more now with him as just bought him a pair with laces. Not sure if its because he cant do them or maybe it's having patience to sit there and he hasn't gets very frustrated... I think there is not an age to do laces up and many otheres things as our kids are all different and many other children that haven't got problems still learn things at different paces.....Just need patience, well my son anyway in which he lacks. Take care Amanda
  24. Hi Elaine1 Where in the west midlands roughly? PM, I dont mind as I have lots of family that live up birmingham and go up there now and again to visit. I dont know of any support groups up there but im here anytime for a chat. Take care Amanda <'> <'>
  25. Hi Tracey I can understand what your saying as it's too much money to waste in the end if they destroy their clothes or even things in the house. My son destroys things in frustration/anger, if he cant do anything such as pulling his zip up tidy, putting shoes on anything really clothes/computer/xbox etc he gets very frustrated. He has a tantrum and he doesn't care about the affects of his actions. He needs to calm down, if we go out and he wants me to buy him something I may say no because he has alot of things anyway so he tells me to shut up. The best way for me to get him to look after his toys, clothes etc I punish him by banning him from certain activities for a day and so on if he gets destructive..seems to work SOMETIMES.. Take care Amanda
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