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hev

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Everything posted by hev

  1. steve has been going to a school for children with aspergers one day a week for 4 weeks to see how he got on at the school,they just phoned and he can go full time in september! hes been out of school for 2 years while the LEA messed us about but its finally happened,FULL TIME!!I cant wait to get his uniform and im looking foward to the summer holiday,6 weeks seems a doddle to 2 years!! for all those still fighting,keep strong,ive been on prozac for the last year but its all worth it now,im gonna have a good drink tonight and probably a few tears!
  2. i had to reassure steve that i wouldnt tell his friends or their parents he has aspergers so it could be that but mainly i agree your son is going through the kevin phase!!steve looks at me with disgust when his friends are here and i get the impression its nothing to do with aspergers!!
  3. steve hasent had a good friend for ages,he just sat in his room on the computer and no one called for him,i used to feel like crying when i saw other kids playing together,its what most parents take for granted isent it but i think with autistic/asp children they find it hard to make friends dont they. since we moved he has made friends with 2 boys who live in my street,i heard them giggling tonight and i just thought it was something i wouldnt hear,maybe the change is what he needed,hes been a lot happier since we moved here,where we lived before he had the tag of the naughty boy and i think he felt he had to live up to it so in the end he didnt want to go out,im hoping he stays happy.
  4. i could have written that post kazz it was so much like me!i find myself having a full scale row with steve which i know is not right but when he goes on all day i lose it in the end then it all gets even worse as its a vicious circle. im getting better though,i ignore the majority of it but i find it awful in front of other people,you are not alone kazz,im insulted daily also!
  5. hev

    getting help

    in my experience there is not a lot of help out there,might depend what area you live in though i suppose,i live in the south east,cahms havent helped much for me but then other people have had a lot of help from them.social services not interested,if it wasent for my mum i think i would have had a breakdown long ago
  6. im listening to stuart little video for the millionth time!
  7. hello i am going to london to the old bailey tommorrow with my friend and im not looking foward to it,not because of the bombs but the crowded tubes,delays etc,i think its safer now than last week
  8. hello lisa,i think its brilliant what you said,it brought a lump to my throat! good luck with your studies love hev
  9. my nephew works in russel square where there was an explosion but his shift this week was nights thank god,i was so worried and i couldnt get through to anyone,those poor families who have lost loved ones
  10. hello witsend yes he is talking rudely in a sexual way,he says things to a girl he likes very much(got a crush on her i think)"ive heard you do it for money" which isent a very good chat up line!it dont matter how much i try to explain people will take offence,hes not stopping saying these things,i keep hearing about social stories,what are they?do i make them up?
  11. steve is 11 and ive noticed taking interest in girls,one in particular,his swimming teacher phoned today saying he keeps talking rudely to the girl and shes getting upset,as soon as steve saw she was upset he apologised,as he gets older ive explained he will get in trouble with other people if he talks like this,he doesnt understand as i think to him its only words and he forgets about it after,any advice or your experiences would be helpful
  12. hello elle im not very good at giving advice,it must be so hard for you but keep posting on here and the others will give you all the advice you need,take care love hev
  13. i know it doesnt work for everyone but after months of fighting i wrote to and saw my mp and steven now has a place at a special school,im not saying it will work for you but it wont do any harm trying,i know its hard to keep fighting,i had many low times when steve was out of school but everyone on here encouraged me to keep going and im so glad i never gave into mainstream which is what the LEA wanted,steve wouldnt have coped at all,thinking of you love hev
  14. i am always seeing books advertised about autism and there seems so many of them it seems daunting knowing what to read,also does it help give a better understanding of things?,i want to read one in simple terms from a mum or childs point of view but i havent a clue where to start.mainly dealing with aspergers
  15. im late sending this but sorry to hear about your cat. my friends cat got hit by a car in front of her and she sobbed on the kerb 4 two hours,she then cuddled him and was heartbroken for a long time,im not a cat person but going by my friend i send you my sympathies,love hev
  16. hello witsend i also get nervous at these kind of appointments but i try to remember we know our children better than they do,we are the experts on our kids,i hope it goes well,good luck and let us know how you get on love hev
  17. i often post on here when im finding it hard to deal with steve so tonight i thought i would post to say we have had 2 really good days,he had a bad tantrum yesterday when i asked him to tidy his room but i calmly went into the kitchen and said i wasent going to speak to him till he stopped swearing,as you know i normally shout back and it gets me nowhere. i couldnt believe it as he went all quiet and five mins later went up and tidied his room!!i was so shocked,today i told him how nice hes being lately and he told me all about his day at tuition and we had a lovely conversation,he never normally talks nice to me,im not saying every day will be good but i feel like im getting more understanding and trying to think before i react,i feel very positive,i hope i can keep it up though!!
  18. i really feel i dont know what to do,stevens tempers are getting worse,he threw chairs about today,kicking things and i dont understand why,we all overlaid cos katie wasent well in the night so we missed his taxi,i understand he was bored all day and i do feel so sorry for him but he wont come out with me,he dont want to play with other kids so i dont know what to do. i feel sorry for him as i think its such a lonely life for him,he must get so frustrated but when im getting called a slag all day i find it hard not to react then the shouting starts and we are back to square one again. do CAHMS do anger management for children?maybe i need something as well for me,my mum took him till tomorrow,i was shaking when he left,i think i dont know how to handle it all and maybe i make it worse by reacting the way i do,but i dont know how to react any other way,i always try to see it from his point of view but when he keeps insulting me in the end i shout even though thats the wrong thing to do,any advice please
  19. hello becky i think those dla forms are terrible anyway,i assumed that if a child has a diagnosis of asp they automatically got dla,shows what i know,fight them every step of the way,as if you havent got enough to do!! good luck love hev
  20. only just managed to get on the site,i thought it had closed down or something,been trying for 2 days. thankgod my lifeline back!!
  21. yes make sure you get a letter from gp as i didnt,i just took steve out of school as he couldnt cope any more,the LEA were very slow in my case,keep fighting,you will get there in the end,take care love hev
  22. ive moved about half hour on bus from my old doctors and i got a letter yrsterday saying they cannot keep me as their paitent as im too far away,the trouble is steven feels very comfy with that doctor and so do i,has anyone else had this?
  23. steve has lots of little habits that he does and they usually pass,like squinting,flicking fingers etc,the latest one was scratching down below and i thought this will pass like the last one,i tried to get him to stop though as it wasent very nice for him in public,my dad said i should take him to docs as it must be sore but i kept thinking no it will pass soon. i took him today though and it turns out hes got an infection like atheletes foot and i feel awful cos i didnt realise,i just thought it was a habit,ive moaned at him lately as well cos it was terrible him doing it outside,,im always getting it wrong with him,i feel i should be more aware of it all by now but it all goes wrong
  24. hello james i also think you are being very hard on yourself,you worry you have upset your friend,you worry about other peoples feelings so you are a caring person which is what i like in a friend. to be honest if i was having lessons and phone calls kept getting taken i would be annoyed,i also find it hard to feel emotion for people i do not know. take care from hev
  25. so pleased when i saw your post,its things others take for granted with their kids but when our kids achieve something its brilliant isent it,your post cheered me up,i was feeling very irratable,thanks matthew!
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