Rachelp2

Hi Hev, Oh my..... Poor You - My heart well & truely goes out to you lovie. <'> I guess it's easy for me to say but you must feel so traumatized with all this going on All you can do is "Give it a go Hev" If he hates it and really can't cope then look at the situation again but "Cross that bridge when/if you come to it" You must be feeling so low and only wish I could take the pain & guilt away for you, unfortunately my magic wand is still not working (Sorry just trying to find a lighter side!) Is your Steve 12? Think he's the same age as my Dan, we had the same prob with school afew years ago if I remember right???? Take Care Hev, ya can contact me whenever for a chat if you want to, Love Rach xx

Hi, not too sure what to say here..... it must be tempting now you know the positive feelings you have while on alcohol but please don't fall into the trap of drinking too regular - socially and now and again is fine but if you were to ever get hooked and depend on it it would be terrible for you and is so hard to kick an addictive habbit - I smoke & i've tried all I can but can not give in I have not got the will power - only wish I'd never started in the 1st place!!! Incidently I was told years ago by a psychologist that I must be a strong person for not taking up regular drinking as I felt as you did whilst being tipsy - I am an adult with ADD (Attention Deficit Disorder) but I think the only reason I didn't persue the drinking was the fear that I would become addicted to the booze as I am the Fag's! That's it for me here - Just be sensible & Careful Best Wishes Rach

Hi Lisa, Sending huge hugs your way - it relaly does take it out of you <'> Usually what happens when a child does not fit neatly into the criteria they usually dx PDD-NOS (pervasive developmental disorder not otherwise specified) but I hate this as it's not as recognised or accepted as an ASD (Autistic Spectrum Disorder) so even if he does not quite fit it is still poss to get a clearer dx which will be more usefull. I wouldn't accept the dx of PDD-NOS years ago, they gave it to Dan as he had a sense of humour!!! He was not supposed to have one if he was Asperger's this was so wrong when clearly everything else was him to a T ! As the years have gone on, there is no doubt of him being on the spectrum and because of his clear DX in the end he has had the help he needed with schooling (statements) DLA help, and all round understanding from anyone who's come into contact with him so it really is worth pushing for what you think/know he has. Good Luck & very best wishes Lisa, Rach

Hi, Yes just empty the powder out of the caps into any drink (fizzy pop or still juice) give it a stir and let him drink it - it doesn't even need to be in a lot of drink (a mouthfull will do) I'm certain this way it get's into his system quicker. I would try it 30 mins before sleep - Dan has his about 9PM then 30 mins later I go give him a goodnight kiss & hug then he's away for the night, although he set's his clock for 5.30am so he has time to do his stuff before school when he leaves at not 8.14 or not 8.16 but 8.15 Hope it works for you - He must feel better for sleep, Dan certainly does. (unlike me, I hate giving in and going to bed but hate getting up in a morning!!!)

Have signed too - Good Luck and Best Wishes

Hi, Sorry to hear that - Just a thought though here...... It may be worth trying the tablets out of the caps into a small drink so they get to his system quicker??? And.... let him stay up 20 mins then light off in his bedroom, sniggle him down and stay with him 10 mins without talking to him so he's not stimulated then hopefully this may have a better effect??? Worth a try as Melatonin is also used for blind people so they can differentiate night/day....melatonin works in a darkened room much better. Good Luck Rach x

Hi Debbie, Well done you - Yes your lovely mum would be so proud of you, she was a wonderful, caring lady and I'm so pleased I met her Debbie. I shall be buying your book and am looking forward to receiving it. I hope you are keeping well. Well Done Debbie - You are a kind & lovely person too, just like your mum <'>

Hi krystaltps <'> Are the capsules filled with white powder or with little bobbles? If white powder then they are not a slow release which means you can empty it into a drink and as far as I know is tasteless as my son takes this. He did however try melatonin slow release (100's of tiny bobbles in capsule) which cannot be mixed in a drink but these took longer to get into my son's system and did not have the good effect of the normal release melatonin. Hope all goes well & he has a nice peepies If your unsure or your not happy with the outcome never be afraid to ask whoever wrote the script. My son (nearly 12) now only has half a tab in his drink about half hour before bed - does the trick although I don't give him any on a weekend as we have no rush for sleep or him having to be up for school. My son's happy about taking Melatonin for 2 years he wasn't aware he had it but now he knows himself if he needs it or not. He went 9 years not being able to sleep - this was and still is a godsend for both him & me. Best Wishes Rach

Hi all again! Just an update........ I bought the wrap, Dan has it on at night once in bed - he still has good/bad day's but I think this wrap has helped a little as well as me trying to get him to stretch his legs in bed before moving anywhere. As for the damn DLA this problem has been overlooked and is still on the low rate mobility as he needs help on routes that are unfamiliar to him - nothing about problems/pains whilst walking.... I'm not sure about appealing as to be honest I just can't be bothered - DLA forms really get me down and as I'm an Adult with ADD it's a chore in itself just getting round to actually posting letters Anyway, the wrap is soothing and would recommend buying one for anyone who has this problem. Best Wishes Rach

Ohhhh.... I missed this and just hope and pray they decide to repeat it soon After reading all your posts it sounds a good way of Raising more Awareness by viewers watching this too. I taped it but my video recorder is taping with no sound! - Just my luck. Nothing worse hearing all about something that you never got to watch yourself Just wondering also if anyone's A.S Children watched this with them - if so what did they make of it? Best Wishes to you all & a little late "Happy New Year" Rach x

Hi All, Just a quick update. Been back to the Physio today, basically....Dan will have this problem on/off all through life He has been doing the exercises daily but didn't realize that this will unfortunately be a long drawn out problem that will come and go for the rest of his life! I'm sooo sad about it, it get's him down so much and is agony for him and for me just watching him. She did say that this problem is also part of his condition. I was researching and found a company that do a special wrap for Plantar facititiis it was just over �20 but Dan's gone to bed with it on he said it was strange but even if it takes the pain off a little it's better than nothing. He takes Ibuprofen to ease it but he can't be taking them all the time and to be honest, they don't actually help as such! This wrap is re-usable, it goes in the freezer for 2-3 hours and can be worn around the house with or without socks - were giving it a try but I'm shocked he's managed to keep it on tonight as he was going to sleep - fingers crossed that it eases a little if not a lot. I think our kid's have enough to cope with without adding more problems to the damn list! To top it all, just took me 2 day's filling his DLA renewal in - It drives me crazy and bring it all home to you when filling them forms in. Hopefully won't have to do them again for another 3 years!!! Sorry I've ranted on, didn't mean to moan! Bye for now, Rach x

Wow, I didn't think when posting that so many replies would come back! Glad I may of been some help by mentioning this. Well, as for poor Dan, he's really struggling along, his exercizes don't seem to be helping him - he's in constant pain and not back at the physio till next Tuesday I really feel helpless. I have ordered a special cold reusable wrap from return to fitness site that i'm hoping will give him a bit of release. I'm also hoping that it hasn't been left too long to correct too as he doesn't like the sound of injections, splints or surgery....Nor do I what a nightmare. He has been wearing jelly insoles for a year then he has special insoles made to lift his arch months ago but walking has just got worse so they have dx'd him with this - Hope they havn't misdiagnosed and he's making it worse?! I shall leave it to the experts and keep you updated. Thanks again for all your replies - I've enjoyed this topic and feel now it's more common than I first thought. If you have any doubts about your child - don't give in asking for help, it could be better sorted out faster. Best Wishes, Rach x Hi also Noogsy, yes i know you from OV, adders etc....Were very alike

Hi all, Thanks for your quick replies! Dan first saw the Physio about his pains about 18months ago, he was given jelly insoles but they didn;t help. He was then passed onto orthotics dept at the hospital where they told us he has fallen arches so had some special insoles made for him to try to correct this problem. (These insoles feel like having a tennis ball in his shoes according to Dan) He get's on well with them but one foot inparticular has been playing him up for weeks. In desperation I took him to the G.P to see if he could be sent for an x-ray as I thought he may have banged it but was referred to physio again, I chased them up and got this appointment for today....I was Hell for Dan today! He told the psysio "Hey you know I'm not on a Torture Rack!" not bad coming from an 11 yr old!!! I told her that he is in constant pain and cries with the pain & frustration at the end of the day to which he replied.."Mum - she does not need to know about my private life I just need this problem slolving!" She has diagnosed him with Plantar Fasciitis and given him an exercise to do every day, we go back to see her in just over 2 weeks to see if it's healing and what the next steps (excuse the pun!) are going to be???? Also he's to take Ibuprofen for the pain. So we'll see how this goes. OXGIRL: Don't give up now - you should insist on help as I should have all along - I have been saying about this problem for years and feel bitter that I didn't fight like I should have done. Will keep you posted and hey...Many Thanks for your replies. Noogsy, this sound's like a problem for you have you looked up Plantar Fasciitis? Best Wishes to all Rach x

Hello, Just wondering if anyone else suffers from this who is on the Autistic Spectrum? I'm not sure if there is a connection to ASD's and walking problems? I'm feeling quite bitter today and tearful as My 11 year old, Dan has alway's had problems with walking & co-ordination yet only now am I being listened to and Dan getting help with his problems - I'm bitter that it's taken so long to finally be told something. He has enough in life to cope with and now we actually have a name for yet another something else I'll appreciate any comments regarding this one! Best Wishes Rach x

Hi Carol, I'm in the same boat as you although I only have the one child! I panicked when I got my letter like that months ago, I went along but all was o.k. I explained my situation and she herself told me that I'd be worse off by getting a job and coming off Income Support and carers allowence!!! I'm not afraid of work at all but my problem is with all parents of A.S kid's ...hard to fit work round the kid's who do not alway's cope well at school etc. Don't worry about interview Carol, it's just a formality. Take Care, Best Wishes Rach

Hi, Blimey! I could have written this...But then again I am dx'd with Adult ADD!!!! The Ritalin I take does help me but it's sooo costly as I have to pay for it myself not on NHS prescription. My son has Aspergers and laughs at my ADD conversations, I start talking half way through what I've been thinking about and he say's "Duh,...Mum your having an ADD moment again!" Good Job we understand each other. It's so tireing having ADD but I'm tired and havn't achieved much!!! Hate jobs that I have been busy at but can see nothing if you know what I mean? I do this that and the other here there and everywhere but can't do one big job in one part of the house so it looks like I've done ziltch! Bye for now, time has run away with me again - I came on here for 30 mins at 9pm - i'll pay for it in the morning when i'm dragging myself out of bed Best Wishes to you all Rach x

Hi Sara, Havn't been here in a while but just had to add my comments to your wonderful post and look forward to hearing other reply's! Nail cutting I don't really think it's a laughing matter but trying to be in a positive mode today!! So my Son Dan who has A.S has a huge sensitivity problem with his hands & feet, so nail cutting is a huge problem. He's now 11 years old & it's still a major problem, he will only let his dad cut them now, before only i could do it...but even though it's a game and a half When he was younger, like you I used to wait while he was in a deep sleep (not very often but that's another story!!!) then do it, but now a day's I am not allowed near him with sissors or nail clippers! I used to get embarred when he went swimming incase anyone saw his long toe nails but then decided "what the hell I've got bigger problems to worry about!" I am sorry I have not been any help here Sara but I understand the difficulties and the frustration with such a task that others find a breeze or do they??????? Take Care, Best Wishes from a mum who is redundant in cutting nails!!!! Rach x

<'> Hello Debbie, remember me? Good luck and enjoy your new car, well done Best Wishes to you, Rach (Rachelp2)

Hey Lauren, me too, I sent 2 as I didn't think the first one went Neither have been posted on there and I havn't had any reply either! The scum bags!

Hi all, Just thought I'd post this quick link about answering to critics if anyone's interested? http://add.about.com/od/addprimer/a/critics.htm?nl=1 Best Wishes Rach x (still seething about the Mail!)

Hi Shaz, I'm sending you and your bro a huge <'> for that link, I've added it to my fav places to use for reference. Stacks of info - very useful. Best Wishes Rach

As if people have not got enough on their plates to deal with...that's all they need....More bad press. It makes my blood boil just reading some of the comments on there - arn't people too quick to jump on the negative band wagon and judge! Don't know what I'm laughing at, I feel sick I've added my comments but not sure if they will edit or even print it! Best Wishes Rach

Hi, Sorry to be reading these posts and have very mixed feelings It is awful that you both cannot see eye-2-eye, infact reading both of your posts I can see both sides of the story and feel neutral. Me & my brother "clash" and I love him dearly, we fall out occasionally and it hurts me, he can be very stubbern and can never see my points of view! (not to do with A.S though I must add!) But...Life's far too short and can be troublesome for falling out. It's such a shame for both of you to be in this awful situation and I really do hope that you two can solve your differences and BOTH join us here in this forum. Best Wishes to you both, <'> Good Luck and please both carry on contributing, everyone needs help/advice/an understanding etc etc That's what I come here for to give help and find help! Best Wishes Rach x

Hi all BB watchers Well, I've been watching live stream on my internet and am unhappy how they had edited the show for the hour on channel 4 that all see. They can make people look mean but they don't show the full story - fix really. I am really shocked as the 2 people i liked, I now dislike. Michael & Preston. I've alway's loved Pete - he's strange to look at but just love his personality! He's been so entertaining. I also like Maggot. I think Pete will go 1st tonight and that Chantelle will win but as long as Preston is out before Maggot I'll be smilig No BB after tonight-at least I will get back on track with mundane jobs around the house and get my ASD coursework done in time I'm alway's on at Dan about leaving homework till last minite but i'm just as bad Best Wishes, Rach x