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      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team


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Everything posted by westie

  1. Pathological demand avoidance syndrome, does anyone know what it is? It is a pervasive disorder related to, but significantly different from Autism and Aspergers Syndrome according to Elizabeth Newson (the person who first noted that a group of children who had been diagnosed with ASD - non typical or with PDD NOS had a number of common behaviours/ traits and who discovered (some 20 years ago )PDA http://adc.bmjjournals.com/cgi/content/full/88/7/595 the national autistic society have a slightly different opinion:- http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=306&a=3352 I am interested to hear others opinions on PDA Regards :bat: (these are from J, my son - he really likes choosing smilies!)
  2. Hi, I am a branch officer at the Rotherham National Autistic Society Branch. We have a fairly well stocked library of books relating to ASD/ AS and issues relating to these conditions. Most of them are about/ for children with ASD and we hope to expand our collection of books relating to or for adults with ASD/ AS. Does anyone have any recommendations on books they have found useful. I would be grateful for any suggestions and will pass them on! Also if anyone is aware of any services in the Rotherham/ South Yorkshire area that are for adults with Asperger Syndrome/ Autistic Spectrum Disorder then I would appreciate it if you could also message me about them - we are trying to build up a picture of what is provided in the area as we are due to start a campaign for better adult services in our area. (social groups, daycare, other support) Thanks in advance, D
  3. My son (age 10, diagnosed PDA) has over last few months improved so much in terms of reduction in aggressive behaviour, controlling his temper more and behaving better in school and he seems to be much happier nowadays. A number of things may have contributed to this (new teacher, mum at home now, some work at home relating to anger management, behaviour chart at school - not needed now ) WE are SO pleased with this (and as ever hoping that it continues!) However I do have some other concerns about things which I am not sure are PDA/ ASD related or if its something else as well (ADHD?) .I have listed a number of things about him below (would say they are centered around organisation, think some points may also fall under "executive functioning") and I wonder if any others have noticed similar traits in their PDA children/ themselves? 1)I have to prompt him to get dressed, and remind him to wash/ brush teeth each morning or evening. 2) He often rushes out of the door in a morning forgetting his lunch/ bag/ coat/ pe kit and myself to walk him there - he is focused on going to school but forgets all the things he will need in the day 3)If you speak to him it often appears he is not listening. 4) He does not sit still even when on pc or watching tv he constantly fidgets. He is same in school and the teacher overlooks a lot of it if it is not disrupting the others too much (I think if she pulled him up every time he would have been banned from the classroom. I have seen this for myself as I go in to help the children in the class once a week) 5) He takes off his coat/ shoes/ any other clothing he does not want to wear as soon as he walks in to the door and drops it on the floor and goes off to do whatever. This is same whatever he is doing, as soon as he loses interest it is abandoned. 6) He loses money, and other things that you would think are important to him 7) His bedroom is very untidy If you ask him to look for something he can never find it even when its under his nose, and he appears to have no idea on how to make a logical plan to start searching for it. 9) After much effort on both our parts homework that he does finish often does not get handed in (and I have to stand over him and help him to make sense of it and keep him focused on finishing - I know the reluctance to do it is part of PDA) 10) He often leaves items at school such as PE bag, homework, shoes. 11) His mind is often focused on his obsessions (at the minute army, lego, bionicles and Bakuman) rather than what he needs to do 12) He is just starting to get the hang of telling the time 13) If he wants your attention he will be really obvious in your face no matter what you are doing and he often puts his hand up or shout out when he does not know the answer to a question Part of his objectives on his statement are to work on these skills at home and school, but I do not have any bright ideas as to how (other than telling him each time, and to be honest I am getting fed up of hearing my own voice ). I have stuck up visual charts for weekday morning and evening routines - one of each in his bedroom and also the morning one in the kitchen, so he sees it before he runs out on me for school. Can anyone help with other ideas that do not involve so much verbal prompting/ reminding from me or the teacher?? Do you think more visual aids will help or will he just learn to ignore them?? Any books you can recommend? Is it worth pursuing an assessment for ADHD? Would medication help with these things or are the other strategies enough in themselves to work therefore meaning a formal diagnosis not necessary to help him... Am worried about how he will cope in secondary school, and if he cant his behaviour will deteriorate again...
  4. Any teachers with Aspergers?

    This article may be of interest to you: http://www.tes.co.uk/article.aspx?storycode=6032834# I have posted this before on here, so some of you may have seen it previously. Take care, D
  5. http://www.sign.ac.uk/pdf/pat98young.pdf found this while browsing the internet, has been created to help young people who have a diagnosis of ASD/AS to help them understand more about the diagnosis and how they may be helped as well as suggesting some useful books that they may find interesting to read.
  6. Hi,please have a look at the presentation made at the latest PDA conference by Liz and her Colleague (see my other post made here) and then consider completing the questionnaire if your child 6 -17yrs has a diagnosis, or you suspect PDA. ----------------------------------------------------------------------------------------------------------------------------- Just to let you know that there is research going on about PDA at King's College London. They have developed a questionnaire about PDA (with the help of the Elizabeth Newson Centre) for parents to fill out about children aged 6-17. It doesn't matter if your child doesn't have an official diagnosis, please fill it in anyway! If you would like to take part, please go to this link: http://www.autism.org.uk/en-GB/Get-involved/Volunteer/Take-part-in-surveys-and-research/Research-recruit-people-or-participate/Research-projects-children-and-young-people/Pathological-Demand-Avoidance-questionnaire.aspx If you want to know more about the researchers involved (Liz O'Nions and Francesca Happe), here are their staff profiles. http://www.iop.kcl.ac.uk/staff/profile/default.aspx?go=10942&local=True http://www.iop.kcl.ac.uk/staff/profile/default.aspx?go=12616&local=True Research is the way to get PDA to a wider audience and more accepted among clinicians, so please do fill out the questionnaire.
  7. ball blankets

    Hi Didnt see this thread before I posted yesterday in the resources section about same subject, sorry! I am not sure how to delete the other thread in resources section though - anybody know how I could? The company I mentioned is the same one as you mention on here
  8. ball blankets

    oh right it did mention a lead time on these items, explains why! I noticed it as the company is based not so far away from me, which is what made me read more about it.
  9. ball blankets

    Was reading another post which mentioned ball blankets, and on researching them I found a UK stockist of the ball blankets (price similar to what was mentioned in the post I saw, however they do a childs version which is a little cheaper (if it is for a child of course) and some other sensory stuff. http://www.kingkraft.co.uk/shop/department/sensory_corner/ An article about the blankets, and their usefullness (it mentions they can be loaned from the company mentioned above) is here: http://www.yorkshirepost.co.uk/health/Comfort-blanket-helps-Holly-sleep.6668778.jp sorry for hijacking your post, just thought that the links/ info may be useful..
  10. Glen home for weekend

    Hi am really pleased you have had such a postive weekend. I found some info about a uk stockist of the ball blanket you mentioned (sounds V interesting!) but rather than hijack this I have posted in resources section. Hope the rest of the stay goes well and he continues with the good progress X
  11. that makes sense to me
  12. My youngest jumps around all the time when on a computer/ WII game, and cant seem to stop for long, even when reminded (where he gets his energy from I do not know!) luckily he is only 5 and quite slim, wonder if he will be doing it when he is as old as yr lad?! It does take time to change behaviours/ responses (to whatever, and whether you have a diangosis of ASD or no diagnosis but some behaviour is becoming an issue for your or others) but I think it is worth putting time and effort in as it will benefit them (or you!)in the long run. Sometimes knowing what to do to change it (a particular behaviour or response) is the issue, and that is when help and input and support is needed. Its not always easy to either find a solution, or persist in keeping on with it and that is when you most need support, I feel, to keep at it even when it seems not to be working. Or to recognise that you have given it long enough and perhaps its time to try something else! sorry this bit is perhaps not directly relevant to your post but I will keep it here anyway save posting again!
  13. Shameless Plea for Votes

    voted too, good luck X
  14. Disability Living Allowance reform – public consultation This consultation seeks your views on the Government‘s proposals to replace Disability Living Allowance (DLA) with a new benefit – Personal Independence Payment. The Personal Independence Payment will continue to be a non...-means tested, extra costs benefit. It will help disabled people remove the barriers they face to leading full and independent lives. This consultation asks for views to inform our policy for reforming DLA and introducing a new objective assessment. The consultation applies to England, Wales and Scotland. The consultation is aimed primarily at disability organisations and disabled people, but we would like to hear from anybody who is interested. (the above info. is taken from the website) http://www.dwp.gov.uk/consultations/2010/dla-reform.shtml
  15. Statement for a 3 year old

    Hi, I think assessment for a statement is a good thing at this early age, his needs should be identified, support given and this may help him long term. As others are pointed out help can be reduced if necessary it is much harder to fight for it later! A supportive network of professionals around your child and family will help no end. My eldest son was assessed for a statement this process started a couple of months before his 4th birthday and it was in place for him starting full time reception. He has needed the support and help, and is still statemented now, in Y7. It has helped enormously Have a very happy christmas X
  16. Update Glen - Christmas

    Hi. I think considering sitation that staying there, and giving you the opportunity to visit shortly after, sounds like the best solution so I am glad this has happened. I hope that things do start happening after the holiday period too. enjoy your christmas and take care X
  17. Unhappy Times

    That sounds so hard for you, and your children. I wonder if you could find a family law solicitor in your area who offers a short, free appointment that may help you with some basic advice about what options you could take to help. Others may suggest a helpline which will offer the same sort of advice. (I think someone has already posted some advice, and I think contacting the NAS helpline may also help as they may also be able to point you towards some advice. I haven't been through similar so cannot offer more than that but I hope that you do find a way forward, for yourself and your children to be able to maintain a good relationship. Take care
  18. Friend advice/venting

    Obviously I do not know the full situation and story but from what I have read there is the possibility that Lucy may be embarrased or confused and not wanting Jake to find out about her relationship with the girl you mention. She has distanced herself from you because it reminds her of it, coupled with the fact that you know about it (and maybe she is aware on one level of the feelings you had for her as more than a friend) she may on one level fear that you will tell Jake - I am assuming he is not aware of the relationship with the girl. When people break up with a partner and then have a relationship in between and get back with the original partner then it may be difficult to discuss or think about what happened in between) I would think that Jake, if he knows nothing about this other relationship or the tensions between you and Lucy or the fact you have had "more than a friend" feelings for her may not have picked up anything other than out of the blue you have removed him from your friend list on xbox and texted him to say you do not want to hang around with them any more?? I am not justifying their behaviour and saying they are right by the way, just trying to figure out how it may have developed - and I may be completely off track. I would not recommend you tell everyone the things they have confided in you, it may backfire. If you make new friends and they find out they may think you will tell everyone things they say to you in confidence. Maybe you should instead try to speak to Lucy in private (face to face if possible) as the main issues seems to be around her and her attitude towards you, and then you can explain how you feel she has treated you wrongly and give her the chance to explain why she has behaved in this way towards you. After this you will hopefully know why she has acted in that way. She may even apologise and this may allow you to rebuild your friendship with Jake (if you want to, and of course this may also have to be planned but if you resolve things with Lucy then this may make it easier). I think if you do have a counsellor in college then it is worth talking through things with them if you can, they will be objective and not force you to take a particular course of action but will keep what you say in confidence (unless they fear harm to yourself or others). Why do you feel they will psychically attack you? If this is the case then they are not friends and dont go near them but report your concerns to an lecturer, or a counsellor, in college. They will not divulge information about Jake and Lucy's private lives to others, but will be able to offer some advice about your own safety. If it is making you so unhappy at college that is not good, are there any groups or anything you could join to make friends? I read your other post about losing your xbox friends and it sounds like you are feeling quite isolated at the minute, is this situation with these two the start of that or just one more thing adding to your feelings? Maybe you could start an xbox gaming group on facebook, and invite people from your college and others to join and chat about xbox/ gaming and this will meean you can build new friendships with others who are interested in the same things as you? Take care I hope you find a way forward X
  19. Latest PDA video 19/12/10 #8 PDA Education and Handling. "Strategies" latest PDA video about Strategies, very useful and also entertaining, particularly the top 10 tips at the end. Forward on to any parent, education or other professional who works or cares for a child with PDA! videos 6 and 7 in the series are well worth watching too. They are all based on information and tips given in guidelines/ conference and research papers issued by the Elizabeth Newson Centre and other professionals who work with children who have this diagnosis.
  20. Am I doing this right - re unemployment

    Hi what about trying some voluntary work to get a better idea of what you like, and gain some skills to help you get a paid job? Search on google for 'voluntary action' and the name of the place you live to see if there is a service like this in your area, or ask at the job centre, as I am sure they would think it is a positive step you could take alongside still looking for employment. I do a number of voluntary roles and through these have gained a lot of experiences that will help me hopefully gain a job in the future. The roles could be outdoors types, shop work, working in schools or a childrens centre, with young people (though you will have to have CRB etc for most roles and provide a ref. I am sure that the job centre or similar will help with this). Also there are lots of ways to study and get skills to help your job search, check out WEA they offer adult community courses for a variety of things I did two of their courses: 'helping in schools' and 'helping in schools with SEN' and got two qualifications and some experience as you have to do a placement in a local school for 20hrs to pass. There is a search facility you enter your postcode and it will tell you all that are happening in your area. www.wea.org.uk and also microsoft do online courses to help develop skills using their packages like word, powerpoint and excel. I will try and add a link later (my computer keeps playing up I have typed variations on this message about 4 times now and lost it when I have tried to open another tab to copy a link to this message!) http://www.microsoft.com/learning/en/us/training/training-default.aspx link to microsoft learning programmes, you can search for programmes in your area. edited to included this link! Good luck with your search
  21. This Can't Be Right Surely?????!!!!!!!!

    Hi, just to say as someone else pointed out there may be a personal reason for the person to leave at short notice (I obviously dont know whether this is the case but the head may have sounded cagey as they could get into trouble for telling you why) I left my job a couple of years ago. I had a contracted 3 month notice period, and I had to leave after giving two weeks notice. This was due to childcare falling through, they had given me their 2 weeks required notice and I didnt have a back up person to look after them (which was why I left my job completely to care for them both). My employer was understanding fortunately about this I am very grateful to them, I had worked there for a long time - over 15yrs - and it was not a job that someone could just walk in and take over as quite a specialised area. With regards to replacement LSA I agree I would not sign anything and would not be happy with proposed suggestion at all. It seems hard for me to understand why they cannot move another person in already in school till the CRB is sorted for this other person, though maybe they concerned its too many changes.... sounds difficult for you I hope things are sorted to your satisfaction XX
  22. Just a quick update

    wow thats fantastic, really pleased for you and yr son XX
  23. An Update

    Sorry to hear you are not well. I am glad your neighbour has helped you and I hope that the hospital and other supporters around you take good care of you and you are soon feeling well again. Take care of yourself, X D
  24. Another bad weekend

    sounds like a nightmare situation. Poor lad, I hope you get somewhere. <'> I have asked school to look at the following programme for my son who is also at the minute suffereing a lot of anxiety, as I have no hope of him getting a CAMHS appointment any time soon, though I have asked for an urgent referral... I bought the book a while ago and have taken it into school for them to read and assess. It can be done in school or at home, alone or in a small group it says and it is CBT but designed for use with young people with Asperger syndrome.My son has a diagnosis of PDA but I have done a similar thing with him a couple of years ago with anger management and I think it helped (it certainly did not harm and I timed it so that we did not do too much at once). http://www.amazon.co.uk/Exploring-Feelings-Anxiety-Cognitive-Behaviour/dp/1932565221/ref=sr_1_1?ie=UTF8&qid=1292280240&sr=8-1 Other book maybe worth looking at (at home): http://www.amazon.co.uk/What-When-You-Worry-Much/dp/1591473144/ref=sr_1_1?s=books&ie=UTF8&qid=1292280587&sr=1-1
  25. Just a quick question My son has just moved into Y7 (mainstream secondary has a statement)its his annual review tomorrow. They give you a breakdown by subject of his current attainment levels, and his expected grades at the end of the year. He is behind at level 3a in english and maths. In terms of english, a comment from the schools annual review report says that he struggles to read "beyond the literal" and his punctuation and sentence structure is behind. His handwriting is also difficult to read even for him. He writes capital letters at random, reverses letters sometimes (J is a common one, even though it is in his name) and he also mixes up left and right. He use an alphasmart for some lessons and the TA must write things for him sometimes (there is work in his books that is def. not written down by him!). He is also this week starting extra english lessons to bring him up to level 4 by end of year. In previous tests by the learning support service and during his assessments have given a lower than expected result (esp. reading comprehension) and he has always struggled with writing but I wonder if he has a specific learning difficulty? Especially I am worried about his maths results, he is currently at level 3a and this is the "aspirational level" he is expected to reach at the end of the year as well.... He has been at this level since 2008, so over two years It was commented on in last years annual review that he was still at same level as previous year in maths. Again could this be a specific learning difficulty and should I ask for some sort of assessment? He is doing well in science, level 4a and should get to level 5a! In some other subject areas he is average (level 3/4), and in art and french he is at level 2a (he hasnt done much french in primary, so this is to be expected and his poor motor skills/ pencil control mean I am not surprised about the art level). His gross motor skills are below average according to the school report for his annual review. What do others think, am I worrying about nothing or do you think I should push for assessment/more help for him (particularly in relation to maths?) thanks in advance! p.s. heading should say for past 2yrs sorry for error it will not let me edit now