joanne1 Report post Posted January 27, 2009 Hi everyone, I am in the process of getting diagnosis for my 13 year old son. I have been looking on this forum and read a few things that people say. I am not really sure what I am doing on these forums and am hoping this goes to the meet and greet bit!!! Whilst I have been reading posts there is alot of 'myds1' and dd and ds, I dont really know what they mean, its like code to me. So could someone please explain this to me so that I know what I am reading. I know it sounds silly but I am sure it will help!! Well this is just to say hello really and hope to chat soon. Joanne Quote Share this post Link to post Share on other sites
ScienceGeek Report post Posted January 27, 2009 Hey Joanne and welcome to the forum. Up the top of the screen there should be a jargon buster, it has all the regularly used terms and stuff. Quote Share this post Link to post Share on other sites
Tally Report post Posted January 27, 2009 Hi Joanne, and welcome to the forum. Your post has appeared in the right place Don't worry too much about the technical stuff, you will get used to it and there is normally someone who can help you if you get stuck. DS stands for "dear son," normally meant slightly sarcastically. DD= Daughter, DH= Husband, etc. And some people refer to their children by only their initial. Quote Share this post Link to post Share on other sites
Kathryn Report post Posted January 27, 2009 Don't worry Joanne, it took me a while to figure out too. Just to add, if people have more than one child they sometimes use numbers to show which one they are talking about, so DD1 would be eldest daughter, DD2 would be second daughter etc. Here's a thread which explains more forum abbreviations you might come across. http://www.asd-forum.org.uk/forum/index.php?showtopic=5648 Welcome! K x Quote Share this post Link to post Share on other sites
bid Report post Posted January 27, 2009 DS stands for "dear son," normally meant slightly sarcastically. DD= Daughter, DH= Husband, etc. And some people refer to their children by only their initial. I never knew it was meant to be slightly sarcastic!?? I don't mean it like that when I use these abbreviations Bid Quote Share this post Link to post Share on other sites
NickyB Report post Posted January 27, 2009 Hello joanne and welcome I never knew it was meant to be slightly sarcastic!?? I don't mean it like that when I use these abbreviations Bid Neither did I, bid Quote Share this post Link to post Share on other sites
Tally Report post Posted January 27, 2009 I always assumed it was meant slightly sarcastically, as it is not something you would often say in normal speech. Even if someone was very dear to you, you would not say so every time you referred to them. Quote Share this post Link to post Share on other sites
Clare63 Report post Posted January 27, 2009 Hi Joanne, Welcome, don't worry takes most of us a while to get the hang of the forum, I been on here almost 2 years and still can't do quotes etc the jargon buster is really useful for forum jargon. I have a 13 yr old son too, he was dx'd with aspergers in 2007. Lovely to meet you and I hope you find your way around very soon. Clare Quote Share this post Link to post Share on other sites
joanne1 Report post Posted January 28, 2009 Hi Joanne, Welcome, don't worry takes most of us a while to get the hang of the forum, I been on here almost 2 years and still can't do quotes etc the jargon buster is really useful for forum jargon. I have a 13 yr old son too, he was dx'd with aspergers in 2007. Lovely to meet you and I hope you find your way around very soon. Clare Hi Clare, First can I thank everyone for replying to me. Clare you said that your son is the same age as mine and was diagnosed in 2007. Can I ask you, Did school or anyone notice anything or have you been like me and battled on in and out of school for years? I am not sure if that is too personal a question and I don't want offend but I wondered if people are or have been in the same position as me. I always knew he was different and have taken him to doctors etc when he was younger but I think people thought he was just quite stubburn and naughty. I have been in out of school for his behaviour and said on a few occasions this is not normal behaviour!! There is no reason he should behave this way and no other child would do this. This is from nursery age!!! It wasn't until secondry school that they noticed he had autistic traits. And then we saw an educational psychologist and got referred to the clinic where we go now. We know he is on the spectrum but not sure where yet until the Dr whom we are waiting to see to actually be diagnosed tells us. We have been seeing clinical specialists and they said it should have been recognised. I knew there was something but I didn't know what. I didn't know there was a spectrum. I thought autism was 'rain man'. As soon as we were told about this I was looking for informaion and got a book. When reading the book everything made sense. But I did find that information is as if you have been diagnosed from being very young. And of course we are past this stage now, I dont suppose you know where I can get info on teenage years do you? My son isn't taking it too well either. He doesn't understand what it is and I think he is confused by it all. He thinks I am trying to say he is 'crazy'. Joanne Quote Share this post Link to post Share on other sites
oxgirl Report post Posted January 28, 2009 Welcome to the forum, Joanne. Hope your lad is doing okay. (I always thought DS meant 'darling' son, that's what springs to mind when I see DD, etc. Not that that's got anything to do with anything). ~ Mel ~ Quote Share this post Link to post Share on other sites
Clare63 Report post Posted January 28, 2009 Hi Clare, First can I thank everyone for replying to me. Clare you said that your son is the same age as mine and was diagnosed in 2007. Can I ask you, Did school or anyone notice anything or have you been like me and battled on in and out of school for years? I am not sure if that is too personal a question and I don't want offend but I wondered if people are or have been in the same position as me. I always knew he was different and have taken him to doctors etc when he was younger but I think people thought he was just quite stubburn and naughty. I have been in out of school for his behaviour and said on a few occasions this is not normal behaviour!! There is no reason he should behave this way and no other child would do this. This is from nursery age!!! It wasn't until secondry school that they noticed he had autistic traits. And then we saw an educational psychologist and got referred to the clinic where we go now. We know he is on the spectrum but not sure where yet until the Dr whom we are waiting to see to actually be diagnosed tells us. We have been seeing clinical specialists and they said it should have been recognised. I knew there was something but I didn't know what. I didn't know there was a spectrum. I thought autism was 'rain man'. As soon as we were told about this I was looking for informaion and got a book. When reading the book everything made sense. But I did find that information is as if you have been diagnosed from being very young. And of course we are past this stage now, I dont suppose you know where I can get info on teenage years do you? My son isn't taking it too well either. He doesn't understand what it is and I think he is confused by it all. He thinks I am trying to say he is 'crazy'. Joanne Hi Joanne, I am more than happy to answer any questions. No neither school or anyone else notice anything, originally we were refered as it was thought that our son had OCD and that it was taking over as he had so many rituals which were impacting on his life and mental health. After about a year of CBT for OCD they decided it was not OCD at all and refered us on again where an almost immediate diagnosis of aspergers was given. Our son has always been what we thought was very shy which caused him anxiety, but he coped well at primary and being very bright was their little star and described as a perfect pupil. The transision to secondary school was the main turning point and the differences between him and the other kids became more apparent, he really struggled and got little if any help. You may well have read on another thread, my post, so sorry to repeat, but basically he had a breakdown and came out of school at the start of year 8. We finally, after a long battle got him a place at a special school and we are so pleased with the progress he has made since he started part time in November 2008. At first my son didn't take his dx too well either, infact he saw it as "our" and "other people's" problem because of all the visits to CAMHS etc., he is who he is and thats that, which I guess is right really, just need a little more help, support and more than anything understanding of aspergers than some people. The early days, weeks and months of dx, statements, DLA claims etc., are very exhausting for us as parents as the system is not very straight forward and their are lots of hurdles to get over, I am more than happy to share my expereinces with you and giev you any support and encouragment you need. Every child, whether AS or Nt or what ever is very different so the process for each one is going to be slightly different with different outcomes to suit the individuals needs etc., I am so pleased you have found this forum, I truly believe you will find this forum will open your eyes to all sorts of things you never knew or considered, well I did and I have found it to be a God send. Good luck with your journey. Clare x x x Quote Share this post Link to post Share on other sites
mumtothree Report post Posted January 31, 2009 hello and welcome Quote Share this post Link to post Share on other sites
**Mia Report post Posted February 4, 2009 Hello Joanne I can see and remember a lot of this with my older brother too and he didnt like to have a label or anything he just knew his life was very different and he has had lots of ups and downs accepting his differences. Sometimes he is really happy and other times I can see his frustrations.... we are very close because of this but there are times I much prefer him to my friends brothers and sisters because he is really loyal and honest which is more than I can say for some of my friends brothers and sisters. Mia Quote Share this post Link to post Share on other sites
joanne1 Report post Posted February 4, 2009 Hello Joanne I can see and remember a lot of this with my older brother too and he didnt like to have a label or anything he just knew his life was very different and he has had lots of ups and downs accepting his differences. Sometimes he is really happy and other times I can see his frustrations.... we are very close because of this but there are times I much prefer him to my friends brothers and sisters because he is really loyal and honest which is more than I can say for some of my friends brothers and sisters. Mia Hi Mia, Thats a very sweet thing to say about your brother. He is lucky to have a sister like you. My son is happy sometimes and not at others. We had a good week a couple of weeks ago but not had a good week this week. I can the change in him, and he is trouble at school this week, as he displays frustration and anger. I sometimes wonder if I wil ever understand the way he works and why he does the things he does. Its very hard at the moment at home. Joanne Quote Share this post Link to post Share on other sites
Diane Report post Posted February 4, 2009 Hi Joanne My son had his diagnosis when he was 13. He did not take it all well and spent along time in denial and trying to get rid of his ASD as he did not want it. He is now nearly 15 and just this week he seems to be in a different place with it all. Still not 100% acceptance but it is a step forward. I will post what happened elsewhere on the forum as I do not want to hi-jack your thread. Quote Share this post Link to post Share on other sites
Esty Report post Posted February 10, 2009 Hi Joanne I think I'm in a similar situation to you - awaiting DISCO and neuro cog tests for my 12 year old for possible Asperger's. He's always been what we've called 'highly strung' and we had to handle him very differently to his brother and cousins. His big problems only became apparent really about 3 years ago when he started school refusing, sometimes for months at a time. It now emerges that all the things we thought of as 'just his ways' are classic Asperger's. I've worked with kids with AS and still didn't recognise it in my own son. Fortunately, he's accepting the diagnosis as he realises it will (a) get him the educational support he needs ie possibly home tutors and ( actually means he's NOT going crazy. Before this, he was an angry, crazy young fella sometimes and felt he was going mad because he couldn't do things that other kids found easy such as going to school. He still can't explain why he can't go to school, just that he can't. Knowing that other kids have AS is very reassuring for him (though he still doesn't want to join anything AS related yet). But if he has a difficulty and I say 'lots of kids with AS find that hard as well' he definitely becomes reassured. He doesn't feel like a freak anymore because he needs a timetable in the summer holidays, or lots of planning before changes. It's also made us tons more tolerant as we see that the things we thought were him being 'controlling' eg only eating certain food, not changing his clothes etc are part of his Asperger's. Good look, keep in touch. Quote Share this post Link to post Share on other sites
Karen A Report post Posted February 11, 2009 I never knew it was meant to be slightly sarcastic!?? I don't mean it like that when I use these abbreviations Bid I did not know it was meant to be sarcastic.I have been sarcastic about DH and DS and DS all this time and did not know.Shame on me. Welcome to the Forum too Joanne. Karen. Quote Share this post Link to post Share on other sites
