Why is it ?

[Sa Skimrande]

Yes I am going on about adults with AS again, because despite my belief that it is because of money, I am open to be re educated, so this being an ASD forum where I assume from some of that which I have read, AS professionals are involved, so I appeal to them if the dare ;

 

Why is it adult AS is ignored ?

 

Why is it one's GP says they can't help with AS ?

 

Why are there no services for adults with AS ?

 

As something you might not understand or like to understand, is the fact that those with AS know more than those without it, the NT observes and guesses, the AS has it and experiences and tries everything to work it out, so I would think AS adults have more of a grip of this thing than anyone without it, hey just look at Temple Grandin

 

But of the specialists that are advising parents, what do they know, do they have it and can they speak from an AS perspective or is it they are really just guessing and by guessing they stand to get things wrong as children are people not experiments and children stand to become adults where it is known by those adults with AS the medical services conveniently forget about them in adult hood, which is aged eighteen in this country, so sadly, not very far off for some.

 

The specialists should be speaking to adults with AS, as most of us late diagnosed have got so far in life, held jobs, been married, had kids and done much of what the NT has done and not, we have a wealth of experience to draw from yet we are ignored, why ?

[robert7111a]

The short answer...? Professionals either don't have the time, can't be bothered or don't understand. Probably less money in it too.

 

That's all I'm prepared to say at this present time

[Sa Skimrande]

The short answer...? Professionals either don't have the time, can't be bothered or don't understand. Probably less money in it too.

 

That's all I'm prepared to say at this present time

 

And in saying professionals you also understand it is all about money, whereas I prefer to try and call them medics because I like to kid myself that such people went into the profession because, they were of a caring nature, they wanted to help people and were not just gold diggers sniffing after as much money as they could get for the least work put in.

 

I have to hold some faith in these people, but that is wearing thin these days where patients are now referred to as customers.

 

But come on, we could be wrong,

 

Let someone speak up for the Medics and tell us why we are ignored ?

 

Because one thing medics must understand is, if they are to have any credibility and there support when they need it, they have to show a little willing towards others as not even they are safe from the penny pinchers and bean counters as has recently been displayed by the GP's being forced to go on strike and when the NHS eventually gets fully or partly privatised there will be no room for passengers.

[Special_talent123]

your right and i was actually look at the quote from the autism bill they promised and noticed it had not been met. I have autism, but because I have a LD i am on the learning disability team but still i am lacking services required for things like my mental health

 

‘’

All adults with an ASD are able to live fulfilling and rewarding lives within a society that accepts and understands them. You can also depend on mainstream public services to treat them fairly as individuals to help them make the most of their talents

’

[LancsLad]

If I had to throw a point in it would be that as we get older as an autistic population and our life experiences expand in different directions many of the cliches associated with AS in children and teenagers start to get blown out of the water and at times it is very diffiuclt to hang labels on the realitiy of the picture which is presented to them.

 

They are therfore left with a difficult proposition be professional and accept the picture as you now see it and adapt and evolve, or pretend to be an expert. Unfortunatly they tend to lean towards their own egos and turn their back on adults in favour of maintaining a comfortable if slightly false belief structure that every condition in life should have a label and that labels have to fit. When this doesn't work make up another label.

 

Simply a case of lazy and flawed thinking,

 

just a thought.

[robert7111a]

And in saying professionals you also understand it is all about money, whereas I prefer to try and call them medics because I like to kid myself that such people went into the profession because, they were of a caring nature, they wanted to help people and were not just gold diggers sniffing after as much money as they could get for the least work put in.

 

I have to hold some faith in these people, but that is wearing thin these days where patients are now referred to as customers.

 

But come on, we could be wrong,

 

Let someone speak up for the Medics and tell us why we are ignored ?

 

Because one thing medics must understand is, if they are to have any credibility and there support when they need it, they have to show a little willing towards others as not even they are safe from the penny pinchers and bean counters as has recently been displayed by the GP's being forced to go on strike and when the NHS eventually gets fully or partly privatised there will be no room for passengers.

 

 

I happen to be a "professional" working in the medical field. I have to work with the ###### that goes on every day and the ###### that I and my colleagues have to put up with by whoever is in Government and the ###### that I receive from patients...not to mention the ###### received from critics. I don't earn that much and am certainly not a gold digger. The way we are expected to work and treated by the boys in Westminster is diabolical and now our pensions are being attacked because "we all earn too much".

 

Be very careful what you say before you tar people with the same brush

[Sa Skimrande]

I happen to be a "professional" working in the medical field. I have to work with the ###### that goes on every day and the ###### that I and my colleagues have to put up with by whoever is in Government and the ###### that I receive from patients...not to mention the ###### received from critics. I don't earn that much and am certainly not a gold digger. The way we are expected to work and treated by the boys in Westminster is diabolical and now our pensions are being attacked because "we all earn too much".

 

Be very careful what you say before you tar people with the same brush

 

Ah and so I understand why on another thread you chose to ignore the topic and go on the offensive.

[robert7111a]

Ah and so I understand why on another thread you chose to ignore the topic and go on the offensive.

 

Please enlighten me...

[trekster]

Really pleased you started this thread. im having a problem at the moment with social services.

 

He arrives and asks a very open question that involved emotional understanding "how is the support going".

 

i make requests out of desperation (because my support has been inadequate for sometime) and the social worker misinterprets it as homework.

 

My social worker refuses to read 'taking responsibility' as he's "been on a 1 day course for autism" before. He even wasnt open to "reading just the sections aimed at social services".

 

Why ask me what i feel i need help with then refuse to read reports that explain my needs. i had the idea that i would underline photocopies of excellent reports and give them to my social worker. "these are my needs please help me". He did take away a copy of....

 

http://www.autism.org.uk/about-autism/our-publications/reports/our-good-practice-guides/social-care-assessments-of-need-for-adults-with-autism.asx

 

...with my needs underlined but im unsure what he is going to do to help me.

 

Also he didnt tell me when he arrived how long the meeting would be so as soon as i settled into the meeting it was time to end the meeting.

 

i requested that only certain people saw my file (but i had a frightening experience with his boss) but he told me i "couldnt put conditions on his job".

 

He told me ringing my housing officer was part of his job and why he would be ringing my housing office. But i had just told him what i needed in order to move. It is only a slight chance this will work.

 

As i saw him out i told him (for the 5th time so hopefully it will sink in) that i have an autism degree and he really needs to think about how he helps me (his resistance to reading reports for example being a problem for me) and that the reports illustrate my needs.

 

i was unable to communicate my needs effectively which is why i referred him to reports.

[Mike_GX101]

Mmm...how long are your reports?

 

One habit I see a lot is a tendency to write and write and write but many people can't be bothered with that.

 

I used to have problems along those lines myself where people refused to read my emails due to them being so lengthy! Now I keep them short and sharp - straight to the point.

 

Don't clobber them with essay after essay - just give it to them straight! Bullet point your points across if you have to.

[trekster]

1 is 8 pages long which is going to be sent to him via my care agency.

 

i was unable to write under pressure, these are NAS type reports that support my needs (autistic wise).

 

im unable to summarise due to my dyslexia.

 

Considering i am very black and white under stress i was straight to the point. Unable to work out what information

he needs to know in order to help me.

[Charlie C]

I've been fighting for a ASD diagnosis but apparently I don't meet the full diagnostic criteria, they labelled me with 'autistic features' instead.

[darkshine]

1 is 8 pages long which is going to be sent to him via my care agency.

 

i was unable to write under pressure, these are NAS type reports that support my needs (autistic wise).

 

im unable to summarise due to my dyslexia.

 

Considering i am very black and white under stress i was straight to the point. Unable to work out what information

he needs to know in order to help me.

 

How many reports do you have Trekster?

 

And how many pages is each one?

[Sa Skimrande]

There is one way a diagnosis might be obtained if you are willing to put in the time, sign up for a course in further or higher education, if you are unemployed that should be a freebie, but doing a course even part time at an university or college should be enough. You see universities and colleges are keen to find people with learning difficulties as there are grants available which means others get employed and so forth, but usually in the first academic year of the course one is quizzed on any issues they might have and in one such quiz, I mentioned possible dyslexia as I had trouble with reading tracts of information presented in a certain style.

 

Anyway, my college was slack it did not act quickly on the information provided, but then I was not pro active where others were, I expected people to do their job, they didn't until they were forced and asked me why it was I had not said anything sooner to which I replied because I expect people to do their job given the fact that the questionnaire they sent out they had been furnished with the information they had requested and I was waiting on them to get back to me, I did not realise the learning disabilities section actually had a learning disability itself in that it could not read or act on information received.

 

But within forty eight hours I was being tested by an educational psychologist who came up with AS and that because he was AS himself and I had beaten his Weschler scores, the first who had done so he told me, since becoming an educational psychologist eleven years previously. I was dazed by the revelation as the psychologist asked me to stand up so he could shake my hand, I was very confused at the time I remember thinking is this a joke or something, what's going on, but this guy was very happy about something and he even gave me a lift back to college and he went in to speak to the LE department about what, I don't know, but tutors were a lot more interested in me'' getting it'' thereafter.

 

I received a report within a few days and took it to my GP who was very negative and derisory which I did not understand and he saying stuff like if I had AS he would have seen it, but I was sent to an NHS psychiatrist for assessment and yep, the shrink came back with the report, yes, in his opinion I did have AS, my doctor on reading that just said to me he can't help with the AS there is no cure and it can't be treated. I don't think he understood, it was not so much a cure I was after, what I was after was understanding and the knowledge that my difficulties had a reason and I was not going mad nor was I bad, I was just misunderstood and I misunderstood.