TIME TO GET DIAGNOSIS

[gvce]

[Tylers-mum]

None applied to me. I have been fighting for 4yrs to get him referred to an Autism specialist and finally got one this year. Currently going through the diagnosis process now.

Edited October 2, 2005 by Tylers-mum

[Suze]

Hi things took an alarming turn for the worse in year 3. Referred to a physch at CAMHS, applied for a statement.The process took 6mnths.He has a dx of ASD/AS, dyslexia and dyspraxia.

[gvce]

Why does it take so long!!!!

 

[Hectorshouse]

It took just under a year, but we had to go down the private route, the nhs waiting time was 18mths to 3 years for initial assessment ... at that time T was a permanently exploding bomb, school was hell, home was hell, and I couldn't wait, I was fortunate in that my partners parents paid for his assessments.

 

What I wish I had known about then was BIBIC, which is a charity and does the complete range of assessments over a 2-3 day period, it does cost but there are burary's available to those on low incomes.

 

We haven't done it .. yet, giong later in oct as a follow up to everything else that has been going on. But those that I now that have, thought it fantastic but very draining, worth every penny.

 

HHxx

[Elanor]

I answered 0-6 months - but we also went down the private route. The waiting list for the start of diagnosis was 20 weeks.

[Malika]

Hi

Voted 6months 1year because that is the time it took from when I talked to my GP to get a referal up to the DX report from neurodevelopmental unit.

But it took more than 2 years to get some concern and a letter from the school to give to my GP.

 

All the best.

 

Malika.

[jayjay]

Hi we are still in process of my son being diagnosed but so far 1 and half years and counting.

[Flora]

I ticked 3 years and above because it took me from when my son was 2 until he was a few weeks away from being 9 before anyone took me seriously. (even then I ended up paying for a private psychologist assessment before getting refered by GP. However, once I had a private ed psych report it took about 6 months for child psychiatirst to confirm dx.

 

Lauren

[meemo38]

We have been fighting since my stepson was 61/2, he is 12 now, and still no diagnosis, he was diagnosed ADHD, but we know its not that, later found out the pead wasnt even sure he had it either, but still put him on ritalin, then concerta, it was us who took him off it and tried to get other answers, came to the aspergers diagnosis ourselves, but astill fighting for an official diagnosis.

Ed physch and school senco also say aspergers.

Michelle

[mel_jayne]

hi,

I've waited 4 years to get a refurral,still waiting for dx so still counting,pulling my hair out and lol.

[denise2]

I guess we were really lucky. Paediatrician told us at appointment ( for which we waited 3 months). It was confirmed by a psychologist within a month. We were told he was "classic" Asperger's which was maybe why it was so quick.

 

Denise 2

[wishingwell]

It took 0-6 months;

 

Once I had the names and telephone numbers of the paediatrician & child psychologist I phoned them weekly (maybe more.) I told them my son was at risk and urgent attention was required, the school could not cope and nor could my child.

 

They must have got tired of my voice.

His statement was treated in the same manner,

 

I expected to be told about the ADHD but the words autistic shock me.

 

 

wishingwell

[Jadensmum]

We were quite lucky too. We waited a couple of months for an appointment with a paedatrician and J was diagnosed within a month.

 

Denisex

[smiley]

I put 6-12 months..............that just doesn't include the three years of begging everyone for help!!

[gvce]

mel-jayne, why has it taken so long?

 

[Helen]

I voted 0-6 months, I was offered a cancellation appointment.

[UltraMum]

3+ as we lurched from one diagnosis to another before the HFA diagnosis which explains sooooo much about my son.

[CarerQuie]

It took over 2 years because in our area,they don't carry out assessments before the age of 5.Everyone knew the likeky dx before it was confirmed.xx

[rainbow queen]

i didnt know which to tick, my son is 4 and still going through all assessments/waiting for camhs ect...

it all started about when he was nearly 2,so been going on since then, although looking back there was noticable things as he was a baby too but as he was my first i did not know any different

[Lynden]

We've been fairly lucky I think. We've been almost bang on 12 month from our first REAL concerns about his development till formal diagnosis. I did get the paranoid mother thing for a few months when I started saying I had concerns but it wasn't long before I was taken seriously and would have been sooner but we moved house and area in that time.

 

Lynne

[madmooch]

We were lucky, the HV new something was wrong from very early on and refered H when he was nearly 2 and it onlt took about 6mnths from referal to get a dx.