MumTee Report post Posted February 6, 2006 Got dx today - how come I feel so sick even though I knew it was going to happen eventually? For some reason it's taken me by surprise..... I know my boy was the same walking into the appointment as when he walked out, but I felt...strange/sick/giddy. I think my main fear is that he'll never be able to communicate with me at all - I suppose because I need some reassurance that I'm getting things right for him - and only he can tell me. And then again I feel kind of privileged to have such a special boy... And then again I feel terrified that I'm not up to the job.. And I'm worried about the monumental battle ahead to get him what he needs and deserves... I need hugs....! Quote Share this post Link to post Share on other sites
helenl53 Report post Posted February 6, 2006 Oh Mum Tee <'> <'> <'> <'> <'> <'> <'> <'> HelenL Quote Share this post Link to post Share on other sites
bid Report post Posted February 6, 2006 MT <'> <'> <'> <'> It's a real emotional rollercoaster after dx, even when you 'knew' beforehand Try and take things easy if you can, and be gentle on yourself and your family <'> <'> You are with people who really do know how you are feeling right now. Bid <'> Quote Share this post Link to post Share on other sites
phasmid Report post Posted February 6, 2006 Diagnosis: You want it, you don't want it. You get it and you wish you hadn't...but then you're glad you did....all the reactions I think we all have. It is still a shock even when you know it's coming, as you say. Just let the news sink in over a few days and take things steady. As for hugs.. <'> <'> <'> <'> <'> <'> Quote Share this post Link to post Share on other sites
justamom Report post Posted February 6, 2006 Its a whirl wind kinda feeling getting a dx I know and like you said you expected it but still its a shock to have somebody tell you... Let it sink in - your boy is special and lucky to have somebody like you who cares... sending you lots of hugs <'> <'> <'> justamom Quote Share this post Link to post Share on other sites
annie Report post Posted February 6, 2006 <'> <'> <'> <'> It still comes as a shock when you finally get a diagnosis. Emotions run riot for a while. Be gentle on yourself, give yourself time to take things in. We're always here for you. Annie <'> Quote Share this post Link to post Share on other sites
Bullet Report post Posted February 6, 2006 ((Mumtee)). It must be a lot to come to terms with. Give yourself time. Quote Share this post Link to post Share on other sites
Tez Report post Posted February 6, 2006 Most of us have been in the same postion and know how you feel. <'> Quote Share this post Link to post Share on other sites
Kathryn Report post Posted February 6, 2006 Sending more <'> <'> <'> your way, MumTee. You aren't alone in your reactions but you've probably realised that already. Look after yourself K xx Quote Share this post Link to post Share on other sites
on the edge Report post Posted February 6, 2006 I felt the same...For now I have decided (and is still v early days for me) that it really doesn't matter what the label is..I just have to do all in my power to help with all my sons individual problems (language, social, play etc) and it helps me now to understand them on the AS level...I am just beginning to get some NHS help now that we have a dx and I realise that I would have none without it. Anyway I feel for you coz I know how tough it is!! Quote Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted February 6, 2006 <'> <'> <'> <'> MT - It hits you like a brick The dx has many advantages and now you can really begin to learn what makes your little one tick. Keep strong, there's going to be a lot of ups and downs. Denials when he's having good days and acceptance when he's having bad times Daisy Quote Share this post Link to post Share on other sites
UltraMum Report post Posted February 6, 2006 Take your time and be gentle with yourself <'> <'> <'> <'> <'> <'> Don't worry about the road ahead - think of the diagnosis as a signpost to help you - but for now it's time to rest a while and take all the TLC you can. <'> Quote Share this post Link to post Share on other sites
Brook Report post Posted February 7, 2006 <'> <'> MumTee <'> <'> I know the mixture of emotions you are feeling right now, lots and lots of things whirling around to think about. We also already suspected before being told the dx, I too felt the same as you. Sending lots of these <'> <'> take it easy. Brook Quote Share this post Link to post Share on other sites
Klou Report post Posted February 7, 2006 More <'> <'> MumTee It does take time to sink in. We only got our dx a month ago. It hits you again when you get it in writing and again when you have to start sharing the news. So I'm putting this one off for now unless it is vital people know - like nursery. I feel like we are treading water a bit and waiting for something to happen because at the moment nursery are handling him well and there are no big problems. So take it easy MumTee. Quote Share this post Link to post Share on other sites
mossgrove Report post Posted February 7, 2006 (edited) <'> <'> <'> However much you were expecting it, getting the confirmed diagnosis does knock the stuffing out of you for a while. This is normal and happens to nearly everybody. Don't be hard on yourself. You're doing a great job! Simon Edited February 7, 2006 by mossgrove Quote Share this post Link to post Share on other sites
redberry Report post Posted February 7, 2006 OH You and me both kiddo! Felt like I was reading my own post, reading yours. I really do know how you feel and Im sending all the best wishes that I can! We got S dx yesterday and I am reeling. Even though it was not a surprise. Take it easy be kind to yourself and have lots of warm fuzzy vibes that Im sending to you Love F <'> Quote Share this post Link to post Share on other sites
