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rainbow queen

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Everything posted by rainbow queen

  1. sweating sorry guys was ment to come after hot !!!!! but got pipped to post
  2. my son well both are not well this week,really awfull cough,ive not slept proper all week took drs got some antibiotics,hopfully it will start working-im starting with cold and cough now also my son been dx with asthma too-nightmare trying to get him to take inhaler . my son also stops talking alot when hes ill. bless them
  3. i also like the not rushing in the mornings.i dont plan much outings in the day now much,after trying to do it before and it all ending in tears. most we manage is well informed before hand trip to the park-and then its hit and miss if it goes ok,like dread it if other children come up and approach mine as my son starts being insulting,or will start saying rude things about folk,so we tend to look for quite places in park to avoid this -which is often none sometimes i have managed taking both sons [3 and 4] to swimming pool but requires lots of energy and milatery style approach that leaves me feeling shattered so think ill give it a miss till its warmer weather at least.
  4. hi my son hasnt been dx as yet but has global developmental delay,i didnt even start to potty train him till 3 and half. hes now 4 and uses loo in day but in nappies at night. so think it is normal that it takes longer ,also more hard work getting them to get used to it too,my son still dont like using other loos,or wiping his bum.
  5. i love my tea with milk[even better cream of top of milk bottle] and 3 sugars. i have the odd coffee now and then,but tea is my fav and yorkshire t bags my fav tea.
  6. <'> <'> <'> <'> welcome to the forum im sure you will find lots of friends here to talk to about your worrys
  7. my son scored 115 he isnt dx as yet either.
  8. hi lou lou first off dont let there reply dishearten you its just wall that needs to be knocked down with plenty of letters and dertermination. i have just moved into a council house after being in private rent for nearly 5 years because they kept refusing me. they told me many times i wouldnt get anything the trick is to completetly bypass this by what ever means you can till they weaken and give in. first off make sure you do fill in all the housing associations forms to cause the council can check u done and proves your wanting it bad. like the above posts said collect all your evidence on your children -photo copy and send to the top head of housing and your local mp telling him of what trouble your having. get a list of all the negative points about your house from every room so you have more to go on-ie-no garden,damp,no ventalation,bad stairs ect.... i did most of my work on them with letters really as i dont like confrontation in the offices-can you belive it not once did they call me in to see me-mind you i had been in before when i first approached them-i was living at my oaps parents one bedroomed flat with baby and they refused to offer me anything then-thats why i went into private rent -bad move as i then lost all my points.so 5 years later i tryed again-i had letters of health visitor/social services/gp/phychatrist/mp/mental health out reach worker/and the police[but that was cause of they tried saying they move me to area where my abusive ex lived] dont give in cause thats what they expect you to do-it did take me months-i wrote letters nearly every night,then out of blue i got a home vist-in which the lady even tryed saying i had no hope of getting one where id put done-so i wrote to mp again -week later she had to eat humble pie as she rang to offer me a 3 bedroomed in the area i had wanted.
  9. wow we can watch u on the tv soon i actually saw an ad for this in nursery window few months back now asking if anyone wanted to ring up thought about it myself for a few mins--good on you
  10. lol at last post "went on to write a book "sitting in cematries,-made me laugh when i read that post
  11. my 4 year old loves this programe
  12. hi the only time i get any time to do jobs round house ect...is if my son is on the computer its the only thing that enthralls him enough to stay with it. we just moved and now have a big garden its took weeks just to get him used to it and he will go in it now with his 3 year old brother but not for more than 10 mins if im lucky -they will start fighting/screaming and howling then they come in. its like being on a convaer belt with both of them but mainly son with probs-as soon as you attempt to do anything like change the bedding or wash pots,it all starts again i get so mad with myself too as you start thinking god why can i never get anything done,i mean evening mopping the floor -turns into a marathon task that can take hours to do,inbetween the 100 questions and i want,,,,,,,i need,,,,,,,,,,,,,,will you,,,,,,,,,mumm,,,,,,,,,,ect...
  13. hi pingu i would of suggested to the lady that isnt it all the more a reason why they should look into your childs probs because if you yourself show slight signs then its more of reason to help the child as it may be gentic. i not meaning to offend you if that sounds wrong but hope you see what i mean-i mean you may of had that all your life and no one bothered -but if your child starts showing it in this day and age its all the more reason to pick up on these things and get help before problems go worse. it seems they are always looking for a quick way out. i to have probs -ocd and rapid cycling mood disorder and suspect one child of as and other is showing some signs of ocd/adhd although none is dx,only one with gdd.ive also myself had cognitive behaviouril therapy and other stuff.even if the parents have these probs it shouldnt mean there child should not get the help they need even if they are thinking its learnt behaviour-dont they relise these things run in familys aswell. they havnt so far actually thrown this at me yet but im expecting it soon when i get my sons camhs appointment ,but ill be ready with my replys please dont get upset-your not in the wrong ! <'>
  14. hi i dont work but find it hard to cope with the holidays,they used to run playschemes at one time but i asked last year and i think its has stopped in our area. i have booked my 2 sons in for 2 afternoons at a private nursery which is next to there school-which do out of school clubs i could only afford 1 till 6 for 2 afternoons for both of them which is ?12 so thats ?48 in total.i have done it for 2 reasons really so they can look foreward to something to do as we dont go many places due to all the probs that come with it-and to give me a little break to go get some shopping,ect... not sure if i could afford to do it every week in the school hols but had an awfull time of it last year[as they fight all day long and drives me nutts][im single mum]. ive just applied for friends for lesuire in this area which is charity that takes disabled children out to do things they like doing-he can start it in summer so hoping that will help,learning to do new activitys that we wouldnt be able to do normally.
  15. hi suze i told you last time i spoke to you about what the ot said to me about my son,she said they couldnt offer help as he may come under the autistic spectrum and they dont deal with it,i also mentioned about if he was dyxpraxi what then? im still waiting to see her report of my son which i keep asking for cause i also want to follow this up as to what help he should have and who should provide it. p.s see you at the next meeting,i put my name down for the bowling too
  16. <'> hi just wanted to add my last boyfriend who i was with a year [not my childrens dad] ended our relationship because of the difficulties you stated, he kept worring about the future and he could not handle it-i dont think he loved me enough to stick by me and all the extra trouble regarding one of my sons. we split last june o5-and my boys were very close to him because they never really knew there proper dad. i found this the hardest thing to get over. i am now doing ok but have to say very very wary of even attempting finding another man again because i just feel no one could cope with it all,and i dont want to rock the boat now ive sorted myself out a bit and have learned to rely on just me. ive no advice just to say i do relise what a hard position you are in-you end up being in the middle of it all-and its hard to please everyone
  17. well my son had the first injection and then it came to light his probs[although looking back think even as a baby something wasnt right] but i refused him having 2nd jab-hes now 4 and stopped my 3 year old having any. i did keep mentioning it all to my sons peadatriction who i think tryed to shrug it off and didnt want me to go down that route of saying could that jab have had any contributing factor to my sons probs having said that my nephew didnt have that jab cause hes 25 and dont think it was about and he dx with AS and tourettes and ocd so ive that to think about to. i think its a case of some children may be naturally disposed to these conditions and just maybe the mmr may give it the extra push towards it.of course they wont say this because they want to protect the majorty of kids that have no concerns .-thats only my opinion everyone-every one should make there own choices.
  18. i think your doing a great job that is how i did it with my son,i must admit it seemed a bit cruel at times -i made him sit on loo for ages,then kept trying again at times felt i was just sat in bathroom for most of day-i even did a sticker chart and said he could have a celebration choc for a wee and 2 for a poo. it was not easy at all in fact he only just mastered it by 4 and still in nappies at night,and dont like wiping his bum when hes pooed. one thing a teacher told me was to get a tin of prunes in there juice-and told me to give him prune juice 10 mins before sitting him on loo[not that he was constapated]-i used one of those injection what u get with medicine.he didnt like it but i made him cause it works quick and he no choice to let the poo go-it wasnt cause he was constapated but just to help time it so he actually did that first poo in the loo-which i think was scaring him,then he did it and i really made a fuss and that helped learning him it was ok to poo on loo-im not saying it was quick but it helped and i kept at it-in fact had a friend who helped me cause at times i was bit soft and would give up but that helped me to perserve.we are talking hour at a time on loo i really did think we would never do it at various points it was very hard work-i became dedicated poo lady
  19. i think shes great ive read her first book and shes been through alot, shes worked hard for her success and is a positive role model for single mums as she found her mr.right who cares for her and her disabled son.
  20. <'> <'> <'> what an awfull lot to deal with at once,feel so sorry for you couldnt you get in touch with your mp about the housing stuff and tell him how you cant deal with all this as well as a disabled child? even better ask your gp to refer you to see a pychatrist[i am under one] they seem to offer more help with problems-i am always telling them about everything i deal with and they have got this mental health lady support worker who i can ring now if i need help trying to sort things out, she also mediates with the folk im having problems with. all this stress can really start to effect your mental health -dont be scared of asking for help yourself-because at the end of the day your the childrens carer and if your not well then what would happen then take care x
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