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trekster

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Everything posted by trekster

  1. i think the reason for that is they just dont know they need to introduce themselves or they dont see the point in doing so. Is there a new members forum or introduce yourself section on here? There was one on 2 other sites i joined and so i immediately posted an personal greeting. When i 1st joined internet lists i had to be reminded a few times before i posted an introduction as there didnt seem a need to do so at the time. Alexis
  2. i can understand where you are coming from here. Problems with speech were detected at age 3 (they knew it was overly formal). i didnt get diagnosed until i was 16 with aspergers. This was after my GCSEs. What would you like to happen as a result of this? Would you like to prevent other kids from going through a similar experience? Would you like to increase the awareness of autism/aspergers in your area? Have you considered joining an autistic action group? i ask because i joined the steering committee for my area to help educate others about autism/aspergers. Also so i can be asked about what me or my autistic friends might think of certain changes. i also do talks and sign petitions such as the "make schools make sense campaign". i hope you can do with your experiences what i have done with mine and try and educate others so they are not let down like you are. good luck Alexis
  3. Any chance the pub industry could be challenged next? Having problems at some social groups with the public and staff that dont have a clue.
  4. "the little book of no" is a good book if you find yourself being too passive with people. Alexis
  5. i can distinctly remember that as i got older i felt punished, for being rude when i wasn't a few years ago, for having to wait longer for my meals (i had a circulation disorder that meant standing out in the cold excruciatingly painful). It just didnt make sense and i felt and sometimes do still feel as though the world has left me behind and im running to keep up! Alexis
  6. Thats my take on my diagnosis, NAS did a report a while ago asking if autism "was a label or a signpost". To me it is a signpost to recognise my particular take on the world. Personally i find the dyslexia harder to deal with than the mental health side of the Aspergers, since it relates to my misreading things and disorganisation. Alexis
  7. On a related subject........ Can loosing the ability to occasionally get the words out (after being fluent for years) mean an autistic/asperger is developing a speech disorder? Alexis
  8. Sounds like dyslexia to me, but even since this interesting topic has started (love a mystery) im not so sure. Good idea to ask about the speech and language therapist route. Hard to say what is autism and what is something else, which could be the possible reason why many other neurodiversities go unnoticed Ive got friends who cannot get autism diagnosed since "it doesn't come with ADHD or dyslexia or dyspraxia as well". Good news is that the diagnostic criterion for autism is being attempted a rewrite. Alexis
  9. Hello I had speech delay which was treated with 6 months intensive speech therapy at the time (early 1980s). After those 6 months apart from being recorded that "her behaviour is slightly formal and literal", I was discharged from the service with no further referral for ASD. Long story but i asked to see my medical notes and then got a shock! I get things muddled up as well and have problems finding the right words for things. I said to a friend of mine "password" instead of "activation code" for example. I am nearly 30 years old. I don't wish to upset or confuse you with this post, it's just got me wondering if my problem is "more than dyslexia"? Pronoun reversal is common in dyslexia. According to Tony Atwoods "the complete guide to asperger syndrome" (im not presuming your son is Asperger) "the diagnostic boundaries between asperger syndrome and specific language disorder are not clear cut". As for your suspicions that "delayed language" is being a late talker and not necessarily permanent, yes that is correct. However each child can vary and I went from age 2 (speaking occasional words) to age 2.5 (speaking in complete sentences) with speech therapy pre Asperger diagnosis. Disorder can be permanent, it depends on the disorder and the child. i guess you are attempting to find out what disorder your kid has/had? have you tried asking your GP for further explanation? Alexis (who now cant shut up lol)
  10. Hello Welcome to the world of Asperger syndrome, I guess you are thinking "ok so what next?" Your fear of not being accepted will hopefully ease as it was something i experienced after many years of bullying. "Congratulations you have Asperger syndrome" you are not mad, bad or defective but you have a different way of thinking that you share with other people. What do you like about yourself? With me i like my detailed orientated abilities in stamp collecting and star trek. Also my ability to empathise with other autistics and folk who've been in similar situations to me. What do other people like about you? My sense of humour and my cross stitch embroidery. If they want an honest answer they can ask me! useful resources (moderators have my permission to put these in a separate file if they feel the need to) Heres are some things ive found help me with everyday asperger life. i hope they can help you as well. "what is asperger syndrome and how will it affect me?" National autistic society (NAS publications) That is an excellent to start with book as it's aimed at people like you who have just found out about Asperger syndrome. "Information shortcuts for people with ASD", http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=119 (NAS website). Attending the local social groups (ask your regional officer for more details) One way of meeting other asperger folk another way is asking the NAS for a befriender but i hear thats got a waiting list. Asking questions on safe forums such as this one (only been here a few weeks and feel at home in some areas already). Meeting other asperger folk, my longest friendship with an asperger is 14 years and counting (we met in college). Joining the NAS for £10 (more if a parent or carer without ASD joins). Applying for DLA even if you think you wont get it as its not dependant on income. Subscribe to Asperger United, the newspaper for and by autistics. Try joining groups related to your interests. Alexis
  11. Alison lapper "my life in my hands" Dummies series "anxiety and depression for..." "the little book of no" "the highway code" lol Alexis
  12. Hello With me milk causes the brain issues and gluten causes the bowel issues Alexis
  13. Hello To begin with your kid is likely to refuse any alternatives put in from of them. As for the testing the only real test is trying the diet for a year. You cannot tell if your negative is a false negative or a real negative. ive done no tests at all not one, ive just read the literature and if i think it could help i will do something. Alexis
  14. H&B = Holland and barrett HFS = Health food shop TBF = To be fair AC = Autistics and cousins (ie conditions autistic often have as well like dyslexia, dyspraxia, ADHD etc)
  15. Thanks for the link mate! Alexis
  16. Hello (tally yes i am the alexis you know). i have an AiA gluten and dairy free cookbook for sale or swap. Interested? PM me for details of what autism related books you have or what you would be willing to pay for it. Alexis
  17. "in the footsteps of churchill" is one book, ive just finished reading "not stupid" about a family who devised their own eduation system for many autisitcs in the hillingdon (sp?) area of london. Also read lots of aspie/dummies books. Alexis
  18. trekster

    Buying a House

    hope you get the house tally
  19. Hello i often record the program "take it or leave it" on my Sky + box. Problem is it has a weird fault with this program only. When it gets to the adds sometimes if i skip them with the fast forward button it goes back to the beginning of the program! Does anyone else have this problem on Virgin 1 or Challenge TV (not on challenge atm so im gonna check when it does come back to see if the fault is there as well) Alexis
  20. trekster

    Right or Wrong

    Have you tried GABA or taurine or 5htp? All are OTC remedies from a HFS. Taurine helps me sleep but doesnt have an anti depressant effect Licorice root extract helps with evening related anxiety GABA i havent tried but it can help with anxiety type depression 5htp helps with sleep and depression. HTH Alexis
  21. Depends if it was distressing me or not as to whether i would take it.
  22. almost lost my mind to this stuff wont take it again.
  23. i happen to be one of those people, nearly lost my mind on it.
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