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chriss

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Everything posted by chriss

  1. OMG! I can't bear the idea of my 7 year old ever going to secondary school. I had a rough time there and don't have half the problems he has. On the plus side it does sound as if things are improving a little for Joel now. I hate the fact that it seems to be a case of "wait and see what problems arise" with schools. They should listen to the parents and be better informed so they can plan ahead to try to prevent problems occurring at all e.g all of his teachers should have known that he struggled with instructions and allowed for that.
  2. My ex too thinks its a case of "over diagnosis" and all problems with our son especially restricted diet, not sleeping and behavioural problems are all down to my failings as a mother! Quite frankly this gives him an excuse not to help me and to ignore things I say to him such as "he can't bear to be in crowds" or "you need to let him know in advance what you are going to do with him". My son doesn't feel relaxed enough with his dad to let his anxieties show so he has meltdowns when he comes home. My ex sees the fact that our son doesn't kick off in his company as a fine reflection of his parenting skills! Part of the problem is my ex has a lot of asd traits himself and so doesn't recognise them in our child as being a problem. Our son is a real clockwatcher and needs things to happen when they are supposed to. His dad has never been on time in his life and sees no problem with being late to pick up his son. I try to tell him how much this upsets him but he refuses to take responibility. He always has an excuse for being late and thinks we should lighten up. Despite this as our son gets older he is beginning to accept the diagnosis liitle by little. Mainly because our son is doing very well at school. And it might sound selfish but I desperately need the break when they go out together. It sounds to me as if you and your new husband very much deserve to be able to spend some time alone together too. All you can do is keep on at your ex till he gets the message. Perhaps your other sons can try to get through to him too. He has to realise what affect he is having on his own child, by ignoring his disability,as if he truly understood how upsetting a lack of routine is for him then he, like any good dad wouldn't dream of it.
  3. He probably does deep down. He must find life hard so perhaps copes by being self-centered. I only have one child and I think he would find it very hard to cope if I had any more as he can't cope with the kids at school and needs to spend time on his own each day. It must be hard for you too and I hope the break apart helps you both. Get some rest!
  4. That really tickled me! I for one share his sense of humour .
  5. What you said struck a chord with me too. My son said he was going to "murder" himself when he was 5 and has ran out onto busy roads twice. He also can be happy one minute and distressed the next. It is as if things overwhelm him. At school if something upsets him he copes by forgetting about it till he is in a safer place - i.e at home where he can kick off big style so I struggle to understand why when he gets upset. I can't get the school to understand how difficult he finds school life to cope with as they just get to see his "normal" side. It sounds to me as if you are doing a really good job of dealing with him. And believe me things will get easier as he gets older and gains more self-control. You neighbour sounds clueless to me. Is she works with ASD kids she should know better than to question a diagnosis when she doesn't know enough of the facts.
  6. chriss

    Happy Christmas

    He is still awake and showing no signs of sleeping. how the heck is SAnta supposed to come?
  7. I have tried every brand of fish oil going but can't find one that my son will actually take!
  8. chriss

    DLA Refusal

    Yes - definitly appeal. It sounds as if you have been turned down purely because they haven't seen enough evidence of your sons problems. The experts report will make a huge difference. You will not have to take your son with you to appeal and it is worth thousands of pounds to him and the money is meant to help him so you should do it. It might be worth contacting the CITIZENS ADVICE BUREAU as they will help you prepare your appeal. Good Luck!
  9. Sometimes my son (who has aspergers ) looks very much like he has ADHD. He literally bounces off the walls and never gets tired no matter how much he runs about. But other times he will sit quiet and read a book or watch Tv which is not typical of an ADHD child at all, so I find it all very confusing. It isn't dependant on what he has eaten either. I can guarantee he will be wild every day after school as he releases all the tensions of the day but as soon as he is given a Beano he will calm down completely.
  10. I remember making a paper mache pig out of a balloon, an egg carton and some flour and water paste. I can't remember how much flour you need to add to the water though.
  11. chriss

    Managing feelings

    I got "when my autism gets to Big" for my son and was quite disappointed with it to be honest. it's Ok just massively overpriced for what it actually is.
  12. chriss

    WISH ME LUCK!

    Wishing you the very best of luck.
  13. I didn't know you could get Barbie shaped pasta! This site is more informative than I thought.
  14. Congratulations! He's gorgeous and I love the name you have chosen for him.
  15. Why don't you put yourself first and take what you want from the works outing ( maybe a good nosh up?) and give the pool a miss? Unless you actually enjoy playing pool - which is something I can't relate to!
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