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phoebe

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Everything posted by phoebe

  1. woah.......................................... what a load of sh*t for you. <'> <'> <'> <'> <'> From my experience I was told they would take about 4 weeks to kick in. Anyway, I was first given prozac and although the sleeping improved, and I cried less, i felt emotionally dead and wasnt really reacting to anythting - left it 2 months before i returned for repeat script and then tried another med cefalexin which did work for me. I am now off it. It gave me the strength to put some things right in my life and to tell the people who mattered that I needed some support. Anyway the moral of the story is, wait 4 weeks but no longer. If they are not working by then TRY SOMETHING ELSE. Take care things will get better Phoebe <'> <'>
  2. me too, I would be interested inthe link also - please pm it to me Thanks! Phoebe
  3. Yep. well done and keep on going for it. Almost 9 years on, the smell fof smoke now revolts me although it took a long time to get to that stage and sometimes even now I will smell it and think...................aaaaaah I could fancy a puff. BUT you feel better, you are cleaner, you have more disposable income, more energy, better taste and all the other positives that others have mentioned. I have occasions when I feel soooooooo stressed that i really feel like I need a vice to help me through, and have occasionallly thought about blagging a fag from a friend or taking a sneaky puff, but I dont want to be a smoker and presumably neither do you. Hang in there. It takes a while but it is sooooooooo worth it. Well done so far Phoebe
  4. Hi So sorry you are feeling so low. <'> <'> Have you got anything to look forward to? Can you get out and have a bit of a break/ recharge your batteries and come back fighting. I think we have all been there and noone but someone in our situation will understand what it is like every time the phone rings during the school day and your heart sinks just in case it is the school. What a miserable excuse for an inclusive society. If they cant see a physical difficulty, they always try to avoid the issue and lay the blame with the parents or the child. I have recently come back fighting and have written to EP's, the LEA, the local MP and anyone who should hear our voice, but I know how much energy and exhaustion just living can sometimes cause. On top of all the stresses we face, we are still trying to be supportive parents for our misunderstood cherubs who need somewhere in the world to take refuge (more stress and also ******* difficult)! I know the cycles of our lives mean that I will be down again, but at the mo, I am cruising along fairly well (wait for the big crash) . In the meantime a funny story - although my son is still in year 4, I have been visitting the local senior schools (planning ahead to try to get it right) and at the first one (of 6) I went to, the headmistress was greeting all guests. She approached me and introduced herself and I replied I am Mrs * . (I have an unusual sirname) She seemed surprised and repeated my name and I thought OMG surely B's reputation hasnt preceded him by 3 years, I cant believe she has heard of me already!! NO!!!!!!! It turned out it was her maiden name! Try to keep your chin up. <'> <'> <'> LOL phoebe
  5. Hi folks I have recently applied for a statutory assessment for my aspie son, I have had a letter asking me to provide more info so they "can decide whether or not to go through with it" BUT more interestingly, I have just finished speaking with the Senior Ed Psych for Hampshire who is trying to persuade me that the best route will be for a "inclusion partnership agreement" to be set up whereby all interested parties meet on a regular basis and put together "action plans for the best way in which to support him." I feel sceptical about this idea because we have had many multi agency meetings before and have regular liaison with the school, but what he needs is some extra support from someone who he can trust who can take him from year to year and help him to iron out those inevitable problems that relate to the transitions he will face........ you know all the problems. If I decide to go for this, i have to withdraw my request for a statutory assesment. What do you think? Is anyone out here with previous experience of this solution? Are they palming me off again? Will it be another pass us from CAMHS to EP back and forth exercise, with none coming through with the HELP that he needs? CONFUSED??? Any comments? Phoebe
  6. MMM You must be exhausted - know the feeling. I have tried most things with my son. We have always had a strict routine for bed time and go through various stages of sleep patterns. He is 8 now and sometimes I am desperate to sleep myself, but too worried to go to bed before he is asleep. We have a strict rule that he is not allowed out of his room other than for bathroom breaks, so at least he is contained! He seems to find it desperately hard to switch off from the day and actually states that he doesn't need any sleep, thinking that he spends all night awake on occasions. I have found that if I stay with him I am continuing to stimulate him even if I try to just be there without engaging him in any way. The saving grace has been having a selection of story tapes that he will happily listen to quietly over and over again until his body finally allows him to relax enough to go to sleep. I have also tried Alpha Music a relaxation programme which I found on the web of hypnotic (well I thought so) music which helps you to relax. It did wonders for me - not that I need any help in that department! but was not to B's taste!! Maybe it will work better when he is older or it would have if I had introduced it younger. We do find music a great therapy and often use some old favourites for lightening the mood when a meltdown seems imminent. Some children, feel more secure and able to sleep if they are cacooned like a swaddled baby and this helps them to get to sleep, but this is only what I have heard rather than something that I have experience of - maybe someone else will come up with some guidance on that. B will often throw his covers off and never stays still, so this wasn't an answer for him. Anyway, best of luck. Keep up the good work and hope you find some light at the end of this particular tunnel. Take care Phoebe
  7. phoebe

    Introductions!!

    Hello all What a welcome relief to find some people who speak my language! I thought I was going mad and that perhaps all my sons attributes are down to my parenting rather than his aspergers - as the school would have me believe. Anyway, here I am a mother of two with a failing marriage that I am not strong enough to get out of yet, an 8 year old with Aspergers and a 4 year old NT who just has to put up with it all. Starting the statutory assessment process and hoping and fighting and hoping and fighting and hoping. Glad to be on board and sure I will be a regular visitor! Phoebe
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