Clare63

Thanks for that Barefoot, funnily I had a letter from my MP the other day re a petition I signed, so I ahve all his details, but be worth giving it a go. Clare x

Curra, thank you for your kind reply especially as I know you are going through the mill at the moment. The GP would not supply melatonin and the women at CAMHS said they don't like to prescribe it either. Basically in the mean time I have got to remain bubby and positive and jolly my son along....yeah easier said than done. Thanks for your support and I hope things improve fr you too. Clarex <'> <'> <'>

Cat, I don't think the DW had a clue, even when I was sobbing down the phone that I didn't know what to do. My Mum also suggesting turning up and saying I not leaving till I can see someone, would love to do that but at the moment just don't have the guts. Have gone with the appointment of the 19th, she told me to keep telling my son how well he has done about things and encourage him to go to school what the bl**dy hell does she thi9nk I have been doing for the past months, years, days, weeks. I expect and hope I'll pull my socks up in bit and get ready to fight again, but I am not too well myself which seems to make things doubly worse. Thanks for the advice musch appreciated. Clare x <'>

Mel, that's exactly how I feel, yeah he might be 12 and a big lad but he's still my baby and yeah he does have AS but why should these kids have to suffer and like you say noone tells you "how to live with it and how not to feel so awful" Thanks for your support its good to know someone is lsitening to me. Clare x <'> <'> <'>

I am so frustrated, my DS is getting worse and worse, his anxiety is so debilitating and yet again we've been off school all week. He can't sleep for worrying and is up half the night, its exhausting for us all, because of lack of sleep he is less able to cope. He says he is scared all the time, has trouble completing day to day tasks such as getting washed and dressed. He is miserable and seems depressed. I took him to see our GP on Tuesday who was clearly shocked that we were not getting any support from CAMHS and questioned why I had come to him rather than contact the hospital (I thought that was what I supposed to do). I told him how low DS is and the sleeping problems, I also explained how I was seeing another GP fro depression and counselling. I enquired about getting metalonin for DS to help him sleep from research I have done it also sounds like it can take the edge of anxiety. The GP said he would not prescribe anything for him but would contact the hospital as a priority. He told me to phone CAMHS and tell them this and ask for an appointment. CAMHS told me our case was closed ..... thats great there you go your son has AS bye bye... I explained our GP was referring us and they asked for that to be faxed. Two days have passed and I've heard nothing. Just come off phone from CAMHS who said yes we can offer us an appointment on the 5th June !!!!!!!! how the hell can we wait this long, I went mad and quoted from the Psychiatrist reports which said any signs of withdrawl or increased anxiety must be taken as a warning, she explained that my DH, myself and school should keep an eye on this and should seek furher support. I have now left it that the duty worker will look at our case and phone me back to see if it could be treated more urgently......she's just rung back, she is going to ask the psychiatrist who dx us if she would see DS without another assessment (another assessment why ????) otherwise she could offer us an assessment at another hospital for the 19th of April. So now awaiting another call. Sorry to go on but I am so frustrated, especially when I asked why our case has been closed and she said well there's nothing we can really do for aspergers. So I guess I have just got to get on with it. Clare x

<'> <'> <'> <'> <'> <'> Curra don't know what else I can add that the others have not already said. Just remember you have us all here and you rant away as much as you want. I really do feel for you, I understand what you say about trying to judge if they are being manipulative, my DS is also very anxious and at the moment is off school again, I get that trapped feeling as his demands on me are so great and I find it so over whelming. I am so sorry you are not unable to go to the seminar. Take care and keep posting on here, though it does not always solve a problem I certainly find talking about it make me feel a bit better. Clare x

Great site and excellent work hope you get lots of new members. I like the more unusual pictures like the two dogs, the CD's and the fungi and oh yes the swan photo is beautiful.....I could go on. Good Luck Clare x

spirit

<'> <'> <'> <'> <'> <'> Appalling Appalling Appalling...... sounds like this women should be dismissed from her post Sorry you and J are being put through all this, I hope he's feeling a little better tonight poor lad. Clare x

<'> <'> <'> <'> <'> Hope everything works out for you Clare x

<'> <'> <'> <'> <'> Hope everything works out for you Clare x

Rach, I know how you feel my DS is an angel at school but is taken advantage of etc., when he comes home I have to deal with the fall out. We are more out of school than in at the moment, they are trying to help but I don't think they really understand him and that whilst he looks ok on the outside inside he's is overhwelmed and tatlly anxious. School said today we need to break the "cycle" oh yea right lets break the "cycle" everything will be all right.....if only it was that easy. Oh dear sorry to rant on your thread, but the school thing makes me so angry and I just don't know how to put it right. Clare x <'> <'> <'>

<'> <'> <'> Oh Hev of course you miss him I am sure he'll miss you too real soon, take this as an opportunity to re charge your batteries. Take care and try not to worry too much. Clare x <'> <'> <'>

<'> <'> <'> I know it does not help but my son thinks Bill is well cool.....saw his video clips on you tube !!!!! Sorry your having such a bad day I can truly empathise especially where the PC thing is concerned we too have just had mouse trouble.....you'd think the dam thing was his life support machine ! Clare x

Oh my God Mel, what is she like !!!!! Any chance getting back to the school asap and tell them what happened today, one day after your meeting and that this is just one of the reasons why you want his TA changed. Maybe your husband could ring them, I have found "the old man" (sadly though mines 5 years younger than me!!!) sometimes gets a better and quicker response than me as they seems to think I am neurotic (ah thats a thought maybe I am). <'> <'> <'> Clare x

<'> <'> I am still ploughing through trying to fill my DLA form out, so go for it ! <'> <'> Good luck Clare x

I'll come if I am brave enough to drive that far !

Hev, Glad to hear your day has improved. What good idea to jot down the positives.....trouble is I can't think of one at the mo.....ah except perhaps that when Con's TA phoned today (he's off again too stressed/anxious to go to school) she really encouraged me to be forceful with my GP to get Con some help, she told me I 'd have to fight as she did with her son and she really seems to understand, trouble is on the negative she told me her son died a couple of years ago....which made feel dreadful. GP won't prescibe Con anything and has sent a priority referral back to CAMHS as he said we clearly need more support and help. Sometimes it takes something major to happen to bring everyone back into line I am pleased to hear your family etc are rallying round and supporting you. Take care and I look forward to hearing tomorrow's positive. Clare x <'> <'> <'>

Oh Hev, I just don't know what to say, what a nightmare. Hope you get all the help you need. Thinking of you. Clare x <'> <'> <'> <'> <'> <'>

Oh kerry.... how confusing this all must be, you've been given some good advice above and I am afriad I have nothing much to add. I did some research into PTSD whilst at college studying counselling I did not come across any links to child birth, yes maybe to the Mother or Father but not to the actual child. I would get a 2nd opinion. <'> <'> <'> Clare x

Toffee

Thank Donna & David, He's woken up now, very tearful and miserable. Watching Footie with me in the lounge with a cup of hot chocolate and a bowl of cereal. Be hours now I expect before I settle him back down, I think he's exhausted though as I heard him wandering about at 4 this am, said he could not sleep cause worried about school. He worries me silly, in fact I think he could be depressed again. Anyway thanks for your kind words. Clare x

maggot

Yep think there is certainly something in the air water etc., as I have just commented on a post to Donna, we have the same problems today. I seem to have that "I want to go home" feeling constantly !! All I can offer Hev is a few of these <'> <'> <'> <'> <'> <'> Clare x

Oh Donna poor you have a couple of big <'> <'> <'> I can totally empathise we have the same problem day in day out. Maybe its something in the air but Con has crashed out on my bed since coming home from school and is well grumpy and off , would not come down for his dinner, so I have given up and left him there, guess me or DH will be sleeping in his bed tonight. I hope upping your dose will help, mine has taken the edge off feeling so emotional all the time, obviously it does not make your troubles go away but helps you cope a bit better for a while, if yours are anything like mine they take about 2 weeks to kick in. Sorry to hear about your water infection like you say that's all you need Here's to a better day tomorrow. Clare x <'> <'> <'>