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Everything posted by jenny1969

  1. hi everyone i dont post much but i am on here all the time, my daughter who is 8 and had her dx when she was 3, i have just bought her a therapy buddy from usa me and my husband saw them on tv i think it was called american inventor something like that ours in the uk is called the lions den this guy came on with these little blue doll who are soft and squashy and if you press their foot it tells you everything is going to be all right my husband thought one would be ideal for our daughter as she gets so upset and stressed , she loves it we bought the big one and the baby buddy she takes the baby buddy everywhere i just wanted to let you know about them i know they are not for everyone but we have found it a great help for calming our daughter down. jenny xxxx I have Edited the web address included on the post in line with Forum rules as it would be considered a commercial web site promoting the product. Please pm Jenny for more information.Regards Karen.
  2. hi my son was the same he use to get picked up by school taxi that picked so many other children up as well the way we got round it he would have headphones on listening to music he would always get in the same seat he would put his hood up and just look out of the window, he still does most of this now when he gets on public transport he will try his best to get a window seat hood up music on he said its the only way he can cope to block out as much as possible, my daughter goes silent on a bus and almost hides into me until we get off then she is ok but its not very often i have to get a bus as i have a car...jenny x
  3. <'> thank you all for your sound advice i have phoned school this morning to let them know what is going on and i have a appointment to see my gp on wednesday to get a sick note and i am getting intouch with the paed again tomorrow, thanks again i dont know what i would do without this web site and all the sound advice you get from everyone, it can be hard when you have no family for you to turn too my mum lives in new zealand and my dad lives in canada and my hubbys mum isnt around much so this forum is my life line to great advice and ideas thanks ............jenny x
  4. just to say i havent sent my child back to school yet due to her being so upset at the thought of it, she is stuggling to cope with school and school is making her behaviour at home worse, i made an emergency appointment with paed and got a cancellation wed told him everything he got on to school straight away and asked for her teacher to phone him back when she is free on his mobile and he is sending her back to see the psychologist. this week at home we have been doing work i bought work books and a world map off the internet so we have been doing maths and english before lunch then after lunch we read then a bit of work on the pc then she picks what she wants to do go out for a walk,library,painting that sort of stuff she loves looking at the world map she has been a joy all week she is like a different child. the only thing is until i see the psych do i send her back to school or do i keep her at home the paed did say that the psych needs to go into school to watch them with her he said they are not dealing with her needs properly and we need to find out what is going on i did tell him i feel like i am kept in the dark about her the teacher will say she has had a good day then i am told off her class mates your little girl has been crying alot today. if i do keep her off for a while do you think i should see the head teacher tell her what is happening and do you think i will get into trouble off the welfare officers, i hate all this not knowing what to do all i know is my child is at rock bottom where school is concerned and i feel i need to do something i feel like a little fish in a big pond at the moment but any advice you can throw my way i need all the help i can get jenny x
  5. hi mel i know just what you mean my daughter is the same her fingers get so bad they are cracked split bleed and she only does it when she is in school when she is off school on holiday they heal up especially the 6 week holidays but as soon as she is back so is the picking i have tried everything i can think of but it doesnt help that she only does it at school and the teachers have never seen her do it the only time they know she has done it is when she makes them bleed it makes me feel so sad to know she is that sressed she can do this to her self hang in there if you get any tips pass it on jenny
  6. thank you all for all your advice its always a help to hear from parents who are doing it or have done it thanks once again jenny
  7. i have been thinking about homeschooling my daughter dx asd who is 6 i have been looking in to it for months now doing all the reserch i can about it i have done it before i had to homeschool my son at 13 for about 8 months until we found him a school that was suitable for his needs, i am just after advice from anyone regarding this how they have found it ? have they noticed a difference in their child since they have taken them out of school i have read of one parent who child went to school part-time anyone else heard about this ? i know i have to do something with her the school she goes to have done all they can to help my daughter its a great school the teachers do all they can for her but its just not working for her she just not thriving my husband sees it as torture for her she struggling so much with the school environment its affecting her ability to learn after she gets home from school it takes me about an hour to get her calm and back to her happy self my evening consists of lots of reading writing drawing painting anything that involves learning she is like a sponge she is like this everynight till she goes to bed about 10:30 even then when she is in bed she has to have lots of books and a dvd on but at least if i do this i have more chance of her staying in her room at bedtime. at school the teacher has told me that anytime they introduce new work she goes to pieces their is loads of things she does at school i dont have to tell you as you will all know what they will be, any advice will be much appreciated sorry i have gone on a bit jenny
  8. i got fab ear defenders for my daghter off ebay they are ace and in her fav colour pink she loves them wear them when i hoover when we go out and are a must on bonfire night she loves the look of fireworks but hates the noise so they were fantastic last year she was outside watching the fireworks instead of in the house watching them through the window jenny
  9. <'> just to add my daughter can be a bad sleeper she wouldnt sleep till after 1am up in the night up as soon as she saw daylight we did her room pink fav colour disney princesses lamps big disco ball with light on celing filled it with loads of her fav toys tv dvd and the biggest thing a water bed as you can see i was desperate for sleep but it has helped she still goes to bed late 10:30 but her routine then putting her fav film on her lights on bedroom is like a disco and she loves the bed i think because its warm and squashy and soft she stays in it its the best thing i have ever bought she might stay up till early hours and be awake at the crack of dawn but she stays in her room all night now watching tv even in the morning she just puts her fav film on and lies in bed she needs so little sleep and it doesnt bother her we called her our ever ready battery as she was always on the go no matter how little sleep she had but it was affecting us as a family it was making me ill but now i get to sleep all night most nights we do have our ups and downs but its miles better than it was fingers crossed you will manage to find something that helps you and your child it ony took me 5 years but i think we have found just what se needed a bedroom like a pink disco and a warm soft squashy bed thats she like to get in and stay in jenny
  10. jenny1969

    need advice

    thank you so much for your replies they do help jenny
  11. jenny1969

    need advice

    hi my name is jenny i havent posted much but i do come on here every day to see how everyone is i am after advice regarding my daughter who is 6 and has a dx asd she is in mainstream school when she goes back she is in year 2 she is doing ok at school we have our moments she can be stressed by school she hates to leave me she has this thing for me maybe obssesive she asks for me a lot in school "i want my mummy" they do reassure her and tell her its not mummy time yet she cries for me tells me she has missed me looks very stressed when i pick her up they always say she was fine she loves to be home with me always asks if she can stay home with me gets upset when i say she has to go but i do get her to school ok the thing i am worried about is there are 2 other children that i know of who have needs one little boy is deaf and the other little boy is like my daughter asd with my daughter being very passive i am worried she is going to get over lookes because she can be so quiet and when she is unhappy she picks at her fingers till they split and bleed but they never notice the little boy with asd is going to be statemented his parents have asked for this and the school agree because he can be a hand full i talk to his mum everyday at school do i ask for a statement for my daughter i have worries she has learning difficultys but not sure what age this can be checked do i ask school to check this or should i get in touch with my daughters paed who she sees regular i just feel so stupid as to what do i do to make sure my childs needs are met and she is not just being left because out of the three in the class she is the quietest when she gets home from school she is so fragile little things will set her off she can be so stressed she likes to get in bed and watch her fav film never wants to go out of the house if she can help it she is a right home bird its just that because i dont see whats going on in school i feel i dont know what is realy going on i do feel they keep things from you please any advice would be great as to what i sould do i think year 2 is going to be the test for her i need to know what i am doing regarding school i am sorry i have gone on a bit jenny
  12. hi my daughter who is 6 and has asd does stammer at times only slightly but others really bad its bad at christmas and if she is having a hard time at school last christmas it had got so bad she just couldnt speak i would say to her have your words got stuck and she would nod and give up then when she was on christmas holidays from school with in 4 days the stammering had gone and she was fine but i do see it at times when she is having a hard time coping at school it will come back really bad its terrible for her it comes and goes depending on her stress level jenny x
  13. i know everytime i feel like **** i come on to here and have a good read and see how everyone is doing and it makes me feel better that i know i have support if i need it i dont post often but im on everynight it makes me feel better <'> jenny i hope you are feeling better soon <'> jenny
  14. just wanted to say my daughter has a hard time at school and cries for me a lot and just wants to go home and be with me yesterday when i picked her up she looked terrible i could tell the day had not gone well teacher let me know it had not gone well well when we were on our way home in the car she told me she missed me at school i told her i missed her too then she said devon loves mummy too much talk about being hit with a brick i was almost in tears trying to drive home dont they say some amazing things at times jenny
  15. <'> hi to you all thanks so much for all your replies it helps so much, well its monday another week she looked abit worried this morning we will see how she goes but she is looking forward to the school holidays she loves being at home and doing the things she loves at the minuite we are having to watch roger rabbit ( i know it word for word ) but it keeps her happy thanks again hope to speak to you all soon jenny x
  16. thanks for your replies it realy helps jenny
  17. hi to everyone i dont post very often but i do come on alot for loads of advice and to see how everyones doing i thought i would post tonight for some advice my daighter is in mainstream school she is 6 and has a dx of asd in her class is a little boy who also has a dx of asd my worry is my daughter is very quiet and when she is upset she crys alot and asks for me all the time she bites her fingers aswell when the little boy gets upset he is noticed more because of the way he reacts they cannot ignore him me and this little boys mum talk alot in the playground and we always ask each other how they are doing she even said to me that my daughter is worse off in class because they ignore her when she crys and is upset but she said with her son they cannot ignore him he kicks off too much, my daughter can become very withdrawn and cries for me every day many times a day i feel terrible and when she comes out of school she looks like s**t she looks ill the other day she said to me she doesnt want to be human when i asked why she said she wants to be a dog dogs dont go to school does anyone know of anything that i can print off and give the teacher i am sure because she doesnt kick off the same as the little boy they think she is coping when infact she is not even the little boys mum has said its not fair the way they are with them she said its like they forget about her even at parents meeting the teacher admitted that one day she looked at my daughter and realised she had not spoke to my daughter all day i dont know if its true that girls symptoms are more milder than boys i dont mind if thats the case i just dont want them to forget about her or think she is coping when she isnt sorry i am going on a bit but i hate that she cries for me everyday at school and i am not there and worse still they hardly tell me i hear of other mums or other school kids at home she is such a happy little soul as long as we dont go out to places she hates
  18. hi i just wanted to add i am very happy at how strong i can be for my children and all i have got for them no doubt i will have bigger fights in the future and i will be no push over but i also end up in bits when my daughter does or says something all of a sudden it hits me hard how much she struggles and it kills me to see this and i just crumble then after a while i pick myself up and carry on jenny
  19. thanks to you all for your replies it realy helps and it give me some ideas of what to try thanks again jenny
  20. hi my daughter dx asd who is 6 has become obsessed with one child at school a little boy he is the only one she will play with but when he says or does something my daughter doesnt like or understand she is upset all day(he called her a clown one morning and the teacher said she was so upest all day and then spends all day asking for her mummy)this upsets me i try to talk to her about it but its hard for her to understand the teacher has tried everything to get her to mix and play with other children but she will not the teacher said if she carnt play with this little boy she would rarther play on her own no matter what they try she is having non of it has anyone else had this with their child at school and should i be concerned could their be problems thanks jenny
  21. hi my daughter who is 5 can go on and on about death if we pass a funeral car she wants to know who is in the box and expects me to know and then goes on to be upset about me dying and i cannot die as she will be alone and she is staying at home forever so i cannot die as i need to look after her at home its upsets me because she gets so worried about it and it bothers her so much and i think you shouldnt be worried about this at your age i try to comfort her and explaine she has her brothers and sister but she says no i hate them mummy look after me forever if only i could jenny
  22. hi i just wanted to add my daughter is a bad sleeper can be up very late but in the end i gave in and and got her a tv in her room her pead advised us not to because she would be up all hours watching it but she was up all hours anyway for our health i put a tv in her room that did help a little but the best thing we bought was a waterbed for her she loves it she says its warm and squishy she sleeps the same but she will not get out of bed now she likes getting in it she watches tv and she seems so relaxed the only thing now she hates getting out its been a god send i put her in bed at 9 she puts the tv on and she is happy as anything she is awake till late but atleast she stays in her room and in bed its made such a difference to us as a family jenny
  23. jenny1969


    hi my daughter is 5 dx asd when she was a baby she had all the jabs as i was non the wiser but by the time she was due her mmr she was starting to behave in a funny way i didnt know what it was but all the news at the time was mmr and autism so i went down the single jabs route i just didnt know what to do i knew she was behaving differently she was dx asd when she was three when it came to her booster i told the doctor she would not be having the mmr but i would have the dtp one only if it didnt have the mercury in i had been on the internet and knew what i was looking for but the doctor was great she said our practice doesnt use the old one any more and she let me have the box and the paper with the list of what was in the jab but i cannot help to wonder was the damage done when i allowed her to have the old jabs as a baby when i have another baby i will want to know everthing thats in the jabs before i give them to them and i will make up my own mind what is safe for my baby fingers crossed i make the right ones i just cannot help thinking about the jabs she had as a baby because it was me who agreed for them to be given to her sorry for going on a bit jenny
  24. thanks annie thats a great help i also had a letter and i said i wanted to be my sons appointee i spoke to my son about this and he knows he is no good with money once i let him go to the cinema with his brother and some lads came over to them asking did they have any money my son with the dx said yes and got his money out before my other son could say anything they had took all his money off him and walked off he gets worried know when he has money i have told him he is like the queen she never has money on her so he tells people i am like the queen they never get the joke, sa far as college goes its very early days i just hope he gets the support the one good things is they work in one room and the size of the groupe is small i have been a mess since monday thats when he started he is a big 6 foot lad but he can be so vunerable its funny you never stop worrying about them thanks again jenny
  25. hi i am after any info regarding dla once they are 16 my son has been getting dla for a while and was awarded it again just before his 16 birthday they said he can have it till 2007 but then he turned 16 and they have stopped it and i am getting a visit i am wondering is it because he is 16 or that i have got him into college 2 and a half days a week(fingers crossed he can do college)anyone had this before when i told my son he has someone coming to see him he has not stopped going on about it he is getting very stressed by it any advice would be great jenny
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