ScienceGeek

Thanks for the reminder, will set it to record on my sky+

When I had my MRI they gave me headphones to block some of the noise out. It was still very loud though, but I imagine it would have been a lot worse. What you having scanned? Mine was to scan my knee and my spine so I had to go right inside

Congratulations!! :dance:

I wish you could give me them! Seriously. I'm fighting to get my hours increased, I get a measley 3hrs a week and that was a battle to get. There you are being offered 20 and you don't want them!! Moan over I hope you get the help and the diagnosis that are correct for you.

Having took a brief look at the site, it seemed to me to be similar to Naidex but for autism. When I get the chance to have a look more closely then I'll probably make a decision for definite wether or not I will be going. Right now I have some really tight deadlines so don't have the time.

I'm planning on going

Hello from my samsung android phone

I always do them despite knowing that it is pretty much a futile attempt. My MP is a new MP who is 100% party line. Here is the response I got from mine: Thank you for taking the time to contact me regarding Disability Living Allowance (DLA) and other benefits for people with autism. I would like to commend the National Autistic Society for the important work they do to help those with this condition. I would like to assure you that the Government recognises the challenges faced by those suffering from autism. I believe that we need to tackle the disadvantages which people with autism and their families so often face. The Government recently published Implementing Fulfilling and Rewarding Lives, which provides guidance for local authorities and NHS organisations to secure implementation of the autism strategy. I realise that you are concerned about the Government’s proposals to reform DLA. However, DLA is currently a poorly targeted and unsustainable benefit. Almost three million people receive this benefit at a forecast cost of £12 billion per year and 140,000 people on DLA have had no contact with the Department for Work and Pensions since 1992. Changes to DLA are long overdue and must address questions of fairness and value while supporting disabled people to lead independent lives. As you are aware, the Government has introduced its Welfare Reform Bill, which will reform DLA and replace it with a new Personal Independence Payment. This is an opportunity to improve the support for disabled people and enable them to lead full, active and independent lives. The Personal Independence Payment will maintain the key principles of DLA, but it will be delivered in a fairer, more consistent and sustainable manner. It is only right that support should be targeted at those disabled people who face the greatest challenges to leading independent lives and this reform is required to enable that, along with a clearer assessment process. I realise that you are concerned about the proposed objective assessment but I would like to reassure you that the Government is developing this assessment in collaboration with a group of independent specialists in health, social care and disability, including disabled people. The assessment is intended to focus on an individual’s ability to carry out a range of key activities. On the Mobility Component of DLA, after speaking to disabled people and looking at reports like MENCAP’s Don’t Limit Mobility, the Government will now review mobility provision in care homes as part of its wider reform of DLA. This is because a review will allow the Government to put in place proper support for care home residents that takes full account of their individual needs and puts clear duties in place to safeguard the vulnerable. In listening to the experiences of disabled people and their families, it is clear that the current system is not working in the way it is supposed to. The Government remains committed to removing the overlaps in provision and making the changes that are needed but it recognises that it is important that this is done correctly. Reviewing this will give the Government the evidence base needed to make changes. I want to assure you that this Government does not regard caring for the needy as a burden, but as a proud duty. Thank you again for taking the time to contact me. If I can be of any further help please do not hesitate to get in touch.

Hi there Mumble, Just a quick reply from me here. I am also diagnosed with HMS/EDSIII, I would highly recommend checking out the HMSA forum boards as there is a long standing thread on there about the link between hypermobility and HMS/EDS. Here is a link to one of the threads, not sure if you are able to access it without being a member of the site - http://www.hypermobility.org/forum/viewtopic.php?f=4&t=3717&hilit=autism There are a lot of conditions linked with HMS/EDS and it really does vary from person to person as to the severity, I know some people who have quite a good quality of life and have very few dislocations, subluxations and then I know some other people on the more severe side of things. The good thing is that it isn't life threatening in the majority of cases so it is more the case of finding ways to pace and manage the condition as best as possible really. There are some really good books out there about it and a lot of knowledge floating about on the HMSA and EDSG forums SG

I know that it is possible to be assertive without being rude or demanding. I will look into assertivenes books/classes thanks for the suggestion. I definitely don't want to come across as rude/demanding but most of the time I have no idea how I come across to people. I just don't know how to get the things I need, and how to be firm on that, and what is reasonable to ask of a person. I am trying though, so it's not like I'm using my autism as an excuse. I don't have anyone to guide me on that front. People think that I'm assertive and confident, when really I'm not or at least not as much as they think I am.

Anyone else feel like being too passive means that their support needs are being overlooked? I've got to the point where I am just fed up and mad at myself for being so reasonable/accommodating/passive all the time. I feel that because I'm understating the problems that I'm having and trying to be strong that it appears that I'm doing better than I really am. That people don't truly know that I'm annoyed with them, it's that whole mentality of not wanting to "rock the boat" or cause a fuss. So I am then being let down a lot because I find it hard to communicate that I am angry/let down etc. I find anything that could potentially cause conflict really hard and I run away from it because it is harder to face the problem and deal with the conflict, and find it really hard to ask for help.

Still no support and it's been nearly 5 weeks. No news about when it will restart/what time my next session is. I've just sent a strongly worded email to the person who runs the service. This is not on.

Unfortunately this is happening a lot across the country. I know locally in my council it has been substantial or critical for sometime, I barely scraped through when they first assessed me as substantial. Some authorities are going as far as only funding critical

I'm really bad for misplacing things. I'm getting better at it, but I do have to really search at times to find things that I need before I leave the house.

In 2009 I started having support as I was really struggling to cope, this was provided by 2 support workers from different places. 1 support worker was from a mental health organisation and they didn't tell me that after 6 months they cut their support in half, I was only told this at the last minute. The relationship with my support worker deteriorated and eventually stopped, effectively cutting my overall support of 6hrs in half to 3. This support was never replaced. I've been told by my social worker I need more support but yet my support has been halved in the last year. My second support worker is from the NAS. I've had them since late 2009, and in the duration of 2010 I've had my support worker changed 4 times. This has been very stressful as a couple of them were very last minute changes. Everytime I just start to trust them, for whatever reason they leave. I have to spend the energy explaining how autism impacts on my life, build up a rapport with the support worker etc and that takes time. It doesn't help with all these changes. The NAS support is the only support that I get now. I haven't had any support for the last 2 weeks (1 I couldn't do because I was on holiday, but I was here this week). They knew that my most recent support worker was leaving, but only now are trying to sort it out. I was told that they have sorted a new support worker but it can't be implemented in the rota for another 2 weeks, this means that I've been without any support for a whole month! I need this support to keep on top of things, I can cope with a week, 2 tops, but a whole month. I just feel really let down right now.

I'm really sorry to hear you had to go through that. Have you contacted the police? That is assault and should not be taken lightly. Sorry I didn't reply sooner but I wasn't in the country and didn't have access to the internet. I hope that you are ok. SG

Maybe Remploy might be able to help? I know they have joined up with the NAS now so if Prospects isn't in your area then Remploy might be?

Can't wait to see it! Going to watch it with NAS cinema group on Wednesday

I didn't think that ASD was classed as a learning disability. I know personally that I was passed around between mental health and learning disabilities because they said that AS wasn't classed as learning disability or mental health therefore I wasn't under anyones remit. Having trouble accessing mental health at the moment due to them seeing AS and running a mile saying we don't treat AS, but what about depression?

Currently working on the latest Pratchett book on my kindle

I've read in many places that aiming around 1% body weight is a safe sustainable weightloss. I'm around 211lbs so a safe loss for me would probably around 2-2.5lbs a week

I think the main thing is that the booklet is meant to cover a whole range of situations and sometimes only a few parts will be appropriate to show. It isn't meant to be read from front to back for one meeting. The other thing is that any pages that you feel are irrelevant can be removed as most sections are on separate pages, they are aware of the formatting issue which should be sorted before it is released the hard copies we have seen have all the formatting correctly done. I'm glad that you have taken the time to leave feedback though as constructive criticism is what was sought, and I'm glad that we pushed for a wider consultation.

For the last couple of years myself and Trekster have been part of a group that has been working on a self advocacy booklet with the NAS. We've had a lot of consultation meetings and have been working hard on getting the wording just right. We felt that it was better if there was a wider consultation as there was only 7 of us and we couldn't possibly speak for the needs of all on the spectrum. This has led to the self advocacy booklet being put on the NAS site for further input, the funding is only for england right now but may possibly be rolled out across the UK subject to further funding. That being said it doesn't stop people from other countries giving input! The booklet can be obtained from this page we would really appreciate the feedback, the deadline is Friday 19th November. Please forward this if you know of anyone who could also give feedback/benefit from this. Thanks.

ARGGGGGHHHHHHHHHHHHHHH!!! Too many stressy things to bother explaining, but ARRRRRGGGHHHHHHHHHHHHHHHHHHH!!!!!! :angry: :angry:

Welcome to the forum! Computer science sounds interesting. A few of us on here are students Have a look around, make yourself at home and hopefully you'll find what you are looking for SG