Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team

florrie

Members
  • Content count

    299
  • Joined

  • Last visited

Everything posted by florrie

  1. florrie

    Has anyone experienced seizure or fits with ssri, I went to gp after many years as they don't recognise difficulties of asd, and depression and fears are intolerable and prescribed me seroxat again which i had been on many years ago but came off them due making manic behaviour so bad, I couldn't explain it at the time i just said they were doing me harm but they didn't seem to believeve me so i took them this time when given them i thought oh no but I'll try them again, i felt i had no option this time i had a convulsion so i've stopped, but i am afraid to tell them as I'm so phobic of them due to past experiences
  2. Article on 'Aspergals' in Telegraph

    Thank you for posting that article.
  3. Talking of dodgy media covergae of autism

    What is a flashy expensive hoarding?
  4. Adult Diagnosis, what next?

    Hi Anthony, I know how you feel unfortunately I also had a lot of this sort of treatment from doctors and am now too traumatised to see them. They put me into therapy for years when I have a communication disorder, and gave me SSRI which I had a bad reaction too, and left me worse off. They ruined my life and now I have severe social phobia too. I think if you can you should complain about disability discrimination if you do not get anywhere with a new GP I had to go privately too and I've been dx three times now once by a world class professor whose research created the asd criteria, but apparently the idots at the mental health team who have no knowledge or experience of understanding asd or what it is still do not accept dx. You are entitled by law to a full proper assessment to a specialist in ASD, it is your human right to have that. The mental health team do not do proper professional assessments, you are entitled to be referred to a specialist who does this such as CLASS. I'm so fed up with hearing stories of GPs who are so arrogant and think they are beyond the law.
  5. Budget how will it effect DLA?

    I am terrified about this, I cannot work I have severe social phobia and now I have ME and mitochondria illness, and I get breathless on exertion. and am exhausted all the time. I don't see any NHS GP as they completely traumatised me by putting me for years in counselling therapies and made me quite ill. and led to overdose of seroxat which left me damaged . The I was struck off. I would rather lose mine, than cope with this, I get lowest level and nothing for the physical aspects. This system is designed to make it more difficult for the most vulnerable people and it will be them who slip through the net, I already know others who this has happened too.
  6. MMR scare doctor 'acted unethically'

    I do not understand the hatred toward Dr Wakefield, all he actually said was that he believed there should be further research, he did not actually say MMR caused autism, just that it should be researched to see if there is a link. I agree with him, there should be research as to why some children became ill and lost skills after MMR vaccine
  7. MMR scare doctor 'acted unethically'

    But you shouldn't lose skills, many children lost skills after the MMR also many autistic children have been awarded in the US for MMR vaccine damage, such as Hannah Poling so it isn't safe for everyone
  8. MMR scare doctor 'acted unethically'

    Lets not forget that the parents of the children he was investigating all supported Dr Wakefield. My son went into a coma after his MMR vaccine, and I've also had serious bad reaction to seroxat so whether there is an underlying reason for why some people have reactions has not been proved yet but it does not mean there is not a reason for this. Both my sisters children both autistic also had bad reactions to the vaccine. All reactions are denied by NHS doctors and say it is proved there is no link but it has not been proved that it is safe, and thousands of children have been harmed by the vaccine. This just makes me feel so depressed, I would do anything to have a doctor who would listen to the symptoms you tell them and to something anything to help rather than go along with the status quo and block you from receiving any support or help. Even if they gave a reason but they do not, so I've had no choice but to do my own research As far as I'm concerned it has not been proved that this vaccine is safe and no explanation has ever been given for why my son and others went into a extreme fever, projectile vomiting, then a coma and within hours of having the vaccine then years later being diagnosed with autism
  9. It is a bit different for me than most here because when my son was diagnosed 12 years most professionals did not know what it was in the education and medical system and the diagnosis was given by paediatrician who clearly understood what it was but was reluctant to label due to predjudice the child would receive and did so in order to access the help he needed but he never got it because they didn't understand it, it was very frustrating and did a lot of damage as then he just got a whole bunch of predjdice, that made things worse. I think if he had got speech therapy at ayounger age such as 2 or 3 instead of insulting me and calling me an overanxious ambitious mother etc as they did not understand it, finally it was decided he severe language problems by the time he was 12, and I could not force him to have speech therapy at that age as they made him feel like c**p, had he had it younger maybe those problems would not have got worse but they did not know what semantic pragmatic disorder was. I used to work more than 20 years before I knew what autism was on sensory processing materials for montessori work,, I didn ot know my son had asd as Ihad nothing to compare until my second child, but I did a lot of work with him which I think masked the level of difficulties he actually had and we did our own speech therapy at age 3 and 4 for rewards etc. that is how he learnt to talk, he just learnt parrot style whole sentences as clear as day but meant nothing to him, so for many years it did mask the level of difficulty he was having, he was very distressed in school, it was awful and that was how I eventually worked out that there was something really not right as he regressed each year rather than improving. I think it is possible improve to a level where the difficulties are managed and no longer a problem but I think depending on type/level of difficulty some children may improve more than others, it depends how much other factors such as environmental causes or another reason are involved. I believe improvements will be most by trying and utilising all resources that are specific to you from sensory integration, cranialosteopathy, diet, etc. I guess everyone is different too
  10. Government Concedes Vaccine-Autism Case in Federal Court - Now What? http://www.huffingtonpost.com/david-kirby/...ci_b_88323.html David Kirby Huffington Post Thursday, February 28, 2008 After years of insisting there is no evidence to link vaccines with the onset of autism spectrum disorder (ASD), the US government has quietly conceded a vaccine-autism case in the Court of Federal Claims. The unprecedented concession was filed on November 9, and sealed to protect the plaintiff's identify. It was obtained through individuals unrelated to the case. The claim, one of 4,900 autism cases currently pending in Federal "Vaccine Court," was conceded by US Assistant Attorney General Peter Keisler and other Justice Department officials, on behalf of the Department of Health and Human Services, the "defendant" in all Vaccine Court cases. The child's claim against the government -- that mercury-containing vaccines were the cause of her autism -- was supposed to be one of three "test cases" for the thimerosal-autism theory currently under consideration by a three-member panel of Special Masters, the presiding justices in Federal Claims Court. Keisler wrote that medical personnel at the HHS Division of Vaccine Injury Compensation (DVIC) had reviewed the case and "concluded that compensation is appropriate." The doctors conceded that the child was healthy and developing normally until her 18-month well-baby visit, when she received vaccinations against nine different diseases all at once (two contained thimerosal). Days later, the girl began spiraling downward into a cascade of illnesses and setbacks that, within months, presented as symptoms of autism, including: No response to verbal direction; loss of language skills; no eye contact; loss of "relatedness;" insomnia; incessant screaming; arching; and "watching the florescent lights repeatedly during examination." Seven months after vaccination, the patient was diagnosed by Dr. Andrew Zimmerman, a leading neurologist at the Kennedy Krieger Children's Hospital Neurology Clinic, with "regressive encephalopathy (brain disease) with features consistent with autistic spectrum disorder, following normal development." The girl also met the Diagnostic and Statistical Manual for Mental Disorders (DSM-IV) official criteria for autism. In its written concession, the government said the child had a pre-existing mitochondrial disorder that was "aggravated" by her shots, and which ultimately resulted in an ASD diagnosis. "The vaccinations received on July 19, 2000, significantly aggravated an underlying mitochondrial disorder," the concession says, "which predisposed her to deficits in cellular energy metabolism, and manifested as a regressive encephalopathy with features of ASD." This statement is good news for the girl and her family, who will now be compensated for the lifetime of care she will require. But its implications for the larger vaccine-autism debate, and for public health policy in general, are not as certain. In fact, the government's concession seems to raise more questions than it answers. 1) Is there a connection between vaccines, mitochondrial disorders and a diagnosis of autism, at least in some cases? Mitochondria, you may recall from biology class, are the little powerhouses within cells that convert food into electrical energy, partly through a complex process called "oxidative phosphorylation." If this process is impaired, mitochondrial disorder will ensue. The child in this case had several markers for Mt disease, which was confirmed by muscle biopsy. Mt disease is often marked by lethargy, poor muscle tone, poor food digestion and bowel problems, something found in many children diagnosed with autism. But mitochondrial disorders are rare in the general population, affecting some 2-per-10,000 people (or just 0.2%). So with 4,900 cases filed in Vaccine Court, this case should be the one and only, extremely rare instance of Mt disease in all the autism proceedings. But it is not. Mitochondrial disorders are now thought to be the most common disease associated with ASD. Some journal articles and other analyses have estimated that 10% to 20% of all autism cases may involve mitochondrial disorders, which would make them one thousand times more common among people with ASD than the general population. Another article, published in the Journal of Child Neurology and co-authored by Dr. Zimmerman, showed that 38% of Kennedy Krieger Institute autism patients studied had one marker for impaired oxidative phosphorylation, and 47% had a second marker. The authors -- who reported on a case-study of the same autism claim conceded in Vaccine Court -- noted that "children who have (mitochondrial-related) dysfunctional cellular energy metabolism might be more prone to undergo autistic regression between 18 and 30 months of age if they also have infections or immunizations at the same time." An interesting aspect of Mt disease in autism is that, with ASD, the mitochondrial disease seems to be milder than in "classic" cases of Mt disorder. In fact, classic Mt disease is almost always inherited, either passed down by the mother through mitochondrial DNA, or by both parents through nuclear DNA. In autism-related Mt disease, however, the disorder is not typically found in other family members, and instead appears to be largely of the sporadic variety, which may now account for 75% of all mitochondrial disorders. Meanwhile, an informal survey of seven families of children with cases currently pending in Vaccine Court revealed that all seven showed markers for mitochondrial dysfunction, dating back to their earliest medical tests. The facts in all seven claims mirror the case just conceded by the government: Normal development followed by vaccination, immediate illness, and rapid decline culminating in an autism diagnosis. 2) With 4,900 cases pending, and more coming, will the government concede those with underlying Mt disease -- and if it not, will the Court award compensation? The Court will soon begin processing the 4900 cases pending before it. What if 10% to 20% of them can demonstrate the same Mt disease and same set of facts as those in the conceded case? Would the government be obliged to concede 500, or even 1,000 cases? What impact would that have on public opinion? And is there enough money currently in the vaccine injury fund to cover so many settlements? When asked for a comment last week about the court settlement, a spokesman for HHS furnished the following written statement: "DVIC has reviewed the scientific information concerning the allegation that vaccines cause autism and has found no credible evidence to support the claim. Accordingly, in every case under the Vaccine Act, DVIC has maintained the position that vaccines do not cause autism, and has never concluded in any case that autism was caused by vaccination." 3) If the government is claiming that vaccines did not "cause" autism, but instead aggravated a condition to "manifest" as autism, isn't that a very fine distinction? For most affected families, such linguistic gymnastics is not so important. And even if a vaccine injury "manifested" as autism in only one case, isn't that still a significant development worthy of informing the public? On the other hand, perhaps what the government is claiming is that vaccination resulted in the symptoms of autism, but not in an actual, factually correct diagnosis of autism itself. 4) If the government is claiming that this child does NOT have autism, then how many other children might also have something else that merely "mimics" autism? Is it possible that 10%-20% of the cases that we now label as "autism," are not autism at all, but rather some previously undefined "look-alike" syndrome that merely presents as "features" of autism? This question gets to the heart of what autism actually is. The disorder is defined solely as a collection of features, nothing more. If you have the features (and the diagnosis), you have the disorder. The underlying biology is the great unknown. But let's say the government does determine that these kids don't have actual "autism" (something I speculated on HuffPost a year ago). Then shouldn't the Feds go back and test all people with ASD for impaired oxidative phosphorylation, perhaps reclassifying many of them? If so, will we then see "autism" cases drop by tens, if not hundreds of thousands of people? Will there be a corresponding ascension of a newly described disorder, perhaps something like "Vaccine Aggravated Mitochondrial Disease with Features of ASD?" And if this child was technically "misdiagnosed" with DSM-IV autism by Dr Zimmerman, how does he feel about HHS doctors issuing a second opinion re-diagnosis of his patient, whom they presumably had neither met nor examined? (Zimmerman declined an interview). And along those lines, aren't Bush administration officials somewhat wary of making long-distance, retroactive diagnoses from Washington, given that the Terry Schiavo incident has not yet faded from national memory? 5) Was this child's Mt disease caused by a genetic mutation, as the government implies, and wouldn't that have manifested as "ASD features" anyway? In the concession, the government notes that the patient had a "single nucleotide change" in the mitochondrial DNA gene T2387C, implying that this was the underlying cause of her manifested "features" of autism. While it's true that some inherited forms of Mt disease can manifest as developmental delays, (and even ASD in the form of Rhett Syndrome) these forms are linked to identified genetic mutations, of which T2387C is not involved. In fact little, if anything, is known about the function of this particular gene. What's more, there is no evidence that this girl, prior to vaccination, suffered from any kind of "disorder" at all- genetic, mitochondrial or otherwise. Some forms of Mt disease are so mild that the person is unaware of being affected. This perfectly developing girl may have had Mt disorder at the time of vaccination, but nobody detected, or even suspected it. And, there is no evidence to suggest that this girl would have regressed into symptoms consistent with a DSM-IV autism diagnosis without her vaccinations. If there was such evidence, then why on earth would these extremely well-funded government attorneys compensate this alleged injury in Vaccine Court? Why wouldn't they move to dismiss, or at least fight the case at trial? 6) What are the implications for research? The concession raises at least two critical research questions: What are the causes of Mt dysfunction; and how could vaccines aggravate that dysfunction to the point of "autistic features?" While some Mt disorders are clearly inherited, the "sporadic" form is thought to account for 75% of all cases, according to the United Mitochondrial Disease Foundation. So what causes sporadic Mt disease? "Medicines or other toxins," says the Cleveland Clinic, a leading authority on the subject. Use of the AIDS drug AZT, for example, can cause Mt disorders by deleting large segments of mitochondrial DNA. If that is the case, might other exposures to drugs or toxins (i.e., thimerosal, mercury in fish, air pollution, pesticides, live viruses) also cause sporadic Mt disease in certain subsets of children, through similar genotoxic mechanisms? Among the prime cellular targets of mercury are mitochondria, and thimerosal-induced cell death has been associated with the depolarization of mitochondrial membrane, according to the International Journal of Molecular Medicine among several others. (Coincidently, the first case of Mt disease was diagnosed in 1959, just 15 years after the first autism case was named, and two decades after thimerosal's introduction as a vaccine preservative.) Regardless of its cause, shouldn't HHS sponsor research into Mt disease and the biological mechanisms by which vaccines could aggravate the disorder? We still do not know what it was, exactly, about this girl's vaccines that aggravated her condition. Was it the thimerosal? The three live viruses? The two attenuated viruses? Other ingredients like aluminum? A combination of the above? And of course, if vaccine injuries can aggravate Mt disease to the point of manifesting as autism features, then what other underlying disorders or conditions (genetic, autoimmune, allergic, etc.) might also be aggravated to the same extent? 7) What are the implications for medicine and public health? Should the government develop and approve new treatments for "aggravated mitochondrial disease with ASD features?" Interestingly, many of the treatments currently deployed in Mt disease (i.e., coenzyme Q10, vitamin B-12, lipoic acid, biotin, dietary changes, etc.) are part of the alternative treatment regimen that many parents use on their children with ASD. And, if a significant minority of autism cases can be linked to Mt disease and vaccines, shouldn't these products one day carry an FDA Black Box warning label, and shouldn't children with Mt disorders be exempt from mandatory immunization? 8) What are the implications for the vaccine-autism debate? It's too early to tell. But this concession could conceivably make it more difficult for some officials to continue insisting there is "absolutely no link" between vaccines and autism. It also puts the Federal Government's Vaccine Court defense strategy somewhat into jeopardy. DOJ lawyers and witnesses have argued that autism is genetic, with no evidence to support an environmental component. And, they insist, it's simply impossible to construct a chain of events linking immunizations to the disorder. Government officials may need to rethink their legal strategy, as well as their public relations campaigns, given their own slightly contradictory concession in this case. 9) What is the bottom line here? The public, (including world leaders) will demand to know what is going on inside the US Federal health establishment. Yes, as of now, n=1, a solitary vaccine-autism concession. But what if n=10% or 20%? Who will pay to clean up that mess? The significance of this concession will unfortunately be fought over in the usual, vitriolic way -- and I fully expect to be slammed for even raising these questions. Despite that, the language of this concession cannot be changed, or swept away. Its key words are "aggravated" and "manifested." Without the aggravation of the vaccines, it is uncertain that the manifestation would have occurred at all. When a kid with peanut allergy eats a peanut and dies, we don't say "his underlying metabolic condition was significantly aggravated to the extent of manifesting as an anaphylactic shock with features of death." No, we say the peanut killed the poor boy. Remove the peanut from the equation, and he would still be with us today. Many people look forward to hearing more from HHS officials about why they are settling this claim. But whatever their explanation, they cannot change the fundamental facts of this extraordinary case: The United State government is compensating at least one child for vaccine injuries that resulted in a diagnosis of autism.
  11. That is true that people with mitochondrial diseases regress anyway that is because it is a metabolic disease and you are poisoned by everything including food as they can't metabolise properly and excrete wastes, also they cannot make energy from food, and of course the ingredients in the vaccines are going to be dangerous for this group of people. So they are not safe for everyone. Not everyone with mitochondrial disease has autism, but you do get eventual organ failure and that can affect the brain, nervous system, liver kidneys endocrine system, etc etc. I have just been diagnosed with a mitochondrial disease.
  12. Aspergers in Girls???

    Hi you might find this book of help about aspergers in girls, it can (but not always)present very differently in girls to the stereotypical male that people associate with aspergers. http://www.amazon.co.uk/Aspergers-Girls-To...6306&sr=8-1 and another one for younger girls http://www.amazon.co.uk/Girls-Under-Umbrel...6527&sr=8-2
  13. Genetic key to autism found?

    Hi Karen I'm very sorry about your brother, that must have been very traumatic for you and your family, I agree in that case and others there are quite a few children who commit suicide at GCSE's someone I was at school with someone who did too. Yes and this particular case is isolated as far as i'm aware but it wasn't reported in a way to attempt to influence others, it was reported as she was mentally ill person who believed her child was harmed by MMR because she was delusional, that is the bit that influences others as far I can see, I believe that too when I first heard it. I was shocked when I found out the truth from someone who knew her on another forum. The only person it influenced was me and perhaps a few others who share the same view, but it didn't influence the majority who believe the reporting of the mainstream media. I attempted suicide about 9 years ago,as I couldn't cope, and I was also experiecing side effects from seroxat that got worse and worse, and the same kind of thing was done to me, which is why I know it goes on. I was stitched up and records were covered up, to complicated to go into full details here, it was bizarre, and complex. I was struck off, my gp list by another gp after suicide attempt in order to deflect from his abusive attitude toward me and in order to deflect from his own behavior to stitch up the helpful gp, I think he was hoping this would cause such distress that I would do it again so he could stitch the other one up well and truly, as I got aletter saying we had an inappropriate relationship and he had decided it could not continue, he did not explain what this inappropriate relationship was, I think he was so angry he felt anyone who wanted to help that was inappropriate, so the other one ended up having to resign, I was so distressed that I nearly did do it again, but then that would have given the other one "proof" of the inappropriate relationship so he could pin it on the other one, so I refused to play into his handsit was appalling, terribly distressing to realise they will do this stuff to you in order to cover up and it also succeeded in deflecting from harm done to me, from over dose of seroxat, after I was not able to control direction or speed of gross motor control when i tired tomove I would go flying across the room, when I had a drink it would go fast over my shoulder instead of mouth. It blew my pupil put me in coma, the A&E doctor told my partner I'd got some brain damage, and since then I've not been able to organise I've lost 30 points of IQ,my memory is so bad, I can't go anywhere because I get lost, I can't answer a phone, it has become difficult to distiguish the milder type Asperger type symptoms I had before and the problems since seroxat, as they are similar but Ihave far more difficulties now since seroxat than before. I wasn't able tolook after my asd son after, which I had done before and he even ended up mentally ill on the streets for two years at 16, amixture of trauma from what had happend to me and also as he could not get benefits, and I could not cope with his violence, which started after seroxat, he never spoke to me again after that, as he said once I didn't care about him, no one would help, I begged everyone the NAS, doctors social workers etc but our MP eventually helped and my ex partner then had to fight on discrimination grounds as they wanted to stick in a home for problem kids that would have finished him off, he eventually got a bedsit and is now after a long time and lot of the right kind of support for him, which means allowing his idiosycracies, from my expartner is able to work and even pay his rent, his motivation though was that he didn't want to end up like me, who he sees as a complete loser. He really only remembers his childhood from age 12 when I had suicide attempt and no longer coped,he has no recollection of the good times. He has very little verbal ability so is more autistic than aspergers That is why I feel so strongly because 2 severe reactions to pharma in one family, and there is no acknowledgment of these things doing harm to people. I'vehad no support or acknowledgement whatsoever from medical people, it took me a year to get off seroxat, with severe withdrawal effects, 5 years later I was even given seroxat again, and it had what is known as kindling affect and had severe reaction and seizure within hour of first tablet, when I told psych he just reccommended a higher dose and ignored the reactions I'd been experiencing
  14. Thank you Cat. MY partner told me I misinterpreted the info he gave me there isn't 1300 cases waiting to be heard but 1300 cases have already been awarded to autistic kids harmed by MMR there are thousands more already filed waiting to be heard, the word autism has to be avoided in order to be heard even though they are autistic. http://actionforautism.co.uk/2009/03/01/rf...-vaccine-court/ http://www.vueweekly.com/article.php?id=11292
  15. Hi Pippin, I think you should say what you think. Do you not think it is strange it has not been reproted in the media, smells of not putting out info into the public domain to me, another child has just been awarded on same grounds and there are another 1300 exact same cases waiting to be heard. The childs father is neurologist and mother nurse and lawyer, they had the money and knowledge to win the case unlike the rest of us. My son also went into coma after MMR, I can't say for certain in his case it caused his autism as I know all autism is not caused by MMR, on the other hand I don't believe this poison with mercury formaldehyde and aluminum as a list of ingredients is safe.
  16. Genetic key to autism found?

    I understand what you are saying, but a child with measles would not be at nursery. There are lots of things you can do to build natural immunity, homeopathy remedies work well, in fact vaccination was originally based on homeopathy,not to mention healthy diet high fruit and veg for vitamin C etc. It is my opinion because of what I've experienced and witnessed that it is not safe for some children and it is not always possible to know who it is safe for, but if you have allergies or bad reactions to things then you will be likely in this group, some people that have reacted badly to vaccines or other pharmaceuticals have undiagnosed mitochondrial diseases, which is a rare neurological disease. I've just discovered I've got one. The substances do not get metabolised either because of damaged mitochondria, or because substances have damage mitochondrial functioning. Mitochondria disease kills you eventually with multiple organ failure. Some children if they have this may die may die on an MMR jab, or if they contracted measles, hopefully if it is diagnosed, they would not be given the jab anyway, but there are very few specialists who diagnose, and they ususally only get diagnosed if they are on life support of some sort, as at this point it has become obvious that they are severely affected. At the end of the day, we all have different opinons and views on it and I don't think much is going to change what those are. I really wish that people would be taken seriously when they say there child had severe reactions after MMR, and that it would be investigated before stating it is safe. One poor woman whose child disability started after MMR, she was treated as psychiatric which then tipped her over and she killed herself and her child, some people think it is proof she was psychiatric and others believe she cracked up over her child being harmed by MMR, it is enough to make you crack up.. I would only have vaccination if Ihad another child if they could guarantee 100% that there would be no adverse reaction and they can't guarantee that. It is even on their own literature on side effects that it can cause death if your child is not 100% well at the time of vaccination
  17. Genetic key to autism found?

    This is the media hype again, leading many people today to believe that children will die if they don't have the vaccine.. The facts are only 2 unvaccinated children have died from measles since the the vaccines came out. They were both ill children,who had immune system problems which is why they weren't vaccinated, this was on medical advice. They would almost certainly have been ill had they had the vaccine and may have died anyway. There are more children than that that have died after MMR vaccines http://www.independent.co.uk/life-style/he...ab-1048237.html I also know someone whose child died after MMR jab and on another forum I go on someone said a neighbour of there's child died after MMR jab too. For most people it is safe but it not safe for everyone, there should be an investigation as to why some children have adverse reactions and probably the reason they don't is because compensation costs to all those who have been harmed would be massive
  18. Genetic key to autism found?

    That is completely contradictory on the one hand they say the combination of genes set the scene for the condition to be trigger by environmental factors such as pesticides and infections and then on the other say research linking MMR jab to autism is discredited, the jab has lots of poisons such as alluminum and mercury and worse, plus the viruses, which makes this an enironmental factor for those predisposed. I kind of resonate with that, I had an extremely bad reaction to ssri drug seroxat as many people have done,which has left me permanently harmed for certain in addition to the asd, as I now have severe organisational and memory problems, dizziness blurred vision, loss of 30points of iq, tremors, lots of people on paxil progress have been left permanetly harmed most not as bad as me but most have not got asd, I also have a lot of allergies as do all the asd kids in our family, asthma etc My son was also born with cord round the neck and not breathing, but he also had bad reaction to first MMR , his leg swelled up and became feverish and went into coma with booster, he just developed high fever projectile vomited and became delirious. It is very difficult to know what causes what, I think there are so many factors, and no one has the same. My 2 nephews also had birth problems and both had bad reactions to MMR , both different reactions.
  19. I so relate to this. I've got 4 seperate diagnosis by world class experts,using different established diagnostic procedures, DSM 1V and ADOS and it is still not accepted by NHS who can't even get to grips with basics of what the diagnosistic criteria is. Have you thought about complaining. I think it is the only way but so difficult
  20. Recluse

    I have difficulties leaving the house and cannot leave my small town unless accompanied. Ihave symptoms of social anxiety disorder, but it is because I can't process information in conversation to respond accurately and it developed because I was always being taken advantage of having to do things that I felt stressed to do and couldn't communicate verbally accurately My son also had bouts like that but they were usually when there was a stress of some kind that he was unable to communicate. For example on one occasion when he was 12 it was because he was being bullied and beaten up but was unable to communicate accurately what was happening to him. I just knew something was wrong from his terror and withdrawal and aggression and took him out of school and problem went away. He is fine now, but it may occur again. There may be all sorts of reasons,but possibly general overload
  21. Anorexia linked to 'autistic' thinking

    I think this is true. I had an eating disorder and obsessions with food as teenager,even though now imy obsession is healthy food, so that is better, I'm very rigid and restrictive, I also have the weak central coherence associated with asd, and a dx of asd
  22. What are AS and autistic behaviours

    From my understanding and experience with my son isthere is often a squew in learning abilities so there is difficulty in overall information processing ie sensory processing etc or visual and auditory processing , so the information processing is not complete but partial. People with asd often have rigid interests as a result and these can become more obsessive when the person is under stress as obsessions and following routines provide security for an asd as the world is very confusing. My son's obsessions were worse when he was under stress and being bullied etc and not able to communicate etc. I think rocking is a type of stim so the movement provides a comfort, some kids hand flap, and some do other things, it distracts from sensory overload when stressed and that is why it provides comfort That is just my take,everyone is different though with how it affects them and constellation of symptoms
  23. The Horse Boy

    Interesting how does he know the child regressed, surely the parents views are the most reliable rather than a gp who probably never met him. His book does look interesting and the reviews I read I did agree with I love animals myself and relate to them better than people because I feel they are abused by humans rather than being treated for sentient, free living creatures they are, a bit like autistic people really. I've read the horse boy too and I liked the book as I'm interested in anything holistic but I'm very literal and believe everything I read and then get confused. I guess everyone is different.
  24. My story... possible ASD? What next?

    Hi Ben I've just read your post. What did you decide to do. My advice would be as it took 10 years for my son to get dx and another 10 for myself is to find out who the adult asd specialists are as there are not many,most adult psychiatrists in the NHS are not qualified or trained or skilled to recognise ASD, they don't carry out established diagnostic procedures which would clarify whether you have asd.
×