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chris54

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Everything posted by chris54

  1. Fine to say don't drive, it does depend a lot on where you live as to how that affects you. I live in a village, we do have a bus and train service. The bus and train runs from early morning till late afternoon, buses every 2 hours. Trains about every1 or 2 hours. No buses at the weekend. No trains on Sunday. These get you into the next town, from there you then need to change for ongoing journeys. My stepdaughter has to go each week for a half hour appointment, often twice a week, associated with being unemployed in a town about 12 miles away. Because of the trains times and connections she has to go out at 8.30am in the morning and doesn't return untill about 4pm. Ill let you decide what life would be like without a car.
  2. Stop worrying. A child having delayed speech development done not mean they have Autism. You say that they are happy that your child communicates non verbally OK. There is ages before he starts preschool. Stop worrying. My son had delayed speech development. As it turn out he was diagnosed with Autism at about 7 but by then his speech was normal,(It was normal by the time he started school) As far as his speech is concerned now, we cant shut him up. And as far as TV programmes, informative as they are, do remember that if they did a program about my son who is getting on alright at school, who is not badly behaved, who (At the moment) we do not have any (Very few) problems with, it would not make very good telly.
  3. A diagnosis is not a cure. I have seen many who thing that once they have their diagnosis all the problems will end which is obviously not true. What it is, what it may do is open a few door. A very simple example, I take my son to the dentist, its on his records that he has Autism, the dentist, a new one this time has read this, no need for an explanation from me. IMO it is wrong to say that a child has a condition if they are not formally diagnose. It may be OK to say they appear to have XYZ. I can say I think I have XYZ, but I don't say I do as I don't know.
  4. If I look at some of the residents at work, I can understand that. As much as I get/got enjoyment from my son, I do feel a sense of loss for the fun times we never had with him as a baby and toddler.
  5. I don't know about other organisations, but in ours that would be considered assault, and if practised would lead to disciplinary action. I don't realy see that any of the young people we saw were likely to ever live independently. And once or twice, the work cure was used.
  6. We, at work, are only allowed to restrain someone if they is an immediate danger to them selves or others, and then for only as long as the danger exists. Restraint is never used as a punishment or as any form of therapy.
  7. chris54

    School.

    I don't think I could got as far as saying that.
  8. No, were as delayed speech development is seen to exclude a diagnosis of Aspergers. The presence of normal speech development (or advanced) does not mean that a diagnosis of Autism would be Aspergers, there are many other factors involved. I watched it at work on BBC iplayer. We (At work) would not be allowed to use the restraints used, What was that mother and father doing hold that boy down? It would be interesting to know how the school shown reflects the over all provisions of special schools in America. Over all I would give the program a cautious thumbs up.
  9. Like the rest of us you will probably become an expert. Iv been to Autism training (For work) and half the time I know more that them teaching us. Some years ago I looked after a 4yo boy for a short time that had FASD, He was much more severely affected than your girl. He was quadriplegic with very little communication ability. Puts things into prospective.
  10. The problem you have is that although the symptoms may be the same or similar, the couses are different and may need different approaches when it come to treatments, management etc.
  11. A lot of what you said could point towards ASD but as I understand it they could also be the result of FASD. As the CAMHS team have said that move investigation is needed they are probably keeping an open mind at this stage (As it should be). FASD, Fetal Alcohol Spectrum Disorder.
  12. If I'm honest, most of the pix meant nothing to me. Scored 23??
  13. chris54

    School.

    In fact its been a pretty good start to secondary school. I had all the worries about how he was going to cope in secondary,(Mainstream). We're well on to the back straight and apart of a few stumbles in the first few weeks all is going well. At the end of last term he got a certificate for 100% attendance. Has just got his silver certificate for house point and is hoping to get a gold before the end of the year. He was moved up from group 4 to group 2 for science and maths. (I think he is the (Maths) teachers pet. Not to mention the SENCO.) For the first time realy, I (we) are totally relaxed while he is at school.
  14. Id go along with that. We should all celebrate the good times, not matter how small a fleeting they may be. Just posted something positive in education.
  15. chris54

    Pain

    Thanks for reply. I have had problems with my back going back 30 years, had a number of occasions when I have been completely immobilised. I now have lower back pain to varying degrees most of the time. Fortunately, or maybe not, I can block most pain out as long as I don't think about it to much.
  16. chris54

    Pain

    Its happened a few times now, each time it seems worse. Ill be laying in bed, just woken up and I go to move. Nothing vigorous just normal moving in bed like you do. Then it hits, a excruciating pain in my calf muscle. Only way to make it go away is to massage it. The muscle is rock hard, but pain eases fairly quickly but leaves some residual pain. It is getting worse each time, it happened 3 days ago and still feeling pain when I walk. I could understand it if I was doing something vigorous, but just laying in bed, whats going on.
  17. You will have done, its just that your have not realised.
  18. I cant say I'm looking forward to any, but then I have no idea what films are due to be released, Its not something I give any thought to. Even when they are released I will most probably only see them when/if they are shown on free view telly.
  19. From when I first played this song for my wife (before we met face to face, long story) we have thought of it as our song. Came across it last night. http://www.youtube.com/watch?v=O_-fjx6QVes
  20. chris54

    cinemas

    We go to a mobile cinema, it sets up at different village halls around the county once a month, It is open to anyone but specifically aimed at disabled children. It shows the latest releases. The idea being that no one is worried about any disturbance a child may make. And you are free to get up and have a walk about if you want. A few useful links. http://www.ceacard.co.uk/ http://www.autism.or...screenings.aspx http://www.dimension...rg/autismfilms/
  21. Just add we were worried how our son would cope in mainstream secondary, but we have a realy good SENCO who realy does understand all the problems, and realy is able to foresee problems and avoid them. It has, so far at lest, turned out better than we had hoped for.
  22. Of topic a bit. I work at the sort of place that your Glen would be at. Its funny, We often see some residents independents decrees after a home visit. Maybe we, The staff, have an expectation that the resident will do, and parents are to ready to do for them. Some parent find it very hard to let go, to recognise that there children are adult, who have all the rights of an adult, (And the responsibilities). I know as a parent myself, I have to at times make a conscious decision to stand back and let my son get on with it. On the same theme, and back on topic, It the little things that make a difference, like helping himself to milk out the fridge and not spilling any. As silly as that sounds to most, that is a big step for us.
  23. I could not agree more. My son has never been on a sleepover, but then he hasn't got any proper friends. He did go away when in primary school 3 times, the first time 2 night away, I was a bit worried, so were his teachers, but in then end he was fine. By the time he went away for the 3rd time they left him more to his own devises, so to speak, problem that time, no one told him to put on clean clothes, so he wore the same clothe (Underwear as well) for 5 days. Well it saved on washing when he got home. If you sons friend has ASD hopefully his mother will be understanding of your son. If it were me I would jump at the chance.
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