allsetuk

my son started mini yoga 4 weeks ago, he is doing much better at this than the karate he tried earlier in the year, the fact he has his own mat and space works well for him where as karate meant partners and he spent the whole time under a chair hiding

my son talked loads early on only i could understand him alot of the time but what he was trying to say was intelligent observant and complex, when he could be understood...but did blurt and talk inappropriatly alot , very narrow minded, focused on himself , loves mimicing and can mimick italian french and spanish , had an early understanding of these other languages

my son didnt walk till 18 month , was talking and singing much earlier around 8 months - hope this helps, is there a pattern emerging

ok i complained would you like to see my answer i recieved from disney ,its taken them 5 weeks to put this together ......note the bit about i am the only person who has ever complained about excessive noise levels and every ride being so dark or having to walk through the dark to get too the ride !!!! apparently so no one else thinks this .........if anyone here can back me up and say they have complained about this ever i would love to have your assistance ....i raised all the problems we have discussed on here , queues and all the rest , would love your input here we go To begin with, I would like to apologise for the exceptional delay in this response and thank you for your patience in this matter. I was delighted to hear that you and your son were able to visit the Resort recently. We strive to ensure that all guests are able to have a magical and memorable time with us and hope that they are able to take a bit of the fantasy away with them. Bearing this in mind I was sorry to hear that not all of your expectations were met on this occasion. To begin with, I would like to clarify that in order to benefit from our current offer Kids Under 7 Stay & Play Free, our guests have to book a package in a Disney� Hotel or Hotel L'Elys�e Val d'Europe for arrivals from 30th March - 8th November 2007. I am afraid that this offer does apply to our guests who buy their theme park tickets at gate. I sincerely regret if you felt confused by the advertisement and have passed your comments on to the relevant department so that they are aware. I would like to stress that Disneyland� Resort Paris has always placed a high priority on making our Resort as accessible as possible for guests with disabilities and that we pride ourselves on the various procedures that we have in place to best serve our guests. Recognising the unique aspects of a Theme Park environment, Disneyland� Resort Paris is committed to ensuring that a holiday at the Resort is an enjoyable and comfortable experience for all our guests, regardless of age, sex, disability or nationality. With this in mind, I was sorry to hear that your son felt most of the attractions within the park were too noisy and too dark. I have shared your comments with our Quality Manger who has informed me that no similar comments from other guests have been reported to her but she has assured me that she would make the appropriate department aware of your remarks. Nevertheless, I would like to apologise for any inconvenience or discomfort that your son may have felt on this occasion. Before arriving at Disneyland� Resort Paris, all information relating to our attractions, shows and schedule can be obtained in a variety of ways. Our Official Internet site on www.disneylandparis.com is continually reviewed to offer an up to date guide to the Parks and Resorts, and is available for consultation 24 hours a day. The Official Disneyland� Resort Paris Brochure, can be obtained free of charge upon request and our reservation agent can be contacted on the following telephone number: 08705 03 03 03. I regret to hear that you thought Disney?s Fantillusion would be running the day of your visit. With this in mind, I would recommend that you consult our website prior to your next visit in order to plan your visit accordingly. I would like to add that we offer packages tailored to the individual needs of our guests. In this ever-changing environment, we are conscious of the expanding needs and demands of our guests and we have adapted our services to suit. As such, may I suggest that you contact our Special Needs department prior to your next visit on the following e-mail address: dlp.cro.special.needs@disney.com. Overall, I regret that you were not completely content on this occasion and can assure you that every point and comment that you have made has been passed on to the relevant departmental Managers. Such feedback is invaluable to our efforts to ensure that guest needs and expectations are met and, hopefully, exceeded on each visit.

yes my son had filming for one and half hours with 3 different therapists and whilst he did loads of "play" test, they used the video for training and also so all the proffesionals could rewatch after and discuss ...it was fine ..but my son found the tests stressfull as they repeatedly tried to bring him into their world and he did his best to keep everyone in his.....but that was the point

oh i have really enjoyed reading this, my son constantly daily tells me really daft jokes that make no sense what so ever....like the aforementioned ones here...and i cant fake that i find them funny and he gets really mad at me ...hes really keen to tell a joke..and yes they usually revolve around bottoms and willies ....and im like oh dear

Does anyone else do this or understand it? totally ....i feel freeked if someone tries to hug me ...i totally get what you say ....

my son is five and i have a running commentary on people whever we go ...if he sees a large person he will say in no uncertain whispered tones "WHOH DID U SEE THAT !!! " or theres a china girl ....or mummy why has that man got long hair when he sees a non feminine looking woman ...he has strong ideas on whats right or wrong with regards womens make up and he will stand and argue that the "man is wearing a skirt ..why ?? " it is really hard not to laugh .....but it isnt funny and i have to explain we are all different and equal .....my son also has a MASSIVE interest in who knows more than him .....knowlege wise, he cant bear the thought of anyone knowing more info than him ...if i tell him to shsssh he will say no no no but i really have to tell you something also does anyone else have experience of their children blurting out inappropriate stuff like "why are you showing the world your underpants , or bottoms willies etc "....when they meet new people or are in a situation they cant handle ...or flap and do something silly...when they know all eyes on them ??

my son is exactly like this, graphic details about dangers, willi die if i fall out the window , no i wont ....will i go to hospital etc.etc .....always runs across a road if he sees something in the road thats not "correct" , or tries ..doesnt usually get away from me ....with regards language, he has had an active interest in speaking spanish french and italian since he was 2 ....could count to ten in french at two and knows a ton of words as well as some chinese and has a massive fascination with langauage, always talks in american accent, elevator and compuder or wadder .....and always whever we are on holiday he starts mimicking sentances and what he hears, he can identify languages brilliant, i think maybe its a forte for them ?? and i read they majorly learn through mimickry which is why when they do things wrong or see other children get away with it they cant get their head around it xxx

i took my son there for the afternoon, 3 weeks ago we were camping near compiegne and it was my present to him for his 5th birthday , ive been before so i knew what to expect and tried to cushion the blow for my son as best i could as he had been waiting for months to go on buzz lightyear , sadly, the noise of any ride and the immense darkness every ride has on it , flasshing lights etc all of which totally PETRIFIED him, the crowds...long long queues, the noise levels were horrific ....he spent the whole time in a ball on the floor and we didnt even see a single character other than 200 people lineing up to see mickey. in any of the rides the queues were all too much and i made an officila complaint to disney , i urge you to do the same , mind you i am still waiting for a reply

i sent a query to the everychild matters campaign i thought you may like to read the reply as it features some helpful points for all of us and something of interest Dear Dionne, Many thanks for your email. You set out exactly why our campaign is needed - to get a better deal for families with disabled children. Please do ask all the parents you are in touch with to sign up to the campaign at http://www.edcm.org.uk - together we can really begin to change things. The focus of the campaign so far has been on issues like short breaks, childcare and other services that families tell us they need. We have been working on a major government review of services for disabled children which is due to report later this month, and we are hoping there will be substantial new funding announced. Watch this space! We have also highlighted benefits issues like Disability Living Allowance, and are lobbying Ministers and officials in the Department for Work and Pensions to increase the payments at all rate for both Care and Mobility component. We have also supported parents who have been lobbying on the Blue Badge issue - see http://www.edcm.org.uk/Page.asp?originx_96...0k_20072275342a Once the government review has reported, we will be looking again at our campaign priorities in September, and we will be asking our supporters what they think we should prioritise - I'm sure benefits, mobility and transport issues will be high on the agenda. If you and all the parents you know sign up as supporters, and tick the box allowing us to email you, we'll be in touch about this in the next couple of months. In the meantime, the Contact a Family helpline has a range of information sheets that tells parents what they are entitled to - because in fact, families should be getting support from a range of sources, not just the Family Fund. The Helpline contact details and factsheets are at http://www.cafamily.org.uk/helpline.html - do spread the word. Contact a Family Helpline can also put you in touch with parent groups who are campaigning to improve services locally. Thanks again for your email and your interest in our campaign. All best wishes, Steve Steve Broach Campaign Manager - Every Disabled Child Matters Council for Disabled Children National Children's Bureau

i sent a query to the everychild matters campaign i thought you may like to read the reply as it features some helpful points for all of us and something of interest Dear Dionne, Many thanks for your email. You set out exactly why our campaign is needed - to get a better deal for families with disabled children. Please do ask all the parents you are in touch with to sign up to the campaign at http://www.edcm.org.uk - together we can really begin to change things. The focus of the campaign so far has been on issues like short breaks, childcare and other services that families tell us they need. We have been working on a major government review of services for disabled children which is due to report later this month, and we are hoping there will be substantial new funding announced. Watch this space! We have also highlighted benefits issues like Disability Living Allowance, and are lobbying Ministers and officials in the Department for Work and Pensions to increase the payments at all rate for both Care and Mobility component. We have also supported parents who have been lobbying on the Blue Badge issue - see http://www.edcm.org.uk/Page.asp?originx_96...0k_20072275342a Once the government review has reported, we will be looking again at our campaign priorities in September, and we will be asking our supporters what they think we should prioritise - I'm sure benefits, mobility and transport issues will be high on the agenda. If you and all the parents you know sign up as supporters, and tick the box allowing us to email you, we'll be in touch about this in the next couple of months. In the meantime, the Contact a Family helpline has a range of information sheets that tells parents what they are entitled to - because in fact, families should be getting support from a range of sources, not just the Family Fund. The Helpline contact details and factsheets are at http://www.cafamily.org.uk/helpline.html - do spread the word. Contact a Family Helpline can also put you in touch with parent groups who are campaigning to improve services locally. Thanks again for your email and your interest in our campaign. All best wishes, Steve Steve Broach Campaign Manager - Every Disabled Child Matters Council for Disabled Children National Children's Bureau

i get this kind of comment all the time,"he looks normal, hes fine stop fussing" or everytime i try to explain to anyone, i get "oh my son/daughter does that" i dont feel beleived by anyone because they see an intelligent , gentle little boy ......except the hospital who see someone suffering from major anxiety, my own mother said "can it be fixed ......" and since wont disscus or read anything about it ....by grandparents said "is it something you have done ...we dont think you are hard enough on him ...or is it because his dad isnt around !!!! "LOL ......it hurts but you have to get over it and focus on your priority which is yourself and child ...thats how i look at it anyway. ive spent too many times worrying about why other people think like they do....

just read that i meant to add if i dont smile constantly

my 4 yr son does this constantly, mummy are u angry ...or just "Angry???" or how much do u love me.......usually while climbing on my chair, or saying huggle over and over and if i dont do it 300 million times a day he thinks im angry .....its also in this really annoying baby voice which is really hard and yet easy to get fed up of hearing , gosh just read that back it sounds awful and i dont mean it like that , he does it so much and has for about well over a year......today he is in BOUNCE mode, absolutle non stop hurling himself at the sofa , repeatedly or jumping or climbing, or throwing himself off it ...CONSTANTLY and i cant stop it ....aaaaaagh im going mental...lol

ahh thats great , glad you had a great day, you bought a tear to my eye.

interesting reading all your thoughts, yes good points about the transport and difficulty everyone is in ...and how it affects everyone in different ways, i need my car, but at times it can be really difficult to restrain my son or afford to keep the car going with bills petrol repairs etc ..i would prefer to be eco concious and motabilty lets those who are entitled get bio fuel cars and allsorts .........also those of you that dont drive im sure i read somewhere on here you could get family fund help for driving lessons ....i wasnt actually saying i want high rate mobility but i would like to get some attention drawn to the factors affecting everyone here that make public transport /or access to cars difficult thats what i meant.....and maybe some concessions or considerations for low rate mobility recievers ....rather than just no help at all unless u are on high rate. i agree with your sentiments the system is useless...if even in a wheelchair you cannot get what u need ....what is the government thinking

i havent yet , only got the award in past few weeks, i asked somewhere else on here what i shoud do as i thought that was wrong but havent had anser yet d

hello everyone, i have just been awarded high care and low mobility with dla and as a relative newbie to all of this, I am becoming like a "grumpy old woman" ranting to anyone that will listen. I dont know about you but as a mum to an aspergers son, who increasingly needs carrying about 70 percent of the time and has fear and flight response to many things but also needs an incredible amount of input ....from getting out and about in places that he feels safe, i.e enclosed pathways for those opposite moments where its full on running .....i need my car !! , i cant take him on public transport cos if anyone looks at him he hides under a chair or starts blurting out total inappropriate commments .i think we should start a campain to get this motability support to apply to us too. I see the DLA people are making it so difficult for people to get the high rate mobilty as in the poll hardly anyone gets it but i am sure from the heartbreaking tales we read on here every day its something that we all need access too..ive written to the every child matters campaign and the NAS and motabilty to see if anything can be done..what do you guys think?? I had to get a car loan that i cant really afford to get my 2nd car and it costs me a fortune to run if this government are so set on "reducing child poverty in disabled familes " then maybe we can do something ... i probably sound like some raving eternal hopeful hippy here but im not ...i just read this site every day and my heart goes out to each and every one of us struggling just to keep smiling .

thanks for this rang them today , i think they were in a rush , it was the fastest conversation ever, thirty seconds done !!! i felt like id been on a rollercoaster when i got off the phone. It was like fact fact fact thank you goodbye .....does anyone know how long they take to sort it out for youand get the payment out ? so lets see what happens now !!!! Dionne

hello well done everyone , can anyone tell me how you managed to get back pay , my son has been going through 2 years of diagnosis but i only got my dla awarded from day of diagnosis ?? aslo does it affect the child tax credits? and i read somewhere about a disabilty premium , does anyone know of this ....its so hard to find out what u are entitiled to

hello i was just awarded higher care and low rate mob which only starts in two weeks when he is five....im really pleased but i am constantly having to carry my son arond, cant go to town or anywhere for a walk, he either runs a short distance and then 70 percent of time needs carrying and there is no in between as is too long for standard pushchair and seems in pain physically so i am not sure the low rate mobility is right ..how do i go about getting a rethink of this ? thanks

im wondering wether to reapply - has anyone had any joy with this, as i do not percieve carrying my son around for much longer

hello i just got my dla through and was given low rate mobility but not till my son turns 5 which is in a couple of weeks , my son is having increasing difficulties walking and seems constantly exhausted and i can get him to walk for more than a short burst which is always fast and then he needs carrying ....i think i should reapply as i was thinking i need a big pushchair or something .....why do they make this so hard...when people really need help!?

no i havent heard of parent partnership ...im new to all this really , only got diagnosis in jan ill look them up