pingu

LOL. I was doing excactly that !!! Thanks For the birthday wishes. Happy birthday to lufty too. xxxx

Hi TN We would all miss you if you wern't around <'> . Please dont give up on your book. Im sure that many people would find the book very helpful and even though you have been rejected at this time, you mustnt give up on it. I have no other advice about how you are feeling, but please be assured we are ALL here for you and although its "Virtual" friendship, i have come to realise that some of my "closest friends" are right here on this site. Please take care of yourself. <'> <'> shaz x

Hi Hev. Im not sure if this is right, but if you click edit at the bottom of your post it gives you the option to do a full edit or quick edit. If you do a full edit then you can change the title or text of your message - a quick edit will allow you to just do the text. i hope this helps. shaz

Hello technie peeps. A few weeks ago the little install shield kept popping up and harrassing me to download internet explorer 7 (we had 6) i did download it, as it claimed to be the bee's knees, BUT 2 things happened first was Kieran freaked out because nothing was familiar and also i kept getting an error message each time i logged on, SO i decided to go back to IE6 and all was well again. Since then however - Kieran has become totally obssessed with IE7 and liked the way it looked after all (especially the little blue E with the orange line through it) and has since been on my case morning noon and night to download it again. The little install shield has once again been harrassing me worse than kieran, so under the bulk of pressure i have downloaded it again. NOW FOR THE BIT I DONT GET. Im still getting the following error message when i log on. "SmartBridge Alerts: motiveSB.exe - Entry point not found The procedure entry point GetprocessImageFileName could not be located in the dynamic link library PSAPI.DLL" Would somebody PLEASEEEEEE tell me what the heck its trying to tell me??? Im useless with these tip of the iceberg messages. Any ideas would be very much appriciated. thank you shaz

Yes we saw this. Kieran was absolutly beside himself with joy. i was worried he would want to change the number of his box. but he never mentioned it, im so pleased this lady won the money.

LOL. It took me ages too on the first go, but after making the same mistake as some i realised you start at the number one. finially got my time down to 70 secs. It sort of relieves the stress a little.

darn it, i missed this. does anyone know what happened? or if its repeated? Thanks shaz

Hi Rushed. What an awful position to be in. As Pumkinpie asked, how old are you? Have you got anyone else you could discuss the concerns with ? i really dont have any constructive advice, but i just wanted to let you know that we are all here to help you through. (although im not doing a very good job) mainly because im feeling pretty much the same at the moment. But i am thinking about you all the same. take care shaz

<'> <'> <'> <'> Hev. I can sympathise. I really can. Sending lots of <'> <'> <'> <'> As nothing i can say will make the situation any better. I hope you feel better soon.

Yes. problems here too. Kieran was first seen about 3 years ago regarding his feet/knees and hips. He now wears Insoles in his shoes, but there has not been much improvement. His knees are out of alignment with his hips, and his feet are as flat as pancakes. He practically walks on his ankles when barefooted. I am shocked to see all the replies which highlight this problem. They are so many connections with all of our children isnt there. ?? shaz

My daughter struggles terribly with writing / comprehension/ reading and instructions. Yet i cant even get the problems recognised within the school. They still insist that she is slow and lazy. Regardless of numerous assessments which state that she has dyspraxia and dyslexic tendencies. Her teacher even said to me, that i should stop looking at the negatives and start been positive......... Positive about what??? Makes me sick !! shaz

do you think they all read out of the same textbooks?? this is more or less what they said to me too. i can understand your frustration. Believe me... i really can.....

Hi there. (welcome) My lad certainly had very little speech at the same age, he didnt start saying words (ones that you could understand at least) until he was 5 1/2. And he was diagnosed as "AS" Hope this helps. shaz

Hi there. The short answer to that is no !!. I have tried and failed to get this problem recognised with the professionals that are involved with my daughter. all i keep getting told is that she is anxious. They told us the same thing with our eldest son, and probably would have pinned the blame on anxiety for kieran had his problems been less obvious. One pschychologist acutually asked us if she got "sexual gratification" from what she does??????????????? she was 7 at the time. !!!! How the hell am i supposed to answer that ??? All i know is that she constantly picks her skin until it bleeds and when i confront her about it she moves onto less obvious areas like her gums. Which at present are sore and green yet still she picks away. Her leg is a mass of scars and her arms are following suit. I am sat here feeling pretty much as i did the other night in a state of complete confusion as to how i can help all of my children with their very individual needs whilst trying to keep my head above murky water. I am thinking of writing it all down and posting it to the psychologists, as i know that if i phone them i will not be able to "say" what the problems are. I am so scared they will see this as our doing and place them on the at risk register, afterall they all conform to the school standards and therefore this is classed as a home problem, yet when they are at home they worry constantly about school. Its a catch 22 situation for which i havent got a clue to start. I feel like i am on a very slippery rope and want to keep them all here and teach them at home, but deep inside i know that will not help as there are many problems that neeed to be confronted. To be honest i havent a clue what im doing, and right now it hurts to even think about how they are feeling. But thanks again for all your words of support. I just cant see the light at the end of y=the tunnel. What makes it worse is that it seems that the eldest is not happy unless there is confrontation. and i so hate confrontaion. All we every seem to do is bribe them, as that is the only thing that works. Everyday is like battling with the unknown, and i cant even remeber how things got this bad? Thanks again. sorry for the extended moan (again) shaz

Hi Everyone. Thankyou all so much for your kind words of support. I know i have said it before but it is easier knowing i am not alone..... we are not alone... The problem the other night was it just all came to a head. I was trying my best to keep things calm and happy, and then it all went to pot. I discovered that my daughter (whos 9) is still self harming even though i have begged and pleaded, for her to stop. The eldest was been his usual self and kieran was having one meltdown after another. Steve is suffering from huge amounts of pain, and the morphine is no longer working. And i just popped. Im feeling a little better today, although nothing really has changed, my family help where they can but as for respite i cant really do that as my mum is suffering also with a crumbling spine, and dad works full time. I am loathed to go back to the psychologists because i am sick of them telling me that all our problems are caused by anxiety. Anyway thanks so much im relived to know that we are all in the same boat. Thankyou from the bottom of my heart. shaz

im sorry for been down. ive been trying really hard to let it all go over my head. I cant do it any more. Kids are playing up. hubbys in pain and is snappy. im trying to hold a family together that dont seem to give a ###### how i feel. Im sorry for been selfish, but i feel like quitting.

Hi Jsmum. Thankyou so much for that information. I love the idea of the doze family and i will show it to liam when he gets back. I really appriciate that. I will pm you my email details, thanks again. shaz

Thanks Jsmum. Any help would be great, would it still work if we add the 14 year old into the equation? He is absolutly determined to spoil any routine we might have. and half the time if i can settle him then kieran follows suit, but the eldest is the worst one for not been able to switch off. Thanks again though. your offer of help is appriciated. shaz

Thank you guys for the words of advice and support. I have just been upstairs again and had a stern word with them all. I explained that for a full year now we have been having settling down problems on a night, and i have proof. Last new years day i started to keep a diary, and the scary thing is, as i looked through it today i realised that nothing has changed, Oh the stratagies and advice that we have been given has changed more than my weekly wash. But attitude and behaviour, that has stayed the same. Here is an example of what was happening last year around this time. AND I QUOTE (from said diary) ((this was last years years rules)) "As it was before: - Bedtime was quite structured due to Kieran?s routines, the problem we had was the amount of time he actually spent completing his routines. After getting ready for bed Liam and Shauna would usually watch a video, read or play whilst Kieran played with his plug. I then put them to bed, only for one of them (usually Kieran) to come back down. In addition to this they would all mess about, ?play spies? and generally be noisy. We realised a while ago that this was becoming a problem, what time we had was constantly interrupted by them in some way. It seemed that they saw bedtime as an extension of playtime and just carried on without regard for the rules. What we did:- We made it our New Year?s Resolution to regain control of the house, We have purposely left it until now, as the new year always brings about discussion for change and what changes we hope to make in the year ahead. This also makes it easier for Kieran to understand, as he does listen to conversations (even if he appears not to), and he did become involved in this particular topic as we discussed it with the other two prior to our ?start date?. We have discussed the consequences should they carry on playing up after their bedtime, they are as follows:- ASLEEP (OR QUIET BY) UP NEXT MORNING 9.30pm 7.30pm 10pm 7am 10.30pm 6.45am After 10.30 6.30am If there is one thing our three hate it is been woken up in the mornings, I hope they will begin to appreciate the delicacy of time." FIRST DAY = "1st January 2006 :- 7.30pm: - They all wanted to watch Spiderman tonight, which they did so in Liam?s room 8.15pm: - Video turned off, they were messing about so much, there has now been an accident. Liam tried to catch Kieran in the blanket (copying Spiderman and his webs), and he caught Kieran?s tooth in the holes of the blanket so Kieran is now missing one of them the other is incredibly loose. 8.30:- The tooth is wrapped up and under the pillow, Kieran back in bed, and all of Shauna?s requests have been carried out again. 9pm: - Liam and Shauna messing about, Kieran has re-appeared to play with his plug 9.20pm: - I reminded everyone of the rules, and mentioned that sleep tomorrow would be disturbed if this were to carry on. Put back to bed. 9.45pm: - Another bang from upstairs. Kieran had gone to ?play spies? (winding Shauna up until she makes squeaky noises, which then have the boys in stitches) And he had banged his back on the bed whilst trying to dive back into it. 10.45pm: - All quiet, occasional giggling 11pm: - Another bang and a shout, Kieran again! apparently on his way to the toilet when he trapped his toe under the door, he then slammed the door into the wall !! 11.15pm: - Toes have been creamed, Kieran back in Liam?s bed 11.45pm Asleep at last, had to move Liam from Kieran?s bed as he was closest to the edge. Ill tell you what...... i wont add any more, as that is pretty much how its been since. (exept for kieran loosing teeth, he hasnt dont that every night, but every thing else is still the same....... Lets just say out of 365 days of this year (well nearly) They have settled 5 times without fuss, (usually when one of them has been unwell) and the other 360 days have been HELL. Humpfffhhhhh I have to keep reminding myself it isnt there fault they are like this..... Or is it???

Hi Everyone. I need to have a bit of a mumble about things, so please bear with me. All christmas kieran has been in this really horrible mood. Well i say horrible but i mean one minute he is alright and the next he is like the devils child. At first we put it down to the change in routine and everything, but to be honest we have kept everything pretty much normal for his benefit. Now its starting to grate on everyone. He constantly asks questions to which we dont know the answers, he asks how long until breakfast/dinner/tea/bed/new year/bath/gamecube time etc. and wants the answer in minutes and seconds and if you get the answer wrong he asks again. Im trying really hard not to whinge as i know lots of people are having a bad time right now, but on top of all this he has got this new " habit" ?? of gulping / coughing, which he has started to do constantly. Its not a normal cough, but almost like he is clearing his throat all the time. Even in his sleep he is gulping and making noises, This new habit gets treated with screams from the other two of "BEHAVE DOING THAT" and he looks totally bewildered. And i cant seem to do anything right around here at the moment. I have spent the last week playing with them all, i have engaged in games and "fun" and tried to occupy them, and it all gets thrown back in our faces at bedtime, when they (the eldest and kieran in particular) start playing up. Neither will switch off and settle down, and they constantly annoy their sister who just wants to sleep. Im at my wits end, it feels like i have (sorry WE have) given them as much as we possibly can, and its just not registering on the boys. (now kieran has an excuse but my 14 year old is worse than Kieran and no one will say why).. I need to scream Today has been an endless job of trying to please them all, and yesterday was an endless job of trying to please them all, Ive even tried going on strike and doing nothing to show them what they will be missing if they cant behave and get along, but to be honest i dont think they would notice if i developed a second head !! Anyway. Just needed to get that off my chest, even if that is just the tip of a rather large iceberg. Im worried/frustrated and confused all in one. But i suppose many more feel like that too. Thanks for reading if you have, i hope you all have a very happy new year. xx

Merry christmas from the mad house !! {Hic ; Hic} Shaz N gang xxxx

Hi. Yes i wouold agree that AS and ADHD go hand in hand. In our case anyway, No firm diagnosis yet, and i doubt there ever will be. as everyone who can make these decisions tell me his hyperactivity is part of the AS, its almost like they are scared to admit that he has a seperate problem, but they want to try living with him sometimes. Take care x

Hi J.s Mum. I wish i had seen that. It sounded very interesting. I cant understand why the docs over here dont do the same tests, but there you go eh. do you know if its on again at all?? shaz

<'> I was wondering how you was getting on paula. Maybe if you sleep on it, you might have a clearer head tomorrow. I know i went to a meeting this morning, and it wasnt until t time that i remembered that they said they were going to test for adhd. take care <'> shaz

Hi. Yes Kieran does this too. I cant believe how similar this sounds to what we used to go through on a simple journey. In the end we had to ask for a pushchair for him because he would just run into the road to see the grates at the side, and it was (and still is) especially bad if it had been raining, he used to love the drains on the school playground as these would overflow and he would be facinated with them. He is 7 now and the interest is still there, although maybe not as strong as it once was. No advice though im afraid, as with kieran you will probably get him off drain covers and something else will take over. Take care shaz