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ceecee

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Everything posted by ceecee

  1. Lauren I agree with you.I went from having a normal four year old child one week to a severely autistic one the next after the mmr booster.Because she was four years old I knew she was entirely normal before.She was talking interracting, playing properly an entirely normal four year old.Nothing will convince me that the mmr doen't act as atrigger and either worsens autism or cause it.I think some people are genetically more at risk than others. I am lucky my daughter recovered but had she of gone on the first jab I don't think her brain would have been strong enough to recover. My heart goes out to you.The mmr booster and it's effects left me in a terrible state, I never been the same person since.Even now five years later I get horrifying falshbacks and panic attacks.It also left me unable to bond with my son for two years.I can't describe the fear and the worry of watching him and analysing everything he did each and every day.Neither of mine will be ever having another vaccination.Like Jaded said I'll take the risk thanks.
  2. The mmr booster was responsible for causing my daughter to have autistic encephalitus of the brain.If she didn't have it this would not have happened.Neither would she have been autistic for six months.
  3. Hi Lauren No it wasn't a typing error when I said she was autistic.She was for six months then she recovered.If you go into the post on the general discussion board at the moment about the mmr booster vaccination you can read her story.Hope i didn't get your hopes us.Best wishes ceecee
  4. Sorry forgot to add there was no way my daughter showed any signs of aspergers and or autism prior to the booster.i know the symptoms of both inside out and backwoods so I know that to be the case.In fact one parent actually described her as the life and soul of the party!So I know without a doubt that the mmr booster definately caused my daughter's autistic encephalitus.You wouldn't have a normal child one week and a full blown autistic one two weeks later!!
  5. I would never consider the flu jab not for any of us my husband and myself included.This sounds dreadful but i dread them offering everone the vaccination for bird flu because it puts me in a terrible position, What if they get bird flu because i didn't let them have the jab.I just cant do it though.There is definately a link between themercury in the vaccinations and autism, i@m sure of it.I think that some children have a gene in them that makes them subseptible to autism after the jab either encephalitus like my daughter or I think it can make their aspergers or autism worst. I really sympathise with you carole I kept saying where has my little girl gone.Why did they take her away.Incidentally I know of another boy to whom exactly the same thing happened to.The last I heard is that he had made a fairly good recovery but not a complete recovery like my daughter.We really appreciate how lucky we are.Incidentally whilst my daughter was in gt ormond street a little four year old boy there had gone blind after his mmr booster.I think he did recover eventually. I would never consider giving the flu jab if my asd son had previously had a reaction to an mmr booster but thats just my personal opinion.
  6. Hi My daughter had the first mmr at ten months no problems what so ever.She went on to develop entirely normally until she was four years old.She then had her mmr booster within a week she had lost her speech, her understanding, didn't answer you when you called her etc etc.Over the next three months she got worst and worst she began(unknown to me at the time) to display every autistic trait going e.g. running up and down needlessly, spinning flicking and looking at her hands, teeth grinding, sleeping for four hours a night(previously she had gone through the night at 12 weeks never had a disturbed night) she kept hiding under and in things, she made odd noises, laughed for no apparent reason, stood on her head all the time kept falling over I coulg go on and on.I was first dismissed by a health visitor and a dr as a neurotic mother(have to laugh before this in her four years I had taken her to the doctors a total of 5 times)After a couple of weeks we were finally referred after much pushing to a paediatrician, thank goodness for that old but fantastic paediatrician.He took one look at my daughter under the couch in his room and said how many children do you think I see like this.Before I could answer he said none that just suddenly go like this from one week to the next.I had a list of no less than thirty odd symptoms she had suddenly began to display.He said she is going to gt ormand street within hours she had a bed.They did various brain scans on her and after four days come to the conclusion that she had hellers syndrome late onset autism caused by the mmr although the cause could not be proved!!!!Yeah right.They predicted that was her for the rest of her life but much to their amazement within three months she was back to normal and the diagnosis was changed to autstic encephalitus of the brain. She is now 8 and a half years old has made a full recovery.She is the same little girl I had before the mmr booster and you would never know.She is popular with loads of friends and lives life to the full.The only thing she cant do is sing a fast pop song and I have read somewhere this is common if you have had a brain infection.I was told any symptons left after two years would stay.There are none left. I went on to have a son who is now nearly four.He is surprise surprise completely non vaccinated even down to his vitamin k being given orally.My daughter has never had another vaccination from that day to this.We were advised by gt ormand street that they should not be vaccinated. From the minute I fell pregnant with my son until he was two years old I suffered with depression, fear panic and anxiety attacks.I guess you could say it was post traumatic stress disorder caused by the mmr.I cant remember him as a baby I couldnt bond with him and did everything on auto piolot. In fact he is absolutely fine and i cannot see one sign of autism aspergers or anything else.I Have recently realised I have very mild aspergers and my brother and father whom I didn't know at the time(personal family reasons)I suspect of having aspergers a bit worst than mine. So yes the booster can and definately does in some cases cause a big problem.Ironically I was told she may not have needed the booster as she could well have been protected enough from the first mmr.The booster is to catch those who miss the first.A simple blood test would have told us.But guess what I was told this after the event.
  7. ceecee

    AS Teenager

    I too have aspergers and hold down a job bring up two kids run a home etc, but luckily mine is mild.I have been in the same job since I was seventeen so for ten years and I guess I wouldn't react too well to change or a job that involved making polite conversation with customers.I wouldn't have the patience>I work in an office and only have little telephone work.Best of luck in getting something sorted out.
  8. When my daughter was autistic she did the hysterical laughter thing for no apparent reason often from the moment she opened her eyes.Unfortuately I think it is just an asd thing.He might stop doing it in a few days.She did I think then it was on to something new.!!!
  9. I suffer from aspergers and I have a long history of stomach problems going back from when I was sixteen.I am now 36!Basically it is as someone else said trapped wind but comes on when I have been anxious about something.It often comes on if i have been out having a meal in a social situation or even if I have been over someone else's for tea, or just if I have had an anxious day.I have been on several occasions to the doctors and he said basically I have a jumping bowel caused by anxiety which i now know to be aspergers, although I didn't at the time.I have tried every wind tablet over the counter none of which worked.I was also told to take an orange malt drink thing which i have forgotten the name of.It didn't work.Normally my pain comes on at night and lasts throughout the night.I have at last found a solution I take two stong pain killers which are co-codamel and parocetemal mixed.I was actually prescribed this on prescription for a tooth abscess but they do work after about an hour.I'm down to the last couple don't know if any more are going to be prescribed because i am undiagnosed with aspergers as well.I once had the pain for about four days non- stop before I realised these would work.The pain is absolutely excrutiating.I hope this helps. :
  10. Hi Welcome.Just remember that you are you and have many good qualities.Be proud of who you are and if you were any different you wouldn't be you.You will find this a friendly website and you can post and chat as little or often as you need to.
  11. ceecee

    Poetry

    Hi All Just thought I would share with you this poem about my dad, whom I suspect of having aspergers.This is written through the viepoint of others as I have had no contact with him since I was five.I hope some of you can relate to this poem. A Misunderstood Man They all thought he was just shy They never knew the reason why They all thought he wanted to lock his door And people he wanted to ignore Nobody really liked him much He ruined everything he touched Christmas,Birthdays and the like Were met with great fright He liked to control everyone he held dear Trying to mask his every fear It all became too much So drink became his friendly crutch Now he had something to hide behind While his self he tried to find He knew something was wrong He knew he didn't fit in and belong The art of communication Caused him much frustration Social nicetiescaused him much despair Emotions were not something he could ever share Trouble is he was born over sixty years ago And although what was wrong was there on show No one had opened the door And gone inside to explore I guess he'll die Without ever knowing the reason why It's all such a shame that no one ever understood the reasons for his pain.
  12. Hi all would definately say eye contact lack of it i mean gets worst when someone is stressed.I have mild aspergers but no probs with eye contact whatso ever.I did ask my husband on this one to check!!
  13. Streamindreams I think some people with aspergers are unaware how they come across to other people and the things they do.
  14. Thanks all for your thoughts and advice it has definately given me mucg to think about.Cheers
  15. I was just wondering if anyone knew if people with aspergers sweat more than other people.. tired all the time.Is this common in people with aspergers?Your thoughts and comments are appreciated.
  16. ceecee

    He/She

    Thanks Noetic.I think communication difficulties come in many different ways and forms..
  17. HI I have mild aspergers and i don't really have the same need to interract as an nt person.I talk to many people throughout the day going up and down to the school playschool etc but I like my own company and thats as far as it goes.At school I had friends but never felt the need to invite them home.I was ready for time on my own.I can interract as well as anyone else but I don't have the same need to as other people. I do in fact sometimes get lonely.I need some interration.I also get bored but then I don't have the obsessions that take up my time.I guess everyone on the spectrum is affected slightly differently but we are all affected by the friends issue to varying degrees and in some way or another.Hope this posting helps.
  18. ceecee

    He/She

    I have mild aspergers and tend to start in the middle of a sentence as well .It drives my husband mad!I don't get he and she muddled up but there are lots of words I do get muddled up.Life can be tricky sometimes!I also apparently talk really fast.Does anyone know if this is common in people with aspergers?I also talk over the top of people accidentally sometimes.Is this common too?
  19. I know its tough but if they are happy like that then at the end of the day that's what's important.I think many people with as just love their own company and their obsessions and it is sadder for others than for them.Lots of them are completely happy like that.It is hard to accept them for what they are though but they just don't have the same need to interract and they rarely initiate contact.
  20. In my experiense people with as definately can and do lie.They often lie accidentally in that they have actually forgotton they have said something due to their short term memory probs.They also twist what you have said and truely believe that is ib fact what you did say, when it is not the case.
  21. Hi From what I have read I think that nigh terrors, nightmares and hallucinations are sometimes a part of as.Wether it is because of the stree people with as are under or not.I don't know.I have mild as and as achild would have vivid nightmares night after night(not hallucinations though)I still have bad dreams now.My mum took me to the doctors who described it as my brain not being able to switch off.Even now if something upsets me during the day I am awake thinking about it.When I was a child you could ask me the answers to sums and I would get them right despite being fast asleep.!!I believe there is a threadf on here about hallucinations and night terrors.It is from some time ago.Maybe Nellie would be able to help on this.
  22. Hi Liz I never had a speech delay and in fact spoke very early.However I do have problems with showing emotion and communication both in getting across what I want to say(people often misinterpret what I say) and also in understanding what is being said to me.Socially I never feel the need to have friends as such I am happy on my own but that said i will talk to all and sundry at the school playschool etc but that is as far as it goes.I like my own space.I would never have realised I had aspergers.Like you say i dont feel it has affected my life too much.I am happily married with two lovely children.Yes I stress if my routine changes etc.My daughter had autistic encephalitus after her mmr booster and still I didn't put two and two together.then I began to realise.I agree with you though that i think there are many people who have tendancies if you like but would never fully hit the criteria for a diagnosis.
  23. Jaded Do you have the link to the quiz.I'm a bit lost at knowing where to find it.Thanks.I'm sure I have aspergers but I dont have any problems with eye contact and no short term memory problems.I also interract fine but I dont have the same need to interract as someone else.I also have a fantastic long term memory in common with a lot of as people.I think maybe it would come up I have as tendancies.Not sure though.
  24. Hi everyone I wonder if anyone could help me here.I would consider i have mild aspergers.Something my husband definately agrees with.Whilst I have slight problems with communication, social difficulties, and problems with emotions.I do not have any obsessions.I read somewhere that if you do not have obsessions you cannot have aspergers.Does anyone know if this is the case?I just thought I didn't have them because my aspergers was so slight.Anyone with any thoughts on this one?Thanks
  25. Hi I was prescribed anti depressants after my daughter went autistic for 6 months after her mmr booster.I couldn't sleep, couldnt' eat and kept bursting into tears all the time.I couldn't think straight either it was like being in a fog.I came off them once she got better but then fell pregnant with my son and the depression came back with a vengence but I wouldn't take them whilst pregnant.I was advised within hours of his birth to go straight back on them which I did so obviously wasn't able to breast feed,I came off them when he was about a year old, but probably should have still taken them for a bit longer.Today I am fine but I dont think there is any shame in taking them if you need to.For me they blocked my mind from wandering back and going over and over things.I was told my depression ws depression with a known cause e.g. daughter's illness.Hopefully I'll never suffer from depression again but who knows.If I do I will take them again if need be.
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