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Suze

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Everything posted by Suze

  1. Rant away lol............your son sounds like mine at primary school, he hid under the table, had no eye contact, cried all the time and sat in class not participating at all.A OT went in to do a dyspraxia assessment and he was immeadiately urgently referred to CAMHS by her.My son was exactly the sdame with homework, he had no confidence and hated school.Things improved with a statement and when he went to high school, where he had more specialist provision.......excellent advice as always from Sally xx
  2. Suze

    Pets

    love your puppy dogs Isobel xx
  3. No Willow you are not milking your disability .Don,t let negative comments like this get you down.They don,t know you , and as many people do they are making snap judgements and feel they have the right to criticise you because you tube is a public forum.
  4. Have you approached the senco at his school ? what have they said ?..to get the ed physch on board you,ll have to prove he is falling behind academically, has he been assessed for dyslexia ?
  5. Suze

    Pets

    We have two polish lowland sheepdogs which look like Old english sheepdogs , but are smaller.They are very lovable, energetic and clever.We have a selection of chickens and ducks, about 20 or so.They are all pets too, they all have names and are very tame.We also have 3 ponies, a welsh section b chestnut mare who my daughter competes with.She is very sharp and fast and loves to jump.We have a welsh sec d mare who is a cremello, which means she was no pigment and is white with blue eyes.Shes a broodmare and we hope to have a foalie soon.Next we have a lovely sec d gelding who is dark bay/black.He came from a market and is a rescue pony, he is a lovely boy , but has been abused so is very nervous .I love animals they play a big part in my life and I would have more if I could afford it !!
  6. Our transition was to a different authority, it should,nt matter if it is the same LA or not.Good job contacting the SENCO thats the first step they should then liase with his college etc.
  7. Me ! Mossgrove JeanneA A-S warrior Trekster. ...............however my intention is to stand down when we have 4 active mods onboard, and I believe Mossgrove feels the same.So my belief is we to appoint 2 more new mods.
  8. Hi Rob, welcome to the forum......how do you feel about the diagnosis.Was it a relief or has it left you feeling confused.There are many adults on the forum who were diagnosed later in life like yourself.I,m sure you,ll feel at home here .
  9. Thanks for the update cath .What do you think your son needs now ?..........where do you feel he would be happy and would be the best placement ?
  10. Hi Michael welcome.........does he currently have a statement of SEN ? My sons school contacted the college he was going too and liased a little.Even though my sons statement did not continue post 16yrs he was well supported at college and had a fab key worker.
  11. .................oh my days ......don,t say that after the upset last week I was glad of a quiet saturday night lol. you,d have thought more people would have been on line last night.........there was NOTHING ON tv .
  12. That statement has so many meanings.........lol
  13. Thats the thing........it can be intimidating seeing the experts , sometimes there are 3 of them in a room, nurse therapist and physch and it can be scary and make you forget what you wanted to say.So a diary and evidence is great.Some parents have filmed their kids during difficult moments and shown the experts this also.Please take another adult with you to the appt for support aswell.
  14. jackiejacob, there are lots of lovely people on here who I,m sure would be cyber mates, not the same but its always nice to chat, even if its only over a keyboard x
  15. I think its knowing and recognising when the interest takes over and becomes damaging to your health.Its then trying to break that cycle.However I feel that those with AS have a brain type /disposition to become OCD in their interests.It can be a gift or a curse , its how to channel it that results in problems and suffering.(please excuse my rather krass way of explaing it aswell ) I also don,t think it is a conscious choice either.As soon as my son could crawl he actively sort out the vaccum cleaner and loved to watch and play with it.Ignoring all the usual baby toys.He then went on to lawn mowers then tractors.We lived near a farm and he would spend hours at the window watching.He channelled his obsession into a career and is now working for John Deere.I thin klike you say the key is harnessing that power and trying to channel it in a positive way .
  16. Hi worried, its good you have been referred to CAMHS.You could try keeping a diary and jotting down triggers and behaviours.The camhs team will probably go back and talk to you about how he was as a baby etc.When is your appt to see them ?.........feel for you stand up for what you feel is right and what you believe is the matter with your son , best wishes x
  17. Hi, you could phone your peads secretary and mention you have a ton of questions etc to ask.I,m sure they will let you email or phone the pead to have a chat etc.I have done this with my daughters consultant (orthopeadic surgeon)..........and am now on first name terms with the secretary.........lol.....very often patients have a consultation and are so blown away by a diagnosis etc they forget all the questions they wanted to ask...........best wishes
  18. Hi Teresa..........what has been suggested so far by the proffesionals working with him.Have they given any indication of what educational setting they think he needs ?.........if it we me I would be looking at a mainstream high school with autism resource/unit attached.My son attended one with a 28hr statement.He was supported in all lessons initially , given 1;1 in the unit and did,nt attend registration , or break times etc.He stayed within the unit.My sons areas of difficulty were learning (dyslexia ), and havoc (dinnertimes registration , walking on busy corridoors)........and socialising around others.So using the unit helped.His key worker helped him gain more independence and by the time he left he was attending some lessons on his own, mentoring other SEN kids and he even managed to go to the school prom ! I think you need to look at your grandsons areas of difficulty , every child is different.What do you think he will need from an educational setting ?I would definitely look for somewhere that has staff trained directly in Autism.You are definitely right to look at as many different schools as possible...........best wishes suzex
  19. Its not really like that in there ......lol the moderators forum is used to alert other mods about spamming, to let one another know when we have had to edit or lock a thread etc.........stuff like that x
  20. sorry if this causes any confusion, I have edited the title at Noskcaj86 request. ........(.hope thats ok for you Noskca )
  21. Just to pick up on Skimrandes comment regarding the US shooting tragedy.I was at a talk given to the Police by Prof Digby Tantam a few years back.He had researched wether those on the spectrum were more likely to commit serious crime (murder came under this )He found that anyone on the spectrum was in fact less likely to commit serious crime.......or any crime for that matter.The ratio of neurotypical prisoners compared to that with a dx of autism/as..., was 10 times that comparatively .So an autistic is 10 times less likely to commit crime than a neurotypical.I think the video games and lack of social experience were more of a factor than autism as regards the shooting in the US. ........Going back to the original thread title , As a parent I was more stricter with my autistic son , than I was with my other 2 kids.He needed firmer rules and clearer boundaries.If he ever misbehaved it was usually displayed in behaviours resulting from over stimulation, so I quickly learnt as a parent that taking him to the wacky warehouse (soft play type play place) was a bad idea as he could,nt cope with the noise and havoc there.He would become upset which to anyone else watching could be percieved as bad behaviour but was infact him not coping.He never misbehaved deliberately like my other 2 kids did .I,ve never let him use his dx as an excuse for anything, he is who h is regardless of his dx.He has grown into a very well rounded young man and I,m very proud of him and his achievements.
  22. Fab news ......well done you !!..........there are huge positives in many careers if you are on the spectrum, it does,nt all have to be negative does it, Really pleased for you, good luck with that presentation xx
  23. Skimrande .............as your not privvy to what is posted in the forum managent forum...........I,ll let you know a secret to say I,m dis illusioned would be an understatement.
  24. Hi Worried...........love your avatar.......horses are my thing too. My son was dx at 7yrs after some difficult yrs at school.What is the state of play now as regards the dr , has he given a diagnosis or referred you on ?Very often children on the spectrum will hold it together at school.Then once at home in a safe environment anxiety and frustration can manifest.Routine is a big thing, A safe quiet place.Their interest or obsession etc.After school my son could not cope with conversations, noise and chaos.I basically had to leave him in front of his favourite dvd for a couple of hours to chill out and vegetate.Not sure what your main issues are but if you put up a thread in general discussion posters will come along to help. Also initially it can be very frightening reading info from the internet.I felt the same and wondred what a dx meant for my son.He was eventually dx with aspergers, dyspraxia, dyslexia, sensory integration disorder and auditory processing disorder.If you read about them all you,d freak out.Your boy is still the same and anyone dx with anything on the spectrum is as individual as the next person.Just becauseit may say the diagnostic critera for autism somewhere does,nt mean your son will manifest or have all those symptons.My son had very difficult school years and it was thought at one time he would have to be home educated, however he went to a specialist resource at high school which helped him and he is now 17 yrs , has passed his driving test and saved for his first car, and is currently working at a tractor deal ship and is very happy and independent.Tractors have been his obsession since a toddler so he is living his dream.
  25. Believe it or not that is what happens and has happened in the past...............and what I have been doing.
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